Visit our online cancer forum today at CancerCompass.com to research topics and locate additional information and resources about after care cancer treatment. http://www.cancercompass.com/message-board/after-treatment/1,0,120.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Normal 0 false false false EN-US X-NONE X-NONE <w:LsdException Locked="false" Priority="63" SemiHidden="false" UnhideWhenUsed=" http://www.cancercompass.com/message-board/message/all,41662,0.htm SanofiAventis Thu, 19 Nov 2009 00:00:00 GMT Normal 0 false false false EN-US X-NONE X-NONE <w:LsdException Locked="false" Priority="63" SemiHidden="false" UnhideWhenUsed="false" Name="Medium Shadi http://www.cancercompass.com/message-board/message/all,41661,0.htm SanofiAventis Thu, 19 Nov 2009 00:00:00 GMT my mom  died today. thanks for all the support. http://www.cancercompass.com/message-board/message/all,41581,0.htm Pooh729 Tue, 17 Nov 2009 00:00:00 GMT i need someone to share with me whats going tohappen next to my boyfriend,  hes had his stomach removed and all the chemo avail. the doctors say thats all  - what exactly is going to happen to him now, i need to be prepared .   http://www.cancercompass.com/message-board/message/all,41498,0.htm salpal Thu, 12 Nov 2009 00:00:00 GMT Over 21 million American women have thinning hair, and one out of every four women will experience some form of hair loss in her adult life. These statistics carry emotional -- as well as physical -- implications. For over three decades the Paula Young® catalog and website has offered women access to one of the world’s largest collections of wigs and hairpieces – at affordable prices. Now, for the first time, Paula Young® has launched a new informational website that offers practical solutions, personal stories, medical advice and facts for women coping with hair loss. Paula Young® (www.paulayoung.com ) is pleased to provide women with a website dedicated to the many stages of hair loss. www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com provides a comprehensive “go to” resource for women in all stages of hair loss. This site is a timely, invaluable tool for women who are seeking answers to their many questions. The site offers medical expert advice and commentary as well as practical solutions for each stage of hair loss. Highlights of the site include candid discussion on causes, features on products to promote hair growth and volume, uses of hairpieces for cosmetic appeal and more. A complimentary, online resource, www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow"><a href="http://www.DealingWithHairLoss.com" target="_blank" rel="no http://www.cancercompass.com/message-board/message/all,41218,0.htm beautysavvy Mon, 02 Nov 2009 00:00:00 GMT Two years ago I did not have a stick of hair ANYWHERE!  Now my hair is thick long and curly on the ends,  I am 48 and never had prettier hair even when I was young.   Take Biotin supplements it will help also.   When I was bald I had a  $200.00 wig that I had bought before I lost my hair but I never wore it,  I was too sick to care.   So if anyone really needs one,  I will send it to you.  note.  I only have one. http://www.cancercompass.com/message-board/message/all,41155,0.htm anmllvr Fri, 30 Oct 2009 00:00:00 GMT Has anyone gone to a Cancer Treatment Center facility and gone through their 10 week chemo-therapy treatment and all along you are being told that the cancer is getting better then at the 10 week mark they do some final scans and the word is that they have 90% of the cancer under control but need to do surgery to get the last 10%?  This is the situation my wife went through at the Philadelphia Center and feel that this is a standard line given to patients that in actuality have a terminal cancer but CTCA goes ahead and does an unecessary surgery just for the insurance monies.  This sounds harsh but I know at least one other patient, from the Pittsburgh area, had the same story told to them as it was told to my wife and myself. Please let me know if you know anyone that had a similar situation at any of the Cancer Treatment Centers around the United States.  Thanks.       http://www.cancercompass.com/message-board/message/all,41121,0.htm georgem5 Thu, 29 Oct 2009 00:00:00 GMT Inspirational Cancer Art Exhibit Coming Soon   The Cancer Centers at CSM Hospital Ozaukee and Water Tower Medical Commons will be hosting Oncology on Canvas mid-November. This art exhibit enables us to reach patients and hospital visitors with messages of hope from others who have been touched by cancer. Oncology on Canvas is an art exhibit offered by Lilly USA, LLC, in partnership with the National Coalition for Cancer Survivorship (NCCS).   People diagnosed with any type of cancer, their families and friends, caregivers, and healthcare providers were invited to submit works of art in the form of acrylic, watercolor, oil, pastel, photography and one-dimensional mixed media. After an art competition, the collection of artwork tours on exhibit to various hospitals and cancer centers. Columbia St. Mary’s now has the opportunity to display this touching exhibit to our employees, physicians, visitors and patients. Look for upcoming dates and times in future issues of Go Beyond and on Message Board!   Columbia St. Mary’s physicians, employees and the community are invited for a gallery viewing at the Cancer Center located at Water Tower Medical Commons on Tuesday, November 17 from 4:00 to 7:00 pm, or at the Cancer Center at Columbia St. Mary’s Hospital Ozaukee on Thursday, November 19 from 4:00 to 7:00 pm.     Columbia St. Mary’s physicians are invited to attend a private gallery viewing on Wednesday, November 18th from 5:30 – 7:00 pm at the Cancer Center located at Water Tower Medical Commons, or are welcome to attend the community viewings on Tuesday or Thursday. http://www.cancercompass.com/message-board/message/all,41096,0.htm jtougas Wed, 28 Oct 2009 00:00:00 GMT My CEA number was 1.4 prior to my surgery for colon cancer and my doctor is monitoring me by checking on my CEA number every six months.  I will be having colonscopies every three years as well.  I'm worried about my method of monitoring if my number wasn't elevated when I was diagnosed.  I've written my doctor and the nurse called to tell me the information I already have.  How is this an effective way to monitor? http://www.cancercompass.com/message-board/message/all,41082,0.htm ammcmullen Wed, 28 Oct 2009 00:00:00 GMT Noticed I put September 2009 for diagnosis.  THat is wrong, it was September 2008. http://www.cancercompass.com/message-board/message/all,41074,0.htm softballgirl Tue, 27 Oct 2009 00:00:00 GMT Noticed I put September 2009 for diagnosis.  THat is wrong, it was September 2008. http://www.cancercompass.com/message-board/message/all,41073,0.htm softballgirl Tue, 27 Oct 2009 00:00:00 GMT Hello: I was diagnosed with breast cancer in SEptember 2009.  Had a lumpectomy, 4 rounds of adrymiacin and cytoxin along with 37 radiation treatments.  Finished treatments in late March of 2009 and now on tamoxifen.  Have terrible joint pain mostly in my hips and legs since treatment.  Anyone out there having the same problem? http://www.cancercompass.com/message-board/message/all,41072,0.htm softballgirl Tue, 27 Oct 2009 00:00:00 GMT I am posting this because I am scared out of my mind and don’t have any other outlets to express my fear. My 75 year old, active wife has been diagnosed with a 2¼ cm tumor on the head of her pancreas. Tomorrow morning Dr. Joe Levi of the U of Miami Medical School will be performing a Whipple on her. I have no real concern with Dr. Levi or his team. My apprehension is post operation. I am concerned about her pain, her losing all of the organs in the operation and her prospect for a “normal” lifestyle. I don’t want my wife to suffer and I want her to have a full, great quality, lifestyle. Some of the posts here indicate this is possible.     http://www.cancercompass.com/message-board/message/all,41041,0.htm amberwild Mon, 26 Oct 2009 00:00:00 GMT  www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofollow">www.DealingWithHairLoss.com " target="_blank" rel="nofol http://www.cancercompass.com/message-board/message/all,41029,0.htm beautysavvy Mon, 26 Oct 2009 00:00:00 GMT My wife has Anaplastic oligodendrglioma grade 3. She had her surgery in AUG/2007 followed by Radiation therapy Sept to Nov 2007. Her chemotherapy (Temodol) was of 8 cycles Feb-Sept 2008. Her wbc in Nov-2008 was 3.7K/ul, DEC-2008, it was 4.0 K/ul march -2009 wbc= 3.85K/ul and the latest on 13th october WBC 3.25K/ul. After completion of Chemo therapy, how and why there is gradaul drop in WBC? She is taking anti epilepsy or anti siezure medicnie Topomax 100 mg twice and Clobazm or Lobazm OR Frisium 5mg and 10 mg daily. Her Frisium dose was increased by 5mg from Jan 2009 for better control of siezures. Does anybody faced the simlilar conditions? Does anti siezure medicine will drop WBC particularly Topomax and Frisium? Thanks for sharing your experiences. rightman http://www.cancercompass.com/message-board/message/all,40993,0.htm rightman44 Sun, 25 Oct 2009 00:00:00 GMT im actuallt not not the patient, its my grandmother and I want to help as much as i can to help my grandmother recover from this she has squamous cancer it in her throat she just had chemo radiation and now she's having problems its been since april of this year since her chemo and radietion, and she now is in more pain then ever its a lot harder for her to eat drink she also now has these sores in her mouth that are very painful and looks like a the cheese on a cheesy pizza the words the docter used to describe it looked like, and exsessive bleeding being coughed up with meaty lookin stuff in it, and now the docters talkin about doing a biopsy her throat well it ended up not happening by some unusual reason that dont just always happen especialy at on the day she was supposed to have the biop we feel their was a reason it didnt happen by fate. all im askin is what do we do? is her docter doin what he's supposed to,or just caring? is it common after chemo and radiation the thigs that are happening with her throat getting worse with now very painful lumps in her throat? they say the docter forgot to put some kind of mouth peice in her mouth at each of her radiation sessions, could that be a big cause? if u feel u can answer any of these questions or just help in kind of it would be much appricieated this is my grandmothers life and we dont wanna loose it, thank u for your time. http://www.cancercompass.com/message-board/message/all,40958,0.htm savenancy Sat, 24 Oct 2009 00:00:00 GMT Does anyone know of a Cancer survivor network for Cancer patients that are still alive and well at 10+ years after treatment?I am not interested in the current liberal definition of cancer survivor as anyone who currently has cancer and is fighting it. Which should rightly be labeled false hope!  Most survivor networks that I have seen fall into this category.A survivor is someone still alive after 7+ years after total remission of the cancer without resurgence of the desease. These are the only poeple who can rightly be labled as cancer survivors.  So, any insights?? Thanks all. http://www.cancercompass.com/message-board/message/all,40803,0.htm Curingtodeath Sun, 18 Oct 2009 00:00:00 GMT I was recently told by my doctor I've had damage to my thyroid. He said it was a common problem with radation treatment for tonsil cancer. Now he says I have to take medication the rest of my life. Has anyone else heard of damage to thyroid from radation treatment for tonsil cancer. ? http://www.cancercompass.com/message-board/message/all,40809,0.htm michael55 Sun, 18 Oct 2009 00:00:00 GMT I finished up treatments for anal cancer 9/14/09. I have continued to have itching especially on the labia, inner and outer. In the last 2 weeks I have noticed small bumps and at one point encountered a boil. I have tried every cream known to man I think for the itching and nothing seems to help. I have continued to take Benadryl per my DR which now sometimes helps and sometimes not. I have had oral thrush since the first chemo treatment so DR has me on Clotrimazole troches and the thrush is almost gone. Has anyone here had the itching problem? I can't go back to work because of this. It does let up for periods of time and just seems to show up whenever and continues on for 1-2 hours. It's really maddening and has just become a plain nuisance! If anyone has any advice I would greatly appreciate it!! Thank you. :)Angie http://www.cancercompass.com/message-board/message/all,40810,0.htm Angie58 Sun, 18 Oct 2009 00:00:00 GMT Hi Ladies, yes Aromasin has severe side effects, but I am keeping it my spirit, positive despite the severe debiliating pain. Two weeks ago I had right hand surgery for mild carpel tunnel, thumb/wrist tendonitis that burned and woke me up at night. I also have had three trigger fingers on my right hand. The surgery left me w/o the use of my right hand for over 2 weeks. Two more weeks of Occupational Therapy. Now my left hand is hurting due to overcompensating for lack of use of my right dominant hand. I know it is the Aromasin, b/c this started when I got off the Tamoxifen. But I chose to believe the benefits of prevention are worth it!! Yes the risks and the side effects are severe for this med, but my Oncologist at MD Anderson Cancer center assures me that the side effects and risks do not outweigh the benefits, for post menopausal women. It is time for them to find the cure!!!!I am a Nurse, so losing the use of my hands is not an option, however losing my life not only takes my hands out of the game, but also the Nurse, the Mother, the Sister, Friend, Mentor, Counselor etc....Lets all hand in there and TRUST GOD FIRST.....HE IS the Great Healer.... "I put you in a place to need a miracle, so I could perform it"!!!         Donald Lawrence.And also my sisters, REMOVE the word REMISSION from your vocabulary, it means its gone, but you EXPECT it to return.......--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- http://www.cancercompass.com/message-board/message/all,40648,0.htm Mariah923 Tue, 13 Oct 2009 00:00:00 GMT I am in my 4th month after seed implants. The pain and slow starting urnation seem to be getting worse. Some time it takes my 5 minutes to get a stream started and the burning get quite intense. Is this normal? http://www.cancercompass.com/message-board/message/all,40531,0.htm 1benny2 Fri, 09 Oct 2009 00:00:00 GMT My husband had his colon removed in 2002 and has a permanent ileostomy. He had 2 immediate surgeries for scar tissue adhesions. When we left the hospital after the 3rd surgery, he was 86#'s and they left his wound open to heal. He worked his was back to the healthiest I had ever seen him. Even with the ileostomy, his quality of life was so much better. They had left 6" of his rectum in place. He was diagnosed with a cancerous rectal tumor in Sept. '08. He had 6 weeks of 24/7 chemo with daily radiation treatments. He had the rectum removed on Dec. 29th. They were able to reduce the tumor to almost nothing and removed it all. He started having issues that mimicked an intestinal blockage just as his radiation ceased in Nov. '08. It is now the 1st of Oct, and he is in so much pain and vomits daily, if not more. He's losing weight daily. The Dr's first thought was to let him work through this. We finally went to a second Dr after giving it months. The ran the first follow through tests this week since Jan. He has referred him to a surgeon, the diagnosis is scar tissue adhesions again. This is a scary proposition for us both. He hasn't had good luck with abdomen surgery, and now months later, his body is so weak. We spend weeks and months in between Dr's who want to take responsibility for him. They keep sending us to someone else it seems and he just gets lost in the cracks of it all. Right now he can hardly lift himself from a chair without help, and we have to wait another week to even see the surgeon. Has anyone had to deal with small intestinal adhesions with a permanent ileostomy? We could use a success story right now. http://www.cancercompass.com/message-board/message/all,40285,0.htm snowchic11 Thu, 01 Oct 2009 00:00:00 GMT I had a HIFU 15 month ago. My PSA after treatment was 0.05, no side effects and felt great. Last two weeks I have problem with urination. First it was slower flow ending to a total shut down, so I ended in the Emergency room and got catheter installed. They removed catheter after three days, but it did not work and I have catheter reinstalled. Tomorrow I am seeing my urologist, do not know what he will say or do. Has anybody ever had similar problem. They told me that it is common occurrence after HIFU. http://www.cancercompass.com/message-board/message/all,40310,0.htm PCSurvivor100 Thu, 01 Oct 2009 00:00:00 GMT It has been 5 months since my husband finished his 35 radiation and 3 chemo treatments.  His PET scan came in today, and the doctor said that it is still showing borderline activiity in the lower neck. He is scheduled for a neck dissection on Nov. 5th. He has been through so much these pass 8 months and was just beginning to eat this pass week and back to work after being off for 6 months.  He still has the PEG tube, and doesn't look like they will be removing it since he is going to have the surgery.  When the doctor checked him a few weeks ago looking down his nose and Throat with a tube, he said that he didn't see any activity going on, but lets wait and see what the PET scan shows.  And it did show activity going on still. He said that he would not go through Chemo and raditation again. He was not going to suffer with the pain, being sick, not eating and being in the hospital. I told him there's no choice if you have too then you got too, or you will die...he said he would rather die then go through it again.Patty http://www.cancercompass.com/message-board/message/all,40225,0.htm Proxielocks Mon, 28 Sep 2009 00:00:00 GMT My husband was treated for a GR II Astrocytoma with 6 weeks radiation and oral Temodar. It has been a year since he finished and he still gets really tired in the afternoon and has stomach issues. I was wondering if this is just the after effects of the treatment and if anyone can tell us if they will go away.Thanks, http://www.cancercompass.com/message-board/message/all,40084,0.htm demomto3 Thu, 24 Sep 2009 00:00:00 GMT