From conventional to alternative treatments, our cancer treatment forum lets you share stories, research and information with others. Explore our online resources at CancerCompass.com. http://www.cancercompass.com/message-board/cancer-treatment/1,0,129.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband is 52 and recently diagnosed with stage 4 rcc.  He finally started on treatment of Sutent 50 28 on and 14 off.  He is day 3 of the first off cycle.  The side effects have been miserable.  I had to get him a hospital bed and a wheelchair on week 3 because of the severe debilitating hip pain ( site of met).  The pain only lasted about a week but the mouth problems are terrible.  He is already talking about not taking the medications anymore or asking for a reduction in the dose.  His mouth has been sore but the worst part is a numb feeling on the very back part.  It makes him feel like he is going to choke to death while trying to eat.  The only foods he has been able to eat is crustless bread soaked in pinto bean juice and icecream in small amounts.  The bean juice causes gas pains and so he fusses about having to eat that all the time.  He is ready for food and seems to be trying and his appetite is coming back but the sensation is not yet going away.  Anyone out there have this same symptom and what did you do about it.  I thought about the magic mouth rinse but it makes the same feeling, like you cant swallow.  He is scheduled for retesting on December 1st and if that is good he will have partial kidney removed on the dec. 17th. Thanks in advance for any feedback. Cindygale  http://www.cancercompass.com/message-board/message/all,41715,0.htm cindygale Sat, 21 Nov 2009 00:00:00 GMT Dear All, My son had 'biphasic synovial sarcoma' in left ankle in 2006. Surgery, radiation and chemo followed. The disease has metastasied now in his lungs. There are multiple nudules near lungs. He has received three cycles of chemo -Gymcitabin + Docetexole-. Review shows no control . Rather new mass has come up in this duration. What can be given? Please help.  http://www.cancercompass.com/message-board/message/all,41700,0.htm anupsidhu Sat, 21 Nov 2009 00:00:00 GMT Breast cancer returned after 16 years in remission and I was diagnosed on 9/15/09 as stage 4 with bone mets.  I am on my third round of Zometa and Herceptin infusions and taking Arimidex daily.  I am curious to talk to anyone else that is on this same drug regimen.  I have not had alot of side effects to speak of since the start of this protocol, but my last Zometa was two days ago.  I'm achy and nauseous and have a headache and am assuming it is the Zometa. http://www.cancercompass.com/message-board/message/all,41649,0.htm ssivertsen Thu, 19 Nov 2009 00:00:00 GMT EXPLAINS THE THREE PHASES: http://www.cancertutor.com/AltTreatments/Alt_About.html 1. PHASE ONE: Cancer Treatment. Stages are rated according to the strength of the treatment. Strongest and fastest alternative treatments: Stage IV treatments are for the most aggressive and very advanced cancers. http://www.cancertutor.com/Other02/AdvTreatments.html Strong stage III treatments: strong enough for many cancer patients, but not for the most aggressive cancers or for very advanced cancer patients. These treatments can generally be combined with each other thus increasing their strength. Stage I, II and III are for those recently diagnosed (e.g. they have not had extensive chemotherapy or raidation) and do not have a particulary dangerous type of cancer. When to use stage IV treatments and when to use Stage I, II, and III treatments. http://www.cancertutor.com/Other/RuleOfThumb.html 2.  PHASE TWO: Remission treatment supercharges the immune system, kills remaining microbes and cancer cells, rebuilds cells to build a resistance, and maintain a diet so you are not at risk. http://cancertutor.com/Remission.html 3.  PHASE THREE: Prevention makes sure the cancer does not return http://www.cancertutor.com/Prevention.html Cachexia cycle: Lactic acid cycle: Why cancer patients lose so much weight: http://www.cancertutor.com/Cancer/Hydrazine.html     http://www.cancercompass.com/message-board/message/all,41647,0.htm dlucas Thu, 19 Nov 2009 00:00:00 GMT Hi, My dad is having a stent put in place near his liver/bile duct monday morning.  He has terrible jaundice as one of his tumors is growing over the bile duct, blocking it. Has anyone had this proceedure done?  How long after the stent was put in place did your colour return to normal and the severe itching to stop?  (bile salts etc trying to escape through the skin cause this itching apparently).   thanks   http://www.cancercompass.com/message-board/message/all,41519,0.htm mumof2boys Sat, 14 Nov 2009 00:00:00 GMT Hi, My name is Jade and my mother has been battling with GIST Cancer for four years now but it is now in a very critical stage. The tumours are on her liver, her bowel, there are heaps of them ): My mother was first put on Gleevec but then there was complications so was then put on Sutent. The side effects were much worst and so she was then put back on the gleevec. It seemed to be working for a while but that was short lived. Her doctor then put her on Nexavar which seemed to be working but then the tumours grew even more and now the tumours are worst and so is the pain. She is currently in hospital under pain management as it is too much. Is there any other GIST cancer treatments that might work? I just want to help my mum. We do not know the make-up of the tumours and she's only 39. Is there anything else we can do? Thankyou. http://www.cancercompass.com/message-board/message/all,41503,0.htm jadeemily Fri, 13 Nov 2009 00:00:00 GMT I found the point of sameness of plant based food and potential of cancer cure.the point of sameness of plant based food is the Lack of calories.When cancer patient is starving, the blood sugar level and the concentration of amino acid is getting lower. normal cell need only few nutrition. In few nutrition, perhaps normal cell doesn't divide. only few of essential part will divide cautiously.cancer cell always tries to divide even if cancer patient is starving.this difference is very important to cancer cure. Even if same amount of nutrition is supplied for cancer cell and normal cell, cancer will be starving and will die with starving in few nutrition supply but normal cell leave some nutrition in few nutrition supply because of supplied nutrition is much more than its need.I guess that the side effect of starving can be controled while starve as a cancer treatment.Since I found this imfortant fact, I sent e-mail to many cancer institute many countries but they never responded for me.korean entertainer(TV star) Lee Eui Jung got a brain tumor, size of tumor is 7cm(2~3inch).her doctor said that her life left 3months to 18months in 10,July,2006.2 months after without any chemo therapy or surgery, her tumor almost disappeared size of tumor is smaller than 1cm. and doctor found some inflammation around tumor.1 year after doctor said to her "I guess that you cured brain tumor completely!"Lee Eui Jung said "I became fat since tissue examination. while take a tissue examination, my brain get some damage so I can't feel contentment of my stomach.and I always feel so hunger. when my waist size became 32inch I decided to go on a diet. My father allowed me only half bowl of boiled rice in a day. Once, some day because of my hunger I take dog's food from dog for eating."the strory of TV star Lee Eui Jung is real. I attached a link about brain tumor and Lee Eui Jung and believable source  this is internet english news. but It's doesn't give full detail of her fight story about brain cancer. If you can read korean you can find more detail.  http://kpopfan.com/lee-eui-jung-makes-her-comeback-as-a-sing  http://www.yesasia.com/us/lee-eui-jung-reengaging/1021216665  http://www.allkpop.com/index.php/full_story/lee_eui_jung_mak half bowl of boiled rice is only 150kcal. I guess that it maybe important evidence. When cancer die with starving, the dead tissue of cancer tumor is not the cell of the cancer's owner. owner of cancer tumor rejects(Medicine. The failure of a recipient's body to accept a transplanted tissue or organ as the result of immunological incompatability; immunological resistance to foreign tissue.) dead tissue of cancer tumorany dead tissue of normal cells also induces rejection. every dead tissue destroyed by white blood cell. when white blood cell destroys dead tissue, surrounding cells of dead tissue also destroyed by white blood cells. so survivors(survived cancer cells) in few nutrition also destroyed by free radical of white blood cells. free radical is strong weapon of white blood cell. white blood cells make free radical from oxygen. free radical destroys every thing no matter what this is reason that why surrounding cells of dead tissue also destroyed. inflammation is symptom of free radical.Many people believe that vegetarian diet is good for cancer. And many scientist tried to find out certain factor which is important thing as cancer treatment from vegetables and fruits. But, remarkable factor is not revealed in the world. So this writing is for the discovery of the factor. And perhaps side effect of surfeit of vegetable is the factor. For determine whether low blood sugar which is side effect of surfeit of vegetable is the main factor or have no relation to death of cancer, amount of sugar essential and total of sugar supply are partially calculated.A human cell has about 2.8billion(1) base pairs(or about 5.6 billion base) and 2.8billion base pairs have 11.2 billion deoxyriboses as a DNA back bone(2). Deoxyribose and glucose are sugar. So glucose maybe used as a raw material of DNA back bone. And for 1.12e+10 deoxyriboses, 3.3477e-12 g glucose may be essential as a raw material of deoxyriboses.The number of cancer cells is about 2000/mm^2(3) and the density of microvessel is about 200(count)/mm^2(3) and the average diameter of microvessels is about 10μm(). One microvessel of 200 microvessels in 1cm length of tumor is surrounded by 4472 cancer cells.2000/mm^2 times sqrt{2000/mm^2} times 10mm div 200/mm^2 approx 4472.136 The concept of a cancer cell is a point. And the concept of a microvessel is a line.Cancer cells which surround one microvessel must needs 1.4971e-8 g glucose per 1cm as the raw material of the deoxyriboses.The blood flow velocity is about 0.49 mm/sec in capillaries(4). If the average blood sugar level is 100mg/dl, total amount of glucose which passes through a microvessel of10μm diameter is 3.323376e-6g/Day.1.4971e-8 g is about 0.45% of 3.323376e-6g. But it's not calculated that how percent of 3.323376e-6g glucose is absorbed by 4472 cancer cells. And it's sure that 4472 cancer cells consume more glucose than 1.4971e-8 g.For calculating the percent of the absorption, osmotic pressure and diffusion velocity must be considered. And it must not ignored that the convection must be limited among the cancer cells.Most cancer cells starve(die) and 4% of survived cells induce KRAS Pathway Mutations in 9mg/dl glucose(5). This means that low blood sugar induce the necrosis of cancer cells. Besides, the density of microvessels in tumor have relation to cancer returns(6).Under 70mg/dl glucose in micorvessels may reach under 9mg/dl glucose among cancer cells. One microvessel manages about 40μm from itself. 40μm is 8 times of radius of microvessel of 10μm diameter. Cancer cell which closes to microvessel will absorbs more sugar than enough so another cell may absorbs less sugar than essential amount. Besides, the glucose concentration in a micorvessel of the cancer tumor will be getting lower as blood flows(figure1). Figure1 explains that why huge tumor have disadvantages in low blood sugar level.The calculation is not completed. But if someone completes this calculation, every things will be sure. Or if someone who has cancer maintains low blood sugar level(under 70mg/dl), we can know the relation between blood sugar level and cancer growth.At last, the change of dietary has relation to avoid cancer death(7) no matter that the relation are strong or not. The important thing is that perhaps the induced low blood sugar by vegetable based diets are the main reason to avoid cancer death. The concentration of amino acid also needs to consider.The purpose of this writing is to informing that to maintaining low glucose may be better treatment than chemotherapy. All of cancer patients have to know that perhaps to maintaining low blood glucose(always under 70mg/dl) is enough good as a new cancer treatment.Figure1. Concep http://www.cancercompass.com/message-board/message/all,41285,0.htm evilstriver Thu, 05 Nov 2009 00:00:00 GMT Any idea on treatment of NHL with Rituxan? Does it work really? http://www.cancercompass.com/message-board/message/all,41214,0.htm josha Mon, 02 Nov 2009 00:00:00 GMT hi, my husband was told on Feb.16,2009 that he had pancretic cancer. he was told here at home in N.C. there was no hope so we went to the cancer treatment center in Penn. he received 5 weeks of IMRT radation 1 week off and then started chem.2weeks on and one week off.The chem was gemzar. oxiplatin,and erbituck. This was very aggressive. He was in alot of pain and very sick. he lost alot of weight over 100lbs. My husband of 40 years passed away on July 15,2009 only 5 months later. Now his insurance company is saying his treatments were experimental and investigational and will not pay for his treatments. we were not told this when he was having treatments and now his hospital bill is outragous. Has anyone else had this problem and can tell me what i can do. I work at Wal-Mart and there is no way I can pay a bill at almost 200,000 dollars. thanks for listening http://www.cancercompass.com/message-board/message/all,41174,0.htm murldeat Sat, 31 Oct 2009 00:00:00 GMT Please, I would much help in meeting the medication in use ipilimumab compassion. We have medical indications in Brazil, but the Bristol laboratory is suspended the release of new cases since it is in data analysis. I help in finding a medication that my father can use while the second group of laboratory studies is not released. I help !!!!!!!!!! Please return to amail virginiaschell@hotmail.com Phone: 51 81164074 (Porto Alegre, Rio Grande do Sul, Brazil). If you find anywhere in the world, I'll get back to you. Fraternal hugs! Virginia Leo Schell Or other HELP !!!!!!!!! In Brazil, the treatment is in Porto Alegre with Dr. Barrios Hospital Mother of God. http://www.cancercompass.com/message-board/message/all,41144,0.htm virginiaschell Fri, 30 Oct 2009 00:00:00 GMT Has anyone heard of the experimental treatment out of Canada that has had some superior results. It's called DCA which stands for Sodium Dichloroacetate and it's used with caffeine. Well, I don't know that much about it, but I know of a vet who used it on a dog with Bladder Cancer and the dog had amazing results. Of course, it's used on people too and there have been some outstanding results. Just wondering what others might have heard about it. I live in Phoenix and can't find any vet here that even knows about it. But some vets around the US are trying it. The website I found is www.thedcasite.com   My 15 year old Beagle has a huge tumor in his bladder and the vet I go to has just given up. I wish I could find a vet that uses DCA as a treatment. Thanks for listening.   http://www.cancercompass.com/message-board/message/all,41136,0.htm hounie Thu, 29 Oct 2009 00:00:00 GMT Has anyone gone to a Cancer Treatment Center facility and gone through their 10 week chemo-therapy treatment and all along you are being told that the cancer is getting better then at the 10 week mark they do some final scans and the word is that they have 90% of the cancer under control but need to do surgery to get the last 10%?  This is the situation my wife went through at the Philadelphia Center and feel that this is a standard line given to patients that in actuality have a terminal cancer but CTCA goes ahead and does an unecessary surgery just for the insurance monies.  This sounds harsh but I know at least one other patient, from the Pittsburgh area, had the same story told to them as it was told to my wife and myself. Please let me know if you know anyone that had a similar situation at any of the Cancer Treatment Centers around the United States.  Thanks. http://www.cancercompass.com/message-board/message/all,41117,0.htm georgem5 Thu, 29 Oct 2009 00:00:00 GMT Hi, My name is Mark and I am a Protocel Coach. I have setup a new blog where I would like to interview people who have used Protocel, whether you were successful with it or not. Did it work for you? If not, do you have any opinions on why? Or do you think Protocel is a scam and want to vent...let me know, because I think all discussion on any topic is valuable both positive and negative. You can zip over to my blog at ProtocelCoach.com " target="_blank" rel="nofollow">http://www.ProtocelCoach.com I will give you my balanced opinions. I think Protocel works well for some people and not for others. I also dont think anyone should think of Protocel as a "treatment" for cancer, since it is a dietary supplement and not approved for treatment of ANY disease, including cancer. We all know the FDA and government rules...and I think thats fine to play by the rules. Anyway, drop me an email at my blog. We might interview you by phone, record it and post it at the blog, or just jot down some notes and post up your story. Others can learn and make up their own minds. Regards Mark E. ProtocelCoach.com http://www.cancercompass.com/message-board/message/all,41083,0.htm ProtocelCoach Wed, 28 Oct 2009 00:00:00 GMT hi all, My dad has been battling pain for 6 weeks now, with it being very severe in the last 10 days and getting worse each day.  4 days ago, he was told he had bowel cancer, spread to lymph nodes and liver.  We are still awaiting biopsy and surgery....but till then we need him on some decent pain relief.  What do you recommend?  What kind of pain relief is needed when your insides are covered in cancer?  He is taking a paracetamol/codeine combination at the moment but that is doing absolutely nothing.  Dad is off to the doctor today.  He cannot sleep at night as lying down causes the pain to flare up even worse. I just pray his doctor gets him on something decent, because this pain is not helping him cope with the shock and fear of the Dx, it's making him increasingly depressed and we need to be positive, i know. http://www.cancercompass.com/message-board/message/all,41038,0.htm mumof2boys Mon, 26 Oct 2009 00:00:00 GMT Anyone else on this? Thanks, Bonnie http://www.cancercompass.com/message-board/message/all,41019,0.htm Bonphire Mon, 26 Oct 2009 00:00:00 GMT HI THERE I HAD MY STOMACH REMOVED IN APRIL 2009 I WOULD LOVE TO KNOW FROM PEPOPLE WHO HAD THE SAME THING HOW IS THEIR QUALITY OF LIFE CAN YOU LIVE A NORMAL LIFE ALSO WIHT EATING. I AM SICK AL THE TIME PLEASE RESPOND I AM DESPERATE. IS THE SUCH A THING AS STOMACHTRANSPLANT   http://www.cancercompass.com/message-board/message/all,40960,0.htm WONDEROFALLAH Sat, 24 Oct 2009 00:00:00 GMT My 41 y.o nonsmoking husband had terrible reflux, wt loss and abdominal pain  all this summer  and after many many visits to the primary doctor and gastroenterologists and no improvement with treatment for reflux, finally ended up in the Emergency Dept for the ongoing pain and had a CT 3months into this,  which shows 8cm mass in pancreas and metastatic disease to liver and celiac plexis lymph nodes. Stage 4. inoperable. He is in small community hospital right now. where they offer standard Gemcitabine/Tarciva and 1 clinical trial with Gemcitabine +Kanglaite. we're trying to decide for 2nd opinion. Any thoughts re: UCSF vs. Stanford vs. CPMC. and Any thoughts regarding Kanglaite?Any help would be appreciated. http://www.cancercompass.com/message-board/message/all,40817,0.htm sophieuma Mon, 19 Oct 2009 00:00:00 GMT My husband has Stage IV Lung Cancer..  They were unable to start Chemo because they found a brain tumor metastasis.  This Cancer Institute sounded very good at first, telling us we'd have a team of Radiation and Chemo Oncologists, Nurses, etc. and that they would meet every two weeks to go over treatment plans.  They were going to start Andy on Radiation, but then they got the results of more tests that showed Late Stage, Terminal Lung Cancer and said he would have to have Chemo first. The day we went for his first Chemo, they said he'd have to have Radiation first, because of a brain metastasis.  We've heard nothing from any "team" and his Radiation Oncologist just flies down the hallway and can rarely be caught to answer a question.  Andy just completed 15 whole brain radiation therapy treatments.  He has to go back in 4 days for a "Mega blast" to the tumor itself.  His head is bright cherry red, with multiple deep burns with scabs, open sores behind his ears and on a few spots on his head and face.  Yesterday he caught the doctor long enough to tell him his head hurt and itched severely.  The doctor told him to use 1/2% Hydrocortisone cream on it.  It is not helping at all.  Does anyone know anything that would help his poor head? http://www.cancercompass.com/message-board/message/all,40782,0.htm CoriM Sat, 17 Oct 2009 00:00:00 GMT For anyone out there about to get any major surgery.look into cell saver or cell salvage machine.It is a machine like a dialasys machine . They suck up the blood you loose , clean it and put your own blood right back into you!Seems like a no brainer to me.Less expensive (by far) and much safer.DennisAny out there tried it! http://www.cancercompass.com/message-board/message/all,40721,0.htm Dennis_In_Ga Thu, 15 Oct 2009 00:00:00 GMT I was wondering if anyone has heard of MDX-1106. http://www.cancercompass.com/message-board/message/all,40725,0.htm julie3 Thu, 15 Oct 2009 00:00:00 GMT I am Post-Whipple (2003) with recurrence in the Liver and now in the Bone.  All my tests showed no significant activity until March of last year.  I was told there were innumerable tumors (though small in size) throughout the liver, and had a Liver Embolization.  Then I started Sandostatin Depo and continued that for 5 months.  I was told a few weeks ago that the cancer continues to multiple in the liver with several tumors in the dome of the liver.  I was also told that the mets have now appeared in the T12 Vertebrae.  For this I am currently undergoing Radiation of the spine.  When this is finished I "may" be a candidate for another Liver Embolization; but my Oncologist tells me that there is no way they can effectively treat all the tumors with this method.  Has anyone out there had a like experience and would be willing to discuss any other options for treatment; or just general conversation for support over the next few months? http://www.cancercompass.com/message-board/message/all,40651,0.htm Granna1 Tue, 13 Oct 2009 00:00:00 GMT Hello,my friend has a desmoplastic small round cell tumor in an advanced state and I had seen that since the autum came she´s worse. She follows a special diet for cancer so good that she took away the morphin, but now, suddenly needs it again. Please, can someone tell me if the change of season could affect negatively.Thanks. http://www.cancercompass.com/message-board/message/all,40581,0.htm Zipporah Sun, 11 Oct 2009 00:00:00 GMT How does this medicine affect the lip? http://www.cancercompass.com/message-board/message/all,40461,0.htm old_paw Wed, 07 Oct 2009 00:00:00 GMT Hi,My husband has CLL and already had two chemo treatments for it. There has been a lot of side effects and no good prognosis. I am looking at alternative treatments right now but haven't seen any CLL patients.Any feedback about Protocel or other treatments for Chronic Lymphocytic Leukemia?Thank you. http://www.cancercompass.com/message-board/message/all,40421,0.htm Wife_of_a_CLL_patien Mon, 05 Oct 2009 00:00:00 GMT Hello,       This is my first post. I found out August 31 2009 that I have eg juncntion cancer at stage 3. A few weeks later I had a port placed in my neck with a box thingy in my upper chest where they can access it. This port is a God send since it took 'em 3 tries to find a vien for an iv. Three days later I recieved my first big batch of chemo and was also put on a chemo pump to deliver chemo to me 24/7 for the next 12 weeks. Every three weeks I get another big dose of chemo that takes all day. I get very sick after the big chemo trips for several days. At the end of this 12 week cycle it's more pet scans to see if it's working...and if so I'm going in for major surgery. They are going to take out most of my stomach and part of my esophogous. After that, more chemo with the addition of radiation. I've read that Iv'e got about a 20-50% chance of living for more than 5 years...we'll see.I'll tell ya',  I'm scared to death. I worry more for my family than for myself. What if I don't make it? I've got bills, lot's of them. My life insurance isn't to good. It won't even cover half of what I owe. I checked about getting more life insuance but was told I'm uninsurable with this diagnoses. I'm 44 married with three kids...a 22, 19 and 17 year old. I was planning on bringing my debt under control over the next 10-15 years as the kids move on...but now.....I don't know. I'll tell you this, I've got alot to live for and will fight this thing all I can. but if it gets to the point to where all I'm doing is taking them into further debt...I'm not scared to die, I'm just worried about my family. Who's going to fix a flat tire in the middle fo the night. Or take care of a overheatd radiator. Who's shoulder will they cry on when things go wrong for them. Nobdy takes care of your kids like you can. How about when one says,"I think I want to get married but...." And I'm not thier to lend advice.God, if your reading this, I'm ok with what I'm fixing to go thru because I know your here with me...just let me make it thru, not for me but for them. Amen http://www.cancercompass.com/message-board/message/all,40347,0.htm Archer180 Sat, 03 Oct 2009 00:00:00 GMT