Our popular cancer forum at CancerCompass.com is a helpful source of community feedback and support. Explore our online resources today to research additional information. http://www.cancercompass.com/message-board/cancers/1,0,119.htm Sun, 26 May 2013 00:00:00 GMT Sun, 26 May 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi all, I've been given the 'all clear' of cancer which was the best news ever! I did undergo the initial run of chemo and radio but than decided to continue with just an alternative approach. I've written a report on my journey back to health which will hopefully assist others. I've compiled quite a bit of information on nutrition, treatments and on mind and body work. If you would like to receive a copy I would be happy to email it as hopefully it will be beneficial for you or for your loved ones. Love and Health, Sylvan sylvanmarcel@gmail.com http://www.cancercompass.com/message-board/message/all,45137,0.htm sylvanmarcel Thu, 18 Mar 2010 00:00:00 GMT My mom told me that she doesn't want me to talk about my cancer unless someone specifically asks me about it. I find this very frustrating and makes me feel lonely. She said "Cancer is depressing and no one wants to talk about it or hear about it." It's not like it's the only thing I talk about. But it does feel like a huge elephant in the room because people are afraid to ask about it too. And what about MY need to talk about it? What about MY need to feel loved and supported through this? My best friend isn't handling my situation well, so I can't talk to her... I've decided to see a therapist and have sought out a local support group for stage 4 cancer patients.   I'm going through a major life-changing event in my life - and I'm not "allowed" to talk about it???  Thanks alot for being there for me mom when I really need you and the family to help me through this... http://www.cancercompass.com/message-board/message/all,59845,0.htm Jenholm25 Mon, 06 Jun 2011 00:00:00 GMT I am 38 years old and about 4 years ago I went to my doctor with a tender lump on my hipbone which he said was a lipoma and nothing to worry about but I insisted it be removed. I consulted a surgeon that also agreed it was a lipoma. I had it removed in day surgery with just freezing and the surgeon called me 3 weeks later to inform me that it was a liposarcoma, stage 1. I then had to have sugery to scrape tissue to make sure that it was all gone and that I would not need radiation treatments, which I did not. The year after that I found a tiny lump  beside my bellybutton which was removed and found to be non-cancerous. I just had a check-up and there is now a lump in my abdomen on the same side as the original liposarcoma on my right hip. I am worried that it  could be the same thing. I have to go for more tests to see. Just wondered if anyone else has had a similar experience and could offer some guidance or support. Thanks. http://www.cancercompass.com/message-board/message/all,23992,0.htm kellyluvsdogs Tue, 13 May 2008 00:00:00 GMT  If you have cancer, please check out MMS and Jim Humble. They have great results from people of all cancers getting healed. My mum died from cancer last May. She never got to try this out, but I so wish she had. However, I just want everyone to know about this as an alternative. You are many families out there desperate to find a cure for your cancer. The MMS is worth checking out. I have followed MMS news for a year now, and I can not get if off my mind. I just had to inform everyone. MMSnews.org http://www.cancercompass.com/message-board/message/all,71648,0.htm iduna Tue, 07 May 2013 00:00:00 GMT http://www.weiku.com/products/18487639/Scorpion_Venom_freeze http://www.cancercompass.com/message-board/message/all,71599,0.htm dream1986 Thu, 02 May 2013 00:00:00 GMT My mother is under treatment for Breast (left) Cancer. Now her left hand is showing some sort of strengthlessness. Is it a symptom of cancer disease? Please reply.. http://www.cancercompass.com/message-board/message/all,71584,0.htm slsrilil Wed, 01 May 2013 00:00:00 GMT Hi I am 21 almost 22 years old I have had problems with my period and ovarian cysts since I first got it when I was 11 years old. In the past year I have become extremely tired all the time constantly feel like crap, could sleep for days, bloated, gassy, peeing all the time and so on. I was wondering when and how anyone was diagnosed with ovarian cancer? I have a cyst that's been sitting on my ovary for 8 months they've been watching they blow me off cuz I'm young but it keeps growing causing me pain and I know there is something wrong with my body is their a specific doctor I should see? http://www.cancercompass.com/message-board/message/all,71579,0.htm paradisebabyyy8 Wed, 01 May 2013 00:00:00 GMT Hello, I hope you can help me, I'm new to this site and I'm looking for a little advice / reassurance. In November 2011 whilst working in Asia I became ill with suspected Avain Flu. Since this point onwards I have suffered with extreme fatigue, sore throat, swollen glands, (groin, neck, underarm), muscle and joint pain, headaches, sore neck, nausea, etc. I initially saw a respiratory specialist who identified a nodule on my left lung, belived to be either a swollen gland or calcified nodule. I was then referred to an infectious disease specialist and all manner of blood tests commenced. I have been tested for Dengue, Tb, HIV, Melioidosis and many more diseases. Bloods showed anti body count slightly elevated for Melioidosis, Epstein Barr and Influenza. They also showed a reduced RBC count and elevated WBC count. All through this my left tonsil has been mishaped and occasionally pus comes from it. Over the last week My ear became very painful and jaw joint feels swollen, also my jaw and cheek has a numb sensation. The tonsil has recently reduced in size. My arm feels painful and I have the sensation of lots of gland activity in the neck and collar bone area. It has been confirmed that my ear canal is very mishaped and full of pus. I have been given anti biotics. I now have more swollen glands appearing on the back of my neck. I have had my glands checked via ultra sound 3 weeks ago and I'm due to go back to have them checked again on the 25th of Jan 2013. I have a history of Lymphoma in my family and I am concerned that to date no one has performed a biopsy on any of the glands or taken a CT / MRI of my head and neck region. I am worried that the tonsil issue may have progressed inwards towards my neck, throat, ear etc. No one seems to be taking this seriously though. Current working diagnosis is Chronic Fatigue Syndrome induced by Viral illness / stress. Should I be insisting on a biopsy and CT's now? The glands have been swollen for over 12 months and two of them in my neck are very hard and tender, any exertion makes them throb and hurt more. I hope you can help me. Regards, Kieron. P.S. 41 year old male from the U.K. used to smoke about 10 cigarettes a day.   http://www.cancercompass.com/message-board/message/all,70011,0.htm kieron1709 Wed, 16 Jan 2013 00:00:00 GMT About 8 weeks ago, my mum was diagnosed with breast cancer after a routine screening process. She was booked in to have the lump removed a few weeks later. During that time her stomach has swollen to the size of a football and now her feet have also swollen. Mum has been a big drinker and smoker all her life but in last 12 months she has lost so much weight. The hospital have now postponed her breast cancer treatment following some blood tests and has had some kind of nucular injection and is having a scan on her stomach. Mum is loosing weight rapidly and is very skinny and as always we want answers now. Can anyone share any similar expereriences? Many thanks. http://www.cancercompass.com/message-board/message/all,71558,0.htm Ctslh Mon, 29 Apr 2013 00:00:00 GMT LOOKING TO CONNECT WITH OTHER FAMILIES OF CHILDREN WITH ET.  MY DAUGHTER DIAGNOSED WITH ET AT AGE 7. http://www.cancercompass.com/message-board/message/all,71526,0.htm ETMom Sat, 27 Apr 2013 00:00:00 GMT Are there any surgeons at CTCA that have successful experience removing masses from a "frozen pelvis"? My father has a recurrent bladder cancer after radical cystectomy chemo radiation tb injections etc. about 8 years ago. Last summer an oncologist performed a colostomy gave my father a 12 week course of intense chemo with plans to do a reversal of the colostomy. My father has had 2 heart attacks and the chemo was not completely successful. Now that the chemo is done he has large abscesses within the mass and nobody wants to touch him, including the oncologist who originally said she would do a colostomy reversal. This oncologist says my father has a frozen pelvis and he is too high risk of bleeding out to perform a resection. I need to find a surgeon who wants a challenge and has experience with frozen pelvis. He does not have much time. Please help. Michelle Pooler http://www.cancercompass.com/message-board/message/all,71482,0.htm xrayvision78 Thu, 25 Apr 2013 00:00:00 GMT Dear Brothers/ Sisters, My mother got diagnosed with Carcinoma breast in the left breast on June 2012. She is diabetic for the last 2 years, but no medication has been taken till now for it. Then started the treatment in Ayurveda for the same and is continuing till now.  In between the treatment the swelling in the breast started growing big and one month back pus started coming out of it. When we discussed with the doctors who are treating her, they told it as a good sign of cure and told that as soon as the pus will be gone from it, the pain will be gone. She is feeling so also. We used to take check the blood samples throughout the treatment and I am furnishing the reports which we took fortnightly. DATE RBS CREATININE RBC HB(%) PLATELETS(lakhs) TC ESR 14-Aug-12 301 0.6 4.4 12.4 2.8 7800 0 12-Sep-12 212 0.6 4.38 12.6 2.92 9100 0 12-Oct-12 313 0.6 4.2 12 2.6 7800 0 8-Nov-12 357 0.6 4.19 12.4 2.9 9000 0 19-Dec-12 332 0.6 4.3 13.1 2.8 7700 44 15-Jan-13 322 0.6 4.31 12.4 3.06 9200 53 27-Feb-13 405 0.6 4.43 12 3.4 9400 73 26-Mar-13 378 36 3.97 10.3 4.3 9100 118 23-Apr-13 373 0.5 4.35 10.8 7.91 29600 125   Now in the last result of blood report, it is found that the Platelet Count is 7.91 lakhs/cumm, Total Count-29600cells/cumm & HB-10.8 gm%.  Our doctors are saying that this is common in this treatment and will be cured soon. My request is to get the information regarding her current health status. What more should be done to make her come back to back health. Regards Srilil Kerala/India http://www.cancercompass.com/message-board/message/all,71444,0.htm slsrilil Tue, 23 Apr 2013 00:00:00 GMT I had my iliac crest removed and had my fibula placed there to hold it all together. I was just wondering whether anyone knew anyone else who's had this done and whether they are able to walk again. http://www.cancercompass.com/message-board/message/all,71395,0.htm Lukedavis Fri, 19 Apr 2013 00:00:00 GMT The Journey Home Drive-a-Thon was conceived by Benjamin Viele and Alexander Rodriguez upon hearing the Stage 4 cancer diagnosis of Ben’s grandfather and in memoriam of his best friend’s passing to cancer. Benjamin and his friend, Alexander, are driving from California to Benjamin’s hometown and alma mater in Illinois to perform a cabaret fundraiser at the Hoogland Center for the Arts July 27th. ...At the finale of this performance the duo will present the American Cancer Society (celebrating its 100 year anniversary) a check from their fundraising efforts, with 100 % of the proceeds to benefit the organization. Along this 2,937 mile, week-and-a-half journey – the duo will travel by RV and stop at five major cities (Orange, CA, Phoenix, AZ, Austin, TX, Atlanta, GA, & St. Louis, MO) to perform a Kid’s Cabaret at the Commission on Cancer (COC) Hospital Pediatric units to lift spirits, raise awareness and become more educated about this debilitating disease.   Please PLEASE help spread the word: www.facebook.com/thejourneyhomewithbenandalexander http://www.cancercompass.com/message-board/message/all,71383,0.htm TheJourneyHome Thu, 18 Apr 2013 00:00:00 GMT I'm 41 and I had my first mamo a few weeks ago followed by a repeat mamo and ultrasound.  A small lump was found and I was scheduled for a core biopsy.  The results found the lump to be a fibroadenoma.  My GP was the one who ordered the mamo and he can't tell me anything about fibroadenomas other then the results say it's not cancer and to continue with yearly screens. Can anyone tell me more?  "Dr. Google" can be a scary thing and not the best source of information, but it suggests that at my age I shouldn't have a fibroadenoma?? I'm uncomfortable with the fact that my GP is unfamiliar with these and just brushed it off.  Should I see someone or just take the wait and see approach? http://www.cancercompass.com/message-board/message/all,70422,0.htm cookkie71 Sun, 10 Feb 2013 00:00:00 GMT Please read our web site and let me know if you need oncology products  ; www.dnslondon.co.uk   http://www.cancercompass.com/message-board/message/all,71356,0.htm DenisLondon Tue, 16 Apr 2013 00:00:00 GMT I was just diagnosised with Polycythemia Vera.  This scared me to death.  My Hematologist told me that my case is a mild one.  He wants to start out with Phlebotomy this week and then again in two weeks.  Then we will see where my levels are at.  I guess the word Cancer is just scary and depressing.  But reading some of the comments on this site and also knowing that as long as you get treatment, and are monitored closely this is a non-fatal cancer.  Even though it says it is a rare disease, seems more people have it.  http://www.cancercompass.com/message-board/message/all,71318,0.htm kdusin Sun, 14 Apr 2013 00:00:00 GMT Hi Everyone - I have had PV for 12 years and been fortunate enough to have decent  and steady results form phlebotomy alone.  My white counts however have been staying in the mid to upper 20's range for the past year and my itching (pruritis) has really hit an uptick the last 7-8 months.  My question is: does an increase in the itching also mean that there is additional scaring occuring in the bone marrow?  My second question is:  anyone currently doing Pegylated Interferon for a treatment therapy?   My doctor and I have been discussing and he seems to favor it as next step.  Thank you all Spike http://www.cancercompass.com/message-board/message/all,71327,0.htm soundman33 Sun, 14 Apr 2013 00:00:00 GMT I was diagnosed with Ewing's sarcoma of the left iliac crest on November 2011 I had a years chemo aswell as radiotherapy and surgery. I had my iliac crest removed and replaced with my fibula and was wondering if anyone else has had this done and how they are managing with it and whether there able to walk normally again http://www.cancercompass.com/message-board/message/all,71324,0.htm Lukedavis Sun, 14 Apr 2013 00:00:00 GMT I am 16, and was diagnosed with stomach cancer back in October of 2011. I have tried different chemotherapies, radiation, salvage chemos, and proton therapies. I have lost my hair and I've had multiple surgeries. It has eventually spread everywhere, and now they're focusing on the brain cancer and leukemia. Anyway, my parents and I have chose to keep this very private, although I was hopsitialzied a few weeks ago and almost didnt make it through, and they announced it at school. However, some people are saying I'm lying, and I'm afraid my teachers are believing it even though they have notes and emails from my doctors. What should I do? http://www.cancercompass.com/message-board/message/all,70892,0.htm SierraGoodman Wed, 13 Mar 2013 00:00:00 GMT Forgot to add...Metastic Malignant Melanoma.  Did full strength Pegalated Interferon ( Sylantron ) for 2 months...have been on1/2 strength for 3 months. anyone else doing this treatment?  So far has messed with my thyroid  (Now on meds for that )  Fatigue, bones hurt. Weekly shot, self injected sub-q     http://www.cancercompass.com/message-board/message/all,71248,0.htm JulyNutkin Mon, 08 Apr 2013 00:00:00 GMT Into treatment 5 months...anyone else doing this? http://www.cancercompass.com/message-board/message/all,71247,0.htm JulyNutkin Mon, 08 Apr 2013 00:00:00 GMT Hi, My dad has esophogeal/stomach cancer.  He had chemo first, and that almost killed him so they decided to go ahead with surgery and had to close him up as cancer had spread too far.  He then had 5 weeks (totally of 25 treatments) of radiation.  He now has severe pain in his stomach. Not sure whether due to tx or tumor.  He describes this as a burning, almost like heartburn.  He is on pain meds - lots, as well they have tried a prilosec and also a med used for ulcers that is supposed to coat stomach.  These last 2 were to maybe reduce the acid, etc., and help in that way.  Well, nothing working so far.  Any ideas?  Thank you!! http://www.cancercompass.com/message-board/message/all,70913,0.htm eliseb Thu, 14 Mar 2013 00:00:00 GMT My mom is 87 and was just diagnosed with ampullary cancer, 1st stage.  Her doctor suggested we see a surgeon....we did and he wants to do a whipple.  I've heard it's a risky operation and a very tough recovery.  At 87, I'm not sure it's the best route.   Has anyone gone through this operation at this age? http://www.cancercompass.com/message-board/message/all,71193,0.htm sandyha Thu, 04 Apr 2013 00:00:00 GMT Anyone been to Cancer Treatment Centers of America.  I have an appointment there and they seem like they could be well worth the 2,000 mile trip.  Looking for some feedback to decide if it is worth the trip for treatment for a rare cancer. http://www.cancercompass.com/message-board/message/all,68754,0.htm jeankchome Fri, 19 Oct 2012 00:00:00 GMT