Our popular cancer forum at CancerCompass.com is a helpful source of community feedback and support. Explore our online resources today to research additional information. http://www.cancercompass.com/message-board/cancers/1,0,119.htm Mon, 21 May 2012 00:00:00 GMT Mon, 21 May 2012 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Recently (FEB-2012) I had a small bowel resection to remove a tumour near the ileum. The pathology report came back stating it was neuroendocrine tumour with lymph node metastasis (9 out of 18 were involved). I had several follow up tests (5H1AA, CT, Octeride scan) they have all come back normal. I am still having symptoms that ihad before the diagnosis (hot flashes, bloating, consipation). My GP tested me for menepause as I have not had a period for 3 months now, I am 39 years old. Looking for any advice, is it possible they removed it all and the symptoms are something else. http://www.cancercompass.com/message-board/message/all,66293,0.htm kimdawn Mon, 21 May 2012 00:00:00 GMT Hi,I have a friend who have just been diagnosed with PEComa cancer last year. It's a very rare cancer according to the doctors here in Singapore. Can some kind soul please help? http://www.cancercompass.com/message-board/message/all,19679,0.htm larissa Sun, 13 Jan 2008 00:00:00 GMT Can anyone give me some information about what the future holds for me.  I am stage four.  I have had cancer for 2yrs.  I donot get very much information from the Doctors.  Thanks http://www.cancercompass.com/message-board/message/all,55980,0.htm Estrolli Thu, 17 Feb 2011 00:00:00 GMT Watch out for would-be scammer on these boards. I've reported their creepy (and poorly written) message to admin. If you get a message from PROMISE12 don't answer! Likewise if you get a message that sounds overly-sincere and wants to have a 'private message' session. (Our in-boxes are private anyway -- dumba#*es) They're phishing or looking for your $$$.  http://www.cancercompass.com/message-board/message/all,65895,0.htm serviette Sun, 29 Apr 2012 00:00:00 GMT I just had a notification of a message from Promise 5. It had nothing to do with cancer. It was all about making friends and exchanging emails. I did NOT respond. Please be careful!! Mary Ann http://www.cancercompass.com/message-board/message/all,66103,0.htm teachoz Wed, 09 May 2012 00:00:00 GMT I am new to the site after searching Google for information on neupogen injections. I didn't see a topic on the message board for ovarian cancer and thought I would start one.  I was diagnosed in 2010 with Ovarian cancer which I have found the least information on when it comes to people speaking out about it. I was diagnosed in stage IIIC, which is statistically common. I went through 8 rounds of chemo and major abdominal surgery. One year after my last chemo treatment, the cancer had returned. I had my 2nd round of chemo two weeks ago. I'm beginning to have more complications than I did the first time I went through chemo treatment, my doctor isn't quit sure why but it seems the issues are isolated. One week after getting chemo, my medical port site became infected and the port had to be removed. During my second treatment, I had a seizure and was rushed to the emergency room. I'm getting neupogen shots each week because my levels seems to not be improving.  If there is anyone that can relate to what I am going through or has had ovarian cancer, please respond with your experience and suggestions.  http://www.cancercompass.com/message-board/message/all,65342,0.htm mymischelle Mon, 02 Apr 2012 00:00:00 GMT The question of what is LIFE for me come across my mind this morning .Good question ! What is LIFE for stage IV cancer patient like me . Did think about it before and after 3 over years of living with cancer, I would like to share with you what is in my mind for LIFE since the day I'm living with lung cancer.LIFE is full of uncertainty , as anything can happen in next moment and we will not know what to expect.LIFE is full of surprise, unexpected JOY and HAPPY news did happen from time to time.LIFE is sweet with all the LOVE , CARE , SUPPORT from Lord, family , friends .LIFE is full of challenge, as I have to always study , reseach what is next treatment , what is next supplement to try , what is ... . LIFE is to live everyday with JOY and share my JOY and HAPPY moment with others.LIFE is to enjoy every precious moment with my family .Sometime, I feel upset with the body condition changes ;I feel the pain because of treatment ;I feel depress because I don't know what is the future ;I feel ...But, this is LIFE . Be it healthy or sick , at time we will feel upset with things, we will feel pain because of some issues, we will feel depress because we do not know what to do next in our personal life , our career .So, it is nothing wrong .What is important is I have accepted the fact ;I have learned how to live with it ;I have learned not to let the situation control me ;I have Lord , family , friends support me with Love and Care ;I have Lord with me to guide me walk out from darkness to light .LIFE is WONDERFUL .Let's not give any chance for the small 'c' to make our life miserable, we do not deserve it.LIFE is wonderful and colourful.The small 'c' will find it is no fun to stay in our body and decided to leave and we will be set free of cancer, as we will not give in to it , we will not let it make us worry , fear , depress, sad. We will continue to stay firm to LIVE our LIFE with JOY .Live well and be Happy .God bless. http://www.cancercompass.com/message-board/message/all,65244,0.htm SKMalaysia Tue, 27 Mar 2012 00:00:00 GMT My little princess was just diagnosed with TCC in March.  It started back in December with blood in her urine which they thought was a bladder infection so she was put on an antibiotic.  Then the bleeding wasn't going away with medicine so they took x-rays they said it was bladder stones so she had surgery to remove the stones on January 9th and when the bleeding didn't go away after antibiotics they suggested to put her under once again for a swab of the urethra area, that came back suggesting TCC they said I should go to Purdue University to get a biopsy so I set up an appointment.  A week before we were supposed to go there penelope could not urinate so I called the vet again they drained her bladder with a needle and said I should go to Purdue to get the biopsy and have an emergency stent put in.  So my husband left work early and my parents watched our kids so we could go to Purdue which is 2 hours fron our home.  She had to put put under once again (this was the 3rd time since January 9th, she's a trooper)  Purdue put the stent in and did the biopsy and  confirmed the worst TCC. I am devastated and feel so lost and confused as to what to do.  We had 3 opinions and started to treat her with chemotherapy and Peroxicam per Penelope's oncologist at Purdue.  Yesturday was her 2nd chemo treatment.  1st one didn't go so well.  We go back to the vet Thursday so she can get a B12 shot with fluids and a shot for vommiting.  Please say a prayer.  She had a urinary tract infection last week which put off this second chemo treatment til yesturday so I am a little scared.  I question myself wondering if this is the right path to go.  I feel like I'm walking on a tightrope and whichever way I lean I am gong to fall. http://www.cancercompass.com/message-board/message/all,65946,0.htm penelopesmom Wed, 02 May 2012 00:00:00 GMT I have an oligodendroglioma grade 3 brain cancer. There is no cure, and even if the tumor goes away by surgery or chemo, it will grow back. I was diagnosed in August 2008. I did about every alternative thing I read online, consulted a naturopath, ate healthy foods, exercised, took lots of supplements, had 2 surgeries, chemo and radiation. The tumor stopped growing after the chemo/radiation in June 2010. But it started growing again in May 2011. The dr told me to have a good summer and said I would probably have to start a new chemo in September. I became a vegan in June 2011. The September 2011 MRI showed no tumor growth and I didn't have to start a new chemo! I had another MRI yesterday, and the tumor is still stable. Becoming a vegan is the only thing that has stopped the tumor from growing. I know God is keeping it from growing and gave me the signs to become a vegan. He is keeping me healthy, strong and faithful so I can get through this. I just wanted to let everyone know. I wish I had known years ago. Take care! http://www.cancercompass.com/message-board/message/all,65741,0.htm shariv Sat, 21 Apr 2012 00:00:00 GMT Please keep in mind that many of us fighting advanced stages of cancer are either on these programs or trying to get on these programs as we fight for our lives. I worked 50-60 hrs a week for 20+ years.  I had to leave a career that I loved.  I still have private insurance (as secondary insurance, medicare is primary).  But without SSDI & Medicare, my family would be on the brink of financial ruin. Just, please keep those of us fighting cancer in mind when you think of these programs. Thank you, Jen Holm Stage 4 Carcinoid Cancer patient http://www.cancercompass.com/message-board/message/all,63015,0.htm Jenholm25 Tue, 22 Nov 2011 00:00:00 GMT We are looking to collect information pertaining to medical second opinions. How they can advocate for the patient. There is thousands of us on this board and your opinions would mean a lot. We are trying to advocate for the patient so please take 1 min and help us out! http://www.surveymonkey.com/s/8NBLZ6V http://www.cancercompass.com/message-board/message/all,65830,0.htm jcs52368 Thu, 26 Apr 2012 00:00:00 GMT different types of surgery...would like to talk with some one whom has had surgery   http://www.cancercompass.com/message-board/message/all,65788,0.htm barbara.diebold Tue, 24 Apr 2012 00:00:00 GMT If you need to talk too, just jup in.  http://www.cancercompass.com/message-board/message/all,65758,0.htm donnaann Sun, 22 Apr 2012 00:00:00 GMT If you need to talk too, just jump in.  http://www.cancercompass.com/message-board/message/all,65759,0.htm donnaann Sun, 22 Apr 2012 00:00:00 GMT Go to http://www.facebook.com/FightToLiveOrg, answer the question and look for The Breakthrough List. http://www.cancercompass.com/message-board/message/all,65735,0.htm fighttolive Sat, 21 Apr 2012 00:00:00 GMT HI to everyone, I am new to this site.  I have been diagnosed with PV since 2005, was getting phlebotomys every three wks to keep hct in check, red cell count still high so was put on low dose of hydroxyurea 500mg per day starting Feb-2012, still have headachs and fatigue, so my question is can PV be or is it stabilized with this med? or is this a life time of treatment. Regards Shannon   http://www.cancercompass.com/message-board/message/all,65635,0.htm shannonmottes Mon, 16 Apr 2012 00:00:00 GMT Many individuals here are on SSDI and will be elligible for Medicare in 2 years.  There are tv ads for Part D and advantage plans and it can make your head spin. Does anyone have some helpful advice for determining best way to determine needs?   Any tips? http://www.cancercompass.com/message-board/message/all,65245,0.htm Katherine62 Tue, 27 Mar 2012 00:00:00 GMT I have a story to share with everyone and I would like you to take a look. It is about my story of survival and beating cancer You can too!  www.cervicalcancerhelp.info http://www.cancercompass.com/message-board/message/all,65538,0.htm weez1967 Wed, 11 Apr 2012 00:00:00 GMT A large amount of ascites were developed in my mom's abdomen. And also a large amount of cancer cells were detected in the ascites. However, NO tumor were found from any part of her body by CT, MRI, or PET scan. What's going on? Has anyone seen this kind of problem before? My mom was diagnosed with advanced cancer in different part of her body 2 year + 3 months ago. Half year later, after many times of chemo, the tumors shrank to a size small enough for curative surgery. 1 year+ 4 months later, now the ascites appears as mentioned above. http://www.cancercompass.com/message-board/message/all,65411,0.htm Gordon30 Thu, 05 Apr 2012 00:00:00 GMT hi...is taking hydroxyurea will cause hair loss?....i was taking hydroxy for 5months already (polycythemia vera) i noticed i am having hairfall and my hair is no longer healthy as it is ....thanks in advance...godbless http://www.cancercompass.com/message-board/message/all,65393,0.htm maryannesteiner Thu, 05 Apr 2012 00:00:00 GMT Hi, My husband has tonsil cancer and he just finished round of antibotics for rash from Eurbetex(sp?). And they started another round yesterday.  His mouth was fine yesterday and today it has whitish patches.  Does anyone have any home remedies until he can be seen on Monday, it is painful. Thanks http://www.cancercompass.com/message-board/message/all,65324,0.htm ratwoman6 Sat, 31 Mar 2012 00:00:00 GMT As I posted before I have two neck masses that were found on ultrasound in december  8mm solid mass with color flow under right ear; 10x4x14 nodular density with color flow right lateral neck.  I went to general surgeon that gp and endo sent me to for biopsy; he referred me to an ent who made fun of the situation but did order a ct ( which was misread but it did show lymph node growth on left side with a cyst vs polyp in sinus) but to make a long story short; I was referred to another ent due to fact three doctors including general surgeon say I need a biopsy.  I have seen the 2nd ent who in turn put me on three weeks antibiotics.  these masses have been there now for over a year.  they have grown and now you see them with neck movement.  My neck hurts unbearable at times.   My gp, endo and the general surgeon say I have to have a biopsy but getting it done seems to be an issue that I don't think is happening any time soon.  I see the endo on monday; my gp on tues and 2nd ent again on wednesday to see if antibiotics worked; which they didn't.  My gp and the endo said when they called to see outcome of 2nd ent that antibiotics weren't needed due to fact gp had given them to me back in July.  I knew the masses were there when I went to the gp in July ( I only went due to extreme fatigue).  I can not do daily activities that once were so easy.  I have a history of cardiomyopathy and had thought that might be my problem when I started having the fatigue.  It wasn't the cause.  I need advise on what to do when I go back to the ent on wednesday and he still doens't do a biopsy.  The general surgeon and my gp and the endo have all stated they thought I was looking at cancer.  I took the disc of my ct films to the new ent and he stated it was read wrong and he was glad I brought the disc.  He said I have multiple lymph activity on both side and the masses were or looked to be lymph nodes.  But as I stated he placed me on antibiotics.  I am just in a quandry due to fact the masses have been there for so long but they have started to hurt really really bad.   When they first came up and over the entire time of my knowing they were there have never hurt til now.   I want to feel better.  I can't do anything anymore due to tiredness.   I go to shop for groceries and can not complete the store and have to be brought home.  Has anyone ever had a hard time with doctors?  Should I just let the masses be.  My doctors have looked for causes other than cancer for the cause of them being there.  My life hasn't been an easy one; my mother died of cancer at the age of 35; my father died at the age of 36 of wilson's disease.  I had mono when I was in my early thirties; the general surgeon told me that was important for me to tell doctors.  I hope that this has made some sense as I know I can jump around.  The new ent is supposed to be one of the best and he did say it could possibly be cancer but he did things his way not because another doctor tells him what to do.  I only went to him because the gp and the endo called me at home and pushed me to go after I cancelled first appointment due to being scared of going through another episode like I did with the first ent.  My son was with me and witnessed that.  I'm very disillusioned with the medical field these days.  Please any tips or advise will be greatly appreciated.   I think this is a wonderful sight.  It is wonderful to know that people can reach out to others in this day.  God places angels in our lives at times we don't even see it. God Bless and sorry for the long message. Janey http://www.cancercompass.com/message-board/message/all,65206,0.htm alajaney Sun, 25 Mar 2012 00:00:00 GMT I was diagnosed with Adenocarcinoma stage 4 w/unknown primary site in December, 2010.  I was wondering if anyone else has this diagnosis? http://www.cancercompass.com/message-board/message/all,61374,0.htm pacac Mon, 15 Aug 2011 00:00:00 GMT In times of strife, pain and loss, people are often looking for sources of hope or understanding, or simply to feel less alone, or more normal. I've gone through this myself and in due time, I've realized that silence is poison and have become inspired to provide an outlet for others.As a result of all this, I am in the process of writing a book and am looking for "Dear God" letters-essentially, letters or e-mails addressed to God (or Buddha, Mary, Jehovah, Allah, etc.) that address a particular aspect of your life or life in general. They can be signed off by you, a pseudonym (as long as you're not using someone else's name), or they can be anonymous. The letters can be long or short, funny, insightful, or heartbreaking, about life, death or anything in between-all I ask is that they're honest. They can be from the devout and faithful, those questioning or atheists. I will be pitching this to literary agents, so there isn't a guarantee it will get published, but that's obviously the end goal. If interested, please only submit your own original material that you own the rights to, and nothing that's been published, uploaded anywhere or submitted to anything else. If you prefer to submit through the site I've set up for this book, then you can go here: http://deargodlettersunsent.weebly.com I hope to hear from some of you in letter form. Thanks to anyone who submits.Now for the legal stuff: By submitting a letter to me, the author, you, the submitter, are granting me and/or my future publisher the right, but not the obligation, to use the submitter's name and relevant personal information if submitter requests that he or she be identified. The submitter agrees that all submission are original, have not been posted, uploaded or otherwise expressed elsewhere online or in any type of print or digital posting or publication. Submitter agrees that their submission does not defame any person or infringe on any copyright, right of privacy or other right. It is understood that by submitting a letter to author that a grant of rights to use the material in a book, e-book or other publication or digital publication is granted, as well as an assignment of the copyright of the letter. This includes but is not limited to foreign translations, electronic publishing, and film and other dramatic uses. http://www.cancercompass.com/message-board/message/all,65267,0.htm SilenceisPoison Wed, 28 Mar 2012 00:00:00 GMT U TUBE- FORBIDDEN CANCER CURES. YOU WILL BE ANGERED AND SADDENED THAT THIS CAN HAPPEN TO ONE HUMAN BEING FROM ANOTHER ALL IN THE NAME OF THE DOLLAR. http://www.cancercompass.com/message-board/message/all,65236,0.htm CURES Mon, 26 Mar 2012 00:00:00 GMT