|
Message
|
Carcinomatous meningitis
|
|
|
Hi,It´s good to know some histories and at the same time very sad to know how many people soffer from this in the world.Right now I am in Brazil and my mo...
|
|
View Reply
|
| 2 | 04/05/07 |
|
|
|
Message
|
Ignorance is Bliss Sometimes
|
|
|
I've learned alot in this chat room. Have empathy for those that are going thru the final days and the symptoms of this Spent hours looking up t...
|
|
View Reply
|
| 2 | 04/05/07 |
|
|
|
Message
|
Changes in breathing
|
|
|
I don't post very often but I do read the messages every day. This site has been a blessing. I have been able to find many answers to my que...
|
|
View Reply
|
| 3 | 04/05/07 |
|
|
|
Message
|
Dad can not sleep
|
|
|
My father has not been sleeping AT ALL lately, he is trying too, but cannot. The doctor gave him sleeping pills but that does not work either. He body twitches ...
|
|
View Reply
|
| 11 | 04/05/07 |
|
|
Message
|
burzynski clinic
|
|
|
has anyone gone to the burzynski clinic in houston for astrocytoma brain cancer? we are looking into it, and would like any feed back.thanks!gail
|
|
View Reply
|
| 46 | 04/05/07 |
|
|
|
Message
|
pinpoint radiation
|
|
|
My husband Bobby, 64, was dx Dec.5, 05 surgery, radiation and 6 months Temodar. His scans were finally good for 6 months in March they found a spot in a n...
|
|
View Reply
|
| 2 | 04/04/07 |
|
|
|
Message
|
cns lymphoma
|
|
|
Would love to hear from any one wirh cns Lympnoma
|
|
View Reply
|
| 2 | 04/04/07 |
|
|
|
Message
|
offering hope
|
|
|
Hi, I'm new. I read messages on this board and want to offer hope to those dealing with brain tumors, especially gbm. M...
|
|
View Reply
|
| 8 | 04/03/07 |
|
|
|
Message
|
my mom passed
|
|
|
After a 22 month battle with this horrific disease, my mom passed away at 11:10 pm last night. She went quickly and painlessly. I wish you all the best and and ...
|
|
View Reply
|
| 14 | 04/03/07 |
|
|
|
Message
|
Update on John
|
|
|
Hello everyone,We are back from U.C.S.F. and here's the scoop:1) No new tumor regrowth; 2) New damage from radiation (necrosis); 3) Increase Keppra (seizure...
|
|
View Reply
|
| 2 | 04/03/07 |
|
|
|
Message
|
side affects of temador
|
|
|
i have recently found out i have grade 3 astrocytoma. i will be starting radiation and temador this week,i understand that there may be nausea, and am prepared....
|
|
View Reply
|
| 16 | 04/03/07 |
|
|
|
Message
|
Life After Cancer
|
|
|
My Name is Nicholas Pasquesi:I had a 'Medulloblastoma', tumor on the brain stem, about the size of a golf ball. I was diagnosed on Oct 12, 1998, an...
|
|
View Reply
|
| 2 | 04/02/07 |
|
|
|
Message
|
Update on Brother - AA3
|
|
|
He had his 11th radiation treatment today and is on his 11th day of temador. He seems to be getting weaker and tires a lot easier , but his speech has improved ...
|
|
View Reply
|
| 3 | 04/02/07 |
|
|
|
Message
|
GBM Vaccine at Stanford
|
|
|
Is anybody here?? I need the contact name. Thank you. Keep up the fight!
|
|
View Reply
|
| 1 | 04/02/07 |
|
|
|
Message
|
Carboplatin & Etoposide
|
|
|
Dad was dx with GBMIV in Aug. Total resection in November followed by 33 IMRT and 42 days of Temodar. One month later began 5/23 regime of Temodar. ...
|
|
View Reply
|
| 0 | 04/02/07 |
|
|
|
Message
|
Delayed reactions to Dilantin
|
|
|
Has anyone on the board had problems with delayed reactions to Dilantin? My husband has been taking it every day since he was diagnosed with GBM in A...
|
|
View Reply
|
| 10 | 04/02/07 |
|
|
|
Message
|
Glioblastoma treatments
|
|
|
As a glioblastoma patient who is doing well, I wonder how many have looked at vaccine therapy down the line assuming there is no evidence of residual disease. I...
|
|
View Reply
|
| 2 | 04/01/07 |
|
|
|
Message
|
Recipes - cake, muffins, cooke...
|
|
|
Hello Everyone,My brother who has Glioblastoma Multiforme IV has always had a sweet tooth. We know that sugar feeds cancer. Looking for healthier re...
|
|
View Reply
|
| 2 | 04/01/07 |
|
|
|
Message
|
Dr. Benerji's ruta6/Cal Phos T...
|
|
|
Hello Everyone,My brother has Glioblastoma MultiformeIV. Has had 2 resections and is on Temodar (5 on/21 off). Since surgery, he has developed Atria...
|
|
View Reply
|
| 0 | 04/01/07 |
|
|
|
Message
|
So many questions
|
|
|
I read so may posts regarding the GBM. As I've mentioned before my brothers diagnosis is a mid grade aa. When I first heard that I thought - well - "it...
|
|
View Reply
|
| 9 | 03/30/07 |
|
|
|
Message
|
Front Right Lobe GBM IV ?
|
|
|
Is there anyone who has had GBMIV in Right Frontal Lobe? If so has the symptoms and prognosis been pretty much the same?
|
|
View Reply
|
| 6 | 03/30/07 |
|
|
|
Message
|
steroid help
|
|
|
HelloMy husband, diagnosed with a GBM in Feb. 2006, has been on this steroid, Dexamethasone off and on for most of that time, for swelling. He has been on...
|
|
View Reply
|
| 4 | 03/30/07 |
|
|
|
Message
|
Avastin &CPT-11???
|
|
|
My son is going to start this new treatment soon. The side affects sound pretty bad. Anyone have experience with this? He's not doing well...
|
|
View Reply
|
| 9 | 03/29/07 |
|
|
|
Message
|
MISSING MY MOM GREATLY
|
|
|
to all, i have not been posting on this sight since i lost my mother to gbm on 1-21-06, it has just been too painful to continue reading about so many who ...
|
|
View Reply
|
| 7 | 03/29/07 |
|
|
|
Message
|
Need some help
|
|
|
My husband is just finishing up with radiation and Temodar. I talked with Dr. Friedman at Duke for a 2nd opinion and treatment plan for him. We live...
|
|
View Reply
|
| 7 | 03/29/07 |
|