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off we go
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John and I are leaving for San Francisco this weekend. John has an M.R.I. on Monday. As some of you know, it has been an aweful month for us so we a...
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| 2 | 03/29/07 |
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Has this happen with anyone
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My mom went to her regular doctor the other day. They checked her eye sight. We new she was having problem with her left eye. But the doctor s...
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| 1 | 03/29/07 |
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Dad's MRI results
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We are back from Duke. We had great results! We met with Sprague the PA-C first and he told us the MRI looked good and it was better than the one in Feb. which ...
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| 5 | 03/28/07 |
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Palliative care for dpg
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My 9 year-old niece is going through the hardest times in her life. It's 10 months since her diagnosis(May 2006), and this past week she has had headaches e...
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| 1 | 03/28/07 |
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recurrance
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My poor Mommwho did wonderful through her fight with gbm for one year just has a occirance nad the family decided on not extroidanray measure and I disagredd sh...
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| 3 | 03/28/07 |
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Praise God! Some good news for...
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Ed had his second MRI on Thursday last week and we saw the Neurosurgeon this morning. The area that they suspect of being tumor regrowth has shrunk considerably...
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| 6 | 03/27/07 |
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Supplement Poly-MVA
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My husband has GBM 4, I am concerned he is taking Poly-MVA because of the metal it contains and possible problems with MRI. His family decided it is ...
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| 3 | 03/27/07 |
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Brother Fell
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OK - we were only 5 days into radiaton and he took a tumble on Sunday night. Also only five days of Temador - 165m. He had polio as a child...
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| 5 | 03/27/07 |
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Need help with giving care to ...
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I was blessed by being able to navigate to this site somehow and would like to communicate to those that may be able to feel my plight with caring for my ...
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| 5 | 03/27/07 |
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Brain Stem Glioma
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Recently I recieved a copy of the phase II results of the Burzynski Clinic's brain stem glioma trials through the FDA.The results were for 110 patients trea...
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| 4 | 03/26/07 |
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Symptoms during radiation (GBM...
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Hi all, My dad was diagnosed with GBM IV in 01/07. He had a craniotmy and is now about halfway through his 33 treatments of radiation therapy. ...
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| 3 | 03/26/07 |
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cns lymphoma
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please i would love to talk with anyone that has or know any thing about cns lymphoma; like to talk thanks --- Message edited by CancerCompass staff: for person...
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| 2 | 03/25/07 |
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Husband with Stage IV Glioblas...
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Hi. I left a message a couple of weeks ago, and had so many loving responses. We changed our plans and he is now doing chemo/radiation, Temodar, her...
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| 1 | 03/24/07 |
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Low grade glioma
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HelloDoes anyone know much about a low grade glioma? My friend's docs think she has a small one. If they operate, do they have about the same ch...
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| 3 | 03/24/07 |
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I am trying to contact someone...
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My name is Pablo. I am the father of Jorge (8 years old), who has Brain Stem Glioma (Astrocytoma). He had a Byopsi and is now under radiotherapy and Temodar (fo...
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| 2 | 03/24/07 |
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Dad's MRI
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MRI Hi everyone.I am writing to ask you to keep my dad in your thoughts and prayers. It is MRI time again. This time it will be different for us. He will be get...
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| 1 | 03/23/07 |
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MRI
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Does anyone know, what does edema on an MRI look like compared to tumor?
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| 2 | 03/23/07 |
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New to this site
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Hi all, I came across this site while trying to find information about gliosarcoma brain tumors (which, apparently are a very rare form of glioblastomas).&...
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| 6 | 03/23/07 |
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A Loss of a Warrior
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John is now at peace. I pray that peace may now come to his loving wife and to his family in the days ahead. It is is with sadness that I have read ...
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| 3 | 03/22/07 |
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my mom
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hi everyone, well my mom is sleeping around 20 hours a day, she can still eat, but she dosnt eat much she dosnt talk hardley any.i am so nervouse that it is gon...
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| 2 | 03/22/07 |
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question for Johns Wife
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Hey there!I had a question... you wrote that your husband has been on Temodar for two years... Does his Dr. feel that it is keeping the tumor at bay or what is ...
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| 7 | 03/22/07 |
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Another Brave Warrior ends his...
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My darling warrior age 52 years has today Thursday 22nd March 14.05 lost his battle after a 22 month battle with GBMIV. He Fought so long and so hard.
Dia...
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| 16 | 03/22/07 |
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DCA
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I just discovered this website this evening:www.buydca.comFor those familiar with the Dr.Michelakis and his DCA experiment...does anyone have info regarding thi...
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| 1 | 03/22/07 |
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New diagnosis - Glioblastoma -...
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My mother-in-law just diagnosed with stage 4 glioma tumor.starting radiation and temador on Monday, Mar. 26, 2007.Any tips? Help on what we're in for ...
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| 13 | 03/21/07 |
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First MRI after external radia...
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My husband is in his final week of external radiation. His doc said we would have to wait 6 weeks after radiation for a MRI to see if tumor had ...
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| 7 | 03/21/07 |
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