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i Walked!!!!!!!!!!!!!!!!!!!!!!...
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the walk was amazing!!!!!!!!!!! last i heard- in the midst of the crowd- was that a million dollars was raised! there were over 2000 people there!!! it was sooo...
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| 4 | 10/29/06 |
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Bob/amnia/everyone/meeting Tom...
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Okay- I have to make this short because I have to leave my house in 10 minutes and leave for the City for the Walk!!! :)
Here's our dilemma, please respond, as...
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| 0 | 10/29/06 |
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Auditory Hallucinations
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My husband has been in the hospital all weekend because he started having seizures again. Only this time in addition to the aphasia (sp?) he is having Auditory...
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| 3 | 10/29/06 |
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Where's Amnia
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amnia, are you here?
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| 3 | 10/28/06 |
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Complete Injustice
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Thank you all for your support. I'm happy to announce that I'm sticking to my plan (yes, again) and I'm not gonna stop until we get the PETScan. Im quite disgu...
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| 2 | 10/28/06 |
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Gentracine
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For those who are unaware of this, Gentracine was developed in the U.S.and is already in use
in Bejing, China.The information is that tumors
of the head and nec...
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| 0 | 10/28/06 |
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Avastin and Cpt-11???
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My 49 yo husband has been fighting GBM for 13 months. He had an initial debulking and then 4 weeks of radiation and concomitant temodar. He has just completed...
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| 10 | 10/27/06 |
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Bob & Everyone- i Need to Vent
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Here comes another long one... sorry...
Hello and thank you :) Yes, the neurosurgeon HAS been consulted; the Brain Tumor Board agreed that the disease is indeed...
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| 8 | 10/27/06 |
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Revi's Mom
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Okay- so we're going to see the doctor to have a family meeting on Monday morning. My head is spinning at this point and I wanted to know if there are any ques...
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| 2 | 10/27/06 |
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Brain Tumor Society Walk
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saw your message and it inspired me to get a group together, you can check out my team /site/TR?team_id=6500&pg=team&fr_id=1100
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site/TR?team_id=6500&pg=tea...
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| 2 | 10/27/06 |
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What Would You Guys Do?
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My Mom of 73 and has recurrent gbm.she is bedridden and not really saying much anymore.She sleeps prob.18+ hours{unless she`s awake at nite}she still tries to l...
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| 4 | 10/26/06 |
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New Tumor Update! Urgent!!!!!!...
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So the doctor just called me and told me that the overall consenses of the Brain Tumor Board- including neurologists, radiation oncologists, and neurosurgeons- ...
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| 5 | 10/26/06 |
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Everyone Read!!!
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hi! so while we're still in the midst of trying to figure out what we're doing, i wanted to pause for a second(hard for me to do as I'm the energizer bunny on s...
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| 1 | 10/26/06 |
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Amnia-revi's Mom-pet Scan/new ...
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Okay- this is gonna be a long one- FIRST NOTE: when I mentioned the PETScan yesterday she said that it's not gonna make a difference. She didn't say it in a bad...
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| 4 | 10/26/06 |
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Wow
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I guess if you or your loved one doesn't have a GBM, it isn't worth discussing on this board. Or mayabe there is rule that you have to make so many posts befor...
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| 21 | 10/26/06 |
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One More Thing....(by Revi)
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....it's not my mom that's distant- it's the DOCTOR. sorry i was unclear...
she used to be gushy, mushy, all nice and cuddely; now she's almost distant... ...
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| 1 | 10/25/06 |
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Facility Treatment - Pontine G...
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my nephew (9yrs old) has Pontine Glioma - looking for facility with best treatment results even if experimental want to prolong life beyond the expectancy of 9-...
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| 10 | 10/25/06 |
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Bad Mri
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today was bad.
tumor is "slowly" progressing.
this xxxxx ing sucks.
she advised us to stop avastin/cpt-11 and either (1)tarceva and something i can't pronou...
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| 12 | 10/25/06 |
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Cancer Center Help
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hi all
looking for some help possibly picking a cancer center. WE live in western massachusetts. my wife has GBM 12/2004.
hal
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| 3 | 10/25/06 |
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Husband's Death
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Hi, I am letting you know that my husband passed away on October 18, 2006 at 6:30AM. He was in hospice and at home. I was with him when he took his last breat...
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| 13 | 10/25/06 |
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Mri Tomorrow!
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my mom has an mri tomorrow!!! the first time since the whole 'seizure episode'...
please pray for us (and my sanity) and keep your fingers crossed for the re...
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| 1 | 10/24/06 |
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Cipro
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So it's a UTI. *PHEW* It's so much easier to think it's the tumor, ha? Nothing is simple anymore... has anyone taken Cipro? I read online that it can cause sei...
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| 5 | 10/24/06 |
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Ependymoma
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my friends 2 and a half yr old son Dante was recently found to have a tumor on the lower part of his brain connected to the spinal cord. After surgery recessing...
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| 3 | 10/24/06 |
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Help...help...help...caregiver...
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Hi Everyone,
I have been on this message board several times in regards to my 74yr old mother who was dnx with GBM IV on 7-21-06.. As I have said before she ...
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| 8 | 10/24/06 |
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There is Hope...
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My mom was diagnosed on May 28, 2006. When everything happened it felt like my family was falling apart. My mom started radiation treatment on june 28 (my birth...
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| 2 | 10/23/06 |
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