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Revi-your "fatigue" Post Disap...
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hey Revi-
I replied to your post about your mother's fatigue tonight, and now I get back on and look and it's GONE-the entire discussion thread-GONE! Am I going...
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| 3 | 11/16/06 |
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Pontine Brain Stem Glioma
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In the past 7 weeks,I am aware of 5 children that have passed away from this hideous menous.
Just as my daughter Hayley did.The children die
in torment and they...
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| 3 | 11/16/06 |
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For Shannon....
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Thanks so much for the song titles....I downloaded them both.
They are comforting. Hope you had a good day!
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| 2 | 11/16/06 |
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Treatments
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Has anyone heard of Irress( not real sure of the spelling) but heard its new a pill and the response has been very positive. thanks
Maureen
May God Be with ...
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| 2 | 11/16/06 |
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Happy 61st Birthday Mom!
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Well today, Nov. 15th is my mom's birthday and I knew when I went and seen her that something was not right with her. I could feel it! She was distant like us...
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| 5 | 11/16/06 |
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i Can't Thank You Enough
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Hi All,
I can't tell you how touched I was (brought to tears) by all of the wonderfully uplifting respones to my post about my mom knowing me and my family in ...
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| 3 | 11/15/06 |
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Revi's Mom's Headaches...
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When my mom has a headache she says it's a pounding headache that's all over her head, but specifically at the bottom of the neck and the back of the head.
T...
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| 2 | 11/15/06 |
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How Much Gleevec do You Take? ...
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Hey- those of you on Gleevec- how much do you take?
How much Hydrea (Hydroxyurea) do you take with it?
Do you take Zofran? If so, how much? Do you get headach...
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| 4 | 11/15/06 |
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Madeline, Jennifer, Vavvy, Car...
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I know each of you (and others I have not named) have also recently lost loved ones to GBM, so I wanted to share 2 songs that really touched me and comforted me...
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| 3 | 11/15/06 |
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Madeline, Jennifer, Vavvy, Car...
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I know you all have recently lost loved ones to GBM and I wanted to share a couple of songs with you from which I find so much comfort in the lyrics. They are ...
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| 0 | 11/15/06 |
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Thank You
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Hi... I want you thank all of you for posting on this site. I've got GBM (diagnosed 10/05/06) and I truly appreciate all of your observations, help, experienc...
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| 9 | 11/15/06 |
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Anyone Know Why Posts Mysterio...
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Just curious if anyone knows how and why a post(s) of mine will disappear? I don't think any of my posts contain anything inappropriate? I remember one in par...
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| 12 | 11/14/06 |
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Obsessed With Brain Hospice- P...
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Hi- it's late here and I really wanna get to bed. I just got in and my dad said my mom asked him today if she's going to die. He told her he didn't know and tri...
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| 7 | 11/14/06 |
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What Will my Mom Understand? P...
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Hi All,
I am really getting scared after reading some posts. I know how terrible this disease is, I watched my neighbor here in Boston pass from the same tumor ...
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| 5 | 11/14/06 |
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Really Bad Year . . . Now a Br...
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I just don't know what to do anymore - I was JUST diagnosed with a brain tumor (brain stem), and Drs. say more tests, then a biopsy, then surgery. All this is ...
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| 13 | 11/14/06 |
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Thanks Jennifer, Bob & Mruth
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Thanks to all of you for "talking" us through a rough day last Friday re the anger issues. Since that time it seems to have subsided, but she is sleeping almos...
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| 4 | 11/14/06 |
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Nausea Accomanied by a Headach...
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The last few days my mom is having nausea and a headache at the same time. It's not ALWAYS, and it's not consistent. Here's an example: She gets her Zofran at 8...
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| 2 | 11/14/06 |
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Farida Wahby 10-13-44 - 11-05-...
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My beautiful Mom lost the battle with her tumor on the morning of Sunday 11-5-2006 exactly 1 year and 2 days after her diagnosis. I wanted to share with all the...
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| 16 | 11/14/06 |
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Gbm and Immune System
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Hello,
Has anyone used supplements or alternative treatments for GBM? I have been buying my father all kinds of immune boosting supplements and beleive that th...
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| 5 | 11/13/06 |
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Gbm
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Hello Lynn,
My father has just been dianosed with GBM and is on Temodar and chemo. He is going into week 3. He has not experienced any side effects yet, except...
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| 11 | 11/13/06 |
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The Smallest Thing Makes a Dif...
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I have to say this site is a world of information that would not be offered freely or even suggested. my mom who was dx 7/05 has been urinating like a mad woman...
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| 1 | 11/13/06 |
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Amnia Bob Linda Jennifer All
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Hi Friends, (not that anyone else reading isn't my friend, I just can't remember everyone's names...lol) I wanted to ask about fatigue. I posted this once and g...
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| 13 | 11/13/06 |
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Cured? Trials?
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Hi again,
So, my past three MRIS since my dx and surgery in 3/06 have all been excellent. My oncologist keeps using phases like "wanting me cured", etc.IS ther...
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| 2 | 11/12/06 |
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Steroids
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Hi I was just wondering if anyone can tell me how much steroid their loved one was on in their final days.My Mom seems to be so tired and eyes look glassy and f...
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| 7 | 11/11/06 |
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Any Encouragement?
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Hi All,
I was diagnosed with a GBM in early March (after a week of severe headaches). I am 41 years old and in great health. The tumor was in the right front...
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| 8 | 11/11/06 |
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