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Illness Along With Gbm
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My Dad was diagnosed 9/15 with GBM. He had craniotomy to debulk - all visible tumor was removed. He has completed his 6 weeks of radiation combined with temod...
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| 4 | 01/24/06 |
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Length of Temodar Use??
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Hello,
I have written to the message board several times in the past as my dad was diagnosed with GBM grade IV on Aug. 29, 2005. Since, he had surgical resect...
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| 24 | 01/23/06 |
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Anaplastic Astrocytoma Grade I...
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I have a grade III anaplastic astrocytoma. I first had 6 weeks of radiation and now I have been talking Temodar for 19 months. 5 days out of the month. Not u...
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| 1 | 01/23/06 |
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Allergic to Temodar?
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On the 12th day of Radiation/Temodar/Tarciva, my brother developed full body (hive-like) rash inconsistent with expected "Tarciva" rash. He was taken off all ch...
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| 3 | 01/21/06 |
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Hospice
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friends;
Here is a web site that may be of use. It discusses end of life care. And it is specific to brain tumors.
brainhospice.com
luving wife
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| 0 | 01/21/06 |
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Praying For You
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Barrett:
I am praying for you and your Mom. Don't know what else to say that might be comforting.
Luvingwife
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| 0 | 01/21/06 |
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Sorafnib Avastin/cpt11 Trials
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I am a 40 year old female with 2 young boys, 2 years old and 6 1/2 years old. March 6 2005 I was diagnosed with anaplastic astrocytoma after feling tired and n...
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| 24 | 01/21/06 |
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Turn For The Worse...
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Hi everyone. Just writing to give an update on my mom. On Wednesday, December 21st, I took my mom to her second treatment of CPT-11. She was fine throughout ...
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| 7 | 01/20/06 |
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Suggestions on Raising Platele...
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hi there folks
It is so great to read all of your messages and to share in all of your journeys. It is inspiring and helps me through our path. Thank you.
...
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| 3 | 01/20/06 |
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Woo Hoo
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Hi everyone, My husband had his MRI yesterday at UCLA and it was clear. We feel so fortunate, and obviously very relieved. My husband is at his one year mark...
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| 5 | 01/19/06 |
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Garland Need Your Help!
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Hi Garland,
I was wondering if you could answer some questions for me. My momm is about to start a Gleevec/Temodar treatment. In your last posting to me you sa...
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| 4 | 01/18/06 |
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Anyone Know About The Drug Gle...
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Hi All,
If anyone knows about Gleevec or have tried it please let me know your experience. My mom is at Duke and Dr. Friedman and his team want to put her on Gl...
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| 2 | 01/18/06 |
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Mri Tommorow
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Thank you so much to everyone who responded to my earlier post about having a rough night. It was definitely a rough week but my husband is feeling much better...
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| 0 | 01/17/06 |
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Gbm -seizures and Low Platelet...
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Hi
My dad is dying of GBM. He has 2 sections removign 60% in October and has been doing remarkably well thru temodar and radiation. He has begun to have sei...
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| 0 | 01/17/06 |
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Long Term Steroid Use
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I was dx in 2/14/05 with gbm IV, inoperable. Doing Temodar 5 days/month after Temodar/radiation last spring. Started high dose steroids that night and have gone...
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| 7 | 01/14/06 |
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Dehydration
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A positive thing to look into for those of you suffering.
We went into the Cancer agency yesterday for a check-up. My wife has been very ill for about a month n...
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| 5 | 01/13/06 |
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Sulfasalazine
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Is there someone experiencing any kind of tumor regression taking sulfsalazine (SSZ) in association with temodar or radiation therapy? My father (65 yrs old) su...
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| 8 | 01/13/06 |
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on Our Way to North Carolina(d...
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Well folks,
Have been posting for over 5 months. My mother's MRI came back clear, but Dr Friedman still wants her to go to Dduke to start a different treatment...
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| 4 | 01/11/06 |
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Had a Rough Night
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Hello everyone, I posted once but it didn't seem to go through, so forgive me if it posts twice. I guess I just need to vent a little as we really had a rough ...
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| 5 | 01/11/06 |
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Gbm iv Resources
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Friends:
Here are some web resources that we have found to learn about glioblastoma. Maybe they will help you.
www.brainhospice.com (all about end stages)...
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| 1 | 01/10/06 |
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Cancer Centers
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Good Morning,
I was diagnosed with GBM on 11/7/05,operated on and am now almost done with radiation (9 to go).
My question is second opinions going into phase I...
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| 6 | 01/10/06 |
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Marmie...or Anyone Who May Kno...
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My husband who is 41 was diagnosed 4 years ago with an inoperable brainstem astrocytoma grade2/3. Because it is "wrapped around the brain stem, surgery can not ...
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| 11 | 01/09/06 |
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Glioblastoma
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My father has Grade IV Glioblastoma He has had 2 brain surgeries and one round of radiation and he is on Temodar ( He has 5-6 tumors mostly the right side one ...
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| 3 | 01/09/06 |
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Glioblastoma End Stage Symptom...
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I am new to this--thru my grandmother who was recently diagnosed with glioblastoma grade 4. She is 90yrs old. At her age, treatment options are small and not ve...
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| 5 | 01/08/06 |
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Has Anyone Gone Back on Temoda...
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My mom had GBM IV dx 03/04. reoccur 07/05. 2nd crainiotomy then gamma knife. Once the tumors started to grow they switch to a new treatment. First she had huge ...
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| 0 | 01/06/06 |
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