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New Treatment, a Balloon in Th...
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Hello All,
My mom was dx with GBM late July of 2005 and had her second surgury on FRIDAY THE 13TH (October 2006)Turned out to be 90% tumor 10% scar tissue! Not ...
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| 5 | 11/02/06 |
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Introducing us
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Hello, everyone.
We just published our website. If you want to put faces with our names, visit www.eloefamily.com.
Bridgett
w/o Kent, 36, surgery 6/06, 100% r...
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| 9 | 11/02/06 |
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Revi's Mom- You Won't Believe ...
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So get this- my mom started on Gleevac on Tuesday. We were TOLD to give her a 400mgs tab once a day, and give her the Hydroxyurea, 500mgs, twice a day. Somehow ...
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| 3 | 11/02/06 |
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Good Mri i Think
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Hi All
My brother has a/a grade 3/4 had his second MRI on Tuesday dr said no new growth they are pleased. Does this mean they will never go away. IS any of t...
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| 4 | 11/02/06 |
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Madlineruth, Amnia, Karen, Bob...
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hey people- thanks so much for the emails and advice. i haven't had a moment free to sit and respond and i'm sorry! i'm off work tomorrow and will update you al...
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| 0 | 11/02/06 |
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a Bad Question
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I'm sorry for this question, but I know I can get some solid information from this board. Two months ago I couldn't even comprehend asking this question, but we...
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| 17 | 11/01/06 |
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Help me if You Know What This ...
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I got a MRI and MRV of my brain yesterday and got the films. I am waiting on the Neurologist to call me with results. When I looked at my screens I saw a blotch...
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| 6 | 10/31/06 |
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Doctor Gave my Mom 2-6 Months,...
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saw the doctor yesterday.
tumor is all over the brain. although it's not there yet, it's TRYING to cross over to the other side.
we're starting Gleevec/H...
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| 17 | 10/31/06 |
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Nausea Tips Needed
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hello all. besides kytril is there another medication to control the nausea caused by chemo? or if you have tips on how to control it or at least minimize using...
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| 10 | 10/31/06 |
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When Does Regrowth Most Likely...
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We are in our 8th month of this roller coaster ride. MRI is still clear. Dr. told us regrowth typically occurs in the 9th or 10th month. Has anyone else hear...
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| 1 | 10/31/06 |
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Revi - Pet/ct
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Revi,
I have been extremely busy. Do you still want to see a PET/CT? Let me know and I will render an image or two so you can see for yourself.
Bob
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| 0 | 10/30/06 |
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Speach Problems
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I have told you that my husband had a clean mri last week, however i have noticed in the past weeks that is speech is getting more confused, even when I have hi...
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| 11 | 10/29/06 |
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i Walked!!!!!!!!!!!!!!!!!!!!!!...
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the walk was amazing!!!!!!!!!!! last i heard- in the midst of the crowd- was that a million dollars was raised! there were over 2000 people there!!! it was sooo...
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| 4 | 10/29/06 |
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Bob/amnia/everyone/meeting Tom...
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Okay- I have to make this short because I have to leave my house in 10 minutes and leave for the City for the Walk!!! :)
Here's our dilemma, please respond, as...
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| 0 | 10/29/06 |
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Auditory Hallucinations
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My husband has been in the hospital all weekend because he started having seizures again. Only this time in addition to the aphasia (sp?) he is having Auditory...
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| 3 | 10/29/06 |
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Where's Amnia
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amnia, are you here?
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| 3 | 10/28/06 |
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Complete Injustice
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Thank you all for your support. I'm happy to announce that I'm sticking to my plan (yes, again) and I'm not gonna stop until we get the PETScan. Im quite disgu...
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| 2 | 10/28/06 |
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Gentracine
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For those who are unaware of this, Gentracine was developed in the U.S.and is already in use
in Bejing, China.The information is that tumors
of the head and nec...
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| 0 | 10/28/06 |
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Avastin and Cpt-11???
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My 49 yo husband has been fighting GBM for 13 months. He had an initial debulking and then 4 weeks of radiation and concomitant temodar. He has just completed...
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| 10 | 10/27/06 |
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Bob & Everyone- i Need to Vent
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Here comes another long one... sorry...
Hello and thank you :) Yes, the neurosurgeon HAS been consulted; the Brain Tumor Board agreed that the disease is indeed...
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| 8 | 10/27/06 |
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Revi's Mom
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Okay- so we're going to see the doctor to have a family meeting on Monday morning. My head is spinning at this point and I wanted to know if there are any ques...
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| 2 | 10/27/06 |
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Brain Tumor Society Walk
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saw your message and it inspired me to get a group together, you can check out my team /site/TR?team_id=6500&pg=team&fr_id=1100
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site/TR?team_id=6500&pg=tea...
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| 2 | 10/27/06 |
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What Would You Guys Do?
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My Mom of 73 and has recurrent gbm.she is bedridden and not really saying much anymore.She sleeps prob.18+ hours{unless she`s awake at nite}she still tries to l...
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| 4 | 10/26/06 |
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New Tumor Update! Urgent!!!!!!...
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So the doctor just called me and told me that the overall consenses of the Brain Tumor Board- including neurologists, radiation oncologists, and neurosurgeons- ...
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| 5 | 10/26/06 |
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Everyone Read!!!
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hi! so while we're still in the midst of trying to figure out what we're doing, i wanted to pause for a second(hard for me to do as I'm the energizer bunny on s...
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| 1 | 10/26/06 |
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