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Everyone Read!!!
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hi! so while we're still in the midst of trying to figure out what we're doing, i wanted to pause for a second(hard for me to do as I'm the energizer bunny on s...
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| 1 | 10/26/06 |
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Amnia-revi's Mom-pet Scan/new ...
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Okay- this is gonna be a long one- FIRST NOTE: when I mentioned the PETScan yesterday she said that it's not gonna make a difference. She didn't say it in a bad...
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| 4 | 10/26/06 |
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Wow
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I guess if you or your loved one doesn't have a GBM, it isn't worth discussing on this board. Or mayabe there is rule that you have to make so many posts befor...
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| 21 | 10/26/06 |
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One More Thing....(by Revi)
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....it's not my mom that's distant- it's the DOCTOR. sorry i was unclear...
she used to be gushy, mushy, all nice and cuddely; now she's almost distant... ...
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| 1 | 10/25/06 |
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Facility Treatment - Pontine G...
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my nephew (9yrs old) has Pontine Glioma - looking for facility with best treatment results even if experimental want to prolong life beyond the expectancy of 9-...
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| 10 | 10/25/06 |
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Bad Mri
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today was bad.
tumor is "slowly" progressing.
this xxxxx ing sucks.
she advised us to stop avastin/cpt-11 and either (1)tarceva and something i can't pronou...
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| 12 | 10/25/06 |
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Cancer Center Help
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hi all
looking for some help possibly picking a cancer center. WE live in western massachusetts. my wife has GBM 12/2004.
hal
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| 3 | 10/25/06 |
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Husband's Death
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Hi, I am letting you know that my husband passed away on October 18, 2006 at 6:30AM. He was in hospice and at home. I was with him when he took his last breat...
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| 13 | 10/25/06 |
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Mri Tomorrow!
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my mom has an mri tomorrow!!! the first time since the whole 'seizure episode'...
please pray for us (and my sanity) and keep your fingers crossed for the re...
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| 1 | 10/24/06 |
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Cipro
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So it's a UTI. *PHEW* It's so much easier to think it's the tumor, ha? Nothing is simple anymore... has anyone taken Cipro? I read online that it can cause sei...
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| 5 | 10/24/06 |
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Ependymoma
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my friends 2 and a half yr old son Dante was recently found to have a tumor on the lower part of his brain connected to the spinal cord. After surgery recessing...
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| 4 | 10/24/06 |
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Help...help...help...caregiver...
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Hi Everyone,
I have been on this message board several times in regards to my 74yr old mother who was dnx with GBM IV on 7-21-06.. As I have said before she ...
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| 8 | 10/24/06 |
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There is Hope...
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My mom was diagnosed on May 28, 2006. When everything happened it felt like my family was falling apart. My mom started radiation treatment on june 28 (my birth...
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| 2 | 10/23/06 |
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Clean Mri
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My husband just had his second mri since his radiation and small amount of chemo and it came back as clean.....no growth in the tumor bed. As some of you might ...
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| 3 | 10/20/06 |
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For Amnia (and Whoever Else Kn...
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Hey do "things" happen in any order when you start losing functions? I checked out brainhospice.com, but my question is more for now, not when everyth...
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| 6 | 10/20/06 |
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Frequent Urination
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Has anyone experienced increased urination- EVERY 30 MINUTES- with GBM? I don't know if it's medicine related (the only new one added is Keppra), but it's been ...
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| 4 | 10/20/06 |
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Toby's Pet/ct
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Five months ago, before the first dose of Avstin/CPT-11, we had a PET/CT done to establish a baseline. Last week, while in the Hospital for seizures and fever,...
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| 4 | 10/19/06 |
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Gbm
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hi my husband is getting ready to start his second treatment of cpt and avastin but his voice sounds really hoarse has anyone else experienced this, thanks sue
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| 1 | 10/19/06 |
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Mixed Astrocytoma-oligodendrog...
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We just got my husbands final pathology today and it is a Grade III Mixed Astrocytoma-Oligodendroglioma. The doctor is cautiously optomistic about my husbands ...
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| 2 | 10/19/06 |
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Glioblastoma 4 - Should we Tre...
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My father in law was just diagnosed with glioblastoma multiforme (stage 4). They have yet to give him a Life expectancy time frame, but are encouraging him to ...
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| 25 | 10/18/06 |
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Gbm Stage 4
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Last june after my dad went though brain surgery and we got the results that it was malignent stage 4 glioblastoma multiforme :( which is ovbiously some very de...
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| 2 | 10/17/06 |
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Will we Lose Every Thing?
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My very selfish 16 yr old son was just smoking marijuana in his bed room .I and the hospice volunteer were talking in my moms room my mom lives with myself & th...
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| 3 | 10/17/06 |
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Wall Railing
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THANK YOU ALL FOR THE SWEET/HONEST/COMFORTING WORDS OF SUPPORT. I try so hard to be positive all the time, but man, it's hard. I know we're doing all that we c...
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| 3 | 10/17/06 |
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Pontine Glioma
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My nephew who is 20 yrs old was diagnosed with pontine glioma. It's nonoperable. He's going for radiation and taking chemo. Has anyone have any info on this. Al...
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| 12 | 10/16/06 |
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Diffuse Pontine Glioma
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I am keen to here from anyone about ruta6 and calcera my son who is 4 was diognosed on sept 11 he has just started radiotherapy this week he has a weekness to h...
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| 0 | 10/16/06 |
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