Message Board Discussions

Brain Cancer

If you or a loved one has been diagnosed with brain cancer, our online forum resources can be a valuable source of information and support. Whether you want to research and compare treatment methods or just share your story with other cancer patients, we encourage you to learn more today.

Brain Cancer Discussions

TypeSubjectRepliesStartedRating
Discussion started Patient
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Gbm Patients Currently Working
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Hi. I'm new to the board; dx w/ a brain tumor, right temp. lobe on 4/06; GBM 5/06. I'm a 36 y/o wife and mom. Had total resection, TEmodar and radiation th...
709/03/06 Message Rating
Discussion started Caregiver
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Dear Madelineruth
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Hello Madelineruth (I'm not sure what your real name is...lol, so I'm addressing you by your screen name, hope that's okay.) Thank you SO much for answering me ...
109/02/06 Message Rating
Discussion started Caregiver
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Endoscopy
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Has anyone ever had an endoscopy? We're taking my mother to have one done on Tuesday. The doctor ordered it to help determine why it hurts when she swallows. A...
109/02/06 Message Rating
Discussion started Caregiver
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Genetic Testing/tarceva
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Hey Everyone. The doctor talked to us about genetic testing to determine whether Tarceva would be of help for my mom. She's doing fine without it, but she wants...
209/01/06 Message Rating
Discussion started Caregiver
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Radioiodinated I-125 Monocloni...
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Any comments about Radioiodinated I-125 Monoclonial Anti-body 425 treatments??. I believe the Doctor's name is Luther W. Brady. This treatment is given in PA
109/01/06 Message Rating
Discussion started Caregiver
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we Can Beat This, i Hope
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Gene therapy transforms cells into tumor killers Experimental treatment saves two men dying of end-stage melanoma Origer family via AP Mark Origer, 53, of Wate...
008/31/06 Message Rating
Discussion started Caregiver
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Funeral Yesterday.........memo...
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As you may have seen in my previous posts, we followed through with his decision and had life support withdrawn on Friday. My father received his healing in He...
608/31/06 Message Rating
Discussion started Caregiver
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Response to Evalyn
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You can find information on Fred at ncrf.org, his phone number is on there. It is changing your diet to no preservatives and taking vitamin supplements. Let me ...
008/31/06 Message Rating
Discussion started Caregiver
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Mom dx Gbm Stage iv
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Hello...found this message board trying to find information on the internet regarding Glioblastoma Stage IV. My mom, healthy, active 59 year old had been suff...
1208/31/06 Message Rating
Discussion started Caregiver
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Gbm (stage Iv)
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Hi I have a brother-in-law who has been diagnosed with glioblastoma multiforme stage 4 brain cancer. He was diagnosed early in February (2006) and he is now ta...
208/30/06 Message Rating
Discussion started Caregiver
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Thank You- Today's Mri
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Okay, you're all gonna kill me for flipping out yesterday, but I feel like I "know" everyone here and that we're a group of friends that can support each other ...
308/30/06 Message Rating
Discussion started Caregiver
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Buying Time...
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I looked all through this forum and realized something. And forgive me for being grave, but I'm pissed off this had to happen to my mother. Basiclaly, we're buy...
508/29/06 Message Rating
Discussion started Caregiver
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Seizures After Avastin/cpt-11 ...
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We had seizures the day after one treatment and two days after another. The last ones were in the movie theater. Good grief. Anyone else have this issue? We ...
608/28/06 Message Rating
Discussion started Caregiver
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Steroids: You Just Can't Win.....
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Just an update: I called the doctor because my mother has been falling recently. When she falls she waffles down- she doesn't collapse backwards or slams hersel...
008/28/06 Message Rating
Discussion started Caregiver
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Resistance to Avasin/cpt-11
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Has anyone's tumor grown resistant to Avastin/CPT11? I didn't know this could happen. I'm not saying it CANT happen or that it WONT happen, but I didn't know i...
408/28/06 Message Rating
Discussion started Caregiver
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Tumor Upgrade
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How does a doctor know that a tumor that was originally grade II has increased. Do they do another resection and biopsy or can they tell on a catscan/mri?
108/28/06 Message Rating
Discussion started Caregiver
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Avastin & Cpt-11
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For those of you seeing success with Avastin/CPT-11 I have a question: is there a "cycle" of fatigue that's to be expected? I don't mean your usual, expected fa...
108/27/06 Message Rating
Discussion started Caregiver
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Lunesta Vs. Provigil
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Provigil Vs. Lunesta Message: Hi. Has anyone used either of these? NOT TOGETHER- they're basically opposites of each other. My mom hasn't been getting a full ...
108/27/06 Message Rating
Discussion started Caregiver
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Gbm Relapse Assistance: Radiat...
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A relative of mine had a relapse and had surgery to remove most of the tumor. He used the wafers for the surgery. The suggested course of action is to continue ...
508/24/06 Message Rating
Discussion started Caregiver
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Question on Glioblastoma
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Has anyone heard how long glioblastoma is usually in the brain before symptons appear? Is it usually months or years? Any information would be really appreciat...
1308/24/06 Message Rating
Discussion started Caregiver
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Less Than Impressed!
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My 23 year old Godson was dx. with Oligo-astrocytoma tumor Grade II end of July, he had surgery to remove as much as possible on August 6th. Since then he has ...
508/24/06 Message Rating
Discussion started Caregiver
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Rtog-0525 Phase Iii Clinical T...
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I would like to know if anyone is in the Phase III RTOG-0525 Clinical Trial? This is the largest clinical trial ever undertaken for brain tumors. It opened in 1...
008/24/06 Message Rating
Discussion started Caregiver
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Help For my Brother
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Hi My brothers last scan showed no new growth and he is to have a scan early sept. but he has had a couple of seizures does that mean the tumors are growing....
1008/23/06 Message Rating
Discussion started Caregiver
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Donnaf, About Duke Treating Do...
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I just read your message with your question about the name of the doctor at Duke. Although my husband was not treated at Duke, many others on this board have wr...
208/23/06 Message Rating
Discussion started Caregiver
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Gbm4 Coma & Life Support
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My 52-year old father (diagnosed 7/10/06, just over 1 month ago) is now in a coma and on life support, not breathing on his own and not reacting to stimuli. Dr...
808/21/06 Message Rating
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