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Deep Depression
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Hi all,
My father diagnosed in July with inoperable GBM 4 or butterly glimoa has become so depressed in the last days. He is still holding steady but has st...
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| 6 | 09/18/05 |
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Radiosurgery
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Does anyone out there know what the costs are of radiosurgery, or if that is something that insurance pays for? I have conflicting information on the process. ...
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| 4 | 09/17/05 |
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New to The Board - Searching F...
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Hi All,
I am terribly sorry that we have to meet this way...
I am new to this board and also new to dealing with my wife having brain cancer.
She w...
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| 4 | 09/16/05 |
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I'm Really Scared Right Now
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Sorry I haven't posted in a while, but things are really getting chaotic for us. I'm usually able to handle things, but this is getting to me today.
A couple ...
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| 10 | 09/14/05 |
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Sept. 19th Edition of People M...
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Hello Everyone
I know I am a bit over excited about the article in the recent (Sept. 19th) edition of People magazine, but it is the first easy reading mater...
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| 0 | 09/14/05 |
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Sept. 19th Edition of People M...
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Hello Everyone,
I know I am a bit over excited about the article in the recent (Sept. 19th) edition of People magazine, but it is the first easy reading mate...
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| 4 | 09/14/05 |
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Glioblastoma Multiform
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Hello! My brother was diagnosed with GBM Stage 4. We found out on June 14, 2005 that he had a brain tumor and on June 15, he had brain surgery to remove the t...
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| 15 | 09/10/05 |
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Clinical Trials
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I am curious about clinical trials. If someone is in a clinical trial does the facility pay for everything that is required for the trial such as radiation, che...
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| 1 | 09/10/05 |
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Inoperable Butterfly Glioma
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They said my father could not have surgery on his butterfly glimoa because of the location and it growing on both sides of the brain. It was indicated only if ...
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| 4 | 09/09/05 |
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Driving??
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My dad has glioblastoma multiforme and is wondering if anyone else out there with this is still driving? The doc's told us not to let him drive but his license...
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| 6 | 09/08/05 |
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2nd Surgery & Glial Wafers?
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My sister was dx with GBM and had surgery on June 3. Went thru 6 wks radiation M-F taking temodor chemo tablets same time. She began having headaches again a ...
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| 5 | 09/07/05 |
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Gbm and Working
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I am trying to get an idea of what lies ahead. My DH has GBM and completed rad and chemo. Starting 5/23 chemo in a few weeks. We are interested in others tha...
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| 1 | 09/07/05 |
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my Mom Started Chemo and Radia...
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Hi everyone,
I have been writing on this message board for about 4 weeks now. my mom has just started her chemo and radx today for gbm dx 5 wks ago. I am wonde...
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| 3 | 09/07/05 |
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Mri Too Soon
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My father has a GBM4 and just finished radiation/temedar treatment on Aug 23. During the treatment my father was not tired and did not get sick at all or lose h...
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| 11 | 09/03/05 |
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Butterfly Glioma
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My father was diagnosed in July with glioblastoma multiforme or butterfly glioma. He had stroke symptoms and when we took him to the dr. this was discovered. ...
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| 5 | 08/31/05 |
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Gbm Recurrance
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Fellow bt patients and families:
I am wondering what options you were given when the GBM returns? My bt patient had 100% resection, then radx and Temodar. He ...
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| 5 | 08/30/05 |
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Brainstem Glioma
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Hi. My niece was Dx’d with brainstem glioma, which also spread into her right temporal lobe, in January of 2002. We have struggled with this in our dysfunctio...
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| 9 | 08/28/05 |
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Azulfidine/sulfasalazine
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According to the research in the Journal of Neuroscience of June 27th this is an FDA approved drug whos off label use could be used for the "desperately il...
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| 31 | 08/24/05 |
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Garland
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Hey buddy Good luck tommorow with your MRI. I will keep you in my prayers tonight. Stay positive as always, and let us know how things went.
Patty
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| 10 | 08/23/05 |
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Please Comment: Radiation+temo...
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UCSF is currently (august 2005) enrolling patients for a phase 2 clinical trial that adds Tarceva to the concurrent radiation + Temodar treatment that is usuall...
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| 5 | 08/23/05 |
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Woo-hoo!
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Just thought I would let you all know that my husband's MRI at UCLA yesterday showed no regrowth of tumor. What a relief!! Thank you all so much for your good ...
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| 3 | 08/23/05 |
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Supplements
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Hi All,
I was wondering if anyone had some info on fish oil containing omega 3 as well as zinc and flaxseed oil as far as helping people with Glioblastoma Multi...
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| 5 | 08/20/05 |
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End of Journey Information
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I have been monitoring this message board for some time, and have just now become a member.
I am the wife of a 61 yr old GBMIV patient.
He is doing great, ...
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| 3 | 08/17/05 |
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Glioblastoma and Termodal
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I was operated on for glioblastomaq on July 17, 2005. It was a grapefreuit sized tumor. I am to go on radiation starting Monday Aug 22. I have mixed messages...
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| 9 | 08/16/05 |
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Mri Time
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Well, that time has rolled around again. We have to go to UCLA on Monday for my husband's two month check up and MRI. I always stress out in a major way the w...
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| 8 | 08/16/05 |
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