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HELP! New Surgery
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HELP! My brother needs a second surgery. First surgery was in 2/08. Since then, radiation and temodar and now temodar and CPT 11. There ...
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| 3 | 07/09/08 |
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How long to stay on Temador
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Hi,I've not posted in a long time - my husband age 45 was dx 5/11/07 with gbm. he had a total resection; did the standard 6wks radiation/daily temador and h...
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| 4 | 07/08/08 |
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Still no growth
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We just had wonderful news. The MRI revealed that my son's tumor showed no growth, althought it is a very big tumor. Since August there was only...
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| 5 | 07/08/08 |
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gbm
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My friend was diagnosed in Feb 07 with an inoperable gbm. He does TRY to sleep alot but I think that is mostly due to depression. He actually has a ...
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| 4 | 07/07/08 |
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Temodar 6 months only
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Our oncologist told us today that this will be dad's last round of chemo (it's his 6th monthly 5/23). There are people in our support group who ha...
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| 5 | 07/07/08 |
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Dementia from Whole Brain Radi...
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My wife was given whole brain radiation, which didn't stop the mets from growing, later got targeted radiation, which has done better.Online I r...
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| 5 | 07/07/08 |
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Glio IV First Seizure/Confusio...
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Dx 11/07 Surgery 12/07My husband had his first seizure yesterday, there saying that the ct scan showed a growth from 2cm to 5cm in 3 months, started on decadron...
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| 9 | 07/06/08 |
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treatments and prognosis
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Just finished yesterday ,third round of 5/23. 1.overall,i feel pretty good,my temperment is bad,i snap out on my wife,who doesn't deser...
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| 9 | 07/06/08 |
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Daddy is at peace now.
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Dad passed away July 1st 2008 at 2:35am. He went peacefully in his sleep. Dad became unresponsive at 5:00pm June 30 2008 and took his last breath at 2:35 am. If...
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| 6 | 07/06/08 |
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Avastin Article in the NY Time...
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There is a rather in-depth article in todays online NY Times about Avastin and it includes some back story for how it came to be used in fighting Brain Tumors. ...
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| 4 | 07/05/08 |
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Enlarged spleen on temodar?
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Hi All, My mom has a large lump on her left side, just under her rib cage. Since I am a radiologic tech, I am pretty sure it is the spleen. She feels OK, n...
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| 2 | 07/05/08 |
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Prognosis
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When the doc finally gives a prognosis as to life expectancy - from which point is he basing this? Is it from the time of the diagnosis? the time of starting tr...
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| 4 | 07/05/08 |
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Need to Vent and not be judged...
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My dad have GBM IV since April of 2007. He is doing "well". Lives on his own still. I as most of you have read before am a 35 y...
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| 14 | 07/04/08 |
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My progress
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Hello all, its been a while since I have posted. Just wanted to let you know how it is going. I start 4th round of temodor tonight. Have...
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| 0 | 07/04/08 |
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Avastan/CPT11
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My husband was DX11/7/07 GBM had surgery 12/13/08 they had to leave two fingers in. He went on 32 treatments of radiation and temador at the sa...
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| 3 | 07/04/08 |
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Dealing with Avastin Side Effe...
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Hi Everyone: My wife is taking Avastin (only Avastin-no chemo) every two weeks for the past 7 months. We are fortunate that so far no new tumor growth, but...
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| 2 | 07/04/08 |
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One Year
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I found this website by mistake but I am happy I did. When im feeling really low I come here and read about other people w/ their thoughts and feeling abo...
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| 3 | 07/04/08 |
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advice
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My wife, aged 48, was diagnosed with a fairly large GBM-4 in April. Surgery was able to remove 50% of the tumor, and she has had the usual radiation and chemo (...
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| 1 | 07/04/08 |
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Stopping Decadron
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Let me start by saying that I am sorry that anyone has to be on this board. My brother passed away earlier this year after a four year battle with b...
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| 3 | 07/03/08 |
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Glioblastoma patient decline w...
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My father (soon to be 62) was diagnosed last year with a glioblastoma. They did a full resection, then radiation. He has been doing chemo for several months. At...
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| 5 | 07/02/08 |
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how do i cope
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My mother is deteriorating, despie changes to medicine. Her husband, my step-father, just wants to push the reality to the side and deal with the smptoms.My mom...
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| 10 | 07/02/08 |
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gbm 4 - my dad
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my dad was diagnosed with a gbm 4 in early may after completing withdrawing over the course of a few months; i don't live near my parents anymore, and my mo...
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| 3 | 07/02/08 |
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Hand-Foot-Mouth (HFM) disorder...
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Have anyone ever experienced this from the Chemotherapy? If so, what were used for treatment.
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| 2 | 07/02/08 |
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DC VAX, Looking for Info??
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HI Everyone:Since my wife was diagnosed with GBM 13 months ago I (like so many of you) I have become immersed in self education about this disease. This include...
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| 1 | 07/02/08 |
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Please help. MDR GBM-IV
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Surgery, radiation, temodar, and avastin. Initial great/amazing response with avastin now it is all over and large. This happened in 2 months. ...
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| 1 | 07/02/08 |
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