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Where do we stand?
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My father (64) was diagnosed 1 yr ago with GBM IV, Left Temporal Lobe., and given 8 months to live. After 2 months of Radiation and Temodar, my ...
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| 6 | 05/04/08 |
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Avastin...cpt11
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My husband was dx'd in 2/2007 with GBM. Tumor was a butterfly glioma with most of the left front lobe tumor removed. The right side was untouche...
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| 2 | 05/04/08 |
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MRI regrowth staying on Temoda...
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My dad was diagnosed 11/16/07 GBM and has 90% of a 3 in x 3/5 in x 2 in right frontal lobe tumor removed. he did proton beam radiation and 42 days of temo...
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| 5 | 05/03/08 |
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Deficits...here to stay?
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I was wondering if anyone could share with me their experience of deficits of radiation after treatment. As you all know I posted earlier this week about slight...
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| 4 | 05/03/08 |
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Astrocytoma grade 2
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Hello,My mom has been diagnosed with grade 2 astrocytoma. She finished 32 rounds of radiation.Her first MRI afetr 6 months showed the tumor to be stable but the...
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| 1 | 05/03/08 |
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my mum - an update to the upda...
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Thank you all for your kind words. I wrote to you all 6 weeks ago with this update, i thought i will give you our journey and results since then.Mum start...
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| 1 | 05/03/08 |
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Intrinsic Pontine Glioma
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My 15 year old daughter was dx on 04-01-08 with an intrinsic pontine glioma and has begun radiation and a radiation enhancing drug in trial. Can anyone te...
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| 2 | 05/03/08 |
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Treatment
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Hi - My aunt is 85 years old. Last year she was diagnosed with a tumor in the brain. Thanksgiving 2007 they operated to remove the tumor. She w...
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| 1 | 05/02/08 |
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Hair loss from radiation?
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Hi All,As I posted earlier today, I am new to posting here, my mom was diagnosed last month, but I read this forum everyday and tell her everything I read.........
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| 9 | 05/02/08 |
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gbm spreading elsewhere
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My husband dx July 2005 with gbm iv has had all the standard treatments, surgery, radiation, temadar and is now on avastin and cpt11. He just finished his 15th ...
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| 6 | 05/02/08 |
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loss of balance after avastin ...
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My husband got his 4th round of avastin and cpt-11 yesterday and this morning he is experiencing loss of balance.We had a nurse come over and check his blood pr...
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| 4 | 05/02/08 |
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TCM
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Hi,I am a fairly new diagnosed tumor patient, presurgery. I was curious if anyone has tried Chinese herbs and acupuncture. I have an appointment at the end of t...
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| 2 | 05/02/08 |
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My mom newly diagnosed
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My mom, a very healthy 57 year old, experienced minor stroke-like symptoms on the Tuesday after Easter. Due to the high incidence of stroke in our family, she w...
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| 3 | 05/02/08 |
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Latest seizure - MRI shows reg...
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My husband was dx 12/29/07 left occipital lobe. He had a resection on 1/9 he started with radiation and temodar on 2/18, first MRI showed tumor was de...
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| 1 | 05/02/08 |
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GMBIV
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My husband has just finished up 2 Temador treatments (5/23) and is in his 4th week of diarrhea - more severe this past week. On Immodium AD + another med ...
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| 0 | 05/02/08 |
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GBM final stage
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I have made a couple of posts over the last 280 days since my mom was diagnosed with GBM IV. The first post I put up was on August 12th 2007. My mom...
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| 8 | 05/02/08 |
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Clear scan this week!
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Hi,I haven't many times posted before. I am a 48 year old male diagnosed with GBMIV in Sept 07. The tumor was large, about lemon sized, and loca...
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| 4 | 05/01/08 |
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New time on chemo....
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Dr. changed my time on chemo to one hour before onco rad of the morning. I did it today, withno actually getting sick, but the nausea is not a good thing....
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| 1 | 05/01/08 |
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Treatment after GBMIV Regrowth
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Hey Everyone, I just wanted to post the most recent treatment plan for my father. I'd like opinions.Here's a summary.Dad, Age 50, Dx July 15th GBMIV Lef...
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| 5 | 05/01/08 |
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Johns Hopkins experiences vs. ...
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first post here... my brother was dx 2/15/08 GBM, surgery, imrt radiation/temodar at Johns Hopkins.I've been browsing around this board and finding great in...
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| 5 | 05/01/08 |
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You must have faith!
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Dawn,I am very happy to read of your news regarding your husband. Like you I am perplexed, and not just a little annoyed, with the medical professionals who del...
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| 3 | 05/01/08 |
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Mum loses battle
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Hi all, I'm sad to report that my mother finally lost her battle with the GBM on Tuesday 29th April, after a long and torturous 16 month battle with th...
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| 5 | 05/01/08 |
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Celebrating a good MRI...Temod...
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Hi everyone, it's been a little while since I've posted. My husband is just over eight months since being diagnosed with GBM and we had an MRI yes...
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| 6 | 04/30/08 |
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Coping this Emotional war
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My Sister, Sue, Mother, Daughter, Sister, Friend diagnosed in 1999 with a Grade II Astrocytoma at 25 years old, but November,30 2007&...
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| 4 | 04/30/08 |
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Has anyone seen a Neuropsychol...
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I was wondering if anyone has brought their family member or yourself to a neuropsychologist for deficits after the brain surgery and the tumor? I se...
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| 5 | 04/29/08 |
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