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Sister was doing better
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Well, just as soon as I post something positive, I get a call from my sister L who is the primary care giver of my sister A who has GBM IV. Her MRI ...
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| 2 | 04/25/08 |
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Disk compression fractures
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I posted a couple of days ago, asking if anyone had experienced/heard of a GBM spreading. To update everyone, my husband has disk compression fractures, NO SPRE...
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| 2 | 04/25/08 |
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Sister doing better
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My sister is doing better. She gave us a good scare about a month ago. She started having verdigo again and migraines. She still sleeps a lot,...
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| 0 | 04/24/08 |
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Prayer Request
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This message is actually for anyone who has a prayer request. I would like to invite you or a loved one who would like support or would like to post a prayer re...
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| 3 | 04/24/08 |
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VP-16 with Avastin experience?
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My dear friend (30 years old) was diagnosed with a grade 4 GBM on 12/23/06. The tumor was not operable so he had radiation and many rounds of chemo includ...
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| 1 | 04/24/08 |
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Need tips to stay positive....
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Hello,My dad just went thru his 2nd surgery for GBM. He is SO depressed this time and I don't know how to snap him out of this. He seems like a completely d...
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| 5 | 04/24/08 |
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Amazing response to Temodar??!...
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Hi everyoneHope you don't mind but I just wondered if it was 'normal' whatever that word means ... to respond really well to Temodar/Temezolomide.&n...
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| 4 | 04/24/08 |
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Decadron problems!!!!
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I have been taking care of my mom diagnosed with GBM IV on 7/07. She has had surgery, radiation, and chemo. On her first MRI in 10/07 the was a recu...
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| 5 | 04/24/08 |
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unsure of treatment
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Hi to everyone,My husband had surgery on March 10 at Duke, removed over 90% of tumor and he is doing well. We are getting ready to start radiation and che...
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| 5 | 04/23/08 |
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low cell count
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After all treatments done,Awaiting Maintenance program of 5/23,now i find out my white cell count will not allow me to go forward with program.The Oncologist&nb...
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| 6 | 04/23/08 |
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New Brain Cancer Treatments
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Has anyone heard about these treatments and gotten positive results:Valproic AcidDendritic Cell VaccineMGMT geneCetuximabChloroquineCimetidine with Temodar...
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| 3 | 04/23/08 |
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Touching of the head at tumor ...
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After just finishing up her first round of treatment(radiation/chemo) my mother in law is feeling better (dx GBM 2/08 95% resection) But I have a question..I kn...
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| 5 | 04/23/08 |
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Does this pain ever go away???
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It's been almost six months now since my brother Stephen (48) was taken from (GBM) and the pain in my heart feels just the same as the day he died. Everyone...
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| 6 | 04/23/08 |
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Last ride
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It could not be painless.Last Thursday, my girl left the house, for the very last time.It was a cloudy and cold afternoon. I remember singing in the back of my ...
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| 8 | 04/23/08 |
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sick grandfather
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My grandfather was originally diagnosed with lung cancer. It then spread to his cervical spine, and eventually his brain. He is now always sleeping, as if in a ...
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| 0 | 04/23/08 |
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confusion Glioblastoma
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My cousin is home but really only had 1 good day. He is reducing his steroid and have trouble with alot of confusion. It just is not him at all.&nbs...
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| 0 | 04/22/08 |
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Funny Smells? Deja Vu?
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As many of you know, my father, age 50, has just had his first recurrance....1.4 cm GMB IVIn the front of the left temporal lobe.The last 2 days he has had...
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| 5 | 04/22/08 |
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spreading cancer
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Has anyone ever heard of a GBM spreading to other parts of the body?My husband has a IV GBM, going through chemo right now, and is in excrutiating back pain. He...
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| 4 | 04/22/08 |
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Brain Cancer Vaccine News from...
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Dear Firends, check this article out...it was published today, let's keep an eye on it: Let's hope this new vaccine can help. God bless you ALL&nb...
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| 0 | 04/22/08 |
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My brother has GBM..confused a...
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Hello everyone,I have created this thread as a follow up of my original thread posted on 25th march 2008. I just wanted to update you guys and also for some adv...
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| 2 | 04/21/08 |
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Glioblastoma @42
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Wow,What can a spouse say or do when your healthy husband finds out that he has this horrible cancer?As a supportiave spouse what can you do that can ever be en...
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| 7 | 04/21/08 |
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good mri today
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God has continued to grace us with healing and peace. My husbands MRI was better than good today! The small portion of tumor and infiltrated cells have shrunk t...
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| 2 | 04/21/08 |
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Searching for Successful Survi...
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My husband (60 years old) suffered a seizure while driving home from work 3 weeks ago and was diagnosed with a brain tumor in the right temporal lobe. The...
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| 9 | 04/21/08 |
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What Is Remission ? GBM 4
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Hi all ive now been told by my prof sergeon that i am in remission ?,im 51yrs old diagnosed sept 06 radiation ,now temodor 17mths,can anyone please tell me any ...
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| 1 | 04/21/08 |
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Oligoastrocytoma Level 3
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Last August, my husband, age 48, was diagnosed with an Oligoastrocytoma Level 3, with a little Level 4.. He had an awake crainiotomy to remove as much of the tu...
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| 1 | 04/20/08 |
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