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Any success with anti-neoplast...
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I have a child with GBM-IV. Has anyone had success with Dr. Burzynski's anti-neoplastin treatment? If he had successes, why is he despised in the medic...
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| 5 | 04/14/08 |
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Glioblastoma --my fathers batt...
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OK....my father was diagnosed 4/20/2007 with GBM IV Left temporal lobe. He was operated on with nearly a 100% perfection rate. He did radiation and ...
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| 3 | 04/14/08 |
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biopsy vs awake crainiotomy
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hello, I am new to this site and am really appreciating the advice and support people are giving one another. i am looking for some guidance on making a very bi...
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| 8 | 04/14/08 |
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seizures
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hAVE EITHER ONE OF YOU HAD SEIZURES PTIOR TO,OR AFTER TREATMENTS??
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| 5 | 04/14/08 |
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glioblatom multforme
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I have had glioblastoma multiforme for 2and a half years . I will be getting my latest results from my mri in a couple of days. praying.... I was gi...
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| 8 | 04/14/08 |
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Haven't posted in a bit
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It's been a while since i posted. Well it seems like a while but I guess in reality it's only been like 2 weeks. So back at the end of March I had writt...
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| 4 | 04/14/08 |
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Avastin/CPT-11
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Thank you for your caring thoughts about my husband and for your information.I don't know which is worse, radiation or chemo - presumably radiation bec...
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| 0 | 04/13/08 |
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Stopping Decadron at end of li...
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My father is currently in the final stages of life after suffering with GBM for almost 5 years. We have decided to stop his decadron because he wants to d...
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| 5 | 04/13/08 |
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temodar wanted
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I am a sixty year old woman with brain mets. I am anxious to start a combination of CPT11 and temodar, but I am having trouble getting the temodar authorized by...
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| 1 | 04/13/08 |
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GBM claims another
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Hello,It has been a while since I posted. My dearest husband passed away on 12 Mach 08. GBM took his body and mind. When he lost swallow reflex; he refused a fe...
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| 14 | 04/13/08 |
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Wheatgrass
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Anyone taking (drinking) wheatgrass on a daily basis? Thank you
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| 3 | 04/13/08 |
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AVASTIN/CPT-11 Need Advise
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My wife and I have been fighting GLIO now for 15 months done all the standard treatments plus two different trials and two surgerys. The last treatments we...
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| 1 | 04/13/08 |
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ready to quit
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I am being treated for gliomatosis cerebri and despite the treatment the tumor continues to grow. I don't know what's worse, the affects of the tr...
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| 7 | 04/12/08 |
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Found out my mom has primary b...
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The originally thought that it wasGBM4, so it was great news for us that it wasn't BUT from what I understand, the treatment of lymphoma could be as dangero...
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| 2 | 04/12/08 |
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is my body telling me somethin...
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Hello eveyone first let me say thank you for all of your support.Heres my problem dia nov.21, 2007 GBMiv had the surgery of course could not get it all which se...
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| 6 | 04/12/08 |
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white blood cell count
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my white blood cell count is 1000-too low to start temodar-will this white count regain quickly?
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| 3 | 04/11/08 |
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Lowest dose of Temador
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I have been put on a very low dose of Temador(200mg) because of my low bloodcounts. I was wondering if anyone else has experience with this lower dose and how i...
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| 4 | 04/11/08 |
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Clinical trials for GBM
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Hi All,My son, 13, was diagnosed with GBM in May. He had radiation therapy, was on temodar and last on Avastin/CPT11. There was significant ...
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| 2 | 04/11/08 |
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Don't understand sometimes
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This is my first message, but I have read several of your messages on the board and they have answered most of my questions. First I would like for everyone to ...
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| 1 | 04/11/08 |
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coma stage
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He's in his final stage and in a coma or at least his final stage. His family is here accept my mom and dad. My dad had a triple bypass with gall bladder pr...
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| 6 | 04/11/08 |
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Learned so much from all of yo...
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I just wanted to say thank you all for posting, your stories and experiences. I have found so much good information, support and kindness that is shared on this...
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| 3 | 04/10/08 |
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So far, so good with Avastin
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I just found this site and I am very excited to start reading what everyone is talking about. I wanted to encourage people to try and not give up. T...
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| 3 | 04/10/08 |
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Avastin/CPT-11
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Yes, I presume it has to do with where the tumors are located - I started to notice my husband's confustion, etc., around the fourth week of radia...
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| 0 | 04/10/08 |
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GBMIV
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I am now 4 years and a bit since the start of my oddesy with GBM. I am doing better, and have made some changes in my life. My first wife passed awa...
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| 6 | 04/10/08 |
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Avastin/CPT-11
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Hello,My husband was diagnosed with GBM last August '07. He had six weeks of radiation with Temodar and finished at the end of October; however, ...
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| 8 | 04/10/08 |
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