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Brain Cancer

If you or a loved one has been diagnosed with brain cancer, our online forum resources can be a valuable source of information and support. Whether you want to research and compare treatment methods or just share your story with other cancer patients, we encourage you to learn more today.

Brain Cancer Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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feeling guilty and confused
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As some of you might know, I've only been on this board about 3 months. I had an entry almost a week ago concerning doctors in Colorado. If you didn't r...
1204/10/08 Message Rating
Discussion started Patient
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Temodor ringing in the ears ? ...
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Hi all,i havn't been on for a while,just an update-----when my gbm 4 was removed in sept 06 i had 30 days of radiation along with 30 days of temodor every d...
304/10/08 Message Rating
Discussion started Caregiver
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Adult with pontine glioma
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Hi -- My husband (39) was diagnosed with a Grade IV pontine glioma in January. I'm interested in corresponding with other caregivers and/or patients wh...
004/09/08 Message Rating
Discussion started Caregiver
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Will 2nd Surgery help or hurt?
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My dad is battling GBM, stage 4. We are in the re-growth stages since Feb. Today's emergency MRI (because speech took a dive)...showed a significant enhance...
604/09/08 Message Rating
Discussion started Caregiver
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not so good news-AAIII
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Hi to everyone again...We received the report back from Johns Hopkins on my husbands tumor and they upgraded it from a II to an AA III.  Duke is going with...
504/09/08 Message Rating
Discussion started Caregiver
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depression
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My mother was diagnosed with GBM on Jan. 18th.  Surgery was not an option, as she has multiple tumor sites.  She went through the standard treatm...
204/09/08 Message Rating
Discussion started Caregiver
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My dad passed away
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I am one of the members. My father had a brain cancer, his tumor has been diagnosed on Oct , 08. He had a non operatable tumor. there was no response to radiati...
304/09/08 Message Rating
Discussion started Caregiver
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temodar and taste buds
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Hi everyone.  My mom, dx gbm 4 in May 2007, is back on the Temodar and she is having a terrible time with a "metallic" taste in her mouth with ev...
1004/08/08 Message Rating
Discussion started Caregiver
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New Treatment?
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Any one know about a drug called Cotara? There is a study in South Carolina and it sounds as though its a vaccine.
204/08/08 Message Rating
Discussion started Caregiver
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tumor grew with avastin/cpt-11
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Hi folks, Thank you to all who responded to my post on "Mileage out of Avastin".  My mom was put on Avastin/CPT-11 three months ago.  T...
604/08/08 Message Rating
Discussion started Caregiver
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My Mother - An Update
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Hi all, It has been months since i have last writen to you all. I thought i might take this oppourtunity to say i have read over your latest stories, and my hea...
304/08/08 Message Rating
Discussion started Patient
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RESIDUAL & LEISIONS
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I had a gbm-iv tumor remoived.after six weeks of treatments,mri showed residual and two measured leisions/no solid mass.how would you feel about these results?
204/08/08 Message Rating
Discussion started Caregiver
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Grade 2 astrocytoma
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Hi all,My mom has been diagnosed with a grade 2 atrocytoma.She completed 32 rounds of radiation. Six months after radiation, she had her first MRI last week. Th...
404/08/08 Message Rating
Discussion started Caregiver
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Slower Speech..normal or not??
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I took my mother-in-law to her treatment today. It's been almost 2 months since her dx (GBM 4)(95%resection, currently on temodar/radiation)..and things are...
304/08/08 Message Rating
Discussion started Caregiver
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Gliomatosis Cerebri
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My wife has been diagnosed with two lesions (astrcytomas) that MD Anderson is opining as Gliomatosis.   The NeuroOncologist has discounted all other a...
204/08/08 Message Rating
Discussion started Caregiver
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another brain tumor
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For those of you that remember my 37 year old cousin. 1 tumor removed in jan. 1 tumor removed in feb. He had decided to get off alot of meds and go home.  ...
404/07/08 Message Rating
Discussion started Caregiver
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Why always Temador first?
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My question is why do the doctors always start people on Temador first?  Temador didn't work for my husband.  Why don't they start with Avasti...
504/07/08 Message Rating
Discussion started Caregiver
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questions about blood levels a...
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Hi All, My hs had his 9th avastin infusion today. He's coming right out of temadar 5/23 for the 2nd time last Tuesday. His blood levels were better today th...
204/07/08 Message Rating
Discussion started Caregiver
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Adjusting medicines due to Ava...
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I am wondering with any of you faced problems with anti-epileptics and Decadron after the first Avastin infusion. My lawyer whose mother also suffered from GBM ...
004/07/08 Message Rating
Discussion started Caregiver
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to all who responded to Just a...
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My husband has since gotten past the puppy issue. His situation is worse, with last night being one of his worst nights. I just thought the puppy issue was bad....
104/07/08 Message Rating
Discussion started Patient
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Dads passing
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So sorry about your father.I would like to pose a few questions to you ,ifb youdon't mind.1]What type of cancer2]Did he have surgery3]All treatments were do...
104/07/08 Message Rating
Discussion started Patient
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mystified
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After a few months of reeading all these various situations,it occurred to me these are all different cases.I had a GBM-IV,was `removed[as much as could be].Aft...
604/07/08 Message Rating
Discussion started Caregiver
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What to expect from here.
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Back at Christmas my grandmother went from being a very active women to a very un-energetic person just sitting on the couch.  She went to the cardiologist...
404/06/08 Message Rating
Discussion started Caregiver
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Things I would've done differe...
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Friends,My dad passed away about 9 days ago from this horrible disease. A few things I would've done differently:1) Watch the decadron dosage my dad was on....
304/06/08 Message Rating
Discussion started Caregiver
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mixed emotions
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I lost my Dad on Aug 4, 2007.  My parents divorced when I was 5.  His wife of 32  years was by his side the whole way.  He was only 64....
204/06/08 Message Rating
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