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feeling guilty and confused
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As some of you might know, I've only been on this board about 3 months. I had an entry almost a week ago concerning doctors in Colorado. If you didn't r...
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| 12 | 04/10/08 |
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Temodor ringing in the ears ? ...
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Hi all,i havn't been on for a while,just an update-----when my gbm 4 was removed in sept 06 i had 30 days of radiation along with 30 days of temodor every d...
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| 3 | 04/10/08 |
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Adult with pontine glioma
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Hi -- My husband (39) was diagnosed with a Grade IV pontine glioma in January. I'm interested in corresponding with other caregivers and/or patients wh...
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| 0 | 04/09/08 |
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Will 2nd Surgery help or hurt?
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My dad is battling GBM, stage 4. We are in the re-growth stages since Feb. Today's emergency MRI (because speech took a dive)...showed a significant enhance...
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| 6 | 04/09/08 |
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not so good news-AAIII
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Hi to everyone again...We received the report back from Johns Hopkins on my husbands tumor and they upgraded it from a II to an AA III. Duke is going with...
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| 5 | 04/09/08 |
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depression
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My mother was diagnosed with GBM on Jan. 18th. Surgery was not an option, as she has multiple tumor sites. She went through the standard treatm...
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| 2 | 04/09/08 |
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My dad passed away
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I am one of the members. My father had a brain cancer, his tumor has been diagnosed on Oct , 08. He had a non operatable tumor. there was no response to radiati...
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| 3 | 04/09/08 |
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temodar and taste buds
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Hi everyone. My mom, dx gbm 4 in May 2007, is back on the Temodar and she is having a terrible time with a "metallic" taste in her mouth with ev...
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| 10 | 04/08/08 |
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New Treatment?
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Any one know about a drug called Cotara? There is a study in South Carolina and it sounds as though its a vaccine.
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| 2 | 04/08/08 |
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tumor grew with avastin/cpt-11
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Hi folks, Thank you to all who responded to my post on "Mileage out of Avastin". My mom was put on Avastin/CPT-11 three months ago. T...
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| 6 | 04/08/08 |
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My Mother - An Update
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Hi all, It has been months since i have last writen to you all. I thought i might take this oppourtunity to say i have read over your latest stories, and my hea...
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| 3 | 04/08/08 |
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RESIDUAL & LEISIONS
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I had a gbm-iv tumor remoived.after six weeks of treatments,mri showed residual and two measured leisions/no solid mass.how would you feel about these results?
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| 2 | 04/08/08 |
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Grade 2 astrocytoma
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Hi all,My mom has been diagnosed with a grade 2 atrocytoma.She completed 32 rounds of radiation. Six months after radiation, she had her first MRI last week. Th...
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| 4 | 04/08/08 |
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Slower Speech..normal or not??
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I took my mother-in-law to her treatment today. It's been almost 2 months since her dx (GBM 4)(95%resection, currently on temodar/radiation)..and things are...
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| 3 | 04/08/08 |
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Gliomatosis Cerebri
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My wife has been diagnosed with two lesions (astrcytomas) that MD Anderson is opining as Gliomatosis. The NeuroOncologist has discounted all other a...
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| 2 | 04/08/08 |
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another brain tumor
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For those of you that remember my 37 year old cousin. 1 tumor removed in jan. 1 tumor removed in feb. He had decided to get off alot of meds and go home. ...
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| 4 | 04/07/08 |
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Why always Temador first?
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My question is why do the doctors always start people on Temador first? Temador didn't work for my husband. Why don't they start with Avasti...
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| 5 | 04/07/08 |
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questions about blood levels a...
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Hi All, My hs had his 9th avastin infusion today. He's coming right out of temadar 5/23 for the 2nd time last Tuesday. His blood levels were better today th...
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| 2 | 04/07/08 |
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Adjusting medicines due to Ava...
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I am wondering with any of you faced problems with anti-epileptics and Decadron after the first Avastin infusion. My lawyer whose mother also suffered from GBM ...
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| 0 | 04/07/08 |
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to all who responded to Just a...
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My husband has since gotten past the puppy issue. His situation is worse, with last night being one of his worst nights. I just thought the puppy issue was bad....
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| 1 | 04/07/08 |
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Dads passing
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So sorry about your father.I would like to pose a few questions to you ,ifb youdon't mind.1]What type of cancer2]Did he have surgery3]All treatments were do...
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| 1 | 04/07/08 |
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mystified
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After a few months of reeading all these various situations,it occurred to me these are all different cases.I had a GBM-IV,was `removed[as much as could be].Aft...
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| 6 | 04/07/08 |
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What to expect from here.
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Back at Christmas my grandmother went from being a very active women to a very un-energetic person just sitting on the couch. She went to the cardiologist...
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| 4 | 04/06/08 |
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Things I would've done differe...
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Friends,My dad passed away about 9 days ago from this horrible disease. A few things I would've done differently:1) Watch the decadron dosage my dad was on....
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| 3 | 04/06/08 |
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mixed emotions
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I lost my Dad on Aug 4, 2007. My parents divorced when I was 5. His wife of 32 years was by his side the whole way. He was only 64....
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| 2 | 04/06/08 |
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