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Clinical Trials, Smoking and D...
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Hi Everyone,Mom has her appt today at Duke and Just wanted to ask a few questions. Will they consider you for a clinical trial at Duke (dx GBM IV) if you ...
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| 5 | 06/05/08 |
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New treatment for regrowth and...
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I have three questions.1. Anyone out there getting treatment at UCLA?2. Today my MRI came back showing a new growth on other side of brain.It is very small and ...
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| 10 | 06/05/08 |
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parathesia
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I have a blockage in my right nostral that never heals and a constant soar throat and i have ear pain and twitching in my ears and recently i have been getting ...
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| 3 | 06/04/08 |
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Information
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Hi, my Dad was diagnosed in Dec. 07 with diffuse large cell B lymphoma...he immediatly started his CHOP treatment cycle (6 treatments) this took us up to A...
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| 3 | 06/04/08 |
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Temodar and women/menopause
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Hello All, First post here, my wife is on Temodar for an Anaplastic Astrocytoma. She had a crainiotomy and radiation, and is now on the once a month Temodar. Ha...
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| 3 | 06/04/08 |
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New articles on Sen. Kennedy
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I have read several articles on Sen. Kennedy's GBM. From reading the articles, I sometimes question if the one who writes the story understands what t...
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| 4 | 06/03/08 |
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Avastin/CPT-11 question
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My husband is supposed to start on avastin/CPT-11 shortly. He's pretty much wiped out from this past year--2 craniotomies, radiation, chemo that didn&...
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| 8 | 06/03/08 |
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glioblastoma multiforme
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When a friend was diagnosed last Feb I had a hard time finding any good news and was afraid he wouldn't be here through the holidays. That w...
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| 3 | 06/03/08 |
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How long to do Avastin/CPT11 I...
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For those of you that are familiar with the Avastin/CPT11 chemo...how long does it take for the IV drip to be completed? Someone told me 6 hours...is that...
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| 16 | 06/03/08 |
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Forgot Nausea Medication
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My husband is currently taking bimonthly infusions of CPT-11/Avastin and monthly Temodar 5/23 (simultaneously). He has had little to no difficulty wi...
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| 8 | 06/03/08 |
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Congress
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I hope that all of Sen. Kennedy's friends in the Senate throw buckets of funding at GBM research. If they want to show their support, what bette...
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| 22 | 06/02/08 |
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Brain cancer vaccine
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I literly just watched the news here in Boston and there is a Boston resident traveling to and from Duke in Durham, N.C. where he is part of a clinical trial fo...
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| 11 | 06/02/08 |
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glioblastoma
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My husband was dx. last week with glioblastoma. He already has expressive aphasia and weakness to his right side. We thought he'd had a stroke, and he refus...
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| 7 | 06/02/08 |
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GBM
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Hey Everyone, Well Mom is done with radiation and the temadar. I spoke with the cancer doctor and he said, he would see us the 30 of June and will do ...
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| 6 | 06/02/08 |
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Kennedy at Duke
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I read this morning that Ted Kennedy is undergoing brain surgery at Duke. Wonder if the surgeon is Dr. Henry Friedman. I wish him the best.
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| 2 | 06/02/08 |
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Need some advice or inspiratio...
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I have a close friend who just found out he has brain cancer. He is a 33 year old male. He only started showing symptoms within the past month or so...
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| 5 | 06/02/08 |
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Oligoastrocytoma III
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Is there anyone out there with an Oligoastrocytoma? My husband was diagnosed about a month ago and I was wondering if there is anyone I can talk to.&...
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| 13 | 06/01/08 |
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Adult Pineoblastoma?
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Hi All, I am new here but have been browsing through the posts for the last few days. Here is my story, with some questions at the bottom of it. It a...
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| 2 | 06/01/08 |
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DIPG
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Has anyone with DIPG experienced sudden swelling in the legs?
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| 3 | 06/01/08 |
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eating and losing weight conce...
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Is anyone having trouble getting theri loved ones to eat? My mother is on her temodar cycles, she just completed her second, four more to go. When s...
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| 2 | 06/01/08 |
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looking for answers?
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I have been holding off on posting this..but the more I think about the reports the more confused I get.Bear with me...K? 02/21/08 pre-op MRI: 7.0cm ...
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| 3 | 06/01/08 |
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GBM 4 SURVIVAL STORIES 4 MY MO...
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Hi Everyone,Well my mom is in a deep depression and I need help! She does not use the internet and she doesnt have any hope that she can beat this! ...
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| 12 | 05/31/08 |
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decadron vs. xerecept
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Can anyone tell me the difference between decadrom and xerecept
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| 2 | 05/31/08 |
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GREAT NEWS
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I just want to let every one know that there is hope, I was just told at my last doct. apt that I have no new growth. I have a Oligoastrocytoma grade 3 and have...
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| 5 | 05/30/08 |
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Brain Swelling
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hey everyone, for anyone who's been followig my story, my father had a regrowth about 5 weeks ago and opted out of a second surgery. They up'd his dose ...
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| 3 | 05/30/08 |
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