Message Board Discussions

Brain Cancer

If you or a loved one has been diagnosed with brain cancer, our online forum resources can be a valuable source of information and support. Whether you want to research and compare treatment methods or just share your story with other cancer patients, we encourage you to learn more today.

Brain Cancer Discussions

TypeSubjectRepliesStartedRating
Discussion started Patient
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cancercompass search
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Does anyone know how to contact the webmaster? when I have tried to locate someone and put their name in the Search part of the site, it says error. It has been...
207/12/08 Message Rating
Discussion started Caregiver
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Has Any One Experienced the Fo...
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Hi ThereIt has been a while since i have posted. Things have been crazy and havent had the time to digest all that has happened over the last year. To touch bas...
307/12/08 Message Rating
Discussion started Caregiver
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Which would you chose?
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Okay, my Family and I need to make a decision. My father got a cold and was on medicine for it so he couldnt start any chemo. Because of that we ...
607/11/08 Message Rating
Discussion started Caregiver
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chlorotoxin
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Anyone know anything more about this?
107/11/08 Message Rating
Discussion started Caregiver
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caregivers...
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Hello fellow caregivers.Don't ever forget what a fantastic job ALL of you are doing for your loved one.  I sometimes think it could be harder for the c...
307/11/08 Message Rating
Discussion started Caregiver
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This is my first posting
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Hello everyone, I found Cancer Compass on Google. My name is Stasia and my husband was just diagnosed with GMF 4  two weeks ago on his 45 th birthday. We j...
1007/11/08 Message Rating
Discussion started Caregiver
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GBM IV CAREGIVERS/WHO HAVE TO ...
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What do most caregivers do when their loved one can no longer go to work or drive? In the event that someone has to stay with them at all times? Has anyone cros...
407/10/08 Message Rating
Discussion started Patient
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GLEEVEC FOR GLIOBLASTOMA?
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Anyone using GLEEVEC for glioblastoma?  Side effects?  Working?
207/10/08 Message Rating
Discussion started Caregiver
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glioblastoma survivors
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My husband was diagnosed with glioblastoma located in the corpus collusum (sp) last March. We have done 6 weeks of Temodar concurrent with radiation therapy fol...
407/10/08 Message Rating
Discussion started Caregiver
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Questions/Update on my Dad
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To recap:Dad Age 50 Dx July 15th 2007, Complete ressection July 19th 07, 6 wks Radiation with concurrant Temodol, 7 months of Temodol 21/7 at 210mg/day. 3 Clear...
607/10/08 Message Rating
Discussion started Caregiver
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Newbie with friend who has 2 m...
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Hi my name is Kathy-jo. In January of 2003 my friend Maria called me to tell me she had GBM4 and had 3-6 months to live. Maria has beaten the odds and is a walk...
207/10/08 Message Rating
Discussion started Caregiver
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Radiation
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Does anyone know if a caretaker for somone undergoing radiation and chemo therapy at risk of getting ill.  Can being in the same room touching the cancer p...
1007/09/08 Message Rating
Discussion started Caregiver
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HELP! New Surgery
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HELP!  My brother needs a second surgery.  First surgery was in 2/08.  Since then, radiation and temodar and now temodar and CPT 11.  There ...
307/09/08 Message Rating
Discussion started Caregiver
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How long to stay on Temador
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Hi,I've not posted in a long time - my husband age 45 was dx 5/11/07 with gbm. he had a total resection; did the standard 6wks radiation/daily temador and h...
407/08/08 Message Rating
Discussion started Caregiver
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Still no growth
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We just had wonderful news.  The MRI revealed that my son's tumor showed no growth, althought it is a very big tumor.  Since August there was only...
507/08/08 Rated by 2 members
Discussion started Caregiver
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gbm
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My friend was diagnosed in Feb 07 with an inoperable gbm.  He does TRY to sleep alot but I think that is mostly due to depression.  He actually has a ...
407/07/08 Rated by 1 members
Discussion started Caregiver
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Temodar 6 months only
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Our oncologist told us today that this will be dad's last round of chemo (it's his 6th monthly 5/23).  There are people in our support group who ha...
507/07/08 Message Rating
Discussion started Caregiver
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Dementia from Whole Brain Radi...
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My wife was given whole brain radiation,  which didn't stop the mets from growing, later  got targeted radiation, which has done better.Online I r...
507/07/08 Message Rating
Discussion started Caregiver
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Glio IV First Seizure/Confusio...
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Dx 11/07 Surgery 12/07My husband had his first seizure yesterday, there saying that the ct scan showed a growth from 2cm to 5cm in 3 months, started on decadron...
907/06/08 Message Rating
Discussion started Patient
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treatments and prognosis
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Just finished yesterday ,third round of 5/23.  1.overall,i feel pretty good,my temperment is bad,i snap out on my wife,who doesn't deser...
907/06/08 Rated by 1 members
Discussion started Caregiver
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Daddy is at peace now.
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Dad passed away July 1st 2008 at 2:35am. He went peacefully in his sleep. Dad became unresponsive at 5:00pm June 30 2008 and took his last breath at 2:35 am. If...
607/06/08 Message Rating
Discussion started Caregiver
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Avastin Article in the NY Time...
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There is a rather in-depth article in todays online NY Times about Avastin and it includes some back story for how it came to be used in fighting Brain Tumors. ...
407/05/08 Rated by 1 members
Discussion started Caregiver
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Enlarged spleen on temodar?
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Hi All, My mom has a large lump on her left side, just under her rib cage. Since I am a radiologic tech, I am pretty sure it is the spleen. She feels OK, n...
207/05/08 Message Rating
Discussion started Caregiver
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Prognosis
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When the doc finally gives a prognosis as to life expectancy - from which point is he basing this? Is it from the time of the diagnosis? the time of starting tr...
407/05/08 Message Rating
Discussion started Caregiver
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Need to Vent and not be judged...
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My dad have GBM IV since April of 2007.  He is doing "well".  Lives on his own still.  I as most of you have read before am a 35 y...
1407/04/08 Message Rating
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