Find online gynecological cancer information at CancerCompass.com. Our forum lets you connect with patients, discuss new developments in gynecological cancer research and more. http://www.cancercompass.com/message-board/cancers/gynecological-cancer/1,0,119,38.htm Sat, 21 Nov 2009 00:00:00 GMT Sat, 21 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Anyone else with this diagnosis? Thanks,Bonnie http://www.cancercompass.com/message-board/message/all,41021,0.htm Bonphire Mon, 26 Oct 2009 00:00:00 GMT Anyone else on this? Thanks, B http://www.cancercompass.com/message-board/message/all,41020,0.htm Bonphire Mon, 26 Oct 2009 00:00:00 GMT Hi. I am looking to find others who nhave had a pelvic exenteration. I had a total pelvic exenteration 3 months ago, now have colostomy and urostomy. This was due to recurring vaginal cancer after chemo/rad failed.After a bumpy start to my recovery, I am doing great, at least I think so. At one point my weight dropped to 68 lbs, I am up to 110 lbs now. YAY!!! I did have a nasty UTI after discharge from surgery, hospital stay was only 10 days. Then 6 more after being readmitted for UTI. The only other issue was an infection to my reconstructed vagina and I'm waiting for outpatient surgery for a graft to correct damage from the infection. I think these bumps are pretty minor compared to other possible complications that could've happened. This is such a rare surgery, I would like to hear from others who have had this or know somebody who had this surgery. Interested in how other are doing.Like I said, my proceedure was only 12 weeks ago. My weight is up greatly, I am independent with all my care including stoma care, I can  walk 1 mile, and I just started driving again.If anyone is considering this proceedure, I hope my experience cand provide hope that there is a chance and that you can go on to live a good life. My ostomies do not bother me and I am comfortable with the new me. http://www.cancercompass.com/message-board/message/all,40349,0.htm ann445 Sat, 03 Oct 2009 00:00:00 GMT I recently had a recurring uterine polyp that stuck out of the cervix (visible upon gyn exam) removed by a gyn surgeon. Fortunately, she said the tissue looked ok and the biopsy result was negative! But polyps are on the road to cancer, and again this is recurring. I searched this site and found only one other reference to this - a man said his wife with ovarian cancer also had this kind of polyp, also negative. Does anyone else have knowledge of this? Maybe with all the cancer out there this might seem trivial, but I am still worried. http://www.cancercompass.com/message-board/message/all,39982,0.htm colormyworld Sat, 19 Sep 2009 00:00:00 GMT hi all, had my pap 2 weeks ago the dr called to say pap abnormal and endometrial cells found, havn't had any bleeding or problems. i have been on aromasin 5 years & was on tamoxofen 2 yrs. i am going today for another pap & she said will thread a thin wire into the uterus to collect more cells said would be crampy & uncomfortable. has anyone had this done? i am 7 1/2 years out from stage 3 wi 14 positive lympth nodes breast cancer.don't know if i'm ready to take on another battle but i will if i need to. any info is appreciated especially how the test feels. thanks girls, nb    http://www.cancercompass.com/message-board/message/all,39386,0.htm Nancyb Fri, 28 Aug 2009 00:00:00 GMT Hello everyone, I had a vulvar biopsy done a week ago and just got the results from my doctor today. I was diagnosed with VIN III and am scheduled for a simple vulvectomy or wide excision in one week from today. I was warned that this procedure has an extremely painful recovery and healing time. Does anyone out there have any tips or any helpful advice. http://www.cancercompass.com/message-board/message/all,39277,0.htm tallahatchiegirl Mon, 24 Aug 2009 00:00:00 GMT I have another lump on my vulva and will find out the results from the biopsy next week. I had a partial vulvectomy in 2007 and was told by the surgeon he did not think it would return. Yesterday I got the results of 2 mammograms and a breast ultrasound; they were inconclusive, so now I need a ductogram (tube in nipple, insert dye and then view on yet another mammogram). Whew, enough already!My question is; Are the two cancers somehow linked? I know ovarian cancer and breast cancer are, but I have been unsuccessful in finding information out about vulva cancer (VINIII) and breast cancer. (I found one small, inconclusive study on the subject, which really didn't give me much to go on). I should also mention I had a cone biopsy on cervical dyslplasia in 1982. It seems to me that once struck by cancer might make you more prone to other types.Am I right?Thanks again! http://www.cancercompass.com/message-board/message/all,38803,0.htm Dipie Fri, 07 Aug 2009 00:00:00 GMT Finding up to date info about MMMT was extremely difficult for me.  There were bits and pieces scattered all over the internet.   I felt luck to finally find some good info.  To fill that void I created a web site to help people who need to get up to speed fast on Gynecological MMMT aka Carcinosarcoma. It is at  - http://gynommmt.wordpress.com/ The Uterine MMMT Message Group has a wealth of information in it’s files links and messages sections.  If you want up to the minute information, community and emotional support from MMMT patients, survivors and their loved ones join it.  It is devoted to all things Gynecological MMMT. http://groups.yahoo.com/group/UterineMMMT/  Steve http://www.cancercompass.com/message-board/message/all,38410,0.htm Steve_NV Fri, 24 Jul 2009 00:00:00 GMT Nine days ago I woke up with pain on my lower right back. I figured it was because our mattress needed to be replaced and put up with it and the accompanying sleeplessness. But two days ago, I noticed mid-cycle bleeding. (I'm 51 and perimenopausal). The back pain is getting worse, and now I'm getting pain going down my upper right thigh. I'm not overweight, I WAS exercising on elliptical trainer 5-6 mornings a week. I called my gyn 6/9, and the soonest they could get me in for outpatient hysteroscopy is June 23 (12 days from now). (I have never had success w/in-office attempts; they can't get into my cervix; excruciating.) Here's my question: should I insist on being seen sooner? Should I insist on blood work? Needless to say, I am very scared. And I still can't sleep. I have stopped taking Ibuprofen, because they said the anesthesiologists require that you NOT take it within a week of procedure (danger of bleeding). I'm afraid if I do need to have the procedure sooner, they will not do so because of my recent Ibuprofen intake. http://www.cancercompass.com/message-board/message/all,37037,0.htm mamawriter Thu, 11 Jun 2009 00:00:00 GMT Hi,I'm new to the internet let alone this site. I'm 48 y/o.Started my period at age 11. My periods have always been regular every 28-30 days.Lasting 5-7days. Approx. 5 mo. ago at night my skin felt cool and clammy so I thought I was having night sweats w/o the sweat. My skin and sheets weren't wet?  I have gained 10.5 lbs. since Dec. So of course I thought premenopausal. The last day of my last period was3/11/09-3/13/09. I went for my yearly 3/18/09.Upon exam I had excruciating pain over L ovary. Next day u/s showed marked dilated structure L fallopian tube and 15mm thickness of uterine lining. Gyno. put me on tetracycline for 14 days and follow up u/s on 4/30/09. I had them change it to 5/11/09 so it would be right after my period when the lining is at it's thinnist. Well I didn't start on the eleventh so rescheduled for 5/18/09 this one showed normal fallopian tube and 2.5cm lining thickness. I do have pain with intercourse,dryness,lots of presssure, urinating frequently-I used to go 2-3 times a day. Now10-12 x's and I still havn't had a period. On 5/13/09 I had all hormone tests including TSH and testosterone. They were all normal.Could this be something other than ca. Help! I go to Dr. 5/24/09.Signing out , insulin http://www.cancercompass.com/message-board/message/all,36315,0.htm insulin Tue, 19 May 2009 00:00:00 GMT I just had a cole knife cone biopsy 9 days ago.  I also had my uterus scraped and whatever else they do, because they were sure I had uterine cancer .... That test came back CLEAR. I told them I didn't have uterine cancer, but this proves it !!!  Also, half of my cervix is gone now. Just this week, they called  and I've found they ignored taking out a high grade grandular lesion consistent with adenocarcinoma in situ...because they say I have to have an oncologist do that surgery, which they are advocating a total historectomy including lymph nodes, etc. I don't think this is necessary, at this time.....Why don't they remove the in situ and keep a watchful eye on me???   I honestly can't withstand any more poking, probing, scraping, cutting, burning...I had a heart attack 3 weeks ago from the stress of this wonderful disease.....Thanks to my straying dog of an ex husband !!!I seriously don't think I'll survive anymore serious surgeries.....Has anyone gone through this???   http://www.cancercompass.com/message-board/message/all,34974,0.htm sonchine Sun, 05 Apr 2009 00:00:00 GMT About 5 years i had a cone biopsy for cin, dont know what stage, never asked and dont remember being told, i am now recovering from surgery last week of a wide excersion of the vulva for vin, I am so scared of it coming back again or even worse it turning to cancer, does anyone else have these feelings? Be nice to talk to someone who has been through the same procedure. http://www.cancercompass.com/message-board/message/all,33452,0.htm loomorg Sun, 22 Feb 2009 00:00:00 GMT I am trying to find my daughter some emotional support from people who have gone through the leep procedure.  She is 20 and as much as I can, am giving her emotional support, but I think she needs to talk with people who have gone through this.She really, really wants children and this is her major concern.  Is this the place I need to direct her and how long does it take to get respones?Thank you much. http://www.cancercompass.com/message-board/message/all,33311,0.htm ladytrucker Wed, 18 Feb 2009 00:00:00 GMT Hello to everyone here, and my heart and prayers go out to all of you that are touched by this cancer. My sister in law, 43, was just diagnosed this week with SCCC, after a month of gastrointestinal distress. She was found to have tumor masses in her cervix, ovaries, vagina, her uterus was enlarged and "rock-hard", and she has 7 tumors in her liver, which was the source of her GI distress. She had a totally normal GYN exam in May 2008. She just got the results of her Brain MRI and Bone Scan on Friday, and found that the cancer has also metastazed to her shoulder and right hip (no brain involvement, which is good news). Her cancer is Stage IVA. She will be undergoing chemo (carboplatinum and VP-16), however her oncologist has vetoed radiation therapy that her GYN Oncologist recommended. I am a nurse, and my heart sank when Beth (my SIL) initially told me that it was small cell cervical cancer. I have encouraged her to get a second opinion, and alo to try to enroll in clinical trials (we live in MA, so I got her names at Leahey Clinic and Mass Gen. Hospital). We are all in shock, especially Beth, but I was encouraged to read the stories from everyone here and how well some have done fighting this horrible cancer. Beth's oncologist told her that this extremely aggressive cancer typically recurs, and relayed that there was no cure, but told her that it could be "managed". Has anyone here undergone clincal trials for this type of cancer? Any info would be much appreciated, and my thoughts and prayers are with all of you.Karen http://www.cancercompass.com/message-board/message/all,32748,0.htm Karenmbf Mon, 02 Feb 2009 00:00:00 GMT I have always had normal pap tests.  When I went in August, the results were abnormal.  The follow up pap was in December.  It was extremely abnormal so they scheduled a colposcopy 2 weeks later.  Immediately following the colpo, they scheduled the leep without knowing the results of the biopsy because the doctor could view the lesion.  The pathology report did, in fact, reveal that it was carcinoma in situ.  I went for my LEEP yesterday.  Evidently, it went well.  I was under anesthesia and it was definitely nice to "sleep" through the procedure. They removed all of the lesion and we should have the pathology reports within two weeks to determine if all of the margins are clear.  I am a woman of faith and feel confident that the cancerous cells have been removed from my body.  I am 28 and have been married for almost 2 years.  My husband and I wanted to start trying to conceive in June.  The doctor said she wants me to have 4 normal paps over the next year before we try for babies.  This wasn't the news that I wanted to hear so I am hoping we can discuss this further at my follow up appt in 2 weeks.  I just want to move on with my life.  Anyone with similar situations? http://www.cancercompass.com/message-board/message/all,32174,0.htm anderlauren Thu, 15 Jan 2009 00:00:00 GMT Hi My mum was misdiagnosed with ovarian cancer on the 21 NOvember 2008.  She has since had a full hysterectomy and they discovered that her ovaries were not diseased.  However she does have cancer.  They just cannot find the primary.  The secondary was in the omentum and they left nodes in the abdomen with disease attached to the outside of the bowel. The nodes were too small to remove and they feel they can get these with chemo.They have told us it is incurable and now I am scared.  I am her caregiver and I don't really know what is ahead for us.She is 71 years old and it seems so cruel.  We have hospice helping us - which is great and they come for their first official visit today.If any of you have any help or advice, that you could give I would greatly appreciate it.I do feel so alone dealing with this. http://www.cancercompass.com/message-board/message/all,31725,0.htm coro42 Thu, 01 Jan 2009 00:00:00 GMT Hi My mum was misdiagnosed with ovarian cancer on the 21 NOvember 2008.  She has since had a full hysterectomy and they discovered that her ovaries were not diseased.  However she does have cancer.  They just cannot find the primary.  The secondary was in the omentum and they left nodes in the abdomen with disease attached to the outside of the bowel. The nodes were too small to remove and they feel they can get these with chemo.They have told us it is incurable and now I am scared.  I am her caregiver and I don't really know what is ahead for us.She is 71 years old and it seems so cruel.  We have hospice helping us - which is great and they come for their first official visit today.If any of you have any help or advice, that you could give I would greatly appreciate it.I do feel so alone dealing with this.     http://www.cancercompass.com/message-board/message/all,31648,0.htm coro42 Tue, 30 Dec 2008 00:00:00 GMT Hi, I'm 22 and had abnormal PAP smear results a few months ago. I was diagnosed with Mild Dysplasia (CIN I). My doctor sent me to get a colposcopy a month later, and the results were that I had Mild to Moderate Dysplasia, and my OBGYN recommended that I have the LEEP procedure done. I'm worried that this is a hasty decision. I know that the LEEP procedure would basically help remove the affected areas, although of course, there is a chance it could come back. But my first doctor told me that mild dysplasia usually clears itself up if you're young and healthy, and your immune system does its work. Although, I'm also concerned if left untreated, this could progress into more severe dysplasia. Can anybody recommend what I do in this situation? I'm so scared to have a LEEP done unneccessarily in case there are complications like infection or even complications during pregnancy later. http://www.cancercompass.com/message-board/message/all,30783,0.htm cadabeijos Sat, 29 Nov 2008 00:00:00 GMT Hi, I am a 23 year old female. Over the past month or so I've developed some symptoms that are concerning me...For the past 2 years or so, I've had very painful intercourse upon deep penetration - I get a shooting pain throughout my pelvis....then about 1 month go, I started to experience burning upon urination & increased frequency...I made an appointment to go see my family doctor (to rule out infection, etc) & get a pap, in between the time of scheduling my appointment & going to see my doctor, I developed a dull aching in my pelvis, mostly in the lower right quadrant. I tell him this informtion, he does a urine test, pregnancy test - all negative. during my pelvic examination, he presses down on my lower right quadrant, & it just about sends me off the bed, I had pushed down on my pelvis on my own standing up & didn't really have much discomfort. Over the next few days I've been experiencing lower back pain & shooting pain into my right groin area. The doctor's next suggestion is to go for a pelvic ultrasound....however, I have to wait until January for an appointment- in the meantime I am beside myself worrying I have cancer! I will note that my periods have remained normal, & I have had no abnormal bleeding. http://www.cancercompass.com/message-board/message/all,30215,0.htm kelly12 Wed, 12 Nov 2008 00:00:00 GMT I have a close friend who has just found out she has a 12cm growth on what the doctor described as on top of her uterus.  It has not been diagnosed as cancer, but it seems there isn't enough testing going on and he wants her to make decisions without much information.  She is 37 and has not had a child yet, so preserving her fertility is very important to her.My question is this, is it normal for a gyn oncologist to want to go in and remove the growth without knowing what kind of growth it is?  I've been reading about several alternatives for Dr's to determine what it might be before operating, but he's only given her a pelvic exam and taken an MRI.  He's asked for permission to remove everything, but doesn't give her any information to help her make the decision.Any comments out there?Any referrals to good information?  At this point I feel like I'd be willing to pay for her to go outside of her insurance and get an independant opinion (she's got Kaiser and sees Kaiser Dr's.).  Obviously it needs to be removed, but the lack of testing and information is frustrating.Thanks for any help/referrals http://www.cancercompass.com/message-board/message/all,30134,0.htm friendndeed Mon, 10 Nov 2008 00:00:00 GMT Hi Everyone,I am new here.  In August of 2007, a mass was found on my ovary.  After being told it was probably nothing, I had surgery in September to remove it.  When the lab reports came back, I was told it was a granulosa cell tumor.  My gyno said I needed to have a complete hysterectomy and in November, I had surgery again.  I did some research on GCT and everything I found told me it was a form of cancer.  When I asked my gyno if I had cancer, she said no. She told me I had to be watched closely over the next 5 years but it probably wouldn't come back.  When I asked her about staging, she said it didn't apply to me because I didn't have cancer.  When I asked about blood tests, 'nope', didn't need them. She said I could speak to an oncologist if I wanted to.  I asked her why I needed to see an oncologist if I didn't have cancer and she said 'for a second opinion only.'  I chose not to speak with one because I trusted everything she said.  However, I still felt as though something wasn't right.Fast- forward to now, one year after my initial diagnosis and first surgery.  I decided I wanted to see an oncologist so he could tell me 'straight-up' that I didn't have cancer.  Needless to say, those weren't the words I heard.  After a year of thinking I didn't have cancer, I found out that, not only did I have cancer, it was very rare.  I guess I always knew, deep down, what I had but it still came as a shock.  I have finally stopped crying.My oncologist told me the gyno was probably trying to save me the trauma of the 'c' word, but how dare she!!  I had a right to know!  Part of me is so mad I just want to slap her and the other part of me says, 'at least I know now and that is all that matters.'  I am not sure how I will handle this when I have to see her again.My new doctor, is wonderful.  He did an Inhibin test and I am anxiously awaiting the results.  I just had a CT scan and all looked good.  I have to see him again in 6 months for more blood work and an exam.I am very happy to have found this site.  I would love to hear from other GCT patients.  I was wondering if anyone could give me some details on the Inhibin test.  I want to be ready when I get the results, but I don't know enough about it.  I would also like to hear about some symptoms of relapse.  When I first got sick, I was so blasted tired I could hardly move.  I think the more we know about, the easier it is to listen to our body.  I have decided to be pro-active instead of reactive, and I welcome any advice.Thanks for taking the time to read my story. http://www.cancercompass.com/message-board/message/all,28654,0.htm mrsk12 Thu, 25 Sep 2008 00:00:00 GMT My aunt had a lung tumor that had metastasized from a primary uterine leiomyosarcoma and it grew from 10 cm to 25 cm in 5 months, while she was getting chemo.  They told her it was "low grade" and slow growing but that seems really fast to me.  Could she have misunderstood them? http://www.cancercompass.com/message-board/message/all,28159,0.htm alliestclair Fri, 12 Sep 2008 00:00:00 GMT I am 44 yrs old.  I had a TAH/BSO with LND on Aug 15, 2008.  My Path report came back 08/27/08 as Mixed endometroid and serous papillary carcinoma.  The path report said IIIA due to Suspicious peritoneal cells.  Doc said IIB.  does this make a difference? They gave me 3 options.  Clinical trial GOG209, hospital tumor board recommended internal, external radiation and chemo, and Doc recommended 6 cycles of combo chemo (Carboplatin and Paclitaxol).  does anyone out there have this type of Cancer?  I am looking for someone to talk to about decision making. also, anyone out there still living with this disease.  I understand that survival is very low.  so why treat? thanks for the help and support. http://www.cancercompass.com/message-board/message/all,27676,0.htm eaa1964 Fri, 29 Aug 2008 00:00:00 GMT Hi everyone!  I'm new to these boards, and not totally sure how this works.  I'm desperatley seeking advice/similar stories.I had my LEEP procedure done on August 15th, 2008.  The numbing medicine burned, I felt everything, and I fainted.  Right afterwards I felt really bad...  Lots of cramping, bleeding, faint feeling, and extremely tired.  Now, a week and a half later- Nothing's different!  I'm still cramping terribly.  The bleeding has reduced to spotting, but I'm still feeling fatigue and light headed.  From what I've read about other people's experiences, this isn't normal.Or is it?  Am I freaking out over nothing, or should I be seen again?Any advice or info would be greatly appreciated.Thank in advance, and have a blessed day.Heather http://www.cancercompass.com/message-board/message/all,27564,0.htm HeatherD Tue, 26 Aug 2008 00:00:00 GMT Sorry for the length, but I didn't want to be incomplete on the chance I’ll find someone who knows about this.  After researching this, I’ve found very little information on Differentiated VIN.  I’m hoping to finally find someone who has some information.  I certainly don’t expect answers to all my questions and appreciate any information/experiences you can share.  Thanks for your help!   My daughter is a sexually active 20 year old college student (she's leaving the initial research on this up to me- probably better with all the possibilities you see on the internet).  For at least the past 5 years she has had almost chronic issues with vulvar itching.  She has been on many creams for Yeast Infections as well as about 10 cases of Bacterial Vaginosis (maybe more since she has to travel home from college to get to our GYN which doesn't always happen).  Last year our OBGYN finally sent her to a GYN Specialist, at the time she finally got in for her appointment he told her she didn't have BV right then and come back when she did.  She had an episode of bloody diarrhea this past winter and after a clear upper GI scan, and colonoscopy in January they found a clear polyp and an adenomas nodule (precancerous) which were removed.  She also has been having urinary issues (urge to go) so our GP sent her to a Urologist and she's currently taking Detrol. After continued itching issues I insisted on another appointment with the GYN Specialist this January and we saw his associate.  He diagnosed her with Vulvar Vestibulitis and gave her Lidocaine to numb the area, incidentally he suggested she start Gardisil shots, which she's now completed.  A few weeks ago she was back to our GYN and she pointed out a few (3-4) "bumps under the skin- haired area, both sides".  They biopsied one bump and didn’t mention any skin changes in the area (none mentioned on the GYN report).  The biopsy came back with VIN 2, and I've scheduled her to see another Specialist at the same Hospital in mid-August (I'm told this one has some experience with Oncology and knows about VIN).  The GYN told me they would probably laser the bumps off. BTW she had a negative PAP last summer and tells me she's had recent HIV/STD screening, all negative, and she’s always been a non-smoker. I'm a Mom who WANTS to know as much as possible before we go in.  I've got a copy of the Pathology report now and after doing days of research online I still have questions.   FINAL PATHOLOGY: Focal Vulvar Intraepithelial Neoplasia (VIN 2), Differentiated Type.  Epidermal Cyst.  Ki-67: Positive Staining into Parakeratotic Layer. P-16: Positive Patch Cytoplasmic and Nuclear Staining.  The detail says the epidermal cyst-benign, underlying the dysplastic epithelium is negative for p16.  It mentions a rare mitotic figure in the middle third of the epidermis, as well as the P-16 and few koilocytic cells support a high-risk HPV infection.  Findings consistent with a localized high grade squamous intraepithelial lesion or VIN 2.   My/others interpretation of the Pathology is that she has the Differentiated type of VIN not usual/classic warty HPV, but the smooth non-HPV related kind (although Pathology shows she has HPV).  The “bumps” are benign cysts and the VIN was only found in the skin above the the cyst so it sounds like the cysts are unrelated.  So it sounds like they found the VIN by accident while doing the biopsy for the cyst. MY QUESTIONS:1. Is it likely that the precancerous nodule found in her colon and this are related (2 precancerous areas in 6 months)...and should we be seeing an Oncologist to put this all together (I called our GP and they said no, they're probably unrelated)?2. From the report, she has the Differentiated type which everyone says is not caused by HPV, although she obviously has HPV from the Pathology report.  Is there a reason to test for which type of HPV she has?  Are these (her HPV and VIN) really unrelated?3. Are there other tests she should have to look for cancer/cysts in other areas- PAP (not due for one until fall), mammogram (she now tells me she's had a few small bumps between her breast/armpit for about 5 years.  I/Mom have many breast cysts-they say benign.), other scans?4.  After hearing about the cysts, I was expecting it to be the HPV genital warts, but I immediately asked our GYN if the Pathology showed genital warts, but she confirmed she spoke to the Pathologist and it was a epidermal cysts and not the warts.  The Pathology report says the cyst is benign.  Does this mean the cysts are really unrelated and the VIN is just in the surface skin above it?  If so, it sounds like she was lucky they found this at all (just an accident?)?!  5. I don't know what the treatment will be, but it doesn't sound like laser is the way to go.  I'm reading since she has the bumps in haired areas that excision or LEEP may be better?  Isn't it always better to be able to get the pathology, which is destroyed with laser/freezing?6. It sounds like there's a large correlation with finding this differentiated VIN adjacent to areas with Vulvar Cancer.  Is just removing the other cysts going to be enough?  If she really doesn't have any skin changes and just the cysts below, how can they find it all?7. Since they also call this Differentiated type "Simplex".  Does this mean it has anything to do with Herpes Simplex?  The only thing I've read is a correlation with the Usual VIN and having Herpes Simplex in some, but no mention with Differentiated.8. The VIN Differentiated sounds like it's VERY unusual (reading 2-10% of all VIN) and EXTREMELY unusual in someone her age (sounds like the mean age is in the 60's for this type, 50's for usual VIN-but found sometimes in women in their 20's).  In fact I haven't found mention yet of anyone her age diagnosed with it.  Hopefully they won't find any Cancer at this point, but given her age and the precancer in her colon, we're really concerned about her long-term care, screening and prognosis.  Is there any great source for us?9. What else should we be doing/know? http://www.cancercompass.com/message-board/message/all,26546,0.htm HerMom2 Mon, 28 Jul 2008 00:00:00 GMT