Find online gynecological cancer information at CancerCompass.com. Our forum lets you connect with patients, discuss new developments in gynecological cancer research and more. http://www.cancercompass.com/message-board/cancers/gynecological-cancer/1,0,119,38.htm Mon, 22 Mar 2010 00:00:00 GMT Mon, 22 Mar 2010 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My doctor made it clear to me that a cone biopsy is only done to give women a chance to have children before their hysterectomy (which is the "cure"). How big is this opportunity window? He gave me the impression that basically you start having your children right after the biopsy and then have the hysterectomy when you're done. I am 26 and just got engaged, should my fiance and I start our family earlier than we had planned to be safe? http://www.cancercompass.com/message-board/message/all,45138,0.htm Samara83 Thu, 18 Mar 2010 00:00:00 GMT Hi I am 34 years old with a long history of female problems I was put on the pill when I was 15 for really bad heavy periods with migranes and ect... then through the years I have had to lapo done for the endromet. and I also have had pre-cancer cells 3 times. Well several years ago I was in a bad accident which has resulted in 6 back surgeries and I have alot of issues with that and I think from that problem it has kind of hid my issues with the female part. I was on lupron for awhile and then after that I had 2 more surgeries well I hadn't went to the gyno for almost 2years I know thats not good but with everything else and I lost insurance for a time. Well long story short now I was in hospital few weeks ago for blood in stool and pain in my abdominal and pelvic area they did find polplys and said all was good but one would of turned to cancer they also found a enlarged bile duct that Ihave to have more test on that was to Wed but the dr got called out of the country. So I went to my family dr and told him about the pain in my r abdominal and pelvic pain to touch and before I forget I have had no period for a year to the month I am so tired all the time I take phenergan everyday for nausea I go to the bathroom all the time and have actually wet my bed twice and now he has put me on a lasix to stop swelling in my legs and feet. So anyways he sent me for a pelvic us and called me same day and said there was a cyst with mural nodularity and to see my gyn Well she can't see me till March 31st so what I need to know do you think this is cancer I have almost every symptom and when in the hospital they kept telling my bloodwork was off but didn't know why so now that makes me wonder even more has anyone had this. I know I need hystor. they have wanted to do one since I was 25 but I wanted to have kids and I know now I cant I lost one about 9 yrs ago., Please any insight would be great Thanks http://www.cancercompass.com/message-board/message/all,44868,0.htm traman Tue, 09 Mar 2010 00:00:00 GMT Anyone else on this? Thanks, B http://www.cancercompass.com/message-board/message/all,41020,0.htm Bonphire Mon, 26 Oct 2009 00:00:00 GMT Hi. I noticed Small Cell is not a category under the GYN Cancers. I wanted to start a discussion on this type of cancer. My sister was just diagnosed. Any long term survivors out there? http://www.cancercompass.com/message-board/message/all,4853,0.htm Ikenkris Sun, 19 Mar 2006 00:00:00 GMT I read somewhere endocrine disorders might be related to VIN. I have Hashimotos. http://www.cancercompass.com/message-board/message/all,43033,0.htm sorebeaver Wed, 13 Jan 2010 00:00:00 GMT I was told to try it to avoid more surgery. Has it worked for anyone? http://www.cancercompass.com/message-board/message/all,43032,0.htm sorebeaver Wed, 13 Jan 2010 00:00:00 GMT I'm willing to forego sex altogether just so I don't have to go through this VIN crap again, is it possible to not feed virus by abstaining after surgery for VIN3? http://www.cancercompass.com/message-board/message/all,43031,0.htm sorebeaver Wed, 13 Jan 2010 00:00:00 GMT I haven't smoked in 19 years and now I got this? http://www.cancercompass.com/message-board/message/all,43030,0.htm sorebeaver Wed, 13 Jan 2010 00:00:00 GMT Is it impossible to ask? Has anyone have it not come back for a very long time? http://www.cancercompass.com/message-board/message/all,43029,0.htm sorebeaver Wed, 13 Jan 2010 00:00:00 GMT I was just diagnosed with VIN II.  My GYN sent me to a GYN onocologist.  He just took a look and said I needed surgery.  After much extensive research it is my understanding that VIN can hide elsewhere in the vulva area.  Shouldn't he have done a wash to check the entire area?  I feel like he isn't being thorough enough.  Has anyone had this same experience?  Should I insist upon the wash to check the other areas before surgery?  Or am I just being paranoid? http://www.cancercompass.com/message-board/message/all,42845,0.htm rfrost Thu, 07 Jan 2010 00:00:00 GMT I was dignosed with Adenosarcoma in August and they gave me some chemo after a month they said that the tumor was back and they started me on radiation, after the radiation they did a biopsy and they said it wasn't all gone, now they are trying to decide if I can handle more radiation or get more chemo. Does this condition every go into remission? Does anyone know of other treatments? Tired of being sick!!! http://www.cancercompass.com/message-board/message/all,42182,0.htm tiredofbeingsic Fri, 11 Dec 2009 00:00:00 GMT Hi to All.  Went to gyn for PAP last week and he found a dark triangular sized mark where the labia minora meet at the bottom (called the "fourchette").  The mark is between 1/4"-1/2" at its widest point.  I am scheduled for a punch biopsy the day after next to "rule out melanoma".  I noticed this mark there within the last year or so but thought nothing of it because it didn't hurt.  I just thought it was a vein or something.  I also have mild on again/off again itching above my clitoris which recently started.  (I recently had a bartholin's gland cyst removed (marsupialization) on 9/30/09 and had a LEEP done in 1991, at which time I was diagnosed with HPV).  I am petrified that I may have cancer.  Has anyone else out there ever had or know of someone who has had a similar problem and, if so, what was the outcome??  http://www.cancercompass.com/message-board/message/all,41908,0.htm lindei Tue, 01 Dec 2009 00:00:00 GMT Anyone else with this diagnosis? Thanks,Bonnie http://www.cancercompass.com/message-board/message/all,41021,0.htm Bonphire Mon, 26 Oct 2009 00:00:00 GMT Hi. I am looking to find others who nhave had a pelvic exenteration. I had a total pelvic exenteration 3 months ago, now have colostomy and urostomy. This was due to recurring vaginal cancer after chemo/rad failed.After a bumpy start to my recovery, I am doing great, at least I think so. At one point my weight dropped to 68 lbs, I am up to 110 lbs now. YAY!!! I did have a nasty UTI after discharge from surgery, hospital stay was only 10 days. Then 6 more after being readmitted for UTI. The only other issue was an infection to my reconstructed vagina and I'm waiting for outpatient surgery for a graft to correct damage from the infection. I think these bumps are pretty minor compared to other possible complications that could've happened. This is such a rare surgery, I would like to hear from others who have had this or know somebody who had this surgery. Interested in how other are doing.Like I said, my proceedure was only 12 weeks ago. My weight is up greatly, I am independent with all my care including stoma care, I can  walk 1 mile, and I just started driving again.If anyone is considering this proceedure, I hope my experience cand provide hope that there is a chance and that you can go on to live a good life. My ostomies do not bother me and I am comfortable with the new me. http://www.cancercompass.com/message-board/message/all,40349,0.htm ann445 Sat, 03 Oct 2009 00:00:00 GMT I recently had a recurring uterine polyp that stuck out of the cervix (visible upon gyn exam) removed by a gyn surgeon. Fortunately, she said the tissue looked ok and the biopsy result was negative! But polyps are on the road to cancer, and again this is recurring. I searched this site and found only one other reference to this - a man said his wife with ovarian cancer also had this kind of polyp, also negative. Does anyone else have knowledge of this? Maybe with all the cancer out there this might seem trivial, but I am still worried. http://www.cancercompass.com/message-board/message/all,39982,0.htm colormyworld Sat, 19 Sep 2009 00:00:00 GMT hi all, had my pap 2 weeks ago the dr called to say pap abnormal and endometrial cells found, havn't had any bleeding or problems. i have been on aromasin 5 years & was on tamoxofen 2 yrs. i am going today for another pap & she said will thread a thin wire into the uterus to collect more cells said would be crampy & uncomfortable. has anyone had this done? i am 7 1/2 years out from stage 3 wi 14 positive lympth nodes breast cancer.don't know if i'm ready to take on another battle but i will if i need to. any info is appreciated especially how the test feels. thanks girls, nb    http://www.cancercompass.com/message-board/message/all,39386,0.htm Nancyb Fri, 28 Aug 2009 00:00:00 GMT Hello everyone, I had a vulvar biopsy done a week ago and just got the results from my doctor today. I was diagnosed with VIN III and am scheduled for a simple vulvectomy or wide excision in one week from today. I was warned that this procedure has an extremely painful recovery and healing time. Does anyone out there have any tips or any helpful advice. http://www.cancercompass.com/message-board/message/all,39277,0.htm tallahatchiegirl Mon, 24 Aug 2009 00:00:00 GMT I have another lump on my vulva and will find out the results from the biopsy next week. I had a partial vulvectomy in 2007 and was told by the surgeon he did not think it would return. Yesterday I got the results of 2 mammograms and a breast ultrasound; they were inconclusive, so now I need a ductogram (tube in nipple, insert dye and then view on yet another mammogram). Whew, enough already!My question is; Are the two cancers somehow linked? I know ovarian cancer and breast cancer are, but I have been unsuccessful in finding information out about vulva cancer (VINIII) and breast cancer. (I found one small, inconclusive study on the subject, which really didn't give me much to go on). I should also mention I had a cone biopsy on cervical dyslplasia in 1982. It seems to me that once struck by cancer might make you more prone to other types.Am I right?Thanks again! http://www.cancercompass.com/message-board/message/all,38803,0.htm Dipie Fri, 07 Aug 2009 00:00:00 GMT Finding up to date info about MMMT was extremely difficult for me.  There were bits and pieces scattered all over the internet.   I felt luck to finally find some good info.  To fill that void I created a web site to help people who need to get up to speed fast on Gynecological MMMT aka Carcinosarcoma. It is at  - http://gynommmt.wordpress.com/ The Uterine MMMT Message Group has a wealth of information in it’s files links and messages sections.  If you want up to the minute information, community and emotional support from MMMT patients, survivors and their loved ones join it.  It is devoted to all things Gynecological MMMT. http://groups.yahoo.com/group/UterineMMMT/  Steve http://www.cancercompass.com/message-board/message/all,38410,0.htm Steve_NV Fri, 24 Jul 2009 00:00:00 GMT Nine days ago I woke up with pain on my lower right back. I figured it was because our mattress needed to be replaced and put up with it and the accompanying sleeplessness. But two days ago, I noticed mid-cycle bleeding. (I'm 51 and perimenopausal). The back pain is getting worse, and now I'm getting pain going down my upper right thigh. I'm not overweight, I WAS exercising on elliptical trainer 5-6 mornings a week. I called my gyn 6/9, and the soonest they could get me in for outpatient hysteroscopy is June 23 (12 days from now). (I have never had success w/in-office attempts; they can't get into my cervix; excruciating.) Here's my question: should I insist on being seen sooner? Should I insist on blood work? Needless to say, I am very scared. And I still can't sleep. I have stopped taking Ibuprofen, because they said the anesthesiologists require that you NOT take it within a week of procedure (danger of bleeding). I'm afraid if I do need to have the procedure sooner, they will not do so because of my recent Ibuprofen intake. http://www.cancercompass.com/message-board/message/all,37037,0.htm mamawriter Thu, 11 Jun 2009 00:00:00 GMT Hi,I'm new to the internet let alone this site. I'm 48 y/o.Started my period at age 11. My periods have always been regular every 28-30 days.Lasting 5-7days. Approx. 5 mo. ago at night my skin felt cool and clammy so I thought I was having night sweats w/o the sweat. My skin and sheets weren't wet?  I have gained 10.5 lbs. since Dec. So of course I thought premenopausal. The last day of my last period was3/11/09-3/13/09. I went for my yearly 3/18/09.Upon exam I had excruciating pain over L ovary. Next day u/s showed marked dilated structure L fallopian tube and 15mm thickness of uterine lining. Gyno. put me on tetracycline for 14 days and follow up u/s on 4/30/09. I had them change it to 5/11/09 so it would be right after my period when the lining is at it's thinnist. Well I didn't start on the eleventh so rescheduled for 5/18/09 this one showed normal fallopian tube and 2.5cm lining thickness. I do have pain with intercourse,dryness,lots of presssure, urinating frequently-I used to go 2-3 times a day. Now10-12 x's and I still havn't had a period. On 5/13/09 I had all hormone tests including TSH and testosterone. They were all normal.Could this be something other than ca. Help! I go to Dr. 5/24/09.Signing out , insulin http://www.cancercompass.com/message-board/message/all,36315,0.htm insulin Tue, 19 May 2009 00:00:00 GMT I just had a cole knife cone biopsy 9 days ago.  I also had my uterus scraped and whatever else they do, because they were sure I had uterine cancer .... That test came back CLEAR. I told them I didn't have uterine cancer, but this proves it !!!  Also, half of my cervix is gone now. Just this week, they called  and I've found they ignored taking out a high grade grandular lesion consistent with adenocarcinoma in situ...because they say I have to have an oncologist do that surgery, which they are advocating a total historectomy including lymph nodes, etc. I don't think this is necessary, at this time.....Why don't they remove the in situ and keep a watchful eye on me???   I honestly can't withstand any more poking, probing, scraping, cutting, burning...I had a heart attack 3 weeks ago from the stress of this wonderful disease.....Thanks to my straying dog of an ex husband !!!I seriously don't think I'll survive anymore serious surgeries.....Has anyone gone through this???   http://www.cancercompass.com/message-board/message/all,34974,0.htm sonchine Sun, 05 Apr 2009 00:00:00 GMT About 5 years i had a cone biopsy for cin, dont know what stage, never asked and dont remember being told, i am now recovering from surgery last week of a wide excersion of the vulva for vin, I am so scared of it coming back again or even worse it turning to cancer, does anyone else have these feelings? Be nice to talk to someone who has been through the same procedure. http://www.cancercompass.com/message-board/message/all,33452,0.htm loomorg Sun, 22 Feb 2009 00:00:00 GMT I am trying to find my daughter some emotional support from people who have gone through the leep procedure.  She is 20 and as much as I can, am giving her emotional support, but I think she needs to talk with people who have gone through this.She really, really wants children and this is her major concern.  Is this the place I need to direct her and how long does it take to get respones?Thank you much. http://www.cancercompass.com/message-board/message/all,33311,0.htm ladytrucker Wed, 18 Feb 2009 00:00:00 GMT Hello to everyone here, and my heart and prayers go out to all of you that are touched by this cancer. My sister in law, 43, was just diagnosed this week with SCCC, after a month of gastrointestinal distress. She was found to have tumor masses in her cervix, ovaries, vagina, her uterus was enlarged and "rock-hard", and she has 7 tumors in her liver, which was the source of her GI distress. She had a totally normal GYN exam in May 2008. She just got the results of her Brain MRI and Bone Scan on Friday, and found that the cancer has also metastazed to her shoulder and right hip (no brain involvement, which is good news). Her cancer is Stage IVA. She will be undergoing chemo (carboplatinum and VP-16), however her oncologist has vetoed radiation therapy that her GYN Oncologist recommended. I am a nurse, and my heart sank when Beth (my SIL) initially told me that it was small cell cervical cancer. I have encouraged her to get a second opinion, and alo to try to enroll in clinical trials (we live in MA, so I got her names at Leahey Clinic and Mass Gen. Hospital). We are all in shock, especially Beth, but I was encouraged to read the stories from everyone here and how well some have done fighting this horrible cancer. Beth's oncologist told her that this extremely aggressive cancer typically recurs, and relayed that there was no cure, but told her that it could be "managed". Has anyone here undergone clincal trials for this type of cancer? Any info would be much appreciated, and my thoughts and prayers are with all of you.Karen http://www.cancercompass.com/message-board/message/all,32748,0.htm Karenmbf Mon, 02 Feb 2009 00:00:00 GMT