Our cancer forum at CancerCompass.com a helpful source of information for endometrial cancer patients. Join today to research treatment methods, find additional resources and more. http://www.cancercompass.com/message-board/cancers/gynecological-cancers/endometrial-cancer/1,0,119,38,72.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Please let me know what symptoms you had before you were told you had cancer. Is it mainly the bleeding? Does the bleeding get worse as time goes by? Please help.   http://www.cancercompass.com/message-board/message/all,41314,0.htm buttercup51 Fri, 06 Nov 2009 00:00:00 GMT My doc wants to begin treating me with doxorubicin after taxotere has failed. I was initially treated with taxol and carboplatin and went into remission for 9 months. I am apprehensive. He tells me there is a 20% chance it will work. Does anyone have any similar experiences or knowledge of this treatment regime? http://www.cancercompass.com/message-board/message/all,40752,0.htm dunning Fri, 16 Oct 2009 00:00:00 GMT Hi!I finished treatment(surgery,radiation,chemo) for stage 3a cancer June 2008. I was wondering if any of you had advice for this stage---diet,exercise,keeping calm about check-ups!, etc.Thanks!Deb http://www.cancercompass.com/message-board/message/all,40510,0.htm debmom Thu, 08 Oct 2009 00:00:00 GMT Hi there,I'm new to this site, but have been looking for an online support group. I have high grade endometrial stromal sarcoma, stage 1b. I was diagnosed in April of this year after bleeding sent me to my gynecologist. She thought it was fibroids...until I passed a large mass the week before a scheduled hysterectomy. The mass was biopsied and determined to be cancer. I had a hysterectomy performed by a gynecological oncological surgeon. I've also had 25 rounds of radiation and 8 rounds of chemo (Ifosomide, and Adriomycin). I have one more chemo treatment and find myself oddly depressed because now I'm worried about reoccurence. Is there anyone out there with a similar story?  Wing and Prayer http://www.cancercompass.com/message-board/message/all,40425,0.htm wing_and_prayer Mon, 05 Oct 2009 00:00:00 GMT I am a 38 year old mother of two ages 9 and 6 who was diagnosed with Stage IV endometrial cancer in July of this year.  The drs. found a mass (2 cm large) on my right rib, spotting in my right lung, spotting in my abdomen and in my lymph nodes.  They started me on Carboplatin and Taxol and last week I had my CT scan.  It showed that the endometrial tumor has shrunk, lung has cleared however the lymph nodes have either stayed the same or have gotten larger, some new spots in the lymph nodes were found as well as some new spots in my abdomen.  They decided to add a third chemo med called Amend.  Anyone out there that has done this?  I want to do everything possible to beat this thing - any suggestions from anyone ro words of encouragement would be greatly appreciated.  http://www.cancercompass.com/message-board/message/all,39832,0.htm Kalle Mon, 14 Sep 2009 00:00:00 GMT In the coming day or two, I will unfortunately be losing my mom to endometrial cancer. She has fought with every ounce of energy for two years, but the cancer finally caused her decline in the past couple months. To this moment she is still of the mindset of wanting to beat the disease.  She refused to give in.She is a hero to her friends and family.  I would like to hear if others on the board know where research is being done to rid us of this disease. I believe it would be a fitting memorial to find a charity who is truly dedicated to endometrial cancer and reproductive cancer for women. If anyone has suggestions, it is greatly appreciated. http://www.cancercompass.com/message-board/message/all,39028,0.htm gregs Fri, 14 Aug 2009 00:00:00 GMT After 6 rounds of taxol/carboplatin, my CA has returned after 8 months.  My doctor is now taking biopsies for molecular testing to see if there is a response to one of the new targeted drugs.  Anyone out there on one of these newer drugs?  Any info appreciated.Mimi http://www.cancercompass.com/message-board/message/all,38054,0.htm Mimi25 Tue, 14 Jul 2009 00:00:00 GMT Just thought I would share my story. I was just diagnosed with Stage 1 Endometrial Cancer. I am 38 years old with no children. I was diagnosed with premature ovarian failure about 3 years ago. My body wasn't producing the Estrogen I needed, so I went on HRT to bring the levels back up to where they should be for a woman my age. I did not have a period for about 3 years (which led me to the doctor and diagnosis of premature ovarian failure). I've been told I'm menopausal, but have not experienced all the symptoms of menopause. I had some abnormal bleeding which sent me into the doctor. They performed a D&C, found some small polyps and cancerous cells in the lining of my uterus. I got in for a hysterectomy in about 3 weeks. They will look at the uterus to determine if it's gone into the walls of the uterus. If so, they will biposy the lymph nodes to ensure nothing has spread. What a complete surprise to me about this all. How strange the body can develop such an enemy such as cancer. The doctor is confident and optomistic that the cancer cells will be limited to the lining of my uterus and nothing further. The only symptoms I experienced was abnormal bleeding. If I can offer any advice to someone "wondering" about their health or issues...."YOU ARE THE ONLY ONE THAT KNOWS YOUR BODY AND IF SOMETHING ISN'T RIGHT. IF YOU FEEL SOMETHING IS WRONG, GO INTO THE DOCTOR, DO NOT PROCRASTINATE..TAKE ACTION. YOU ONLY HAVE ONE SHOT AT LIFE AND ONE BODY, DON'T IGNORE ANY SYMPTOMS, FACE THE MUSIC AND IN THE END YOU WILL LIVE A LONGER AND HAPPY LIFE"!!38- Diagnosed with Stage 1 Endometrial Cancer http://www.cancercompass.com/message-board/message/all,36385,0.htm Sandra007 Thu, 21 May 2009 00:00:00 GMT hi everyone-i just typed this post and do not believe it processed.will try again.i"ve replied to a couple of posts and now i"d like to post my own question.i have stage3c of mmmtumor.a very rare type of uterine cancer.only 4% of all uterine cancers falls into this group.the tumor has both sarcoma and carcinoma cells.i'm almost three years post opt.had radiation followed by chemo.thankfully so far am doing well.anyone out there with same type of uterine ca.any feedback appreciated.by the way love this blog! thanks.   stayin alive http://www.cancercompass.com/message-board/message/all,35649,0.htm stayin_alive Mon, 27 Apr 2009 00:00:00 GMT I just got the news that my mom has endometrial cancer and she had her uterus removed and is back home,it's been 5 day after her surgery and is going through a lot of pain.She does not know it as yet and we as her children are struggling to break the news to her and worried as to how she would react.She has diahrea,vomiting,and sore mouth and wondering what kind of nutritious food she should be given to her and also before she starts her Radiation and Chemo in about 3 to 4 weeks from now.Pl anyone out there kindly furnish me with more insight about this  would be greatly appreciated. http://www.cancercompass.com/message-board/message/all,35051,0.htm smiley09 Tue, 07 Apr 2009 00:00:00 GMT I was very recently diagnosed with endometrial cancer. When I was at the doctors office, I didn't even know what questions to ask.  I called today and when I pressed the technician for a "type" of cancer, she said it said clear cell and she would have the doctor call me next week to discuss.  What I can find about clear cell is not encouraging.  Any info?  Thank you so much! http://www.cancercompass.com/message-board/message/all,34680,0.htm Missouri_Navy_Mom Fri, 27 Mar 2009 00:00:00 GMT My mom (57) was dx 8/08 with Stage IV Endometrial Cancer that metastatised in her liver, lungs, brain, and bones.  Currently she is on the 10th day of her hospital stay because of extreme weakness and pain from the bone metastatis around her hips.Her oncologist came to see us tonight and basically let us know that she has less then 6 months because her body is too weak from radiation, he's afraid to do any chemo for a few weeks until she can get stronger, get her blood and platelet count up.  By the time he'll be able to try a new chemo he's afraid that the cancer will just continue to spread.   So what I'm looking at now is different options.  Me and my dad don't know if she'll want to continue fighting.  She is on some strong pain killers so we haven't had a chance to talk with her.  Now I'm looking at the Cancer Treatment Centers of America.  Probably their location in Chicago.  Anyone have any experience with them?-Oscar  http://www.cancercompass.com/message-board/message/all,34658,0.htm OscarP Thu, 26 Mar 2009 00:00:00 GMT Hi, 2 weeks ago I had my first pap smear in 4yrs the results showed abnormal cells and says this is very unusal for someone who is 44yrs oldMy doctor wants to do an endrometrial biopsy.I been reading on the internet and I'm frightened because I have had stomach and pelvic pain for a while, even feeling faint when i eat.In the summer i got shingles and a month ago my groin area became inflamed and blisters developed on my legs and lumps around my vagina.I also feel tightness of my chest and find it hard to breathe at times.I am really worried as they say if abnormal cells appear in pap smear and they prove to be cancerous then the cancer is well advanced.Has anyone got any advice or has experience of similar symtoms?I really worried and driving myself crazy.Thankyou for reading this and for any experiences/comments you can share.  http://www.cancercompass.com/message-board/message/all,34424,0.htm desparatemum Fri, 20 Mar 2009 00:00:00 GMT I have had my second cancer surgery with the last being Endometrial Cancer. They believe they have gotten all of it. I have completed my third chemo. treatment and they are saying I should have 25 sessions of radiation. Since the radiation would be very close to my colon and bladder I'm affraid it will damage these two areas and cause more problems.  What should I do? Mary http://www.cancercompass.com/message-board/message/all,33397,0.htm aandmlvp Fri, 20 Feb 2009 00:00:00 GMT I had endometrial cancer 2 years ago and had a surgical menopause I was 49years old I cannot take any HRT because it was a estrogen dominant cancer I am very worried about alzheimers as I know that I am at high risk - does anyone know how I can protect myself from this disease http://www.cancercompass.com/message-board/message/all,33340,0.htm Elainep Thu, 19 Feb 2009 00:00:00 GMT I was just diag with Cancer yesterday 02-11-09.  I would like some advice on how to deal with anxiety?  I have not cried yet I guess I'm trying to be strong for my neice and nephew.   If I had a good cry would that help with the anxiety.  Any tips would be appreciated.  Marie15751  http://www.cancercompass.com/message-board/message/all,33133,0.htm marie15751 Thu, 12 Feb 2009 00:00:00 GMT Is there anyone out there who participated in the Study of Tamoxifen and Raloxifene (STAR) Trial? If so,can you respond to this message and let me know:1) whether you were taking tamoxifen or raloxifene;2) if tamoxifen, for how long (i.e. did you finish the study);3) if you subsequently had a diagnosis of uterine cancer;I know these are extremely personal questions, however I can't find any information so far that speaks to the health of the women who took tamoxifen and who actually finished the study.If you would like, we can take the conversation to our personal email addresses at any time.Thank you. http://www.cancercompass.com/message-board/message/all,31632,0.htm Kim_M_8 Tue, 30 Dec 2008 00:00:00 GMT I have been told that I now have a tumor that may be attached to my bladder and bowel.  What is the diagnosis for this and what are the successes that anyone has had with this?  Please let me know because I am scared.Thanks,Francine   http://www.cancercompass.com/message-board/message/all,31471,0.htm Fran7 Wed, 24 Dec 2008 00:00:00 GMT I am looking for more info on recurrent endometrial cancer. I was dx with Stage 1C Grade 2 endometrial cancer in Feb. 2007. I had surgery and internal radiation. In Feb. of 2008 I was dx with RECURRENT endometrial cancer. I never heard of this. With surgery I was assurred I was totally fine - go home enjoy life. The cancer recurred in peritoneum and liver. Two treatments of chemo carboplatin and taxol and the tumors were resolved. I completed 7 total treatments of chemo. Now, no cancer but watchful waiting. I hate it. Can anyone refer me to a MD for second opinion. A million thanks. Connie http://www.cancercompass.com/message-board/message/all,31430,0.htm Connie71 Mon, 22 Dec 2008 00:00:00 GMT I'm having an endometrial biopsy on the 16th of this month.  Is this procedure very painful? http://www.cancercompass.com/message-board/message/all,31185,0.htm Kelly46 Sun, 14 Dec 2008 00:00:00 GMT hi.i just went for an endometrial biopsy.i am scared to death that this is cancer.my symptoms were a vaginal discharge (mucuos like) for the past 2 years.now the discharge is yellow or white.recently i have had very little bleeding after intercourse.my periods are normal and i don't have any unusual bleeding.i do however see some sort of tissue in the toilet after i have urinated.does anyone know what this could be? http://www.cancercompass.com/message-board/message/all,30850,0.htm clarify Tue, 02 Dec 2008 00:00:00 GMT I was diagnosed with melanoma on the pelvic area by a gynecologist and in fact they were boils that have almost disappeared since taking antibodiodicts for a week. She also done a scraping of the uterus and an infection set in, that is why I started the antibiodicts Yesterday I had an ulta sound and the gp at the emergency room said they could not see my ovaries but that is not uncommon in older women after menopause I am now so confused I don't think I want to have the hystro-scopic I stopped my periods 15 years ago and have had vaginal spotting for quite some time I am starting to think I would be better off taking my chances and forgetting abourt doctors and hoping for the best My blood work is very good as well as the white blood cell count. http://www.cancercompass.com/message-board/message/all,30337,0.htm delta_dawn Sat, 15 Nov 2008 00:00:00 GMT Would like to hear from any longer term survivors of papillary serous CA.Just finished chemo and know there is a 70% chance of recurrence.Any info would be appreciated.Thanks, Mimi http://www.cancercompass.com/message-board/message/all,28897,0.htm Mimi25 Thu, 02 Oct 2008 00:00:00 GMT I have been recently diagnosed with endometrial clear cell carcinoma; it was discovered during a recent hysterectomy; the procedure was originally ordered because of enlarged uternine fibroids and the pathology report that followed indicated another major medical problem.  I have been resting at home post surgery, and receiving home care because the incision became infected 3 days after hospitalization.  I have had intravenous antibotics and am slowly recovering from the infection.  I have had a CAT scan and do not know the results until next week when I meet with the specialist.  I have been looking for someone who has had the same type of diagnosis and would like to discuss treatments, and other emotional issues related to the cancer scare.I tried to find a CancerComrade at the their website location and although Colleen is making every effort to locate someone for me online, to date she still hasn't found anyone and recommended the Blog here.I am at home alone most days.  My 84 year old mother, who not in the best of health, lives in the inlaw apartment downstairs.  My husband continues to work while I am on extended sick. Our only child died ten years ago of neuroblastoma, a rare form of childhood cancer.  Other than the three of us, there are very few family members on whom we can rely in our time of need.  The days can be very long and it is hard to do a lot of self talk to stay positive.  I do have faith in God and have used prayer to sustain my strength.  However, since there are no answers yet to date, the unknown is very straining emotionally.There is almost too much information of the net and at times it is difficult to understand how the diagnosis and treatments apply to you individually.Needless to say, I need to find someone with whom I share.Is there anyone that shares or has experienced the same diagnosis? http://www.cancercompass.com/message-board/message/all,28682,0.htm Baby_Boomer_51 Fri, 26 Sep 2008 00:00:00 GMT I had my ovaries,Fallopian tubes, uterus, cervix, and the ligaments that went from my uterus to my spine removed.  I was having pain and long periods where I'd have to wear two overnight sanitary napkins at a time to keep from bleeding through.  I believe I was told that I had Adenomyosis by a couple of gals that came to my house from Fred Hutchinson Cancer Institute as they were doing a study.  My gynecologist told me nothing and the surgical part was so traumatic and painful that over a month later when I saw him again ( I was in and saw his RN two weeks after) I was still crying because of his treatment of me and the pain as he was the only DR. on staff that didn't believe in the pain pumps.  I woke up in pain and kept waiting to be "hooked" up for pain relief and it never came.  3 hours later when I asked, the RN came in with a shot and asked me arm or rear.  I was cut from hip to hip and it was like being harpooned by that time.  They wouldn't put it in IV but said it had to be IM.  I was never told I had cancer but to be cleaned out like a Halloween Pumpkin for what he said was "You've got black spots" after a biopsy is questionable.  He said the surgery would take under 1 hour when I went in and my husband said that the Dr. came out after three hours.  Is this normal?  I was told I didn't need paps any more but wondering if I should seek advice elsewhere. Anyone have similar experience and does this sound like cancer to you? I'm currently fighting 2nd year of aggressive thyroid cancer, and my aunt was diagnosed as having ovarian cancer a few years ago. CLL http://www.cancercompass.com/message-board/message/all,28652,0.htm CindyLouLou Thu, 25 Sep 2008 00:00:00 GMT