Our online tongue cancer forum resources at CancerCompass.com are a helpful place for cancer patients to compare treatment methods and get the support and information they need. http://www.cancercompass.com/message-board/cancers/gynecological-cancers/peritoneal-cancer/1,0,119,38,149.htm Tue, 24 Nov 2009 00:00:00 GMT Tue, 24 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Greetings Everyone,I started my journey in May 08, surgery chemo with Tax and Carbo. I lost my hair and got realy tired nine rounds later I had second look surgery. CA 125 was down to 23 then they put me on Gemzar and Cisplatin for six months two weeks on two weeks off. 12 sessions and nothing worked. Break while they got me ready for a trial of Doxil, Dicedabean and a vaccine. It was a four month trial I talorated it for two. My fluid went up twice, once drained 12 pounds and the second time...10days later I drained of 15 pounds. I am now hoping to go on Advesin and Tax. My cancer has spread throughout my stomach and I am terrified. They haven't given me much hope. I am 55. Going to see the Doctor tomorrow, any comments?? Wouldn'tit be nice wake up from this nightmare?? Its been 18months of hell as you all know. If the side effects don't get you the disease will. However we are still all here so we keep fighting the good fight?Thanks for any feedback. Lori http://www.cancercompass.com/message-board/message/all,40688,0.htm Lori5 Thu, 15 Oct 2009 00:00:00 GMT Greetings Everyone,I started my journey in May 08, surgery chemo with Tax and Carbo. I lost my hair and got really tired nine rounds later I had second look surgery. CA 125 was down to 23 then they put me on Gemzar and Cisplatin for six months two weeks on two weeks off. 12 sessions and nothing worked. Break while they got me ready for a trial of Doxil, Dicedabean and a vaccine. It was a four month trial I could only get through two. My fluid went up twice, once drained 12 pounds and the second time...10days later I drained of 15 pounds. I am now hoping to go on Advesin and Tax. My cancer has spread throughout my stomach and I am terrified. They haven't given me much hope. I am 55. Going to see the Doctor tomorrow, any comments?? Wouldn't it be nice wake up from this nightmare?? Its been 18months of hell as you all know. If the side effects don't get you the disease will. However we are still all here so we keep fighting the good fight?Thanks for any feedback. Lori http://www.cancercompass.com/message-board/message/all,40689,0.htm Lori5 Thu, 15 Oct 2009 00:00:00 GMT my mother was diagnosed with primary peritoneal cancer in june 2008. She went for three chemotherapy, then removal of utarus and again three chemotherapy. her first symptom was she had plenty water in her abdomen. after november 2008, last chemo, she was recovering very well and came back to normal life. she went for regular cheque up after three months. CT scan, blood test, CA 125 etc. her CA 125 done on july was 8. But since two week she had a abdomen pain and went for a Ultrasound. doctor told she has little amount of water in her abdomen, right side. now what to do we dont know? if any one had similar experience or have any information or suggestion please tell me.. waiting here... my mother is only 59 years old.   http://www.cancercompass.com/message-board/message/all,40401,0.htm chandrani Mon, 05 Oct 2009 00:00:00 GMT 1995 I had ovarian cancer and had surgery I was treated with taxol/cisplatin.  It was gone for 12 years. It returned in 2007 as peritoneal and 2008 again and here I am again it has returned. I did my Chemo 3 times and I am pretty much finished with it. Oh don't get me wrong I am not giving up I am just done with the Chemo at this point. I really don't know what I am going to do. I changed my eating habits and I excercise daily. I just dont know what to expect. My Dr said I look good I feel good so why mess that up with Chemo. It is my choice not to do it.I will probably die from this but what is going to happen to me.In June I was in the hospital with obstructed bowel, is this what I should expect?Is there  anyone out there can fill me in. I really don't want to go out like that.thanks  http://www.cancercompass.com/message-board/message/all,38956,0.htm mstacee Wed, 12 Aug 2009 00:00:00 GMT To give a little history, My mom in late 07 early 08 was diagnosed with stage 4 PPC. She had some rough chemo and then surgery and did WONDERFUL.... Had the best Dr. at MD Anderson. Well shes had her appendix rupture last month and has a hernia surgery soon also. With her cancer surgery and the appendix one she is in lots of pain. Well she went for her routine visit at MD and her count has gone up a little. From 7 to around 28. What normally does this mean? I forgot somewhere in the back of my mind how aggressive this cancer can be and it returning. Does anybody have any experience with this? You can email me at --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--... Thanks http://www.cancercompass.com/message-board/message/all,38752,0.htm twithers Wed, 05 Aug 2009 00:00:00 GMT You said your mother's CA125 went from 90something to 110--that's not a huge rise.  Keep the faith and the hope. Anne http://www.cancercompass.com/message-board/message/all,38680,0.htm annew Mon, 03 Aug 2009 00:00:00 GMT Hi Everyone, my name is Christina, I am 31 years old, married 6 yrs to an amazing man. Just when life seemed to be getting on track, things started to go wrong. My husband and I were trying to start a family. After beging diagnosed with PCOS, we were seeing a fertility doctor. So after months of clomid and bi-monthly ultrasounds....I was concerned when my doctor said there was fluid collection near my left ovary. Initially he chalked it up "everyone has fluid collection at times in ther body caviites." In late March 09 I ended up having a formal vaginal ultrasound, and it was just a matter of wanding up higher that a mass was detected. I was then referred to a gynecological oncologist at a very good teaching hospital. The plan was to do a total abdominal hysterectomy, bilateral salpingo-oophorectomy...should cancer be found. I knew it wasn't good when they physician said he felt the tumor, and it felt hard on the rectal exam. I had a CT which confirmed cancer in my pelvis and omentum, and carcinomatosis on the abdominal cavity, implants on the colon. The surgical approach was changed, i no longer qualified for a laparscopic procedure, and it was converted to the open approach. My surgery was also moved up.The day of surgery was scary (April 09)......I came out of surgery earlier than expected. And this was because the GyneOnc Surgeon explained to my family that the cancer was worse than originally thought. And he was only able to remove my right ovary, right fallopian tube and a tumor that was on the right side. He also removed my omentum and attemped debulking surgery on my colon on abdomen. However do to excessive bleeding, they did not feel it safe to proceed with any more surgical resection. I still have a great deal of tumor burden in my pelvis. When the surgeon woke meup from my surery he actually told me "it's bad, it's bad."All I could do is close my eyes.Initially it was thought that I had Ovarian Cancer, however after the final pathology came back, the final diagnoses was Stage 3C Serous Papillary Carcinoma. I did have ascites that was positive for cancer. This has been tough to deal with. I do have alot of family support emotionally. However I feel that I am the one who has to fnd out everything on my own.....Since I work in the health care field my family seems to think I would know best on how to handle my medical care. And I am the oldest of my siblings. It's just been tough dealing with all the emotional stress that comes along with this.Even though I have all this family support. I feel so alone at the same time. It's hard. I can't believe that me and the wonderful man I married will never have children, or possibly not grow old together. Or that i will not be around to share in my family's day to day lives. I really feel I haven't even begun to live yet. During my follow-up after surgery, the surgeon said he did not see any additional survival benefit with addititional surgery. However everything i read, survivors who have lived 10+ years seem to all have had the total abdoninal hysterectomy. Currently I am taking Carboplain/Taxol and on the GOG-0218: Phase III trial, which is =/- bevicizumab(avastin) during the bulk of my tx 6 planned cycles.(I don't believe i am getting this drug at this time, just the placebo, or I am just not having side effects) Or I may get it during the maintenance arm of the study. I plan on revisiting the whole surgery issue when I meet with my doctor. Currenly I have just finished cycle 4. Has a f/u CT, ascites has resolved, decreased tumor burden in abdomen and pelvis.I have NO lynphadenopathy in chest, axilla abdomen and pelvis, no retroperitoneal or mesenteric lymphadnenopathy.My CA-125 was 412.0 @ diagnoses, 108.0 at my baseline labs (after surgery, but before chemo cycle 1) 131.0 before cycle 2 Then it dropped to 41.7 before Cycle 3 and today, before my 4th cycle, I received my lab results and it went up to 47.8, I was do dissapointed. At this point I am just wondering what else can i do? I am considering getting a second opinion regarding surgery. Does anyone know of a leading hospital in treating this type of Cancer in the US that is know specifically for this type of cancer? As you all know, it is very difficult to find information on this particular cancer without it linked up to ovarian cancer. Also, I am currenly reading Beating Cancer with Nutrition by Patrick & Noreen Quillin. However, my nurse practioner said strict macrobiotic diets are not the way to go.I have also started to grow more in my faith which has really helped me to deal with my situation.I have read some post about getting more oxygen into your system. This may sound silly, but are we talking just about being outdoors more, breathing in the outside air or some kind of hyerbaricoxygen therapy? Also, I was curious on balancing ph and how that is done? If anyone has anything to contribute I am all ears. Thank you for listening. Christina       http://www.cancercompass.com/message-board/message/all,37808,0.htm Christina_H Tue, 07 Jul 2009 00:00:00 GMT Hi all - This is a post on behalf of my sister who was diagnosed with ovarian cancer.  After 5 cycles of carbo-taxol (and numerous other problems such as an ileostomy due to blockage, platelet levels, dehydration, ascites fluid, breathing problems, etc.) she was supposed to have surgery to remove any tumours.  The surgeon said that she has small cancer cells everywhere in the peritoneum and did not do any surgery.  This was very disappointing news.  She has been told that she can take the same carbo-taxol chemo or caelyx.  She is inquiring as to whether she actually has ovarian or peritoneum cancer (I have read that they are similar), but would like to know what chemo worked best for anyone on this site for their peritoneal cancer. The doctors are not giving her a great deal of hope, and even suggested that she may want to just let things run the course.  I am telling her to keep fighting - that even a 10-20% success rate may include her, you just never know.  Someone fits into that success rate.  Any other information about successful treatment would be greatly appreciated so that I can share it with her.  I have also posted on the ovarian cancer site just in case someone there can provide anything.  Thanks so much, and all the best to everyone.  Barb http://www.cancercompass.com/message-board/message/all,37668,0.htm caruba Wed, 01 Jul 2009 00:00:00 GMT Hi I was diagnosed in June of 08, had debulking surgery and IV and intraperitoneal chemotherapy. Ending treatments in January. Yes I agree the IPC therapy sucks. My scans were all negative with the exception of the fluid in my abdomen (Ascites) which was tapped and found full of malignant cells.  My CA 125 was only 167 at the highest but I was a stage IIIB at surgery, this was after 2 rounds of chemo. Sadly my CA125 is rising again, my last CT and PET were okay but I found out I had a stress fracture in my lower back, sometime between scans.  I am working and so far not having pain.  I would like to here from others with re-occurrences of their cancer.Thanks Bubbi http://www.cancercompass.com/message-board/message/all,37352,0.htm bubbi Sat, 20 Jun 2009 00:00:00 GMT My mom was just diagnosed had surgery, starts with Oncollogist 5/27/09. What is she is store for, has been healthy all her life, soon to be 71 on 5/28/09.  Kind of scared and not sure how to be supportive will use this site to obtain more info.  http://www.cancercompass.com/message-board/message/all,36092,0.htm melissamarie Tue, 12 May 2009 00:00:00 GMT New to this - was looking at a number of posts re: pmp - not sure if this message will go to the right place.  The posts I saw stated numerous reccurances for individuals with pmp.  Is this accurate? http://www.cancercompass.com/message-board/message/all,35963,0.htm mount_pleasant Fri, 08 May 2009 00:00:00 GMT I would like to refer to Harriet' s comments in "4th round" wherein she says "The new trend seems to be Gemzar."I'm in my 10 month of reoccurrence treatment on Gemzar/Carbo and my CA125 now fluctuates between 8-10.  The last PET scan I had showed no sign of the breast cancer in lymph nodes under my breast bone, and only 1 small spot of PPC  (1.5 cm) in my abdomen.  I was diagnosed with breast cancer 12 years ago and it reoccurred along with the diagnosed  PPC3 years ago.  I had the surgery and Taxol/Cisplatin then a rest for over a year until  the CA125 climbed over 50.Both my GYN/Oncologist and Breast Cancer oncologist agree that Gemzar/Carbo is the Cadillac of maintenance treatments  and I will remain on it as long as it works.  I asked for time off,  but they said that once you quit a particular chemo you can't go back.  Therefore I would question Drs. who want to go back to previous chemo treatments until they have tried Gemzar.   They also said that once you have a reaction to a "platin," you can't take any platins.I have a lot of faith in both doctors as their treatments are working.  I don't like the treatments, but it has become a way of life for me and I am thankful  for every day.  One thing I would like to add if any breast cancer survivors read this is to have a hysterectomy.  I feel that if I had had one after my mastectomy,  I would not have PPC today. I hope this information might be of help to someone out there, and remember "Keep the faith."Teal Warrior Gayle http://www.cancercompass.com/message-board/message/all,35518,0.htm Donna_Gayle Wed, 22 Apr 2009 00:00:00 GMT Wondering if anyone else has seen a delayed response of the stomach not working.  We are at 4 weeks after the whipple operation and her stomach fills with bile, she has had an NG tube twice and when they take it out she becomes nasueated.  She has not eated or had anything to drick and is being fed through her veins.What are some of your experiences?Would like some input. http://www.cancercompass.com/message-board/message/all,33788,0.htm baloney Mon, 02 Mar 2009 00:00:00 GMT hello,my wife has now being diagnoised with PPC, after reading this site i am very glad i found it, she is 43yrs old and we have two boys  what should i be asking the consultant, she hasnt started any treatment yet but has being having tests for 2 mths and has lost a lot of weight, i would be very gratefull for  your help,thanks Paul http://www.cancercompass.com/message-board/message/all,33637,0.htm indy2559 Fri, 27 Feb 2009 00:00:00 GMT My mother-in-law was diagnosed with primary peritoneal cancer approximately four years ago. She had no surgery but did have chemo and she started to get markedly better and went into remission. The cancer returned several times and she did respond with less time between recurrences. Since last May she has not responded to treatment and is now in pre-hospice. She does not have pain, but the ascites is really bad. She has a peritoneal catheter and this seems to help, but her legs are still very swollen and hard. She is now getting much more weak and tired. She now walks with a walker and has a chair that is motorized to get her in a standing position. She is 85 hears old, but was really doing quite well until Sept. of this past year. She was still driving and then the ascites started to really get bad. We are taking it one day at a time, but I don't know how this terrible disease ends. Her doctor said she will just get weaker and weaker and then not be able to take care of herself. Can anyone tell me anymore? She wants to stay as independent as she can. She does know that she is terminal, but does not want to be considered full-fledge hospice. Thank you. http://www.cancercompass.com/message-board/message/all,33536,0.htm momnpa Tue, 24 Feb 2009 00:00:00 GMT Hi Everybody!All of you are such an inspiration!  My mom (Marge) has recently been diagnosed with stage 3 PPC.  I have been doing a lot of research (as best and I can...there's hardly anything!) about PPC and have found this message board.  I am really looking for support for my mom.  I think she has amazing chances of going into long term remission.  She's young (53) an an otherwise healthy woman.  She hasn't started chemo, yet, but will in a little over a week.  She just got her wig today and I feel like her mood is shifting...losing her hair will be difficult.  If any of you are interested, then please check out this blog I have started for her & leave a comment. http://www.margewalsh.blogspot.com/ I know the comrodery and support of others going through the same thing will give her inspiration.  God Bless all of you...I am praying SO hard for anyone affected by this terrible disease! Thank You!Michelle K.  (Banana Marge's daughter) http://www.cancercompass.com/message-board/message/all,33399,0.htm BaNanaMarge Fri, 20 Feb 2009 00:00:00 GMT I'm an Australian Vietnam Vet and have a cancer called Pseudomyoxima Peritonei (PMP or Jelly Belly) but unless I can find more Vietnam Vets with the same condition it is unlikely to be accepted as service related. It strikes abou 1 in a million so too be outside the norm there would need to be about 11 or more so I would like to hear of others.Buck (Royal Australian Navy / United States Army 1967 - 1968 Vietnam)  http://www.cancercompass.com/message-board/message/all,32595,0.htm Buck Wed, 28 Jan 2009 00:00:00 GMT Hello, My mom was diagnosed with CUP (unknown primary) on Sep 16th during her gall bladder stones operation. After we were referred to Gyno-Oncologist and he said he will do 3 chimos and if tumors shrinnks he can do the surgery and he thinks it is Peretanial Adenocarcinoma. My mom had sergery on Dec 17th (total hestirectomy and part of her colon was removed and some other stuff).  I just wanted to ask how do people feel after this kind of sergery. My mom takes painkeelers every 6 hours and she feel nausia, she has pain in her lawer abdominal and in the liver area. I asked doctor if it is normal he said it was pretty big sergery. She is having another chimo Carbo/Taxol next Tuesday. I just wanted to hear from others if they had similar seregies and how soon they had chimo after operation? How long they felt pain after operation? Thanks. Mira http://www.cancercompass.com/message-board/message/all,32479,0.htm mirany Sat, 24 Jan 2009 00:00:00 GMT Hello, My mom was diagnosed with CUP (unknown primary) on Sep 16th during her gall bladder stones operation. After we were referred to Gyno-Oncologist and he said he will do 3 chimos and if tumors shrinnks he can do the surgery and he thinks it is Peretanial Adenocarcinoma. My mom had sergery on Dec 17th (total hestirectomy and part of her colon was removed and some other stuff).  I just wanted to ask how do people feel after this kind of sergery. My mom takes painkeelers every 6 hours and she feel nausia, she has pain in her lawer abdominal and in the liver area. I asked doctor if it is normal he said it was pretty big sergery. She is having another chimo Carbo/Taxol next Tuesday. I just wanted to hear from others if they had similar seregies and how soon they had chimo after operation? How long they felt pain after operation? Thanks. Mira http://www.cancercompass.com/message-board/message/all,32478,0.htm mirany Sat, 24 Jan 2009 00:00:00 GMT I just found this mesage board today, I am 41 yrs old , we found out my mother had PPC on my 40th birthday, she has undergone cemo from day one,a yr ago in Oct. I have read so many messages of surgery that was able to be done. My mother has not been a candidate for surgery. I think the most frustrating element of all of this , is not knowing what to look for , my mother is 75 yrs old and is so fatigued and sick from cemo, she wasnt able to do cemo today because the scans friday showed a serious problem with her esphagus, now she has to have a scope tomorrow. Then the Dr. wants to do Paxol again, This disease is so confusing, I find myself more confused with every web site I go to. Just reading this message board has given me more information than I have been able to find in the last yr. I guess I want to know : how long do i have with her? How will we know when it is getting close? she was diagnosed in stage 4.We were hoping to have the debulking done, but the surgeaon said she not a candidate for it. I am so tired of getting text book responses to my questions from the Dr. I know it is in Gods hands, but we are going crazy.Her scan showed tumors in lower abdomen unchanged , some fluid, but her markers went from 119 to 22. The doctor wasnt happy with the scans and my mother feels worse. So how are the markers so much better? Please if anyone has and advice or somewhere to get information please let me know. My mother is my best friend and the strongest woman I have ever met , seeing her this way and in pain is killing me. I definelty will be looking at this mesage board regularly, I thought we were alone in this , i didnt realize that this is "not" an isolated disease. All we hear is how RARE it is. But i think we all agree there is nothing RARE to the loved ones affected by this monster!Thanks for letting me vent , that helps alot, My thoughts and prayers are with all who have been touched by this disease.angielee http://www.cancercompass.com/message-board/message/all,32300,0.htm angielee Mon, 19 Jan 2009 00:00:00 GMT My sister Shirley (nicknamed "SHY") was diagnosed with Peritoneal Cancer on December 2, 2008.  As a family - we feel like we are walking in a nightmare.  This came out of nowhere.  Here stomach began to swell with fluid - went to her doctor and form there it has all been downhill.  She has taken her second bout of chemo - has another treatment scheduled for January 20th, 2009 - then her surgeon plans surgery after the third treatment.  From her initial tests there does not seem to be cancer affecting her liver or spleen - but understand that we won't know exactly what we are dealing with until after the surgery.  I fear the open surgery - but we are told this is the best treatment.  She will have three additional treatments of chemo after the surgery.  I/we just need support - don't understand this type of cancer. My sister had a complete hysterectomy and has no ovaries/ uterus etc.  The doctor says the cancer cells are in the lining of her stomach - My sister did work in a chemical plant environment when she was in her 30's.  She just turned 60 years old.  I don't know the questions to ask - just need any information anyone can give - or who has been through this or is going through this.  We want to do all we can for our sister.  I continue to read and research - sometimes I am overwhelmed.  Are we following the right procedures - chemo - surgery - then chemo?  Thanks for the opportunity to just connect with someone who knows what PPC is.  Prayers is what substains my family! http://www.cancercompass.com/message-board/message/all,32200,0.htm Shy_Sister Fri, 16 Jan 2009 00:00:00 GMT HiI am new to this message board. I am in Adelaide and was diagnosed with PPC on 8th Oct 08 and was operated on the 20th Oct/08 having a total hysterectomy. Chemo started on the 3rd Nov 08 with 1 treatment of Carboplatin every 3 weeks and taxol every week. My CA125 number was just under 4000 when diagnosed and is now down to 36. I was told that most of the cancer was removed but there were some flaking that had 'floated'. I did not have any symptons as such until early September and then it was just bloating. I go jogging most mornings and noticed that there was something wrong with my breathing so went to the doctor and told him I needed to find out what was wrong. I had a blood test which showed some inflamation (I did not know then about the CA125) so I then went for a CT scan which showed a build up of fluid - 2 days later I had some fluid drained and tested which confirmed PCC, saw a Gyn/Onc on the 8th Oct. So from seeing the doctor (GP) on the 25th Sept to being operated on the 20th October then chemo it has been like something from a movie! At the moment the only side effect I have had from chemo is low white blood cells, fatigue and 2 days of feeling nausea. I must also point out the I am TRYING to train for a marathon as I had signed up for this before diagnosis and am hoping it will keep me positive and something else to think about besides the dreaded Cancer!!I am interested in the doctor from Stirling who does the Vit C & B17 shots as after chemo I would seriously consider this.Jenny http://www.cancercompass.com/message-board/message/all,31810,0.htm tasgirl Mon, 05 Jan 2009 00:00:00 GMT Rare Ovarian Cancer More Difficult to TreatLow-Grade Serous Carcinoma Resists Chemotherapy A rare type of ovarian cancer, recurrent low-grade serous carcinoma, does not respond well to chemotherapy and is more difficult to treat than more common high-grade ovarian cancers, study results say. The research, conducted at M. D. Anderson, was reported in March during the Society of Gynecologic Oncologists Annual Meeting on Women's Cancers. Significance of research This retrospective study is the first to look at how low-grade recurrent ovarian tumors respond to chemotherapy. The results support a growing body of research that shows low-grade ovarian tumors behave differently than other ovarian cancer tumors and are more resistant to chemotherapy than other ovarian cancers, says lead author David Gershenson, M.D., professor and chair of M. D. Anderson?s Department of Gynecologic Oncology. Low-grade serous carcinoma represents about 10% of serous ovarian cancers. Background Because low-grade serous ovarian cancer is so resistant to treatment, a standard of care does not exist. In addition, there is no universal grading system for the cancer. Consequently, there are variations in classifying and treating the disease. Research methods Researchers searched patient databases to identify women treated for recurrent low-grade serous carcinoma of the ovary at M. D. Anderson from 1990 through 2007. Primary results The database search revealed 52 patients who had one or more of 98 different chemotherapy regimens including platinum-based chemotherapies in which patients were sensitive (more responsive) and resistant (unresponsive) to treatment. The researchers found that the: Overall response rate was 4% Response rate in platinum-sensitive disease was 6% Overall response rate in platinum-resistant disease was 2% Of all the treatments, 62% stabilized the disease for a median of 22 weeks. Additional results Gershenson said these results compare unfavorably to treatment of more common ovarian cancers. "It is unclear whether the high rate of stable disease is more reflective of tumor biology of low-grade serous carcinoma of the ovary or of the therapy regimen administered,? he says. What?s next? Since these tumors do not respond well to conventional chemotherapies, new agents to treat them must be identified and tested, Gershenson says. Hormonal therapy, which has shown some activity against low-grade serous carcinoma, warrants further exploration, he says. M. D. Anderson plans a detailed analysis of its experience with hormonal therapy in the near future.  Recognizing the need for more research, the Gynecologic Oncology Group, a National Cancer Institute-funded cooperative group, recently established a rare tumor committee that has initiated a separate series of clinical trials for recurrent low-grade serous carcinoma, as well as for other rare ovarian cancers. Adapted by Dawn Dorsey from an M. D. Anderson news release M. D. Anderson resources: Ovarian cancerDavid M. Gershenson, M.D. Gynecologic Oncology Center Department of Gynecologic Oncology Other resources: Overview: Ovarian cancer (American Cancer Society)Gynecologic Oncology Group http://www.cancercompass.com/message-board/message/all,31789,0.htm NSMary Sun, 04 Jan 2009 00:00:00 GMT After reading another  post....I read to my sorrow & Surprize that  Leah Dorfman Kelly passed away on November 30th.  I had just been diagnosed when I read all her posts....  and visited her website.... I hope all her freinds online , who have been wondering how she is since we last heard from her.,...will read this   and  say a prayer for the comfort of her family & freinds  http://www.cancercompass.com/message-board/message/all,31682,0.htm NSMary Wed, 31 Dec 2008 00:00:00 GMT To all the wonderful people going through this horrible cancer with me, I just wanted to let you know about my treatment and results. I stopped chemo at the beginning of 2008 as they told me that I was terminal and all the chemo was trying to do was extend my life. I stopped because it was the chemo that was, in my case, killing me. I thought I would just live out whatever time I had left in the best possible way. Around the time of stopping chemo I took a naturopaths advice and started having high doses of  Vitamin C ( 30 grams ), 10mls 8.4% Bicarbonate, ( 400mg ) Alpha Lipoic Acid and Vitamin B17 intravenously every week. My CA125 started to drop slowly which it had not done with any of my chemo treatment. 4 weeks ago I started seeing someone for acupuncture and chinese massage. With both these treatments each week all of a sudden my CA125 took a dramatic drop to 33 ! It is now in the normal range - not bad for someone who the western doctors gave up on a long time ago. This treatment has worked for me and I am hoping that by passing on this information it would work for someone else. No matter what the doctors say these alternate treatments can be used along side of chemo. My doctors tried to use scare tactics on me and tell me that it would cause problems. When my doctor who was administering the Vitamin C researched it he found that the Vitamin C actually helped my chemo to work. I was not suppose to be here to be spending this Christmas with my 2 year old son, my husband, family and friends. I was not suppose to be about to celebrate my 32nd birthday .... guess what I am still here fighting strong and feeling the best I have felt in years ! Don't give up hope if something is not working for you, take the chance and step outside the circle. I made the decisions to go down the path of treatment that I have and so can anyone !My thoughts are with all PPC sufferers and their families. May you have the strength to keep fighting this battle until you have won.Kathryn Seiffert http://www.cancercompass.com/message-board/message/all,31660,0.htm Too_Young Tue, 30 Dec 2008 00:00:00 GMT