Our online forum at CancerCompass.com is a great place to start your research for additional information and resources about throat cancer. Visit us today to learn more today. http://www.cancercompass.com/message-board/cancers/head-and-neck-cancers/throat-cancer/1,0,119,39,6.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Just got home from meeting the doctor at the hospital.  He wanted to meet with the radiologist because he was in as much shock as we are.  The orginial cancer was in the L. tonsil & 3 lymph nodes on the left side.  Treated with surgical removal of the tonsil followed by chemo, radiation to both sides of the neck, focusing on the L, and more chemo.  Treatment ended 7/09, PET 8/09 was negetive.  Continued with the sore throat.  ENT did the bx that was positive again for SCC.  PET scan showed 2 visible lesions in the R. lobe as well as a R. lymph node involvement. Doc says that  surgery is not an option since the disease has spread so quickly.  I don't inderstand why they can't take out the nodes in the neck, neck dissection, and remove the affected area of the lobes.  Let hiim heal & then do chemo.  Does anyone know of a doc  or docs who can fix this. Time is something he does not have.  6 months or 1-2 years with continued chemo. I certainly believe in miracles & I'm praying that God has one for us! I'm just not ready to let go.  I don't even know what to say because words can't even describe how I feel.  How do I remain strong for him? Thanks to everyone, Brenda & Sam http://www.cancercompass.com/message-board/message/all,41628,0.htm brenda40 Wed, 18 Nov 2009 00:00:00 GMT Dave & Diane, Just got home from meeting the doctor at the hospital.  He wanted to meet with the radiologist because he was in as much shock as we are.  The orginial cancer was in the L. tonsil & 3 lymph nodes on the left side.  Treated with surgical removal of the tonsil followed by chemo, radiation to both sides of the neck, focusing on the L, and more chemo.Treatm ent ended 7/09, PET 8/09 was negetive.  Continued with the sore throat.  ENT did the bx that was positive again for SCC.  PET scan showed 2 visible lesions in the R. lobe as well as a R. lymph node involvement. Doc says that  surgery is not an option since the disease has spread so quickly.  I don't inderstand why they can't take out the nodes in the neck, neck dissection, and remove the affected area of the lobes.  Let hiim heal & then do chemo.  Does anyone know of a doc  or docs who can fix this. Time is something he does not have.  6 months or 1-2 years with continued chemo. I certainly believe in miracles & I'm praying that God has one for us! I'm just not ready to let go.  I don't even know what to say because words can't even describe how I feel.  How do I remain strong for him? Thanks to everyone, Brenda & Sam http://www.cancercompass.com/message-board/message/all,41616,0.htm brenda40 Wed, 18 Nov 2009 00:00:00 GMT Please help! My husbands orginial cancer has spread to the nodes and in the other side of his lung.  SUV in the lung 27.  Is this really bad.   Can someone be honest & tell me how bad this is?  These are results of todays PET scan.  Scan from8/25 was negetive. Can it reoccur & spread this quick?  We are numb..   Posted last night without much response.  Please, I need answers. Meeting with doc today as he also is in shock? Anyone think this is from the chemo & red he has recieved over the lat year?    Thanks, Brenda http://www.cancercompass.com/message-board/message/all,41609,0.htm brenda40 Wed, 18 Nov 2009 00:00:00 GMT Please help! My husbands orginal cancer has spread to the nodes and in the other side of his lung.  SUV in the lung 27.  Is this really bad.  Can't reach the doctor. Can someone be honest & tell me how bad this is?  These are results of todays PET scan.  Scan from8/25 was negetive. Can it reoccur & spread this quick? Thanks, Brenda http://www.cancercompass.com/message-board/message/all,41600,0.htm brenda40 Wed, 18 Nov 2009 00:00:00 GMT Going on 5 weks nor post TX, doing pretty good ( I think) Eating mushy food, drinking, maybe 1/3 cal by mouth now. I have a question for the long tim post TX's, how long does your throat hurt. I can eat/dring, but it certainally gets my attention! I am still on Meds, when I eat near a med time it is OK, but if I am a couple of hours off, Wow it hurts. I think of taking majic mouth wash and some times do.ThanksSteve http://www.cancercompass.com/message-board/message/all,40890,0.htm tristeve Wed, 21 Oct 2009 00:00:00 GMT i have had h-pylori for 3 years the doctor has giving me every medicine possible.it goes away for a while but its back.blood test find. but i,m still scared really hurting my throat.my whole throat is imflamed my tonsiss. i.m afraid i,m going to get cancer.i had ascope done my throat in aug.were fine. but i,m still scared. is there thing i can do. http://www.cancercompass.com/message-board/message/all,40779,0.htm debbie55 Sat, 17 Oct 2009 00:00:00 GMT Thank you to all of you great people for your positive and generous answers to my posting 'Can't believe it" I have written a stern letter to the HOD of our local hospital where my daughter is being treated explaining how we, her family feel about the insensitive manner in which Debs was treated. How I hate this relentless battle to get the the best treatment and doctors for the wonderful patients who deserve the best that the medical profession can give. Why do we need to become like he/she devils to demand what should be offered as of right? Thank you all again, I so appreciate your help an good wishes.God blesss all hereClarabelle NZ http://www.cancercompass.com/message-board/message/all,40346,0.htm Clarabelle Sat, 03 Oct 2009 00:00:00 GMT I am a 66 year old man who finished radiation in May 2007 for stage IV tonsil cancer. All the PETs and CTs since are negative. That's the good news. The bad news is that, owing to the 3 8-hour sessions of Chemotherapy and the 35 sessions of radiation, I have not had a meal since May 2007, and must take all my nutrition through a PEG tube. I can drink a bit, and do, but must take quite small bites of anything as the esophagus remains contracted despite about 10 endoscopies to dilate it. But even if I could eat, I have no sense of taste, and my salivary glands are virtually nonexistant. Anyone been here before, and regained his or her sense of taste or salivary glands? I am not thrilled with the thought of never eating again. http://www.cancercompass.com/message-board/message/all,40087,0.htm Ripvanwinkle Thu, 24 Sep 2009 00:00:00 GMT Hi!It's me again...(sick of hearing from me, I know, I know) but bear with me..please.  I"m disgusted.  Weight is climbing up now but didn't when I was on the LID diet.  Seems to me that once I started back on regular food, I started gaining weight.  Well..eating ice cream (low fat) didn't help, I know..but I was wondering something. Now that I'm back on Synthroid (don't know if it's enough just yet as I haven't been on it long enough to have my blood work done) I seem to be gaining weight and I don't know what to do about it.  Would eating a very low carb diet help me lose the extra 20 pounds I put on since last year when I had other health problems? My clothes are too tight and I can't afford a size 16 wardrobe! don't want to and don't feel like myself anymore. I feel FAT! I AM Fat!  Is there any other way to lose weight while hypo? Exercising? Eating less? Please help! I'm going to my high school reunion Sept. 18th and don't want to look fat! ANY suggestions would be appreciated. MissCyndie http://www.cancercompass.com/message-board/message/all,39257,0.htm MissCyndie Sun, 23 Aug 2009 00:00:00 GMT I have been lookin all over the internet for throat cancer awearness and survivior bracelets.. I have a lance armstrong rubber one that I never take off..but now I am ready to support my cancer and let everyone know that I am in remission...if anyone knows the color for throat cancer and/or where to purchase.....bracelets and shirts too..please let me know...the rubber ones are nice..but I am looking for something for the long haul!! http://www.cancercompass.com/message-board/message/all,39171,0.htm scrmin05 Thu, 20 Aug 2009 00:00:00 GMT Has anyone found any relief or treatment for problems with lymph drainage.  Inside lips and cheekes are constantly swollen and sore due to build up of lymphatic fluids after neck dissections. Massage is no solution. That just pushes it into the mouth and causes more pain. All I get from doctors is I don't know. http://www.cancercompass.com/message-board/message/all,39023,0.htm Georgenone Fri, 14 Aug 2009 00:00:00 GMT Hi, Has anyone heard of Radiance (or Radience) Gel?  I have heard it is very good for radio therapy burns. http://www.cancercompass.com/message-board/message/all,38920,0.htm twinsnan Tue, 11 Aug 2009 00:00:00 GMT Anyone have any experience with this one?  I cannot seem to find much on it.  Please help! http://www.cancercompass.com/message-board/message/all,38705,0.htm judysellsnaples Tue, 04 Aug 2009 00:00:00 GMT Hi,First let me give you the background.  When my mom was 36, she contracted a cold and became very hoarse.  She was treated for a cold, sinusitus, etc for about a year, then referred to an ENT because her voice never came back.  They found something on her larynx, she had it removed and her voice came back.  She was told it was a "pre-cancerous" condition, probably caused by reflux.  About a year later, the same thing happened.  She went to the ENT, where they, again, found a growth on her larynx, this time, after surgery, we were told it was cancer.  She has had 4 recurrences and currently is doing fine.  Her brother, diagnosed with the same thing, died 4 years ago.  She has an aunt with the same thing, who is still alive, and an uncle, same thing, dead.Ok, I am 37 years old.  In December, I had a cold and became hoarse.  I really didn't give it much thought.  I still had it in January, so I went back to my PCP who said it was allergies, gave me Nasonex and told me to take zyrtec daily.  I didn't really worry until March, when my voice still had not returned.  Not wanting to follow in my mother's footsteps, I called the ENT directly.  I am a registered nurse and chose the supposed "best" ENT group here.  I made an appointment and told the doctor my concerns, what my mom had been through, and that I was just wanting to settle my mind.  He was very condesending, scoped me, told me it looked like I had reflux, no cancer and go see a GI doctor.  So, I did.  I was started on Nexium, scheduled for an upper endoscopy, where the GI doc said I did not appear to have reflux.  He then scheduled a esphogram, which also showed no reflux.  He advised me to keep on the medicine twice daily though.Ok, now's it's August.  My voice STILL has not returned.  Now, I'm starting to expierience discomfort on the left side of my throat.  Sore and kind of like there is a lump or something stuck there.  Where do I go from this point?  I'm scared because of my family history, but the ENT made me feel stupid.  Anyone have a similar story?  I just need advice.Thanks!Ghennifer http://www.cancercompass.com/message-board/message/all,38681,0.htm Ghennifer Mon, 03 Aug 2009 00:00:00 GMT I was wondering if anyone has any recipes for pureed or soft food. As my husband is recovering from throat cancer, and is having trouble swallowing.  http://www.cancercompass.com/message-board/message/all,38391,0.htm reel44 Fri, 24 Jul 2009 00:00:00 GMT My Dad finished his Chemo and Radiation for throat cancer on the 4th February 2009. He lost quite a bit of weight (45 pounds) and is now struggling to put any of it back on. We are seeing a nutritionist which has actually helped in that he is not losing any more weight, but recently he sated having problems breathing. He says he is feeing like he is stiffling especially at night. There is still a lot of swelling in his throat and he still has some mucus, dry mouth etc. He is also a diabetic which I guess is not helping as well. His doctors had a look and said that it is expected adn that everything else looks fine, obviosuly he doesn't think so. He does not want to do any exercise as he doesn't have energy and pretty much sits in front the TV since treatment ended, so I'm sure his lack of exercise is a contributing factor. Does anyone have any advice or suggestions on what I can do in order to help with his breathing situation?ThanksVash http://www.cancercompass.com/message-board/message/all,37940,0.htm davie321 Fri, 10 Jul 2009 00:00:00 GMT my grandad rob got throat cancer and is feeling better he still has a feeding tube but can eat soup an drink stuff..... he used too bite my toes and pick on me but i miss the old grandad.. the picking on me got on my nerves but know i really miss it.........           i am his granduaghter sydney!!!!!!!!   please pray for us!! http://www.cancercompass.com/message-board/message/all,36476,0.htm MEEMERZ Sun, 24 May 2009 00:00:00 GMT hi there i like to know if when u  lost ur voice ,it can be cancer? its been 7 mouths now that my voice comes and gose,if u can help ?many thanks   http://www.cancercompass.com/message-board/message/all,35994,0.htm thirry Sat, 09 May 2009 00:00:00 GMT      I am 37 and just discovered that I have 2 thyroid cysts.  One on each side of my thyroid.  One is 5mm and the other is 2mm.  The ENT I went to wants to do a needle biopsy.  Which I agree with, however, because of the size of the one(5mm)  he wants to remove regardless of the outcome of the biopsy and thinks the entire gland should come out as well at the same time.   Just seems a little drastic that the entire gland must come out.  Is it because he is concerned that even if it is not cancer this time that doesn't mean down the road it can't happen?     The other option he proposed was to take out big cyst and watch the smaller one.  Concerns me because it is already larger than normal and I would have to go through procedure twice.  Should I go to an Endocronologist?  Thanks    http://www.cancercompass.com/message-board/message/all,35482,0.htm Jeanie16 Tue, 21 Apr 2009 00:00:00 GMT I was recently diagnosed with multiple bilateral paraganlioma.  The doctor said because they are slow growing they are benign but he can't do surgery due to the risk to my RLN.  He told me I "could chose" to have radiation therapy  to stop their growth.  Because they have caused a paralyzed vocal chord I was going to have surgery bringing one of the chords over.  He order more tests and a biopsy of a nodule on my thyroid.  Now I've been diagnosed with thyroid cancer and will be having it removed.   The point of this whole story is to give you the big picture.  I need to know what to do next.  Should I contact an oncologist first, deal with the paraganlioma with a vascular specialist, see an endocrine specialist or wait until after the surgery to deal with everything.  I'm currently being seen by the Head and Throat surgeons at UCLA and while they seem to be great a diagnosing the problems they don't seem to be able to coordinate all the varying problems which appear to be related.  Does anyone have any advise? http://www.cancercompass.com/message-board/message/all,35489,0.htm gtghawaii Tue, 21 Apr 2009 00:00:00 GMT I have been diagnosed with stage 4 throat cancer It has now spread to 3 of the lymph nodes on the right side of my neck.  Treatment is to start in 2 weeks.  I am concerned that it is a fast spreading cancer and that 2 extra weeks will make a big difference. Am I right?  The radiology oncologist is of the oppinion it will not make a big difference. http://www.cancercompass.com/message-board/message/all,35253,0.htm guyluckk Mon, 13 Apr 2009 00:00:00 GMT My husband has stage one throat cancer, he has had radiation now for  three weeks and now his throat is pretty sore.  Does anyone know what kind of food or drinks help soothe or just help with the pain???  A friend suggested to us to try sandalwood essential oil to rub daily on his neck which seems to help with the redness and irritation. Does cold or hot compresses work?  I heard that cold helps reduce inflammation and heat helps heal the tissues, but really don't want to try something that might make it worse!  Does anyone know or has tried it?  I can't believe doctors don't know what works best, they have only talked about what kind of food to eat, We would like to hear from from others on what helped them.......Thank you so much for your suggestions!   With love & Hugs (~) to all of you!  Janice  :)  http://www.cancercompass.com/message-board/message/all,34972,0.htm Jandjo624 Sun, 05 Apr 2009 00:00:00 GMT Cancel was found in right tonsil-tonsils removed at 82 years old. Received 35 radiation treatments-25 on entire throat-10 in right side only. Treatments have stopped since 4 months. I wake up at night every hour or so to spit white phlegms that accumulate in my throat. Worse if I eat anything with spices. Still have hard time eating certain meat. No pain at all while eating but choices of food have to be made. Lost 45 lbs. I still remember when I was a happy fat lady. My family physician prescribed "Nasonex" but it didn't help at all. Any suggestions? I miss my sleep and have to sleep at times during the day. My family physician has received a message from Cancer doctor that I am now free of the disease? I hope so anyway. Thanks for reading this message.  http://www.cancercompass.com/message-board/message/all,33710,0.htm terrywilly Sun, 01 Mar 2009 00:00:00 GMT Hello again everyone!I'm on my last week of the lovely LID and I'm about to take Alka-Seltzer cold medicine before I go to bed tonight. It contains Sodium Bicarbonate and Saccharin Sodium. Does anyone know if these contain iodine? I searched the web but couldn't find anything. I'm still going to take a it as I am past caring at this point. I have a cold and want to get some sleep. Just curious if anyone knows.Thanks!Linda http://www.cancercompass.com/message-board/message/all,33443,0.htm Lindalou Sat, 21 Feb 2009 00:00:00 GMT I have had this cavity on the second to the last tooth on the right side of my mouth for a couple of months and I just ingnored it. I just let it go and it slowly started to decay in tell it got close to a nerve. And when that happened it was just the worst pain ever, the area around the tooth was hurting, my right ear,right eye, right part of my head was, and my 'throat'. Eventually I couldn't breath. Then in a few seconds the swelling stoped in my throat. but the pain everywhere else keep hurting so I just took the pain killers, didn't really seem to work much.  2 days later I did a little reserch and read about some of my symptoms and what can happened from a effected nerve in the tooth and it said I should go the ER asap. Then when I got to hospital they said it wasn't an emergency and I can get a check up if I wanted the next day for $200 because I don't have medical insurance. I didn't think much since they said it wasn't a emergency so I never went back. But ever since that day of the pain, my throught and the upper part of my chest close to the throat been hurting when ever I eat, drink or swallow. It feels like there something in my thoat. If I have to guess where is it at in my throat, I'd say its around the middle back of it but I have no idea exactly. I still have minor pains on eyes, ears, and the area in the middle of my forehead close to my nose. I'm not a very bright person, I don't know much about what is going on with me and I don't know what I should do. I don't want to get random check ups if there is nothing wrong.  Please please help me!!! http://www.cancercompass.com/message-board/message/all,31775,0.htm Anderw Sat, 03 Jan 2009 00:00:00 GMT