Our online cancer forum at CancerCompass.com is a valuable source of support for all. Join now to compare cancer treatment methods, notes about the latest leukemia research and more. http://www.cancercompass.com/message-board/cancers/leukemia/1,0,119,7.htm Wed, 19 Jun 2013 00:00:00 GMT Wed, 19 Jun 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello-  I am new to this site, and really just looking to speak to anyone that is or has gone through and is going through what i am now.  I was 13 weeks pregnant and diagnosed with ET.  After being diagnosed (platelets 1.8 million, White blood up, red blood count up etc... test after test after test) A few weeks later, we lost our baby.  Now what.... i was told now we do the "watchful waiting".  They have me on aspirin and iron.  Iron apparently helps lower platelets as well.  I am still too sad to even think about another baby at this point, and would like to focus on me (my body’s health).  But where do i go from here.  I have questions about diet, about how this is going to affect me down the road, does this lead to or has anyone had it lead to leukemia, what is next. ( i should also say i have scarring of the bone marrow)   The diagnosis came in, i lost my baby, and now all they tell me is to wait and watch for symptoms.  I guess i just need to speak to someone else going through this too.  maybe that will help.  thanks http://www.cancercompass.com/message-board/message/all,72294,0.htm Bosley Wed, 19 Jun 2013 00:00:00 GMT Hello, everyone. Does anyone here has CMML along with systemic mastocytosis? http://www.cancercompass.com/message-board/message/all,72280,0.htm rosesaga Tue, 18 Jun 2013 00:00:00 GMT i was recently diagnosed with essential thrombocytosis and i havent got much info on it if there is anyone that is going threw treatment or has not yet started treatment like me and wants to correspond with me please post a message ,.. this site has been helpfull in that i can read real testomonies and not medical info . it helps to talk with someone that is going threw it personaly http://www.cancercompass.com/message-board/message/all,4093,0.htm Suzieluwho Mon, 16 Jan 2006 00:00:00 GMT Hi everybody! My mother and I are running in the Nike womens marathon with Team in training and the LLS foundation. I need every ones help to raise money for research. I will be running in the memory of a close family friend Judy Witt that lost her fight to leukemia in 2008. Every penny will help! my personal goal is to raise $5000! Please help in the fight! You can go to my page at: http://pages.teamintraining.org/sac/nikesf13/sspitulski Every donation is tax deductible! http://www.cancercompass.com/message-board/message/all,72268,0.htm spitman209 Mon, 17 Jun 2013 00:00:00 GMT Hi everybody! My mother and I are running in the Nike womens marathon with Team in training and the LLS foundation. I need every ones help to raise money for research. I will be running in the memory of a close family friend Judy Witt that lost her fight to leukemia in 2008. Every penny will help! my personal goal is to raise $5000! Please help in the fight! <script type="text/javascript" src="http://apps.lls.org/Apps360//swfobject.js"></script&gt <script type="text/javascript"> windowOnLoad = window.onload " target="_blank" rel="nofollow">window.onload ; window.onload " target="_blank" rel="nofollow">window.onload = function(){ if(windowOnLoad){windowOnLoad()} swfobject.embedS WF("http://apps.lls.org/Apps360//genericWidget.swf", "etoolsFundraiserWidget", "184", "250", "9.0.0", "http://apps.lls.org/Apps360//expressInstall.swf", { programGroupName:"tnt", constituentID:"1614881686", eventID:"11072" } , {bgcolor:"#ffffff"},{});}</script> <div id="etoolsFundraiserWidget"><a href="http://www.adobe.com/go/getflashplayer"><img src="http://www.adobe.com/images/shared/download_buttons/get_flas alt="Get Adobe Flash player" border="0" /></a></div> http://www.cancercompass.com/message-board/message/all,72267,0.htm spitman209 Mon, 17 Jun 2013 00:00:00 GMT Hi everybody! My mother and I are running in the Nike womens marathon with Team in training and the LLS foundation. I need every ones help to raise money for research. I will be running in the memory of a close family friend Judy Witt that lost her fight to leukemia in 2008. Every penny will help! my personal goal is to raise $5000! Please help in the fight! <script type="text/javascript" src="http://apps.lls.org/Apps360//swfobject.js"></script&gt <script type="text/javascript"> windowOnLoad = window.onload " target="_blank" rel="nofollow">window.onload ; window.onload " target="_blank" rel="nofollow">window.onload = function(){ if(windowOnLoad){windowOnLoad()} swfobject.embedS WF("http://apps.lls.org/Apps360//genericWidget.swf", "etoolsFundraiserWidget", "184", "250", "9.0.0", "http://apps.lls.org/Apps360//expressInstall.swf", { programGroupName:"tnt", constituentID:"1614881686", eventID:"11072" } , {bgcolor:"#ffffff"},{});}</script> <div id="etoolsFundraiserWidget"><a href="http://www.adobe.com/go/getflashplayer"><img src="http://www.adobe.com/images/shared/download_buttons/get_flas alt="Get Adobe Flash player" border="0" /></a></div> http://www.cancercompass.com/message-board/message/all,72266,0.htm spitman209 Mon, 17 Jun 2013 00:00:00 GMT Hello. Aside CMML my husband is newly diognosed of Systemic Mastocytosis. He's suffering from abdominal discomfort. Does anyone has an idea of SM? http://www.cancercompass.com/message-board/message/all,72241,0.htm rosesaga Sat, 15 Jun 2013 00:00:00 GMT Getting more and more positive about alternative treatment, more than 1 year passed without takeing hydrea, my platelet count has again reduced by 5000, 2 weeks back it was 966000, now it is 961000, slow but good, symptoms associated with hydrea is also not there, feeling fit and able to do jogging and long walk without tiring, just hoping that it will be back to sub 400000 level, only bad thing is that I cannot eat each and everything I like, strictly on diet, less to nil oil and less protein, only boiled food, moderate food, etc is doing wonders, keep you all posted. http://www.cancercompass.com/message-board/message/all,72122,0.htm hometypist Sat, 08 Jun 2013 00:00:00 GMT My brother has CML leukemia and his doc put him on sprizel. He has no problem other than platelets get low and white blood count too. They are still playing with the dose. They are trying to separate something called the Philadelphia gene. ANyone know about this gene and this drug? http://www.cancercompass.com/message-board/message/all,72116,0.htm marysch Sat, 08 Jun 2013 00:00:00 GMT Hello all, My husband (57 yrs old) was diagnosed with cmml in October 2012, with blast of less than 5%.  He started out on Hydroxurea, then went on to 4 months of decitabine treatment.  His recent bone bx now shows 25% blasts, so the disease is progressing to Acute.  His MD (Duke) wants to place him in the hospital for 30 days for chemo treatment.  Hopefully he'll go into remission, therefore my understanding he can have a stem cell transplant.  I am desperate to hear and gather any other information from other cmml folks, who may have sucess with in-patient chemo and stem cell.  Is there any other treatment for this dreadful disease?  Is there another Cancer Center that may use a different treatment. Thanks for any response http://www.cancercompass.com/message-board/message/all,71936,0.htm Losmith Sun, 26 May 2013 00:00:00 GMT This is my sister's story, long but I needed to tell as much as I could:(Note:I certainly do not want to deter anyone from life saving practices or a BMT) My sister had ET for many years and was on medication through her (Oncologist) Doctor but unfortunately it finally turned into Myelofibrosis in 2011. Her spleen ended up being hugely enlarged and her blood counts were all over the place so it was decided she would undergo a Bone Marrow Transplant. The Doctors agreed that she was very healthy despite the ET and at 56 years old a very good candidate.My sister lives in Seattle so we heard Seattle Cancer Care Alliance was one of the best facilities for her to undergo her BMT. My younger sister and myself were the only ones tested for a match which we were not unfortunately. So the Doctor went to the World Bank which he did find a 9 out of 10 match. My sister underwent very aggressive Chemo & Radiation and then had her [B]BMT Sept-13- 2011[/B].She stayed in SCCA for a few weeks and was released back home as they said she was a Star Patient. I was her Primary Care Person and looked after her taking her back and forth to SCCA every day, hooking her up to the IV to hydrate her (only if you want to do it at home if not you can go and get it done at the hospital but way easier for us). I also cleaned meticulously at her home due to her having next to no immune system after a BMT. Along with all the other household duties to help her. I am a Canadian so the border guards were giving me such a hard time each time I crossed as I was only allowed to stay in the US for 6 months and had already been there for a month and a half waiting for the transplant. By the time I had to leave we all thought my sister was on the "Road To Recovery" and I would never have left her even though I was not allowed to be in the States if I didn't think this was true. Over the next 6 months my sister's white blood cell count was good but the red blood cell count was always low so she had to continue going in for Blood Transfusions every few days which by all standards was not great but all good as long as her health was getting better. By the end of July 2012 her daughter got married and she didn't have a lot of energy but was in pretty good shape to attend the wedding of her only daughter which we are all so thankful for. Things were getting progressively better each month after that with a little GVHD here and there but nothing hugely serious. I went to visit my sister again just before I left for Mexico at the end of November 2012 and we even had a few drinks as she felt that good. I then left for Mexico in December 2012 feeling good for her knowing I would be contacting her all along but all was going well. I January I heard that my sister had the Flu which we all had heard was a bad one that year. Well she had the bad Flu but she was also in excruciating pain where my brother-in-law ended up taking her to the Hospital in Edmonds, WA where she lives. I was thankful for that as I figured they would go through the all tests pertaining to her BMT to rule out any known extenuating health issues. The Doctors ended up chocking it up to the Flu then gave her Tamiflu and sent her back home when things seemed a bit better. The Flu symptoms subsided and the pain too for a bit but then she figured it must be Sciatica that is causing the ongoing pain. The Doctor prescribed Morphine, Dilaudid and I am sorry for not recalling the name of the other major pain killer but another Major drug for what they thought was Sciatica (are you kidding!). (Just a note that I have had major sciatica resulting in a herniated disc with excruciating pain and NEVER had that amount of painkillers before or after my herniated disc surgery). My Mom & Dad ended up going down to look after her as she had never asked but when my Mom said "do you need help" she said she did which is when you know my sister is in dire need of help as she has a high level of pain and never complains. I got back from Mexico and drove straight down to my sisters to take over from my parents who are in their 80's and may have needed a break. I took one look at my sister and wondered what the heck had happened as she looked so frail from when I had left. She said her pain was in her back but then it seemed to travel to her arm, legs and pretty much all over.The next day I was there my sister could not get out of bed or even move much with the intensity of pain so I put a call into the (Oncologist) Doctor but no reply. On the next day I was annoyed and asked her husband to call the (Oncologist) Doctor as he may only want a call from him, no reply from him again but his staff said maybe my sister should go to Emergency.At that time my sister had not been eating so I was attempted to spoon feed her food, she couldn't drink water without me putting a straw in her mouth as she could not lift her head or even drink from a glass, move, nothing without major pain. So we ended up calling 911 but her pain then was 10 out of 10 so they needed to get EMT in to give her more drugs that the doubled up pills of Morphine, Dilaudid and the other pills the Doctor had said to take were not giving her any relief. The EMT's arrived and I will never forget the screams of pain even after her getting the maximum IV pain drugs on top of the doubled up drugs she was given at home when they put her on a gurney to take her to the hospital.I found out after she died that there is a percentage that a patient could contract Leukemia after a BMT but we never knew this until after it was too late. My sister was diagnosed with Acute Leukemia [B]March 31 2013 [/B]and was told she could choose Chemo or just do nothing and die as it was such a low percentage of survival. My sister thought through it and we had a conference call[B] April 1st at 2PM [/B]with our family saying that she would not do the Chemo as she was too weak and had gone through too much pain and suffering at this point. My sister [B]DIED April 3rd at 9:20AM[/B]. IF my sister had decided on March 31st or even April 1st to take treatment she would never have had a chance.I am not a Doctor for sure but if a trained Doctor could have recognized the symptoms like I do now know we may still have my sister with us today.[B]I just want anyone else out there to know what to look for and be aware...[/B] [B]Signs and symptoms of acute lymphocytic leukemia may include:[/B] [B]The most common symptoms [/B]associated with both chronic and acute lymphocytic leukemia are [B]Flu-like Symptoms[/B]. A patient with this condition has no or low levels of functional immune cells, making it more difficult for the body to fight off common infections. As a result, many lymphocytic leukemia patients experience [B]persistent flu-like symptoms[/B], which can include fever; excessive fatigue; [B]Bone, Joint or Muscle Pain[/B]; swollen lymph glands; and sweating or chills, explain health officials at both the Mayo Clinic and Medline Plus, an informational health website established by the National Institutes of Health. [B]Flu-like symptoms may arise suddenly[/B] (acute) or progressively (chronic) and can worsen over time I just don't get it that the Oncologist's never recognized the symptoms in January 2013 where they may have been able to do something for my sister. It was too late on March 31st as my sister was severely weakened and had suffered through excruciating pain for months right up until her death on April 3rd 2013..... http://www.cancercompass.com/message-board/message/all,72021,0.htm cheeto Sat, 01 Jun 2013 00:00:00 GMT I have been diagnosed with Non-Hodgkins Lymphoma, Stage 2.  I have an enlarged spleen and have had a biopsy of a lymph node under my left armpit.  I am due to start  Rituxin next week, one infusion every week for 4 weeks.  Would like to hear from anyone who has gone through treatment with Rituxin and what their experience was. http://www.cancercompass.com/message-board/message/all,71911,0.htm Essie95 Sat, 25 May 2013 00:00:00 GMT I have been diagnosed with NonHodgkins Lymphoma, Stage 2 after a ultra-sound of my enlarged spleen, a cat scan,  PET SCAN, and a biopsy  of a nodule on the left side, underarmpit.  I am due to start 4 rounds of Rituxin next week.  I would appreciate anyone out there who has gone through treatment to share your experience.  http://www.cancercompass.com/message-board/message/all,71885,0.htm Essie95 Thu, 23 May 2013 00:00:00 GMT My wife is 35 and we have 2 children (10 & 5). On may 6th we were told she had aml. Chemo started may 9th and went thru the 16. Today is the 29th and her counts are back up and she is getting a bone marrow test today. The doctor feels certain that the leukemia cells are gone and she will go home this week. Consolidation treatments are planned a week or so after that. I was just curious if anyone has experience on what the future holds. Mayo clinic says genetics show 70% remission chance. With that they say no bone marrow transplant. We live in the southeast, not far from Birmingham or Vanderbilt. Would those places be good options? Anyway just thought I'd post this and see what happens. Email treasurerloans@bellsouth.net http://www.cancercompass.com/message-board/message/all,66428,0.htm Shane10 Tue, 29 May 2012 00:00:00 GMT I am 81 yrs old and never had any medical issues until recently I was diagnosed with CMML after a year of drs trying to bring my platetes and white blood cells back to normal.  They were all over the place.  This has hit me like a ton of bricks. At first the dr was recommending platlet transfusion but the last blood test my platet count dropped from 70 to 50 and he is now recommending chemo - light dose.  My white blood cells are very high, red is normal. At first I was ok with the chemo option, but now I am having second thoughts because of some bad stories I keep hearing.  I was hoping to hear other peoples experiences so I could make the best decision for me.  http://www.cancercompass.com/message-board/message/all,71034,0.htm bobsh Fri, 22 Mar 2013 00:00:00 GMT Startedfirstcycle Vidaza chemo 2 wks. ago.  5 days infusion, then 3 wks off, then repeat every month ad naseum.  First bloodtests showed WBC's down then up; other parameters improved; others got worse, but doc pleased enough not to order another bloodtest this past Monday.  Yesterday, all of a sudden it seems, I felt strangely alert and more myself.  Less fatigued.  Has this happened to anyone else this fast?  June http://www.cancercompass.com/message-board/message/all,71786,0.htm JUNIEMOOTS Fri, 17 May 2013 00:00:00 GMT Is it possible for  someone with leukemia,to have symptoms of bone pain,in only one specific part of the body,and not the whole body? http://www.cancercompass.com/message-board/message/all,71809,0.htm JessLove4 Sat, 18 May 2013 00:00:00 GMT I can understand the emotions one goes through when one is informed by doctor that you are having ET or Essential Thrombocytosis/Thrombocythemia and that one has to take hydroxyurea lifelong and that there is no cure for it but I am starting to disagree to this, I have had ET since 2011 and now for the past 1 year I have not been taking either hydroxyurea nor aspirin, yes i agree that it went up for the past 1 year to reach more than 1050000 but then since December 2012 till April, 2013 it is almost around the same level and recently in May 2013 it has come down to 976000 first time in almost 5 months below the 1000000 mark.  This has made me to introspect whether this so called ET or Essential Thrombocytosis or Essential Thrombocythemia is our own making.  I am giving below my diet/ailments that I had before I contracted this non curable ET. 1. I used to drink alcohol heavily i.e. whisky/brandy/rum twice a week and that too mixing it with coke and other areated drinks 2. My food consists of more oily, fatty and spicy dishes and sweet sugar dishes, used to be tensed up due to work pressure, eating food at odd hours, not having a routine time for having breakfast, lunch and dinner. 3. I sufferred from acidity and then ulcer between the yeras 1994 to 2002 which was diagnosed as peptic/duodenal ulcer and for 7 to 8 years went to various doctors and ultimately made changes in my diet and finally in 2002 mid got rid of this ulcer using my own self restricted diet.  My diet change included avoiding spice, oily food and drinking milk, due to which the pain in the stomach vanished completed and I presumed that my ulcer got healed but I think I may be wrong at that time because I think the ulcer just remained dormant. 4. In 2002, I also started having high cholesterol and started with continuous treatment with heart specialist and was under cholesterol reducing medicine till May 2012. 5. Since mid 2002 my platelets started going up and from mid 2002 till 2011 it was a rollercoaster ride of platelets going up and up and sometimes down, though I was unaware of these, my heart specialist whom I used to visit regularly also did not point this out to me at the initial stage when the platelets was rising even though he used to check the blood report every 3 months and platelets going up was evident in the report, at least when it reach 700000/800000 as a patient I should have been informed but he chose not to inform me about this platelets going higher and higher.  6.  In January 2011 when I started having burning sensation on my finger tip for more than a month it was then informed to me that it was due to high platelets and to contact Oncologist cum Haemo urgently and the worst nightmare of my life started when I was diagnosed with ET.  To be frank for more than 6 to 8 months I used think why me and how I contracted it, it is not as if I have done something wrong to contract this blood disorder which has no cure in English Medicine.  Not only did I started worrying but my family also started worrying about my health and it reach such a stage that it was become unbearable to digest the fact that I was having ET which has no cure. 7.  Finally I decided to take things in my own hand and decided to research on internet and started looking at alternate cure for this blood disorder and though there were no confirmed cure cases, I though I had to try at least and not accept defeat just like that and finally narrowed down to Ayurveda and Homeopathy but decided on Ayurveda around May 2012 and from there on started my tryst with destiny.  First of all I had to get a very good experienced ayurveda doctor who knows what he is doing and not only that I had to know that he had a good reputation and luckily for me through my relatives I found a Ayurveda Doctor who started treating me since May, 2012.  My ayurveda doctor told me to follow strict regime of diet and I believe first of all detoxification has to happen and that was what he did through the ayurveda medicine and then he advised me to decrease the intake of protein and also calcium.  Whenever my platelets used to go up I used to get nervous and call him up but he always gives a patient hearing to my issues and advises me to continue Ayurveda.  Initially for around 9 months the platelets were going up and up and then around December, 2012 till April, 2013 the rate of going up decreased and started to be almost static but sometimes used to go up and even then I requested him whether I can take hydrea just to bring down the platelets so that i do not have blood clots but instead he prescribed another medicine which currently I am taking and I find that platelets has gone down by 64000 which in itself is a major encouragement for me.  During this time my diet has changed completed and I am on strick diet and reduced my intake of oily/cheese/fatty items/reducing sugar intake drastically to a level of nil.  Also health wise no symptoms are there which I used to have while taking Hydroxurea, more over I had found out that taking Hydroxurea had affected my liver also but since being on Ayurveda medicine for the past 1 year, though platelets has increased from May 2012 to April, 2012 healthwise much much better, feeling more agile, alert and thinking clearly. I would also like to inform all that during these entire period of taking Hydroxurea and Ayurveda my blood test only the platelets was abnormal all other blood was normal. (I somehow have a feeling that this ET and even cholesterol that I contracted is due to the ulcer being dormant and not healed completely and also due to the fact that the DNA being changed due to ulcer perforating within the cells and due to my lifestyle of having alcohol drinks with coke/areated drinks and fatty and oily food) I would appreciate your comments, your history, any remarks that you may have because I think we need to find out why this happened to us and whether it can be reversed through diet so that lakhs of patients like me can find a way to alleviate their sufferings day in and day out.  We need to find out whether we can reverse this or not.   My bloghttps://cureforet.wordpress.com/ will be updated regularly on this and my progress will also be given in this forum. May God bless us all and give us the courage to overcome this disorder. http://www.cancercompass.com/message-board/message/all,71835,0.htm hometypist Mon, 20 May 2013 00:00:00 GMT I am at the wonderful age of 30 and have been diagnosed with ET two years ago, with a platelet court exceeding well over a million.  Because of the aweful  symptoms I was having from such a high platelet court, my physician first put me on Hydroxyurea.  Even with anti-nausea medications, the Hydroxyurea still cause me to be extremely ill.  Currently, I am taking anagrelide for my ET but go through cycles of extreme fatigue and nausea but lately the nausea and fatigue has gotten worse.  My physician prescribed additional meds for nausea, but; unfortunately if the meds doesn't help, I will have to do Interferon Alfa-2B injections.  Is there anyone who is using Interferon Alfa-2B injections for ET?  If so, please tell me if it has benefited you and also please advise me of any side effects you experience, it will be greatly appreciated. Sincerely, TGofAL http://www.cancercompass.com/message-board/message/all,71757,0.htm tgofal Tue, 14 May 2013 00:00:00 GMT I was diagnosed in 2004 and started my treatment with Prednisone. This didn't work and a had 3 transfusions. I have been on weekly Procrit injections (45000 units) ever since. I am experiencing bone pain and terrible noise in my ears which can be excruciating. I also had a mild heart attack in December which I feel Procrit played a part in. My last HGB count was 11.3. So the Procrit has been working for me. I've just been on it for so long that I'm worried about long term effects and I'd like to know what other options are out there. My oncologist won't discuss other options since this Procrit is working.  Is there anyone out there that is just being treated with Procrit? http://www.cancercompass.com/message-board/message/all,71727,0.htm Pauline222 Sun, 12 May 2013 00:00:00 GMT Normal 0 false false false MicrosoftInternetExplorer4 I was diagnosed with this (6) weeks ago. I am on steroids and chemo medicine as well as receiving blood transfusions every week due to my low red blood cell count. I understand this is a rare disease. I am looking for any information someone has for treating this cancer and what has been successful.   http://www.cancercompass.com/message-board/message/all,71676,0.htm osborn2026 Thu, 09 May 2013 00:00:00 GMT I was diagnosed with breast cancer 5/27/11 and finished treatment 8/3/2012. I was left with a broken body and just found out I have leukemia. Getting my port back in tomorrow and starting chemo Wednesday. Can anyone give me a rundown on what is going to happen to me or the best place to read it? I am inpatient for at the least, 30 days. I feel like I am not going to make it home. What is the survival rate? Please help me. I am trying to be strong for my children and family. My daughter was constantly in fear of me dying and using the - leave the past in behind, future in the future, and live in the present isn't working anymore. Devastated ;*( http://www.cancercompass.com/message-board/message/all,71331,0.htm Rroccamonet Mon, 15 Apr 2013 00:00:00 GMT An ultrasound found my spleen enlarged.  2 months later I went for a cat scan of my chest, adomen and pelvic area.  Spleen has grown.  I have Cll.  Anyone have this problem and how were you treated http://www.cancercompass.com/message-board/message/all,71061,0.htm Essie95 Tue, 26 Mar 2013 00:00:00 GMT My husband was diagosed of leukemia cmml. Currently he is taking blood thinner medicine because he was found to have blood clots on his spleen, lung, and liver. He is also suspected of having a mastocytosis but still under medical examination for connfirmation. His oncologist says he doesn't need further medication at the momment, however his white blood counts is decreasing and increasing. He is also frequently suffering from stomach upset and his doctor prescribed him of protoix. Is there anything you could medically suggest to impove my husband's condition and any food/diet/vitamins to suggest that could boost his blood counts but will not affect his coumadin? http://www.cancercompass.com/message-board/message/all,71127,0.htm rosesaga Sat, 30 Mar 2013 00:00:00 GMT Hi I was diagnosed with CMML Aggressive Type 2 on Dec27 2012. I searched the internet for info and was not happy with what I learned as the prospects did not sound very good. However when I finally found some comments from people living with the disease I know that nothing is cut and dried so to speak. But the lack of patients discussing this form of leukemia on the forums is of a concern to me as I look for someone with my form of the disease and for future patients looking for info about CMML. My bone marrow results were 17% blasts with all the other requirements to be classed as CMML Aggressive Type 2. However my blood tests were not what seems to be the norm for this situation. Slightly high white cells at 37 and slightly low red cells and hemoglobin with quite low platelets (as low as 22 so far)  I am in my fourth round of Vidaza with my blood counts now good except for my platelets which are 22. This message is not intended to supply any answers for anyone but to put my situation out here for others to see and /or to comment on to help me understand what may lay ahead for me. My doctor will not make any predictions at all as to the future. When I asked him about other options if this does not work he said none other than experimental ones. Because my blood count is good except for platelets I do not feel too bad physically but mentally it is troublesome. All comments are welcome and I will try and update my progress as time goes on. Looking for some answers for CMML patients :Denis http://www.cancercompass.com/message-board/message/all,71481,0.htm putld Thu, 25 Apr 2013 00:00:00 GMT