Our online leukemia forum offers a supportive community to AML patients and their families. Join CancerCompass.com to research treatment methods and share additional information and resources. http://www.cancercompass.com/message-board/cancers/leukemia/leukemia-(aml)/1,0,119,7,49.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Has anyone ever heard of this happening and if so can you explain?  Started out as AML in Dec 08, remission then relapsed.  Each chemo treatment has been followed with infections and the latest is pneumonia.  A statement from one of the medical staff was that the leukemia may be in the lungs.  What?  Would anyone be able to explain that logic?  http://www.cancercompass.com/message-board/message/all,40945,0.htm melisandrews Fri, 23 Oct 2009 00:00:00 GMT Hi!!My name is Kenneth from Sweden!!Have you heard about Ceplene against AML??  If not, go to the webbsite and read about Ceplene and Named Patient Program:http://www.epicept.com/ Ceplene had previously been granted orphan drug status for the treatment of AML by the European Medicines Agency (EMEA) and the US Food and Drug Administration (FDA).Ceplene was approved by EMEA in october 2008Sincerly with respect Kenneth T. http://www.cancercompass.com/message-board/message/all,40194,0.htm Kenta96 Sun, 27 Sep 2009 00:00:00 GMT Father in law, 70, has had Essential thromocythemia and now has AML. was on Hydro for about five years.  Doctors want to start chemo today and will be in the hospital for 2 weeks post treatment. Any comments on if this is the correct choice? Is there a good chance the HMLwill go into remission? Why are doctors prescribing Hdyro for Essential Thromocytmeia when there is a good chance of AML? http://www.cancercompass.com/message-board/message/all,39260,0.htm davis Sun, 23 Aug 2009 00:00:00 GMT Hi I am 57 years old and my husband has left me. I would really like to find a pen pal around my age group perferably a male that I might be able to talk to. Thanks Shamy http://www.cancercompass.com/message-board/message/all,39268,0.htm shamy Sun, 23 Aug 2009 00:00:00 GMT My wife has just been told that she has only a few days or possibly weeks to live after unsuccessfully trying to overcome her battle against Accute Myeloid Leukaemia. She has had the works - 3 chemos, TBI and an allogenic transplant from her brother (perfect match). All appeared to be going in the right direction but then completely out of the blue and after only a couple of months, she relapsed.Sadly the last course of chemo did not even put a dent into the diseased and she still has 75% blast cells in her bone marrow. The doctors have said that there is no chance and have sent her home.I am a realist, but was wondering if anyone has heard of any miraculous recoveries after this sort of prognosis or at least of anyone who lasted far longer than was excpected. If so what did they put this down to?If you could help, I would appreciate your response. Thanks http://www.cancercompass.com/message-board/message/all,39061,0.htm warrenb Sun, 16 Aug 2009 00:00:00 GMT Hello,I have been dealing with GVHD since Bone Marrow Transplant 3 years ago and now possibly it's in the kidneys and I have to have a biopsy if the kidneys. Wondering if anyone else has had GVH in kidneys?Thank YouJudiD http://www.cancercompass.com/message-board/message/all,38955,0.htm JudiD Wed, 12 Aug 2009 00:00:00 GMT I was just diagnosed with AML last week. Very scared. My doctor wants to go straight to a bone marrow transplant, which now after reading some other posts, I wonder why he does not want to try chemo first. My blasts are still very low, so it is not like it has progressed too far yet. Only 5% possibly 10%. We are checking to see if my sister is a match. He said he may have to give me chemo first as a "cooling off period" before the transplant. He also said I WANT to get graft versus host, which I don't understand either since everywhere I look says that is not a good thing. Can anyone give me advice here? I am only 27 and got this horrible disease due to taking a drug called Imuran for another chronic illness I have. Which, I might add, had a VERY low chance of occurring. http://www.cancercompass.com/message-board/message/all,38779,0.htm Lilkimmi Fri, 07 Aug 2009 00:00:00 GMT Hello new world of friends. I am 52 and just dx with ET and testing starting to look for chronic myelogenous lk. Lots of sympthoms. Scarred. Researching as much as possible. Been sick long time. No one put pieces together till July 2. Challenged with no insurance. Disabled husband and disabled adult son that I provide care for. Do I qualify for Disablity? Amazing how fast world flips over in a 15 minute doc visit. http://www.cancercompass.com/message-board/message/all,38029,0.htm Christmas Mon, 13 Jul 2009 00:00:00 GMT Hi everybody, I just thought I should share an article with you:" Stem cell transplants improve survival for some leukemia patients: studyStem cell transplants improve survival among people with a common form of leukemia, researchers said Tuesday.Acute myeloid leukemia (AML) is the most common form of acute leukemia.It is usually treated with chemotherapy to produce a first remission, which nearly 70 per cent of patients under the age of 60 achieve, researchers said.Not every cancer cell is eradicated, however, so relapses can occur, since the blood and bone marrow haven't been restored to normal, said study author John Koreth of the Dana Farber Cancer Institute in Boston. " You can read the rest of the article here: http://www.oncologyjournal.org/blogs/admin/526-stem-cell-tra  Hope you find this as informative as I did! http://www.cancercompass.com/message-board/message/all,37234,0.htm HowardG Wed, 17 Jun 2009 00:00:00 GMT My dad had no symptoms..routine check up found irregularities in his blood & a couple days later he is diagnosed with AML, stage M2 (I think)..he went in the hospital the following Monday (all w/in about 10 days of the diagnosis! and now he is on day 4 of the induction chemo.  He feels fairly normal, which is great but I wonder if anyone can tell me how long does it normally take for the chemo to really start interferring with your body's normal state & functions??  I just want to prep myself!  He is 68 yrs old and the Dr told us today he would def be in the hospital for at least another 4 weeks to continue treatment....this is so unexpected & so new to my family that I am at a complete loss & just cannot seem to focus on what the Dr is even saying some of the time due to my grief & concern...how bad can the chemo get or has any one actually ever witnessed or had an experience where the chemo did not actually get as bad as we are all petrified that it may get!?  or I just grasping here??  Any insight would be great...nervous wreak!!  He is being really positive, his faith and his spirits could not be any better...he truly is a Super hero & I cant even explain the courage & strength he in demonstarting---I believe this ALL has to have some contribution!!    Any stories or similarities?  http://www.cancercompass.com/message-board/message/all,36252,0.htm samira1217 Sun, 17 May 2009 00:00:00 GMT Hi,Someone I know just got diagnosed with AML and I am going with her for the first doctor appointment.  I am not familar with AML and am not medically inclined.  Can someone tell me what some test results would be.  As in if the doctor says she has ___% of something in her blood it means this.  Or if the doctor says she has ____ of these in her blood it means this.  I just want to be able to make sense of the lab results.Thanks! http://www.cancercompass.com/message-board/message/all,34641,0.htm nicholasmama Thu, 26 Mar 2009 00:00:00 GMT I’m trying to find out what to expect in the next few months. My Dad, who already has Emphysema and is on Oxygen most all the time, was diagnosed 3/5/09 with Acute Leukemia (AML) which was categorized as “aggressive”. I believe he might have stage M5, but am not positive. With his other conditions and age, the fact that Mayo Clinic & Hopkins Doctors agreed that Treatment would only be maybe 35% effective, the best decision my parents could make was no Chemo/Other Therapy. It would not be practical, and most likely more painful than letting the Leukemia take it's natural course. Doctor mentioned 1 - 4 months. Does anyone know what I can realistically expect and if he may live past 4 months? We want to be with him as much as possible and help my Mom out - they live in a neighboring State, which is a 2 hours drive from us. Already looking into Hospice options. Any other suggestions? Insights? Thx. http://www.cancercompass.com/message-board/message/all,34468,0.htm dj325 Sat, 21 Mar 2009 00:00:00 GMT does anyone have this along with there AML? and did you stay in remission long with it? Leslie http://www.cancercompass.com/message-board/message/all,34220,0.htm leelou Sun, 15 Mar 2009 00:00:00 GMT my dad has luemekia (AML) && he has to go to karmonas hospital in detroit to get a bone marrow transplant. it's hard on me because, he's my dad && everything && i'm scared to loose him. i just started highschool in fall && it's such a great way to start out my year [sarcasim]it's been tough for me && my mom...&& my school has been not been very supporting && stuff.like...i get suspended all the time it seems like over stuff sooooo stupid.&& then, my mom has to come && pick me up...so, she is like running back and forthhh :/its insane... http://www.cancercompass.com/message-board/message/all,34086,0.htm Nicky92 Wed, 11 Mar 2009 00:00:00 GMT My 2.5 year old son's AML relapsed (CNS and marrow) eight months ago.  He was born with AML (congenital) and had a BMT back in 2006.  After several months and two rounds of chemo he was still not in remission.  This was six months ago that we went home - his marrow was aplastic - he was neutropenic - and he was recovering from a cranial tap to drain subdural hygromas. Although we went home to only have a few weeks of "quality of life", now it is six months later and his marrow has finally recovered - and there is no cancer in his CNS fluid either!We did quite extensive herbal therapy in the past six months - now that he is in remission - we are leaning against CNS radiation (the normal path).   Medical details are on our blog: www.jaymun.com/journal/2009_02_02Any thoughts on this situation? http://www.cancercompass.com/message-board/message/all,32998,0.htm jaymunsdad Sun, 08 Feb 2009 00:00:00 GMT My extremely young 71 year old Dad died on January 11, 2009, he had AML...My Dad's oncologist after one try at chemo and one at mylotarg, literally sent him home to die with no options, not even palliative care. However, much to our incredibly thankful hearts, due to a contact, the Univ. of Chicago had studied his medical records and wanted him there, unlike his oncologist, they felt that he still had many options, even a bone marrow transplant...My Dad DID NOT want to "go yet"...he really wanted to fight this...and said he'd do anything in order to do so...he was an incredibly healthy man, even up to the end...definitely did not look like a "cancer" patient.My Dad went in for platelets on a Friday, his bloodwork showed his WBC at an alarming 138! (On Wednesday it was 32...Monday at 10.2)The hospital called his oncologist as to ask which step to take next, she told them to release him, send him home! She bumped up his hydrea pills (which we had discovered ourselves and had to nearly fight her for) to 6 a day ilo 1...that's it...He had an appointment on the following Wednesday at the Univ. of Chicago, all he had to do was make it until then, they even thought he was a great bone marrow transplant candidate! We even had a jet lined up to take him there...My Dad died on that Sunday before, he never was able to make it to the Univ. of Chicago...PLEASE, am I just going nuts or was it outrageous for this oncologist to send him home that Friday? Why didn't she order an emergency transfusion? Do her actions sound right?Would so appreciate any and all insight here...thank you http://www.cancercompass.com/message-board/message/all,32869,0.htm PapAmore Thu, 05 Feb 2009 00:00:00 GMT Hello Friends ,                  My father was diagnosed with AML 2 months back , and then he start Chemo with drug ( clofarabine ) , after 5 low doses and a week of waiting period his BMB revealed there were no Cancer Cells ( 0% ) blasts. and then the doctor started him on Neupogen, he has got 5 injection by now , but I dont see his WBC counts come up, does any one know how fast does Neupogen works RegardsVikram http://www.cancercompass.com/message-board/message/all,32303,0.htm aquapepsi Mon, 19 Jan 2009 00:00:00 GMT Hello - this is my first post. We have a close friend who has AML - he is 74 yrs old, was diagnosed in late Nov, put immediately in the hospital to undergo about 3 weeks of intensive chemo. I don't know exactly what treatment he's had - just know that he was REALLY sick while undergoing toxic chemo treatments. He was allowed to go home for Christmas. Bone marrow biopsy last week shows no sign of cancer and his platelet count, etc slowly rising. The family is rejoicing.He reports that, beginning in Jan., he needs to go back in the hospital for "consolidation" treatment to keep the cancer at bay. Can anyone describe wht he's talking about? What is "consolidation" therapy? Why does he need this if there' s no sign of cancer in his bone marrow now?All I know is that when he was first diagnosed, his wife reported very grim prognosis. I got the idea they thot he was going to die soon. Thx for any info you can give me. I want to understand as best I can - from a distance - so that I can encourage as much as possbile. http://www.cancercompass.com/message-board/message/all,31504,0.htm alnmaryt Fri, 26 Dec 2008 00:00:00 GMT My husband has AML - first diagnosed 2 1/2 years ago - remission for two years - relapse in June.  Is now doing a bone marrow transplant.  Would like to talk with others going through this.  My first time on ANY message board - anywhere.   http://www.cancercompass.com/message-board/message/all,31486,0.htm irisjune Wed, 24 Dec 2008 00:00:00 GMT I have AML and in remission but my leg bones still hurt really bad, the doctors said that it would take time but it has been 5 months since my last chemo and my legs still hurt.  Does anyone still have the same problem.  I am grateful that I am alive but this pain on somedays is unbareable. http://www.cancercompass.com/message-board/message/all,30626,0.htm Laura_Espinsoa Mon, 24 Nov 2008 00:00:00 GMT hi i am a 44 yr old man.i was diagnosed with aml in jan 2006. went threw induction .and then 3 consolidation therapy. went in to remission got feeling better and got back to work for a few months and in jan. 2007 i had relapse. went in for treatment my counts were nil and my appendix blew dont remember much of that month i was in hospital my wife and my dauter took care of me had to have wounds packed in stomach and iv antibiotics after i came home in april 2007 i went to an arbor mi. to the university of michigan for stem cell transplant. lived in anarbor for 3 months.when we got to come home my wife was to go back to work. in aug and found out she had breast cancer now i am the care giver she went threw 4 treatments of chemo and the started taxol chemo after 1 treatment my wife had a major stroke two days after thanksgiving 2007. she has been threw months of therapy she has no use of left side and it has affected her brain alot she doesent seem like the same person she has to have 24/7 care and i feel like i am getting wore out we have used all our savings and 401ks just to keep going while we were going threw cancer. now we are both on disability and losing everything . i love horse and have been trying to get a therapeutic riding center for kid with disabilities and with cancer. i seen alot of kids in an arbor and would love to do somthing to make them forget the pain and sickness for a little while. but dont know how i can take care of wife and the center l feel so stressed out and dont know where to turn any help would be greatly appreciated.  thanks jeff http://www.cancercompass.com/message-board/message/all,30562,0.htm tortios Sat, 22 Nov 2008 00:00:00 GMT My mother was diagnosed with AML. She had chemo and had to have another chemo but this did not work either. She is now home with hospice care.  I spoke with a doctor while she was on her 2nd round of chemo and asked him to tell me how much time she has....he told me she would not last past Thanksgiving.  My mother now is extremely weak. Has inflamed knees, cannot walk because of the pain in her joints, is incontinent because she cannot move fast enough to get to the bathroom.  She has extreme pain in her throat and was diagnosed to have thrush. I understand that thrush can be very dangerous as it may cause sores in the mouth that eventually lead to the other organs leading to potential bleeding. Does anyone have any information on this??? http://www.cancercompass.com/message-board/message/all,29948,0.htm chickie45 Mon, 03 Nov 2008 00:00:00 GMT I am going through a whirl wind of emotions.  I am in remission but my Dr. wants to do a blood test to make sure there are no residual cancer cells around.  This really concerns me.  I am also due to begin my 2 year maintenance program of oral chemo by next week.  Has anyone else had to go thru this regimen?  And how long does it take to get my strength back...I want to be active and healthy again so I can play and care for my 2, 3, and 4 year old kids!!  I need held so bad.  I am on antidepressants and trying to come off Ativan and begin a different antidepressant because the one I am on isn't working.  Help!!!!  When does it get better?????????? http://www.cancercompass.com/message-board/message/all,29792,0.htm NEED_SUPPORT Wed, 29 Oct 2008 00:00:00 GMT Hello, my fiance's 12 year old daughter was recently diagnosed with PH+ AML. I would like to find as much information as I can on it. Unfortunately, my research hasn't been able to come up with alot of information.  To give a little bit of background. She was first diagnosed with AML-M5 in June '08. Her doctors immediately started her on induction therapy. The first treatment did nothing, the second however, showed some improvement. Since then, she has had a multitude of problems including renal failure. Her doctor then stopped treatment because of her kidneys. A week later, she was in the hospital for a seizure. They then found out that the leukemia had spread to her lungs. They restarted the chemo.  Her father had decided to seek a different opinion and contacted St. Jude's and from there, she was diagnosed as of today 9/8/08 with having PH+ AML. He said it was a very rare and aggressive form of leukemia. It has also spread to her lungs, liver and spinal cord.Is there anyone else that has experience with this form of leukemia that can give me some information about it please? Such as what exactly does it do? How does it effect her overall rate of survivability? What kind of chance does she have...etc. Thank you. http://www.cancercompass.com/message-board/message/all,29098,0.htm Aurora626 Wed, 08 Oct 2008 00:00:00 GMT So all of a sudden you are told you have the worst type of leukemia and you could die from it hang in there. You will need a bone marrow transplant its not all that bad. You will feel sick at times and have to be in the hospital for a while but youll get through. Recovery seems like forever but every day you start to feel a little better. Its not all that bad I am at day 80 I have had ny new bone marrow 80 days now it is going ok. You do have your little bumps but please stay positive things will get better. http://www.cancercompass.com/message-board/message/all,28285,0.htm serena24 Mon, 15 Sep 2008 00:00:00 GMT