Our online leukemia forum offers a supportive community to AML patients and their families. Join CancerCompass.com to research treatment methods and share additional information and resources. http://www.cancercompass.com/message-board/cancers/leukemia/leukemia-(aml)/1,0,119,7,49.htm Mon, 20 May 2013 00:00:00 GMT Mon, 20 May 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Does anyone have any info on this. My cousin is trying this.She is home with hospice after relapsing 16months post BMT http://www.cancercompass.com/message-board/message/all,71814,0.htm sgknavymom Sun, 19 May 2013 00:00:00 GMT Can you survive AML? http://www.cancercompass.com/message-board/message/all,1338,0.htm Wesley Tue, 12 Oct 2004 00:00:00 GMT What are the odds of getting a matched unrelated donor for BMT? http://www.cancercompass.com/message-board/message/all,59201,0.htm cindy07m7 Wed, 11 May 2011 00:00:00 GMT Hi there, I had AML M1, type 2 and a BMT in Jan 2012. I am recovering after a terrible time, but like most, still suffer the emotional after effects. Does anyone have a line to a physical-in-person support group or network in Northern CA? I know there are online groups, but anything in-person? I would really like to be able to work through all the shock, dismay and other emotional side-effects of this process. Also, please no "god" answers, not my bag. http://www.cancercompass.com/message-board/message/all,71439,0.htm overland_travel Tue, 23 Apr 2013 00:00:00 GMT My sister had a bmt at UCSF 7 months ago (non related perfect match donor) she briefly came home (1 or two days here and there at the beginning) but has spent the last 7 months in the hospital (5 months at UCSF and 2 months in a skilled nursing home)  she spend several of the months in the UCS with a brain bleed, internal bleeding and pneumonia.  She has gvh in her gut.  She is immobile and her hips are shot because of the prednisone, she has compression fractures in two of the vertabrae in her back.  She takes 112 pills a day, in hooked up to a feeding tube and has chronic diarhea.  She was released from the skilled nursing home on Friday and we have a full time person with her at her house along with a rotation of family members.  They will send pt and ot to the house to try and get her up etc.  All she wants to do is sleep.  When we take her in to UCSF they are not telling us that this is normal but say her "numbers look good" and for her to keep on working at it.  This is a horrible nightmare.  She is out of it most of the time talking gibberish and sometimes doesn't even know where she is or what has happened to her.  IS THIS NORMAL??  Have you heard of people having bone marrow transplants that actually recover from this horrifying state?  http://www.cancercompass.com/message-board/message/all,66078,0.htm kkelly Tue, 08 May 2012 00:00:00 GMT Hi my name is sarah i am 10months in remission comin upto a year since id ov started my chemo gtting really nurbous about relapsing any one hepp.me please  http://www.cancercompass.com/message-board/message/all,71046,0.htm sarah13 Sun, 24 Mar 2013 00:00:00 GMT I have AML, systemic mastocytosis, and Hep C. I was diagnoses with the AML march of last year, I'm hoping for a transplant soon, otherwise I am told I do not have long to live. My AML is much more agressive then they first thought and I never stay in remission for long at all after chemo, it is always for less then a month. So my only choice is a bone marrow transplant. No on in my family was a match so they are looking for a match in the data bases they use. It is risky for me to have the transplant because of the Hep C, yet there again it is my only choice if I want to live for any length of time. Please if anyone has any advice, or something to say that might help please do reply. http://www.cancercompass.com/message-board/message/all,70387,0.htm Kelly5 Thu, 07 Feb 2013 00:00:00 GMT Hello My grandfather is a strong, healthy man with some borderline hypertension. As of June 17, 2011, he is a AML with poor cytogenics patient and has been the recipient of three recent platelet transfusions and about 5 blood transfusions due to low hemaglobin. According to his doctor, there is no treatment available, just supportive care. He's in Ontario. If there is anyone with any recommendations or suggestions, please respond. We are desperate to help him. thanks http://www.cancercompass.com/message-board/message/all,60652,0.htm nenid Tue, 12 Jul 2011 00:00:00 GMT Hello all,        I was just recently diagnosed with AML and tested positive for the Philadelphia Chromosome.  Since this is a rare condition I would like to know how many others on this board have it and share their experiences so we could all have a better understanding of it.  I will also be glad to answer any questions anyone might have. http://www.cancercompass.com/message-board/message/all,69389,0.htm balters Sat, 01 Dec 2012 00:00:00 GMT hello all: my 23 y/o nephew just got diagnosed with AML in one of the developing countries, I am wondering if I can show the bone marrow cell counts to get a second opinion from an expert. I am also willing to pay for this service.   http://www.cancercompass.com/message-board/message/all,69170,0.htm Forrestg2050 Thu, 15 Nov 2012 00:00:00 GMT Hello, I was dx with AML m4 in Jan 09. I have been in remission since and have follow up visits every 6 months for bloodwork. Around this time I always get so afraid, even after 3 years of good results. I am so nervous now waiting for either a call from the dr (something's wrong) or an email (everything is fine) I hate this. I really need some encouragement right now and suggestions on how to deal with the anxiety of these tests every 6 months. I feel like I am waiting for someone  to tell me Im dying :( http://www.cancercompass.com/message-board/message/all,69143,0.htm Julisabell2009 Wed, 14 Nov 2012 00:00:00 GMT We have read that we are in the 5% club for those that get leukemia...Anybody have any advice for this rare type? http://www.cancercompass.com/message-board/message/all,55811,0.htm LunaMoo Sat, 12 Feb 2011 00:00:00 GMT Hello, I was just recently diagnosed with AML and had gone through 3 chemo cycles already. I'm currently in remission right n ow and my doctors advised is to have a BMT. But, it is very expensive. My doctor says it cost 4Million :( (I'm in the Philippines by the way). There is no way in this world we can find that money becuase I'm one of the people who work for a leaving type. So, I'm wondering if anyone o you here survived AML without going through BMT? Your thought is very much appreaciated. Thank you, Naome http://www.cancercompass.com/message-board/message/all,66605,0.htm Naome1104 Fri, 08 Jun 2012 00:00:00 GMT Bleeding gums is a common dental health issues that is caused by different reasons. Inflammation and infection of the gums are the issues of bleeding of gums and also medically called gingivitis. It may be red line called gum red line. for more related information you need to visit, http://www.meetadentist.com/articles/causes-of-bleeding-gums http://www.cancercompass.com/message-board/message/all,67521,0.htm stevepearls Tue, 07 Aug 2012 00:00:00 GMT Has anybody any experience with the IV vit C for AML, I have had 4 courses of chemo on trial AML 17 and relapsed after 6 mths so have had 1 course of Clo D which didn't get my bad cells down enough so they gave me a course of Flag IDA which I am recovering from at the moment, haven't had my BM biopsy done yet to see if that worked but hope it does as i have a BM donor waiting ! http://www.cancercompass.com/message-board/message/all,66601,0.htm dldc68 Fri, 08 Jun 2012 00:00:00 GMT My Mom was moved to Hospice care last Thursday on recommendation from her oncologists.  Friday the doctor was giving her one or two days to live because for a few days she had not be able to eat or drink anything at all and could barely wake up at all.  On Saturday and Sunday she had no radiation treatments of course since that was the week-end.  We told them to hold off on the radiation treatments because it seemed that was why she was so tired she couldn't even swallow even though her oncologist said that radiation doesn't make someone tired.  (I knew better.)  Monday morning she woke up, opened her eyes, was able to whisper speak a little and drank and drank water, ensure, and coke and ate some ice cream and applesauce.  She said she couldn't get enough to drink.  No wonder - she had no IV and was unable to swallow she was so tired from the radiation treatments.  She had 6 so far.  Yesterday and today she has been the same.  She even asked my sister for her vitamins.  It seems she's trying to help herself :(   I don't think she realizes she's in Hospice care (even though it was blurted out to her when they were getting ready to move her there).  When I got ready to leave last night, she whispered to me, "Getting better."   :(    Probably so I wouldn't worry  :(   She has no IV and won't be getting blood transfusions since she's in Hospice.  To me, it's like we are letting her bleed, thirst, and starve to death.  It hurts so bad to see this.  Does anyone know if a person can recover from liver failure?  That's why the doctors said to put her in Hospice because they "thought" she was in liver failure.  Her bilirubin is at 4.7 and ALP is 7.91.  I know the radiation has helped her stomach tumor because the doctor said yesterday that the bleeding has stopped for now.  I feel like they gave up too quickly on her and put her in Hospice too quickly.  Please respond if you know anything about liver failure.  Thanks so much.   http://www.cancercompass.com/message-board/message/all,62929,0.htm momhascancer47 Tue, 15 Nov 2011 00:00:00 GMT It was a shock when i found out i had aml. i was 26 and i was sick for a few months. i didnt think anything of it cept that maybe i needed some fluids. i went to the er and ended up being admitted to the hospital and started chemo right away. shortly after i was in remission. Almost a year later i had a stem cell transplant and it was successful. Now i am just living day to day. no matter how old you are you can fight whatever is thrown at you.  http://www.cancercompass.com/message-board/message/all,65929,0.htm amlsurvivor27 Tue, 01 May 2012 00:00:00 GMT hi, my name is simone burdick, and this is my story. i do not have cancer but i am looking for someone in their teens around the ages of 12-16 who would like to become a penpal with me, and more than likely my twin sister as well. you see, i want to do this because one day my sister and i decided to make a bucketlist, including spending a day with a cancer patient/survivor, and after searching site after site i only came down to one solution, join a website (like this one) that has full on communication with people. so if anyone is intersted, please reply to this post! :D http://www.cancercompass.com/message-board/message/all,64412,0.htm simone.nicole Wed, 08 Feb 2012 00:00:00 GMT my day has leukeia and has a very hard time breathing and catching his breath, his lung doctor tested his oxegen levels and said his levels were over 88%. does anyone eles have this problem who has leukemia? http://www.cancercompass.com/message-board/message/all,55084,0.htm doodymimi Thu, 20 Jan 2011 00:00:00 GMT Our 8 yr old grandson has aml, he had a bone marrow transplant last fall, and now has graft vs host.  The Drs. are not giving us much hope, any hope really. The only thing my step daughter is telling me about what to expect is that the Drs. say "it's not pretty".  I have searched the internet, and can not find anything.  Our grandson was diagnosed with aml last May, spent most of last year in Strong Mem. Hospital.  I don't know, anything, does anyone know how bad this is going to get? time frame?  My heart breaks for our grand son and my step daughter.  Any one have any answers? http://www.cancercompass.com/message-board/message/all,64046,0.htm chrisbaier Sun, 22 Jan 2012 00:00:00 GMT Hello and best wishes to everyone.  Our dad 81 was diagnosed with AML oct 2010, he was traeted with Vidaza and did quite well for some time.  Vidaza has stopped working.  The doctor has given us a few options the best one he says would be the Cytarabine agressive chemo treatment.  It is very dangerous, he would need to stay in the hospital for 30 days and then he would probably be in remission. The other options are short term.  Blood transfusions weekly or more, or Arsenic.  My question is has any elderly person had the Cytarabine treatment if so what was the out come.  Anyone please reply young or old.  My dad is a strong young 81 year old who wants to fight.  We dont want to lose him :(  Please help. http://www.cancercompass.com/message-board/message/all,63364,0.htm cardan Thu, 15 Dec 2011 00:00:00 GMT My name is Meredith and I was diagnosed with AML in May 2001 and I had a BMT in September 2001. Since then I've been on high doses of Prednizone for GVHD. Recently, I developed GvHD of the muscle in addition to already having it in my skin, liver, and gut. I didn't know you could get it in your muscles. The best treatment for it is with Prednizone. It seems like I'm going to be on high doses for a long time, and I've been trying to find infomation about long term side effects and things to pay attention to, but it's hard to find facts. So, if anyone has any info about Prednizone or GvHD, please let me know. Thanks! Meredith http://www.cancercompass.com/message-board/message/all,2810,0.htm Missmeredith Tue, 23 Aug 2005 00:00:00 GMT Hi, I posted my mothers story two days ago but unfortunately didn't give it the right subject - so have had no responses yet. <:AtomicElement>My mum, Jackie(63) has AML and is in remission for the second time there are suitable donors (all non family) available for a BMT but the Doctor is suggesting that she doesn't have the transplant due to the high risks.Please if anyone has information for us or has gone through a similar experiance, that could help her make this difficult decission we would really appreciate it.<:AtomicElement>Many thanks<:AtomicElement>Lisa http://www.cancercompass.com/message-board/message/all,28068,0.htm lisa_ann Wed, 10 Sep 2008 00:00:00 GMT My fiance was diagnosed with AML in August 2010. He has been through alot, he had pneumonia and went on life support (venilator) and made it through that. Now he is in MD Anderson and in the ICU because his blood pressure dropped and he had a fever, yesterday his blood pressure raised on its own and his fever went away. The doctor said he had CBF AML which is core binding factor acute primary myeloid leukemia. The doctor has told us that he has a very good prognosis. He has a very strong will in living. He says he knows he is going to make it through this, he just has a feeling that he will. I'm just scared that..he won't make it through this and me and him will never get to start our lives together because we have been in a LDR for 3 years. Since january 3rd 2008, we have been dating, never saw each other once into June 2010. He was diagnosed with Leukemia, and he went back to his state, and i remained in mine, 26 hours away. The doctor says there may be a possibility that his cvc line may be infected, so they put in a new one and took x-rays to see if the new one was in the right place and took the old one out and sent it for testing. I read that if the cvc line gets infected that his blood will get infected and he will most likely die. Now all my hope for him has crashed..I do not know how to regain it. He's 30 years old. http://www.cancercompass.com/message-board/message/all,52229,0.htm PrayingForHimx Fri, 22 Oct 2010 00:00:00 GMT Hi , i was diagnoised with APML M3 in May 2011 and have undergone induction n 2 consolidation phase ...last week itself had my 2nd consolidation phase . My dr. says 2yrs medication will still go on. Any surviors of the same disease ,wanted to talk to somebody about how would be the lifestyle during medication /treatment of 2 years  http://www.cancercompass.com/message-board/message/all,60912,0.htm kavi2906 Sat, 23 Jul 2011 00:00:00 GMT