Message Board Discussions

Leukemia (Cll)

If you or a loved one has been diagnosed with CLL, it’s important to take advantage of all the resources and support you can get. Our leukemia forum lets you connect online with other CLL patients and their families to compare stories, research treatment methods, and find a variety of additional information about CLL.

Leukemia (Cll) Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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what do we do now that we know
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Hi there, my name is Gail, and my son who is 21 has just been diagnost with lgl leukemia, they (the doc's) say it is the better varaint of the type that he ...
203/05/08 Message Rating
Discussion started Caregiver
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Hives
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Hello.  My husband was diagnosed with CLL some time in March 07.  He also has type 2 diabetes (diagnosed about 5 years ago) and Hepatitis C.  Cur...
201/05/08 Message Rating
Discussion started Caregiver
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no response
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what was it about my previous message that cause people to ignore it?
010/19/07 Message Rating
Discussion started Caregiver
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bone marrow transplant
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My brother has CLL.  His situation was monitored for approx. 4 years, but when his red blood cell count went down, while his white cell count was going sky...
109/25/07 Message Rating
Discussion started Caregiver
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cll - bone marrow transplant
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My brother has CLL.  His situation was monitored for approx. 4 years, but when his red blood cell count went down, while his white cell count was going sky...
009/25/07 Message Rating
Discussion started Patient
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Newly diagnosed with CLL.........
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Earlier this year (March) I was diagnosed with CLL the day before my 43rd birthday.  Happy Birthday to me!!  Needless to say I was devistated. I'v...
309/18/07 Message Rating
Discussion started Caregiver
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Hot peppers decreased leukemia...
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Has anyone else read this on the net?  I was wondering if anyone is using hot pepper nasal spray as part of  their leukemia treatment.  Does it w...
009/18/07 Message Rating
Discussion started Patient
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Treatment with "Retuxin"
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I've just been advised to have my leukemia (CLL) treated using "Retuxin" once a week for four weeks.  My doctor says it is to reduce the anem...
108/22/07 Message Rating
Discussion started Patient
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alternative treatments for CLL...
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Hi has anyone out there been treated with alternative therapys for cll.I live in Australia & was thinking of going to Mexico to the Hoxsey clinic as i have ...
207/31/07 Message Rating
Discussion started Caregiver
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My dad was just diagonized
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My dad is 79 and was just diagonized with CLL and I am sick to my stomach. I live in Florida and he lives in NYC and I wish as an only child I could drop everyt...
205/13/07 Message Rating
Discussion started Caregiver
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Blindness after chemp
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My husband is experiencing central vision blindness after receiving Fludara. This is his second time with chemo - first time in 2004 for lymphoma. No one can fi...
005/06/07 Message Rating
Discussion started Patient
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When to start treatment?
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I have had CLL for about 7 years, my white count is now up to 112,000, the Dr. wants to start treatment in 3 months when I go back in April. I am deciding wheth...
101/30/07 Message Rating
Discussion started Member
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Clinical Trial of The Disc Ass...
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Prospective, randomized trial of the DiSC Assay (chemosensitivity testing) in chronic lymphocytic leukemia (CLL) on response rate and survival. The first prosp...
111/01/06 Message Rating
Discussion started Patient
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i Was Told i Have et
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Hello,my name is terri. My dr. Just told me i have et on 08/17/2006. I am a little confused with the infomation. Does anyone out there know is this a form of ca...
009/12/06 Message Rating
Discussion started Patient
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Location in Florida
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Is anyone out there in the area of St. Augustine, Florida. If so e-mail me. --- Message edited by CancerCompass staff: for personal protection, email address ...
102/05/06 Message Rating
Discussion started Patient
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New Member
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I was shocked when recently diagnosed with CLL. I just turned 60, have grandkids close by and a fabulous husband. My life has been perfect. I zoned out when I ...
112/27/05 Message Rating
Discussion started Patient
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Blessed But Scared to Death
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My husband is 39 yrs. old and in Feb. of this year was newly diagnosed with CLL. We were floored. Like alot of you we have 3 children and when we found out I fe...
207/05/05 Message Rating
Discussion started Patient
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Zap-70
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I was recently diagnosed with CLL and was told by my Dr. that I am ZAP-70 positive. My only understanding of ZAP-70 is that it may indicate aggression in the d...
006/01/05 Message Rating
Discussion started Patient
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Platelets
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I am in stage 4 CLL and refused chemo as i am keeing my lymphocytes in the 30s with diet and herbs. My problem is my platelets keep getting lower. Does anyone...
105/26/05 Message Rating
Discussion started Patient
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When to Treat?
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I have always had low platelets and the doctors never said a word until I was diagnosed with CLL then it has become an excuse to put me in stage 4 and try to gi...
304/17/05 Message Rating
Discussion started Patient
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Nhl & Cll
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Peggy, I am sorry. I forgot which site we talked on and how to get back into it --- until I got one of their general bulletins. Since we talked, I dug th...
003/09/05 Message Rating
Discussion started Caregiver
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my Partner Has Cll
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Hi My partner was recently diagnosed with CLL early stage. His white cells increase VERY fast... As he was told he had to wait until some symptoms occured, or...
803/02/05 Message Rating
Discussion started Caregiver
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Bone Marrow Transplants
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Is it true that after a Bone Marrow Transplant the patient usually goes into remission? What is the difference between Acute Leukemia and Chronic Leukemia?...
110/04/04 Message Rating
Discussion started Patient
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Recently Diagnosed
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Just recently diagnosed with CLL Stage 1 - not treatment necessary at this time according to oncologist, anyone else using dietary protocol as a treatment? If ...
1106/24/04 Message Rating
Discussion started Patient
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Anyone treating their cancer w...
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My Atypical Chronic Lymphocytic Leukemia (CLL)is being treated with 3 mg of Low Dose Naltrexone (LDN) taken nightly between the hours of 9 PM -3 AM with excelle...
212/09/03 Message Rating
member
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