Full of supportive resources, our online lung cancer forum at CancerCompass.com is a valuable way for cancer patients and their loved ones to share stories, information and research. http://www.cancercompass.com/message-board/cancers/lung-cancer/1,0,119,3.htm Fri, 24 May 2013 00:00:00 GMT Fri, 24 May 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello All, I am new to this board, but thank God I found it. My mother was diagnosis with stage IV NSCLC in November, and her doctor has given up on her after 4 rounds of taxol. We were recommended to another oncologist who has agreed to continue her treatment, she prescribed Tarceva, Mom has been taking it for a little over a week, and she has gotten stronger, and is able to walk around better. However, last night when I drained her lung (the left lung has already collapsed), the fluids was very bloody, and there was bright red blood in the tube. My Mom has not had pain until now. This is very scary for us, has anyone every have this happen, and what is the cause? Help! http://www.cancercompass.com/message-board/message/all,71076,0.htm lovie Tue, 26 Mar 2013 00:00:00 GMT I love how the medical profession just can't sometimes be honest with the patient or his or her family. My father was diagnosed with small cell lung cancer with metastatic brain disease. My dad has 11 tumors in his brain, the largest lesion has a large amount of vasogenic edema associated and is located at the right parietal lob, measures 4.5 AP x 3.5 cm transverse. Another similar large lesion at the medial aspect of the right cerebellar hemisphere measuring 1.7  cm AP x 1 cm transverse. A large ring enhancing lesion at the left temporal lobe measures 2.8 cm AP x 2.3 cm transverse. Similar lesion at the right thalamus measures 0.8 cm AP x 0.6 cm transverse.  It is felt to be metastatic disease to the brain, neck, mediastinum and hila bilaterally, adrenal glands, possibly spleen, kidneys, retroperitoneal, and pelvic nodal chains.  I just want to have a time frame and not have the run around from his group of doctors. He had his first cycle of chemo, and his blood work is low, and now I will be receiving his new results on the MRIs he has taken this week another on his brain, and now on his lumber. To top every else off he just had an echo and it stated mild left ventricular enlargement and concentric hypertrophy with preserved systolic function, and also minimal mitral valve regurgitation. Please let me know once again perhaps what his time frame can be? Thank you all! http://www.cancercompass.com/message-board/message/all,71422,0.htm PMCave Sun, 21 Apr 2013 00:00:00 GMT My father just found out he has a early stage 3 lung cancer. The doctor will arrange to do surgery to remove the tumor latest on Monday next week. I also read on net that papaya can help to cure the cancer so we just went to the garden to pick up papaya leave and ask others who have papaya tree bring leave for us (we are in VN so a lot of papaya leave). We hang the papaya leave to dry then cut them small then stir in the pot until they are dry like tea. One professor from Ha Noi, have a long time to do research on papaya benefit told me that when my father's stomach is not good then my father should use the dry papaya leave and drink like tea. Acctually the taste of dry papaya leave water like green tea. Any body here has used or known any case that the papaya leave work? I will let my father to remove the tumor but maybe will not let him to do the chemotherapy or radiotherapy (it is too poison). Thank you! Carol http://www.cancercompass.com/message-board/message/all,67632,0.htm Caroldinh Mon, 13 Aug 2012 00:00:00 GMT Hello, A few days ago my fathers doctor told us he had a large 7cm tumour near his heart and multiple other tumours in his lungs. The doctor said it is most likely cancer so he did a biopsy and we are waiting on results. The first mass has been there since August and it has doubled it's size. The lung tumours have appeared in the last three weeks. Does this mean it is a very aggressive cancer? Has anyone seen anything like this before? What could it be? I know the biopsy will tell us but the wait is unbearable. My dads 47, I am 16 years old and my little brother is 14. We are quite scared of losing our father. And information would be such a great help! Thank you all! J. King http://www.cancercompass.com/message-board/message/all,71603,0.htm Mrjsf14 Thu, 02 May 2013 00:00:00 GMT I'm hoping someone can help ease my fears. I had Hodgkins Lymphoma lVB 28 years ago and had very aggressive treatment, radiation from knees to ears and chemo. 2 years ago I had breast cancer, then last year thyroid cancer, then had a CT where they found some nodules in my lungs, one was a groundglass nodule. Of course they said   it was too small for a biopsy and we would do another PET & CT in a year. Well I have just found this site and reading all these blogs has put me in a frenzzy of oh crap! I'm having the tests in June, I have read that a PET worthless when it comes to groundglass. Because of my treatments 28 years ago I have a good chance of Breast, had, Thyroid, had, Lung? I'm scared, my docs act like I'm crazy thinking it is cancer, no just don't want or need it to spread everywhere else, I have 3 kids to raise. if anyone can PLEASE HELP, do you have any experience with ground glass nodule's http://www.cancercompass.com/message-board/message/all,71518,0.htm monamoka Fri, 26 Apr 2013 00:00:00 GMT Hi I am new here and this is my first post My dad was Dx with nsclc stage 3b last February. He had intensive radio and chemo from April till June. First ct scan in September showed tumour had shrunk by 80% Ct scan in January showed tumour had shrunk a little more. Well ct scan results Friday not good and I feel so sad and worried. The original tumour has not grown but one of the lymph nodes has and there is also a new spot that is probably cancerous 1cm big. The oncologist gave my dad 3 options watch and wait and see again in 3 months Tablet chemo or line chemo. My dad has chose watch and wait and the oncologist is happy with that and will see him sooner if he gets poorly? What does this new cancerous thing mean? http://www.cancercompass.com/message-board/message/all,71543,0.htm Kirstynic Sun, 28 Apr 2013 00:00:00 GMT I WILL BE LOSING MY JOB SHORTLY. MYINSURANCE PAID FOR IT 100%. IS THERE SOMEPLACE TO TURN FOR HELP IN ILLINOIS? http://www.cancercompass.com/message-board/message/all,71501,0.htm jrodzak Fri, 26 Apr 2013 00:00:00 GMT Further to my previous post regarding my sister who was diagnosed with IPF in June 2012 and NSLC in January 2013-- My sister died Sunday morning.  She was only 56.  I don't know if there is a new type of cancer out there but it moves so fast that there are no signs, weight loss or any chance for treatment.  The person is classed as terminal right from the initial diagnosis.  This is really scary. The only consolation is that she didn't have to suffer too long. http://www.cancercompass.com/message-board/message/all,71443,0.htm willy6666 Tue, 23 Apr 2013 00:00:00 GMT How are all of you affording the cost of Tarceva? My mother was just prescribed Tarceva. She is 89 years old and on a limited income. After the insurance pays 1/3 the cost of Tarceva, she will have to pay $2,400.00 out of pocket for a 30 day supply. She can't afford this. http://www.cancercompass.com/message-board/message/all,7857,0.htm Msedsel Fri, 17 Nov 2006 00:00:00 GMT Can it move that fast? The Lady I take care of for about 10 years is like a Mother to me, she is 77 years old and on Oct 10, 2012 we find out she has squamos cell lung cancer Stage 2. She is still smoking 2 packs a day, not eating enough to keep a bird going. She also has all the lung diseases out there. They can't remove it, they gave the lightest chemo they have. She had to stop it after 3 weeks. It did shrunk it, the last test was on Feb 15, 2013. (Dr said its what he cant see that scares him). For the last month she has had pain in behind her ribs on the right side, and back at the shoulder blade. and she is forgetting things a lot. I can't get her to go to the Dr. (She is on pain pills). She don't want to know. She is very scared. I am the only one she has, Her husband die Aug 17, 2012 ( with me by his side) they never had kid so I'm all she has.. I love this lady but it is so hard watching this. From what I have read the pain can be from it spreading to the liver or bones. Can someone tell me: Can it spread that fast? What is going to happen and how fast? Does it sound like it is spreading? How bad is it that she is still smoking 2 packs a day (and not eating)? Whats go on? http://www.cancercompass.com/message-board/message/all,71267,0.htm BLookadoo Wed, 10 Apr 2013 00:00:00 GMT Can it move that fast? The Lady I take care of for about 10 years is like a Mother to me, she is 77 years old and on Oct 10, 2012 we find out she has squamos cell lung cancer Stage 2. She is still smoking 2 packs a day, not eating enough to keep a bird going. She also has all the lung diseases out there. They can't remove it, they gave the lightest chemo they have. She had to stop it after 3 weeks. It did shrunk it, the last test was on Feb 15, 2013. (Dr said its what he cant see that scares him). For the last month she has had pain in behind her ribs on the right side, and back at the shoulder blade. and she is forgetting things a lot. I can't get her to go to the Dr. (She is on pain pills). She don't want to know. She is very scared. I am the only one she has, Her husband die Aug 17, 2012 ( with me by his side) they never had kid so I'm all she has.. I love this lady but it is so hard watching this. From what I have read the pain can be from it spreading to the liver or bones. Can someone tell me: Can it spread that fast? What is going to happen and how fast? Does it sound like it is spreading? How bad is it that she is still smoking 2 packs a day (and not eating)? Whats go on? http://www.cancercompass.com/message-board/message/all,71258,0.htm BLookadoo Tue, 09 Apr 2013 00:00:00 GMT Can it move that fast? The Lady I take care of for about 10 years is like a Mother to me, she is 77 years old and on Oct 10, 2012 we find out she has squamos cell lung cancer Stage 2. She is still smoking 2 packs a day, not eating enough to keep a bird going. She also has all the lung diseases out there. They can't remove it, they gave the lightest chemo they have. She had to stop it after 3 weeks. It did shrunk it, the last test was on Feb 15, 2013. (Dr said its what he cant see that scares him). For the last month she has had pain in behind her ribs on the right side, and back at the shoulder blade. and she is forgetting things a lot. I can't get her to go to the Dr. (She is on pain pills). She don't want to know. She is very scared. I am the only one she has, Her husband die Aug 17, 2012 ( with me by his side) they never had kid so I'm all she has.. I love this lady but it is so hard watching this. From what I have read the pain can be from it spreading to the liver or bones. Can someone tell me: Can it spread that fast? What is going to happen and how fast? Does it sound like it is spreading? How bad is it that she is still smoking 2 packs a day (and not eating)? Whats go on? I have medical power of attorney of her, but she is a hard headed person and is going to do what she want to I can stop her.I dont have the heart to argue with her about going to the dr and eating. I'm scared it will make things worse on her. But I going to talk to the Dr about it but dont think she can handle knowing if it is bad news. Hope I can... Please tell me something ( and dont sugar coat it)... Thanks and God Bless you! http://www.cancercompass.com/message-board/message/all,71257,0.htm BLookadoo Tue, 09 Apr 2013 00:00:00 GMT hi, i've been here before and byrd you helped alot i go sat to have a ct scan to see if the got the cancer what do you think the chance are? stage nsclc tumor and lymphnodes removed, 6 weeks (ix week chemo and 5 days radiation http://www.cancercompass.com/message-board/message/all,71170,0.htm miamutt Wed, 03 Apr 2013 00:00:00 GMT My mom was diagnosed with stage 4 lung with brain mets. I have so many things I want to say, but can't find all the words.  So, I will just start talking. Almost a year ago my mom thought she just had the flu that would seem to let up and come right back. About 7-9 months ago she went to quick care who saw a mass on her lung ang gave antibiotics told her it was bronchitis. Finally talked her into getting out and go eat with me day before Thanksgiving and she seemed ok. The end of Jan. we had to go out of state to her moms funeral, and I was shocked. She was fragile looking and in constant pain. I knew something was seriously wrong. I begged her to go back to dr. she wouldnt yet. The end of Feb. my sister took her to er when she was diagnosed with 4 nsclc and 3 mets to brain. She is alot worse then couldnt walk without help, and this is before any treatment to buy her time. She started whole brain radiation beginning of March 10 treatments with a break. before and even now shes confused and cant use her left arm at all. This whole time cant walk on her own. I thought she was doing horrible, but dr said she did good. Last week she started chemo. Shes had only 1 day and since she cant walk at all and wont eat and barely drinks. She shakes so bad and she recently cant even tell anyone when she needs to go to bathroom. She barely can speak. Seems like I read from others going through the same and my mom is reacting so bad to this. I dont wish this on anyone, but is there anyone else going through this so quickly? Is this common? Is she going to get any better? I know everyone is different and you dont know, but I am so lost here. I just want her to atleast have some quality time like thedoctors thought  http://www.cancercompass.com/message-board/message/all,71163,0.htm miracles123 Wed, 03 Apr 2013 00:00:00 GMT I lost  my  mom 2 years ago to lung cancer.  In response I started the Sharon Clough Foundation in honor of her and all the others.  I have a wall of prayer and wall of remembrance if  you would like to add your loved ones name and story. http://www.cancercompass.com/message-board/message/all,71092,0.htm cluffycj Thu, 28 Mar 2013 00:00:00 GMT i heard if/when lung cancer spreads, first place it spreads to is the brain. is this true?  and why? http://www.cancercompass.com/message-board/message/all,71070,0.htm miamutt Tue, 26 Mar 2013 00:00:00 GMT I cannot find any messages about bronchoalveolar carcinoma later than 2009. My nonsmoking husband was diagnosed this week after removal of 6 contained lesions in all 3 right lobes. No lymph glands involved. We are to meet with oncologist in two weeks to discuss chemo. I know BAC can spread to the other lung. I would love to hear from anyone with this cancer. http://www.cancercompass.com/message-board/message/all,71045,0.htm Jsatt Sun, 24 Mar 2013 00:00:00 GMT I'm new to this. I am 20 years old. And 3 weeks ago I lost my mother to lung cancer. Her battle was 16 months long and I'm just so damn mad and angry and sad I don't know what else to say. She was my best friend. She had a nice fight and I was with her every step of the fight. She caught phuenomia December 22 and missed christmas and died 2 weeks later. I feel so lost and confused. Have many of you lost your mom or dad to cancer ? How do you cope ? It's all I think about http://www.cancercompass.com/message-board/message/all,70348,0.htm MikeBronx526 Wed, 06 Feb 2013 00:00:00 GMT Yesterday we found out my 80 yr old husband has lung cancer in his right lung.  Still have lots of tests before the dr will reveal what type, stage and details of it.  He has had minor dementia until mid-year and now that is getting worse. Has the success rate for survival increased over the last few years for lung cancer?  He is such a sweetheart and I hate to see all this happening to him. http://www.cancercompass.com/message-board/message/all,71031,0.htm cathyb37 Fri, 22 Mar 2013 00:00:00 GMT how long does it take for the chemicals from chemo and the effects of radiation to leave your body? is this why i am so so so sad?  i wake up wanting to cry, this is so odd to me and i keep hearing "it's normal"   http://www.cancercompass.com/message-board/message/all,71022,0.htm miamutt Thu, 21 Mar 2013 00:00:00 GMT explain please:  i know non small cell is better than small cell, not sure what ademona means my tumor was taken out with visible lymphnodes it is in one place had 6wks of chemo and radiation waiting to get cat scan   what am i to expect???? http://www.cancercompass.com/message-board/message/all,71026,0.htm miamutt Thu, 21 Mar 2013 00:00:00 GMT hi, i'm new here. new to everything actually.  diagnosed with lung cancer, stage 3 non small cell adenoma? sorry for the spelling. anyway done with chemo and radiation, waiting to do c.t. scan and i have this overwhelming sadness everyday. is this normal?  http://www.cancercompass.com/message-board/message/all,70984,0.htm miamutt Tue, 19 Mar 2013 00:00:00 GMT I am 49 years old and have stage IV NSCLC that has mets to my spine.  I have been on Tarceva 150 mg  since Nov 2012 and I am doing GREAT.  At first I had the rash on my face, neck, upper back that was sore to the touch and later turned into  acne.  Things got much better around the second month.  I still have dry skin and occasional small splits in my skin, but nothing that is too unpleasant.  I had the stomach upset and diarrhea for the first few months and continue to have bouts of it, but again is was totally tolerable.  I had my first PETSCAN in Januray 2013 and the tumor in my lung has shrunk 40% and 2/3rd's of the hot spots/lessions are starting to heal.  I thank God everyday for allowing man to make this drug, and have been truly blessed!! http://www.cancercompass.com/message-board/message/all,70926,0.htm lstewart Fri, 15 Mar 2013 00:00:00 GMT My dad passed away in 1999 from lung, bone & brain cancer. He was only 56 yrs old. I just found out today that one of his other brothers has lung cancer. So i ask my aunt my dad's sister what my other uncle died from afew years ago & it was lung cancer !! So thats my dad & 2 of his brothers got lung cancer in 12yrs .... I also lost my mom from heart attack when she was 67 she just went to sleep. So i am 51 & im scard im going to die young. I smoke & have since i was 16 . I just started getting the smokers cough bout 6months ago !!! I know i need to stop smoking , but i cant !!!!   http://www.cancercompass.com/message-board/message/all,70879,0.htm allison1 Wed, 13 Mar 2013 00:00:00 GMT I didn't realize that when the hospice folks said "a few days", they really meant a few days. He was blissed-out on morphine. His wife and her mom were having coffee, and mom said "I think he's gone". Sure enough, he'd gone. Not sure if I like the old-school method of sitting with the body. He was the most obviously dead person I've ever seen. Pallid and still. I walked up to his body and patted the shoulder saying "well, at least the pain is gone, now". He had a bruise on his forehead, due to the agitation the hospice folks said was a big marker that he was on his way out (he'd tried to walk and fell down). I just kept thinking "that bruise will never heal". The worst part was when my mom got there. She's 86, has lost a husband, and actually spoke the cliche words "I was supposed to go first". I guess they're cliche for a reason. So I expect they'll find a cure for lung cancer in the next few months. That always seems to happen. Though I've been a token participant in this forum, I wanted to let anyone who paid attention know that my strong big brother Steve is finally gone. Now, as an agnostic, I get to sit in on all the family's rationalizations and agonizing about his own atheism. "Where will he go?". I have no problem with folks that believe in an afterlife, and if it calms them then let them use it. Fact of the matter is that he's out of our daily lives. I can't pick up the phone and call Steve, and that's a fact. It's so sad. My heart goes out to all of you waiting. How can something that's so natural be so horrible? We all die.  Rambling. Thanks for those of you who've chimed in on my posts. (I did holler at the tumors - "LET'S SEE HOW GOOD YOU ARE AT PROPAGATING NOW, YOU BASTARDS!".) That was before anyone else got there. So sad. http://www.cancercompass.com/message-board/message/all,70935,0.htm BLink Fri, 15 Mar 2013 00:00:00 GMT