Full of supportive resources, our online lung cancer forum at CancerCompass.com is a valuable way for cancer patients and their loved ones to share stories, information and research. http://www.cancercompass.com/message-board/cancers/lung-cancer/1,0,119,3.htm Sat, 21 Nov 2009 00:00:00 GMT Sat, 21 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ HI All i recently wrote last year about my mum having stage 4 NSCLC. The doctor has told me she only has weeks to live as she is in her final stages. I am at a loss which way to turn. At the moment she is at home struggling to breathe. I am  aware that her symptons will get worse. Any advice or help http://www.cancercompass.com/message-board/message/all,41701,0.htm sloughj Sat, 21 Nov 2009 00:00:00 GMT two people have contacted me-one is amazingly similar to our circumstances-same age-same symptoms-we are both going into chemo at the same time frame-only-we are 1 week ahead-we start carboplatin and taxol on monday-is there anyone else out there who has a massive tumour behind the heart .in the heart or near the heart that is causing the heart to go into afib because the heart is being srtressed-please lets all work together to help each other-this tumour is running rampant-the growth and movement in 1 month is scary-is it because it has a blood suppy that is unlimited-meaning the heart    this tumour is a lung cancer tumour that is out of control-perhaps you have heard of something like this-or maybe the person passed away already -but-please please let us know-thanks so much http://www.cancercompass.com/message-board/message/all,41697,0.htm heathermmasters Sat, 21 Nov 2009 00:00:00 GMT two people have contacted me-one is amazingly similar to our circumstances-same age-same symptoms-we are both going into chemo at the same time frame-only-we are 1 week ahead-we start carboplatin and taxol on monday-is there anyone else out there who has a massive tumour behind the heart .in the heart or near the heart that is causing the heart to go into afib because the heart is being srtressed-please lets all work together to help each other-this tumour is running rampant-the growth and movement in 1 month is scary-is it because it has a blood suppy that is unlimited-meaning the heart    this tumour is a lung cancer tumour that is out of control-perhaps you have heard of something like this-or maybe the person passed away already -but-please please let us know-thanks so much http://www.cancercompass.com/message-board/message/all,41696,0.htm heathermmasters Sat, 21 Nov 2009 00:00:00 GMT I have written about my husband who has 3B lung cancer He took  all the chemo & radiation that you can give It did shrink but came back He had tried some of the test trials but they all seem tohave side affects He is 83 years of ageThey say pick quality of life or pass away being sick with the time you have left People have said to me well he is lucky to have lived that long & I guess that is true but when the time comes it breaks his heart & mine to watch him getting weaker & weakerevery day. He keeps on asking me isn't there something we can try thatt won't make me sick If anyone has any suggestions or has been through this please write I would appreciate it thanks Joan http://www.cancercompass.com/message-board/message/all,41690,0.htm Spitfire76 Fri, 20 Nov 2009 00:00:00 GMT My Mother in law is 81, non/never smoker, and was in excellent health before this summer when she developed a cough that developed into pneumonia.  After several rounds of steroids and antibiotics, a hospital stay and a few weeks of home health care, we saw a pulmonologist and he did a scope.  We were told it was cancer and the oncologist said it was bronchioloalveolar carcinoma. That was Wednesday.   She is not a candiate for surgery or radiation.  Her doctor started her on Tarceva.  They seem to think this can keep the disease under control for her lifetime.  Does anyone have any thoughts or ideas on this plan of treatment?  Have you or others had success with this drug on this type of cancer?  Any thoughts or ideas are appreciated. http://www.cancercompass.com/message-board/message/all,41689,0.htm LvngdaugtinLaw Fri, 20 Nov 2009 00:00:00 GMT My father started his chemo treatment on Monday (taxol,carboplatin,avastin), he's 77yrs old and thank god one of the most stubborn people I've ever met.  He's very weak, is coughing alot and not eatting very much.  We're trying to make him get up and move around but, it's not working so far.  I'm so scared for him and feel so helpless, help me understand how he feels right now and what I can do that will help him please.  http://www.cancercompass.com/message-board/message/all,41645,0.htm kupkey Thu, 19 Nov 2009 00:00:00 GMT Has anyone been diagnosed with radiation pneumonitis?It's an infection that shows up as hot spots on your scans.I am just wondering if anybody know will it always show up as hot or does in fade away?I had a scan on 11/16/2009 and am concerned if they will think it's cancer again because this has happened in the past. waiting to hear from anyone with this same experiance.. http://www.cancercompass.com/message-board/message/all,41596,0.htm postergirl Tue, 17 Nov 2009 00:00:00 GMT Looking for 53 people whom also have this rare cancer. Doctors have no idea how to cure this rare cancer and we need help. My sister who is 45 has this and no one knows anything about it and the strange thing is, she works at Roswell Cancer Institution in Buffalo New York. Any help would be so welcomed, Please, her life depends on the internet because that is what her Doctors told her to do, is to research the internet for answers because they have none for her.......Please help us.................Thank You, Cindi Domino, New Smyrna Beach, Florida http://www.cancercompass.com/message-board/message/all,41588,0.htm Cindi13 Tue, 17 Nov 2009 00:00:00 GMT my husband has lung cancer stage 3 b-it is in his left lung and in the middle of his chest-there is also a huge tumour behind his heart-when he was diagnosed sept 25th-the team said chemo was all the team could offer us-then we got a call that if there was no cancer in the pleura we could have a chance at aggressive radiation with chemo this was to start nov6thth--fri night oct 30th  his heart went into arythmia-they shocked him and got the heart beating normally again in emergency-and we went home-he went into arythmia again on monday night nov 5th shocked again but a catscan the next day revealed the tumour had gone into the heart and the heart was in stress--they gave him metophol to keep his heart regulated but all treatment was cancelled-he went to get tatooed at princess margaret in toronto nov6th-the radiation specialist gave us 5 treatments to make my husband more comfortable-we just finished the 5th treatment today but the team says there is not much else they can do-the radiation oncologist told us his left lung had totally collapsed now-he had had a pleurendectomy oct26th when they checked for cancer cells in the lining of the lung-the surgeon had put talc in hoping the pleura would stick and the lung would reinflate-it did partially but not completly has anyone else faced this problem where the heart is involved-how did the tumour grow so fast in a matter of a month-it is attacking the pulmonary veins leading to the lungs and left ventrical-has anyone encoutered anything similar to this-i looked online -there were 2 people discussing a similar case where the tumour was on the aorta-the one person lasted 7 months with the heasrt problem but this was in 2005 august-the doctors say he could have a heart attack tomorrow-it really shook us up when they told us this-but-it has been 2 weeks-the pet scan we applied for has been cancelled as well-does anyone think seeing a heart specialist would help help-help-any ideas-if so -please respond to the discussion or if you have seen something else like this where did you see the discussion-site-i noticed that the discussion in june july august2005 talked about the use of tarsceva-can anyone tell me about this and lung cancer-i realise there are some other discissions about this medication-but i hoped someone cpuld relate it to this particular case http://www.cancercompass.com/message-board/message/all,41572,0.htm heathermmasters Tue, 17 Nov 2009 00:00:00 GMT Hi , I am new to this site. I have been all over the internet looking for other people or their caregivers that have this type of lung cancer....I have stage 3b and would like to know what to expect later down the road....currently doing chemo every 3 weeks of carboplatin and taxol. Are there any others out there with this cancer and any information ? Please help.....thank you http://www.cancercompass.com/message-board/message/all,41521,0.htm nrn33 Sat, 14 Nov 2009 00:00:00 GMT My aunt is currently undergoing treatments with Navelbine for lung cancer.  If anyone has any experience with the side effects of Navelbine, or can tell me if they have had any positive results using it, please let me know.  Thanks so much! http://www.cancercompass.com/message-board/message/all,41510,0.htm Midmogal Fri, 13 Nov 2009 00:00:00 GMT I see my mom in the hospital totally wiped out by the high doses of radiation they are giving her and just a week ago they told us they were just making her comfortable. She can't have radiation on her liver, which is where some of the tumors have gone to, along with other spots of her body. She is 70 yrs. old and I can't bare to see her in pain.  We lost my brother in Dec. 06 and he was only 38.  Why is it legal to put animals out of their misery and not for humans whom we love. We must watch them suffer until the disease takes them. This is not right......it is down right cruel, Does anyone else see it this way? http://www.cancercompass.com/message-board/message/all,41509,0.htm donnabuzybee Fri, 13 Nov 2009 00:00:00 GMT My dad was just diagnosed last Friday with Stage 4 Lung Cancer.  Today he had his first visit with the oncologist and she is wanting to do a brain scan to make sure the cancer has not progressed to it before starting his chemo...  Just how often do Stage 4 patients find that the cancer has gotten to the brain?  http://www.cancercompass.com/message-board/message/all,41470,0.htm Corazonlatina59 Thu, 12 Nov 2009 00:00:00 GMT Hi. My father has been diagnosed with stage 4 lung and lymph node cancer in June 2009. He is 52. My parents live in Russia and there he had undergone 3 courses of chemotherapy. Doctors don’t give any hopes and often would not even accept him to the hospital saying he is not going to live anyway. I live in the US, and when my husband and I visited my parents in Russia in September, my father still had strength. His legs and hands were swollen and he was coughing a lot. Since then he had his third course of chemo and now is feeling very week; no strength in his legs and arms (they are still swollen). He forces himself to eat hoping to get strength and survive. His coughing decreased, but from time to time he complains on shortage in breathing, and his blood pressure is not stable. The doctors are unapproachable and already have given up on him long time ago. My family does not know what to do and what to expect. If anyone can suggest or share anything I would greatly appreciate. Thanks. Ruzana http://www.cancercompass.com/message-board/message/all,41468,0.htm Ruzana Wed, 11 Nov 2009 00:00:00 GMT Hello all.  My mother was diagnosed with lung cancer (Adenocarcinoma) and brain cancer on New Years Eve.  Both tumors were very small about three centimeters.  The only  reason we figured it out was because the small brain tumor was sitting right on the area that affects her speech.  She underwent radiation for the brain and I am told it "is still there, but is effectively dead."  I don't understand this. After the radiation was complete.  She started on chemo.  Six hours every three weeks.  I barely talked to her during this time.  It completely wiped her out.  The tumor shrunk from about 3 centimeters down to about one.  But, her latest scans showed it growing again.  So, she is back on chemo.  Only 20 minutes, but it is kicking her butt again. This is hard for me because I am in a different state and they are in a small town.  I feel like I only get half answers on the treatment.  What I don't understand, is if the tumor is so small, why not do surgery to remove it.  Is that not a normal course of action?  It seems like she is going to continue to do chemo and her life just sucks while she is on it. Any insight you could give would be great.  I understand you don't know her medical history, but any input would be great.  My mom didn't even want me to send off her records to get a second opinion on treatment because she loves and trusts her doctor and nurses.  I just feel really helpless.  Thanks! http://www.cancercompass.com/message-board/message/all,41428,0.htm tvnewsgal Tue, 10 Nov 2009 00:00:00 GMT Hello Everyone, I am new to the board and welcome any wisdom all your experiences you can share. My 70 year old father was diagnosed with colon cancer in 3/09 and has been on Oxaliplatin/Avastin/Xeloda until recently when his neuropathy has forced in to start lowering doses and D/C the oxaliplatin for fear of permanent nerve damage. His CEA was originally 60 and went down to 11 but his most recent PET scan showed an increase in mass size and activity so he is currently on a break to regain some strength and restart on a new course of Irinotecan/Erbitux. The most interesting fact of the situation is that his colon cancer is actually situated in his lungs! He has 4 nodules total between both lobes and is otherwise cancer free in the rest of his body (including the colon!) I have looked into alternatives, including RFA but his oncologist does not think he is a good candidate due to the number and risk of complications. His largest nodule currently measures 4cm. Has anyone had RFA done in the lungs and how was the outcome? Thanks! http://www.cancercompass.com/message-board/message/all,41389,0.htm qbear123 Mon, 09 Nov 2009 00:00:00 GMT My ex husband and father to my children was recently diagnosed with neuroendocrine cancer(stage 3). He was having excruciating pain in his shoulder and back. He went to the ER and a scan showed a mass on his lung that had wrapped around his spine and was compressing his spinal cord. He was also losing feeling in his arms and legs. He had surgery that evening to remove the tumor and relieve the pressure on his spine. One week later he began chemo(platnium based?) and radiation. He will have chemo and radiation on alternating days for seven weeks. He also has Horner's Syndrome from the interference with the sympathetic nervous system. Can someone help me understand this type of cancer and the prognosis better? Thanks. Julie http://www.cancercompass.com/message-board/message/all,41370,0.htm n2cats Sun, 08 Nov 2009 00:00:00 GMT My situtation is this.  I am an American living in Thailand.  I had an episode of ^BP that could not be controlled.  There was a CT scan preformed to determined if the renal artery was restricted.  No restriction but tumors were found on the L Adrenal and in the upper L lung and the finding of the radiologist was they were malignant.  After consulting with specialists it was determined to remove the adrenal tumor and follow the lung lesion.  The adrenal tumor was removed and was begign.  A three month follow up CT scan of the lung showed no change.  The recommendation now is either a six month follow up CT scan or the removal of the upper lobe of the left lung.   I would appreciate any thoughts or imput.  It seems to me that six months is a long time to go without a follow up and that removal of the lobe is a bit extreme also. http://www.cancercompass.com/message-board/message/all,41362,0.htm CharlesWayne Sun, 08 Nov 2009 00:00:00 GMT The best strateggies for Help the body to get rid of cancer is detox: - Bowel - Hidrocolontherapy and the protocol of Dra. Hulda Clark parasite clean and her bowel protocol clean - Kidneys - NQi - Núcleo Quelado Inteligente - a Brazilian produt 100% naturel with phosphorus help the kidneys and de gallblader and also the protocol of kidney cleanse Dra. Hulda Clark - Liver and Gallblader - the cleanse with olive oil Epsom salt Limon, we see the galstones out of the duct bils and liver ducts 6 cleans, or until no moore stones in the last clean. - Liver Clean of ascaris a worm that is inside of all people who dies with cancer. - Coloidal : Silver, Gold, coper to reforce imunity - Digestive Enzymes - to help with the detox - the toxins need to get out of our body quick - Cat's claw - Pau de arco or Ipê Roxo - Aloés or babosa - Laetrice - B17 - Make the blood diet from Dr. Dadamo - Don't eat: Sugar Meat Milk and all that is make with milk only can eat butter in low quantity Beans and soya and all beans Potatos Pork All the food that came from the sea (only fish is allowed) Oat, advocat, sintetic C vitamin - Eat organic food - To clean heavy metals  take Metionin, Cysteine, biotin, tiamin. - Drink filter water and 2 lit - Make sports because the oxygen and the toxins - Meditation - Hipnose to understand what cause this and acept the situtation and get peace on our heart. The machines that are good: - Zapper - Zapper candida and fungal parasites, and allmost everything that is prejudicial of our body the zapper destroy and we can do it in our own home. - Viber machine is very very good - Ozonetherapy - Photontherapy Sorry about my english I'm portuguese. All the things I talk about result for some people but doesn't result in others but we only know if we try. thank You       http://www.cancercompass.com/message-board/message/all,41283,0.htm Aninhas Thu, 05 Nov 2009 00:00:00 GMT help! i have a very dry skin right due to http://www.cancercompass.com/message-board/message/all,41210,0.htm alana Mon, 02 Nov 2009 00:00:00 GMT My husband has stage 3b lung cancer and has just decided to stop the chemo.  After each of the two treatments he has taken he got terribly sick with pneumonia as well as all the other things that come with chemo.  I respect his decision but don't know what happens next.  I worry about taking care of him myself and if I have the capabilities to do it.  Does anyone know what I can expect?  I feel like I am walking around with a blindfold on.  Any responses would be helpful   thanks http://www.cancercompass.com/message-board/message/all,41184,0.htm wpsdaughter Sat, 31 Oct 2009 00:00:00 GMT I have been with this cancer site for quite a while It has helped reading about people with lung cancer. It is over two years since my husband has been diagnoised with stage 3 lung cancer He tood the chemo & radiation  It did seems to help & they said the tumor had gotten smaller. My husband & I were happy with this It came back after a year & they said he could not take any more chemo or radiation At this point he is getting very weak The doctor said we should tell him that there is nothing else they can do. I refuse too do this because no one  knows my husband like I do after 35 years of marriage. He has asked where do I go from here I think if he knows the truth he will just give up I think in the back of his mind he really knows because he feels so bad & the time will come when he will be sure but why rush it I am not sure if I am making the right decision  Has anyone had to face this? Joan http://www.cancercompass.com/message-board/message/all,41177,0.htm Spitfire76 Sat, 31 Oct 2009 00:00:00 GMT My husband had his first chemo treatment for NSCLC last Thursday.  He had diarrhea the night of the treatment, and then it was over. After two days, however, he got extremely tired, and felt like he could barely move. His voice has been very husky, almost like he has laryngitis. Now, tonight, he feels like his mouth is very sore, and the food doesn't taste right. His chemo, by the way, is Taxatere and Cisplatin.  He will be seeing his onc. on Thursday, but would like some feedback from you folks on whether or not you have experienced similar symptoms. Anything you can share is most appreciated!! Thank you Mary Ann http://www.cancercompass.com/message-board/message/all,41081,0.htm teachoz Wed, 28 Oct 2009 00:00:00 GMT In August I was diagnosed with NSCLC. It is also in my bones, 2 lymph nodes and I have lesions on my brain.  I have already had full brain radiation and also radiation to the tops of my femurs. I'm getting an MRI this week so we will know how well the brain radiation worked.  I started Tarceva in September and during the past few weeks I have lost my appetite.  Nothing tastes good.  I am able to drink Ensure, but I'm getting bored and want food.  I am a 48 year-old mother of 3 and I need to keep eating!  Does anybody have any suggestions? http://www.cancercompass.com/message-board/message/all,41068,0.htm rosieclare Tue, 27 Oct 2009 00:00:00 GMT Hi, After investigations(FNAC) ,it found that my mother 65 yrs old has lung cancer-adenocarcinoma grade II. she is having a multiple nodules in her right lung and out of which the largest nodule is of size approx 3 to 4 cm. it has also appeared that there is one nodule around liver of size approx 3 cms.As per my doctor the cancer is in advanced stage and needed to start treatment. this treatment includes combination of radiations and chemotherapy. As per my experience and knowledge the chemotherapy or radiation has other affects on human body and also is very painfull. so how to prepare the patient to take these radiations or chemotherapy so that it does not have other side effect on patient body. I have heard that few food supplemets(in form of gel or something) available in market claiming that they are good and very affective in cancer.like agel enterprise products EXO and UMI. are these products really good for cancer patient? PLEASE HELP ME IN TAKING DECISION WHETHER IS IT GOOD TO GO FOR ALTERNATIVE METHODS OF TREATMENT ALONG WITH THE CONVENTIONAL METHODS. Thanks Vin http://www.cancercompass.com/message-board/message/all,40997,0.htm vin333 Sun, 25 Oct 2009 00:00:00 GMT