Take advantage of our helpful online forum resources at CancerCompass.com to ask questions, research treatment options and locate additional information about small cell lung cancer. http://www.cancercompass.com/message-board/cancers/lung-cancer/small-cell/1,0,119,3,76.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My neighbors 84 year old husband was diagnosed with small cell lung cancer with mets into his liver about 2 months ago... At diagnosis he was told without chemo he would only have 2 months to live and with chemo they could possibly give him 12-14 months...He chose to do chemo thankfully and has done well with it... Has been having some issues with dementia type symptoms in the middle of the night, so Dr wanted him down today asap they did a ct scan and an MRI scan... Results showed no sign of cancer in the brain but tumor in the lung has shrunk by 90% thats great news and the dr said he is doing so good that he may not have to continue chemo after his next round on the 18th... My question is does this mean that the 12-14 months survival changes or is it that they are doing what was planned shrinking the lung tumor and keeping away from brain to allow him to have the longer time... His daughter takes him to his appointments and I can see the false hopes arrising in her thinking that the end result is going to be he's in remission,  I worry that she wants her dad to be ok so much that she may not be hearing everything she needs too and I have to say we all get our hopes up when she comes back with good news... I have been threw a different type of cancer with my own husband and understand how hard all this is to understand and comprehend and how easy it is to get lost in all the good and forget what the real picture is... Anyone who could give some kind of advice or help me to understand how this all goes I would very much appriciate it... Than you & God Bless you all Susie http://www.cancercompass.com/message-board/message/all,41304,0.htm Susie_d Thu, 05 Nov 2009 00:00:00 GMT Hi All I do hope that there is some one to help me with some ansers to this  cancer. how long can some one live after treatment when this cancer comes back I am hopeing for more time for bill but all that i have read thay say 24 weeks has any one lived longer with out treatment. Thank you   http://www.cancercompass.com/message-board/message/all,41213,0.htm angelface Mon, 02 Nov 2009 00:00:00 GMT HI ALL  Has any one heard about Baking Soda & Maple Syrup heated and mixed together and taken to assist with the killing of cancer cells?  I know it may sound strange but i have read an article and there seems to be some information on this and how it works. Any one heard/ used this as a source against their fight against CANCER  please comment  Thanks Tarsh http://www.cancercompass.com/message-board/message/all,38339,0.htm tarsh Wed, 22 Jul 2009 00:00:00 GMT Hi, My name is Candy, This is my second time of being diagnosed with cervical cancer..theres a catch now i have been told its called small cell..I was told by my doctor that i did not need to worry about what kind it is, when i asked him the first time..GGGRRRRRR...and now he says there is no chance for me at all because it has spread to my pelvic area, in my cervix and my back, syatic nerve...He is offering clinical trial only...says that if I dont to this as a last resort then i will die within the next 6months or perhaps a bit longer..I had 25 external radiation/5 internal for the first time around..and was never even told that it could come back..I have had only 1 exam..PAP test done in the last 6 months ..and now he says that it is to late....Bet you he is gonna lose this bet cause with some help I am going to beat this....Anyone out there I am seeking advice and am really angry right now at how I have been treated...Thankyou ahead of time for anyone who will take some time to help out... http://www.cancercompass.com/message-board/message/all,38345,0.htm sonyasaysso Wed, 22 Jul 2009 00:00:00 GMT My brother was diagnosed with small cell lung cancer that has metastasized to his bones and spine, He starts chemo today and a clinical trial drug called  cediranib.  Does anyone have success stories with this form of cancer which is the aggressive kind?...I must add that he is only 38 years old. and the doctors told him that his chances of survival past 1 year are almost none. We are all so devastated.Good or bad I need to know what to expect so if someone can share there stories with me I would appreciate it. http://www.cancercompass.com/message-board/message/all,38239,0.htm canadiens Mon, 20 Jul 2009 00:00:00 GMT HiI live in uk and have just been diagnosed with small cell cervical cancer staged at IIb. The tumor is about 5cm big so too far gone to operate. I discovered I had cancer 7 months pregnant with some bleeding that was first thought to be my waters breaking but luckily I was seen by a great doctor who knew immediately what was going on. My baby was delivered early by c-section to start my treatment. I had my first round of chemo cisplatin and etoposide last Wednesday. Haven't felt too bad yet just groggy. Me and my partner are getting married this Saturday so I'm hoping the side effects don't hit me too hard for our big day. I'm 27 and felt so lonely when I went for treatment ad everyone seemed so much older. I have already sought a second opinion from a specialist in the uk based in Birmingham and he is satisfied with the diagnosis and course of treatment Northampton have prescribed. I have also come across cyberknife in my research and I am keen to know if anyone here has had an experience with it yet? It's very expensive in the uk but if it's the way to go then I'll do what I can to try it. The thought of not being here with my little boy scares me to death. http://www.cancercompass.com/message-board/message/all,38205,0.htm Kylahope Sun, 19 Jul 2009 00:00:00 GMT My husband has had small cell cancer for over a year It did shrink after taking chemo & radiation  It has returned & now he is trying Alimta  He has to get a cat scan on the 10th of July too see if it held it back from spreading. He knows it will never be cured. At this time I am trying to help him with depression He had been diagnosed with Bi-Polar disorder I guess around 10 years ago & has had mood swings once in awhile but it is getting worse now I guess the tension of waiting for results & dealing with cancer has taken over which I can understand I just keep on thinking How can I help him It is really starting to take a toll on me  Any advice I would appreciate Joan (--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- ) http://www.cancercompass.com/message-board/message/all,37490,0.htm Spitfire76 Thu, 25 Jun 2009 00:00:00 GMT I'm not sure why I'm posting this..............I just still can't believe my dad is gone.  He was diagnosed the first week of December 2008 and passed on April 22nd, 2009 - buried on mom's birthday.I think it's for those who are fighting the fight.  DON"T GIVE UP.  You will always see postings like mine where someone passed from this ugly, ugly disease but please know that there are still wonderful physicians and research folks out there looking for a cure, or at least a good, quality extension of life.  Don't get me wrong.....I know there is a good deal of money to be made from those suffering from cancer and the government knows that, but there are doctors who are truly compassionate and trying to find the cure. My dad's oncologist was a good guy.........we told him up front we knew how serious this was so we didn't need someone in our face at each appointment preaching gloom and doom, so he didn't.  Dad's radiologist was wonderful.  He also had a background in herbal remedies.  Please don't discount this alternative treatment.................I really think, despite what government studies say, that herbal remedies have validity.  Shark cartilage, blue/green algae, green tea.....many say there are no proven studies to show these work. Guess what???  The chemo which is "proven" didn't work either.   All I'm saying is keep an open mind.  Be willing to try other things.  What do you have to lose?? http://www.cancercompass.com/message-board/message/all,37290,0.htm DebbiM Thu, 18 Jun 2009 00:00:00 GMT My mom is in Acute Hospital (inpatient) past 12 days for her extended stage SCLC.  Finished Chemo in late Feb but since got so many setback (pneumonia, shingles, canker sore, swallowing difficulty, diabete strike high) and since she is a regular visitor at the Hospital ER!!!   After shingles she becomes disable, enroll her to this hospital we are hoping to get her back on her feet but...This Saturday mid night (to sunday), mom told my brother that she could not breath. My brother tested her o2 as seeing her Oxygen level goes down to 50 within several minutes.  Call blue was announced.  Nurse suctioned mom with fresh blood coming out instead phlegm.  We were told she lost a lot of blood - in result she had plasma transfussion late sunday evening.  Initially at night time, they suspected the blood thinner caused my mom but on the sunday morning, the doctor came and stated X-ray show my mom lung is / was still good. He said only 2 suspected areas - lung and her stomach (sore) caused by bed-rest too long in hospital.  I have never heard of such and I just wonder if any of you have experienced anything like this?   We are very very scared.  Mom is on Ventillator to help her breathing...   This is a deja vu for us.  Dad was in the same boat in 2007 and did not last long...  Is this a sign of the end?  Mom seems to be strong enuf to try to pull those uncomfortable tube out of her mouth and the nurse now has to strain her down!!!   We tried to take mom to Clinical trial but no luck so far. UCI doctors constantly said mom has not performed well in the first line chemo round. The clinical trial doctor at Cedar Sinai has not able to see Mom as she is bed-hospitalized.   We are so frustrated with doctors now.  Why cant they visit patients in different (out of in-house) hospital?  Is it a patient life not worth the try???Any advise pls,Victoria  http://www.cancercompass.com/message-board/message/all,35834,0.htm CancerStrike2 Mon, 04 May 2009 00:00:00 GMT within the last 2 months we had a diagnosis of metatstaic liver cancer advanced, we cant find the primary cancer however pathology tells us it is a small cell cancer.3 quarters of my liver is filled with cancer.it is not curable or opperable. chemo worked for 3 weeks then marker levels started to go up. Doctors give 3 weeks without anymore treatment or very aggressive treatment that they call a hail mary......odds of blood transfusions, infection, etc..... are almost a given and what do i want to do? any suggestions? oppinions?  ALL WELCOME!THANKS!IF I CAN TRY TO BE OF HELP TO ANYONE PLEASE DONT HESITATE http://www.cancercompass.com/message-board/message/all,35643,0.htm anniegr8ful Mon, 27 Apr 2009 00:00:00 GMT Hello,My mom after finishing Chemo in Feb, she started have some difficulties in swallowing and breathing. She has been in and out of hospital stay due to pneumonia and experienced some near death experiences past 3 weks (for out of breath, lung full of water, body water retaining problem). Currently, Doctor give her new diet - honey thick food type only but asking us to consider the feeding tube- 2 types, nasal (max is couple weeks) and stomach (long term).  She is currently very fatigue - even after eating meals/ drinkings, getting worse after the 2nd radiation theraphy on Thursday morning (got another near death episode at evening). I wonder if any of you have relatives or had tried this before.  What is the WORST side effect?  Our goal is to try to keep mom more nutritions so she could getting better to release from Hospital and no more pneumonia to go for the clinical trial as KP oncologists have refused to further treats my mom.Pls advise (any), thanks in advance.Victoria http://www.cancercompass.com/message-board/message/all,35391,0.htm CancerStrike2 Sat, 18 Apr 2009 00:00:00 GMT My 46 yr old nephew was diagnosed last week with stage 4 bilateral BAC  with mets to the thyroid and neck lymph nodes. Had no symptoms till 1 month ago when he was diagnosed with pneumonia after 3 rounds of antibiotics and a catscan the BAC was discovered. They recommended Tarceva, which he hasn't started yet as they're trying to get it from the company 1 month of medication ? $800. Has anyone else had a problem getting the meds?     http://www.cancercompass.com/message-board/message/all,35392,0.htm aunt_jan Sat, 18 Apr 2009 00:00:00 GMT Is any one out there who can shed some light on this type of cancer. I was diagnosed on April 2, 2009 and I am scared to death, I am waiting over the weekend to see the oncologist.I received a partial hysteromicty for unrelated issues and the patholgist came acros this in tumor. With so little information available about this type of cancer I need some assurance. I will be meeting with the oncology team on Tueday April 7, I will also be undergoing a series of body scans on Tuesday, I have no idea what to expect. I have read the survival rate is not great is this true....Please anyone shed some light...   http://www.cancercompass.com/message-board/message/all,34939,0.htm Ookies_mom Sat, 04 Apr 2009 00:00:00 GMT Hi all,I am new to this site. My 71 year old mom was diagnosed with limited stage  SCLC. We know the tumor has been there at least since Jan. 09.Nobody will answer our question as far as how fast this aggressive cancer travels. There is no evidence of cancer anywhere else in her body.She is generally in good health.She has smoked 2 packs a day  for 55 years and has cut down but does not feel she will be able to quit.She does not want surgery.She is looking more for quality of life than quantity! They want to start chemo along with radiation. She really does not want chemo. She doesn't want to be sick and fatigued by it. She is iffy on radiation alone as this may help the lung but wont prevent it from spreading. She is going to try a few homeopathic things and see how it goes. We understand that the odds are not good with or without treatment.Has anybody been in the situation of denying the usual treatments and doing other things? She is not afraid of dying and is always very positive.I  don't think she is  giving up, I think she truly believes that is what is best for her. We all support her in her decision as we believe it is HERS. I just would like to hear others experiences with or without traditional treatments. Thank You for your help!!  http://www.cancercompass.com/message-board/message/all,34962,0.htm Maryjo11 Sat, 04 Apr 2009 00:00:00 GMT My father has been diagnosed with small cell lung cancer stage 4.  The cancer has spread to his lymphatic system and on to his adrenal glands and brain.  He has over 50 metastatic tumors in his brain and we think he may have liver cancer as well judging from the side effects.  He has been doing radiation for the brain for 8 treatments with two left to go and is supposed to undergo Chemotherapy after the radiation.  My family is really wondering whether or not the chemotherapy is worth it, and if its more just about quality of life at this point.  My dad is 56 and has smoked 2 packs a day since he was 20.  He just found out 2 weeks ago that he had all this and we are all devastated.  I would appreciate any feedback especially if anyone has had a similar prognosis.  We don't know how long he has left and we don't know what we should do.  Any feedback would be appreciatied http://www.cancercompass.com/message-board/message/all,34583,0.htm ddod125 Wed, 25 Mar 2009 00:00:00 GMT Hello All, My mother was just diagnosed with Small Cell Cervical Cancer.  I have tried to be with her as much as possible but live a couple of hours away and have relied upon my brothers to take care of her when I can't.The doctors say it is "advanced".  It has even been found in lymphnodes in her neck.She went to the dr for the first time about 2-3 weeks ago and since then has had cat scans, pet scans, 4 units of blood and stents put in the tubes in her kidneys because they were blocked by the mass (which helped her kidney function to return to normal).She should have her first radiation treatment on Christmas Eve (Merry Christmas!) and then the following Monday she should have her first chemo and then radiation.She has always been a very strong and active woman.  She is 72 and is very tired now (she is actually letting us do stuff for her ;-) What should I expect over the next couple of weeks?  What can I anticipate?  What can I do to make her more comfortable and at ease?  What should I look for?  What should I be warned about?  I will be with her as much as she needs me from 12/24 through 1/4 but then I need to return to work (unless she really really needs me).Thanks!Suzanne http://www.cancercompass.com/message-board/message/all,31364,0.htm iamsuzanne Fri, 19 Dec 2008 00:00:00 GMT I'm still in shock cause my sister was in remission. I posted about the Zometa side effects, but it ended up being a baker's cyst that burst. She was happy to be home after 2 days in the hospital and told her lungs were still clear along with her bone disease. She went to bed last night and didn't wake up. She was only 50 years old. This is the saddest day of my life. I loved her so much...and now she is gone. http://www.cancercompass.com/message-board/message/all,31119,0.htm Becky55 Fri, 12 Dec 2008 00:00:00 GMT My sister has had her cancer spread to her femur bone. She is in remission but took her second dose of zometa last Thursday. She said the back of her knee just above her calves are really hurting her. She cant put her full weight on her leg and she describes the pain as a constant charlie horse that wont let up...Is this a side effect of zometa? I thought this drug helped slowed down the bone destroying activity that occurs with bone metastases,fights abnormal cells that can cause the bone to wear away ....I just hope its the medicine and not more damage to her bones. Has anyone used zometa and expierenced charlie horses (or pain described like that)? http://www.cancercompass.com/message-board/message/all,31003,0.htm Becky55 Mon, 08 Dec 2008 00:00:00 GMT Hi , I am 44 y/o old and was diagnosed in may 2007  with small cell cervical cancer. I did chemo and radation and currently I am doing very well. Test so far have been clean. Anyone please feel free to email . It helps to know that others are doing well. I am looking for long time survivors. Wishing health and happiness for all.                                           sincerly                                                mel http://www.cancercompass.com/message-board/message/all,29397,0.htm cmel32 Fri, 17 Oct 2008 00:00:00 GMT A friend with highly advanced Small Cell Lung Cancer (SCLC) underwent chemo, radiation therapy and partook in a very rigorous supplement regimen based untold hours of research. During his chemo, he suffered constant nausea and was unable to keep any food down, losing approximately 20 pounds over the period of the last month when he wasnt able to eat.After his therapy ended he received  another CT scan showing that his tumor had regressed from 11.4cm x6 cm to 1.8x4 cm! The cross sectional reduction was about 89%. His doctor said that he had never heard of a reduction beyond 50% where as SCLC is such an aggressive and treatment resistant form of cancer. This occured over the period from July 3rd to the begining of this month (I believe around Oct 3) which is 3 months.   He largely attributes this atypical outcome to his rigorous supplemental routine; has anyone ever heard of a this much regression? Did people who ultimately go into complete remission experience reductions of magnitude similar to this ? Might it be possible that he is on course for such an outcome? http://www.cancercompass.com/message-board/message/all,29280,0.htm Lucid Tue, 14 Oct 2008 00:00:00 GMT My husband died 5 1/2 months after his diagnosis of SCLC.  The chemo treatments gave us  incentive to endure the disease and for the time to pass with hope.  The best part of the 5 1/2 months was that we had time to show our love and support to each other(40 years of marriage.)  Our whole family connected in a way that may have never happened in his lifetime.  I can't believe he is never coming back but I do feel we faced the disease courageously and accepted the news with dignity when it was time to give up the fight and go with hospice.  I do believe the chemo shrunk the lung tumors and he never suffered from shortness of breath. His coughing was also limited during the last few months.  I think the bone treatment? Zometa? relieved him of having any bone pain.  I wish that we could have had a few months of remission because fatigue and treatments took up all the time.  Try to keep your loved one at home and use hospice if you can.  Protected family leave act allowed me to take time off of work to stay with him.  Take care.  Husband4Keeps  http://www.cancercompass.com/message-board/message/all,29061,0.htm Husband4keeps Tue, 07 Oct 2008 00:00:00 GMT I know my sister's tumor inher lung is in remission..YEAH!!!!  But what about the metastatic disease in her bones and lymph nodes? Her bone cancer has eaten away her femor  bone but just a hairline fracturen now if your in remission is that also? This cancer thing is very confusing...I cant even get excited when she is in remission cause she has to have another week of chemo and worried once the bone is ruined, how can chemo fix it? Now they want to do the radiation of the brain...she is pooped and wants to rest and so do I. She is mad at me for writing her doctor and all he would say is that he received a very disturbing letter from me so she didn't know what I said so she was furious and upset and that made me feel like a looser. I just asked why dont they give her Epogen for her anemic and fatique. I'm just worried about her and no one in my family will tell the doc that she is smoking a pack a day now and I'm scared she wont be in remission long doing that. (She dont know I wrote that but I kinda wanted the doc to lecture her about it) but he didnt cause i said please dont tell trudy that I wrote this letter) I just wanted her not to know it was me but he could of lectured her about all the smoking. So I accomplished nothing except getting everybody mad at me.  I feel like a big jerk! http://www.cancercompass.com/message-board/message/all,28862,0.htm Becky55 Wed, 01 Oct 2008 00:00:00 GMT Many Thanks to all who replied to my question regarding Vit C IV Injections, unfortuanally we never got a chance to give it to my mam. She passed away peacefully September 12th at just 52 years of age.    http://www.cancercompass.com/message-board/message/all,28701,0.htm cuningham Sat, 27 Sep 2008 00:00:00 GMT After reading several postings, I understand each person is different. But, my husband was diagnosed with Small Cell Lung Cancer in Jan, 08 I am lost confused and still scared. No one can seem to tell me a straight answer on a prognosis, I realize they cant be exact but I cant even get an approximate one. I hate to keep asking, It makes me feel very uncomfortable, but we have kids and grandkids, we all want to know what to expect, whats to come and how much time we have to share with him. None of us will ask again in front of my husband, but does anyone know of a easier way to get this information.After receiving all three treatments, Chemotherapy, Radiation and precautionary Brain Radiation. He finished all with very minimal side effects during treatment. But he is now experiencing nausea, vomiting, diahhrea, loss of taste, and a few other undesirable issues. Does anyone have info about this.We have also mentioned these things to the Dr.s and get a "O.K. well if it is still a problem next time...."Wondering if anyone knows of this delayed side efffects problem, or are we looking at a normal after effect. Does anyone know what else we might be looking at ahead of us.This is all new to me, so Im sorry if this does'nt come out right, or I offend anyoneThank you  http://www.cancercompass.com/message-board/message/all,28531,0.htm 14jonecat Mon, 22 Sep 2008 00:00:00 GMT Can anyone help me, were thinking of giving my mam IV Vitiman C. She has small cell lung Cancer that mets to the brain. Is their anyone who has tried this before??? Any info would be of grear importance.Cheers,  http://www.cancercompass.com/message-board/message/all,27610,0.htm cuningham Wed, 27 Aug 2008 00:00:00 GMT