Our online cancer forum offers helpful information and support for lymphoma patients and their loved ones. Join CancerCompass.com to compare notes and research treatment methods. http://www.cancercompass.com/message-board/cancers/lymphoma/1,0,119,57.htm Sat, 21 Nov 2009 00:00:00 GMT Sat, 21 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I’m asking for help from Hodgkin’s survivors, in the form of positive encouragement, for my niece Carly who is 17 and in round 2 of Chemo for Hodgkin’s Stage IV B Lymphoma.  Thankfully, she is under treatment through Hospital for Sick Kids, in Toronto, Ontario, Canada.   She’s an amazing girl,  she, her parents and brother are putting forth their best efforts to remain positive and upbeat in the face of the disease.   She is not alone in her struggle as she has a VERY loving family and we are all trying to keep her spirits up.  She lost all of her hair within the first week of chemo and  has adjusted to wearing her wig.   Next week Carly will be assessed to see how the treatment is progressing, and we’re certainly hoping for a positive outcome in any form whatsoever I am asking for positive letters of support and encouragement to be sent to Carly via email, at her Facebook group (Team Carly) or via email at GOTEAMCARLY@hotmail.com.  I know that if not only Carly but her family and us aunts, uncles, cousins, grandparents, etc. really need the support right now. If you can help this young woman in her battle to beat this bastard disease, I know it will give her inspiration and hope and positive thoughts to keep in mind. If you would be able to put this request out to the members of this group, or even world-wide, that would be fantastic for her to hear that this disease can definitely be beaten, even at Stage IV.  We are asking for positive comments, only, please……Your compassion and help is so very much appreciated.  Sincerely,   Linda                                         http://www.cancercompass.com/message-board/message/all,41686,0.htm BasketballGirl Fri, 20 Nov 2009 00:00:00 GMT Hi,  I am a 39 year old mother of 3. About 8 months ago I started complaining I didn't feel well. I had a lot of stress in my life so I went to the doctor with some general left side abdominal flank pain. After some testing it came back my spleen was enlarged but none of the blood work showed anything was wrong. So of course I go on with life. I had gained a lot of weight due to poor eating habits etc but I noticed I was becoming sick pretty often which was unusual for me. Lots of colds, fatigue etc. I had my tonsils and adnoids removed about 3 years ago. I begin to notice night sweats. Not every night but the kind where I would wake up and my clothes were wet. My thyroid was checked. It was fine. I have had terrible migraines on the right side and my ear hurts on the right. It also itches and rings a lot. Nothing shows on tests just DX as clinical migraines. Then my hair starts to fall out. Not huge amounts but enough for me to hold a hand full every time I wash it. I have been itching, especially on the thighs and my hair. I have lost 64 pounds. I was really happy about that because I stopped using caffine and sugar but apparently 64 pounds shouldn't fall off of you that fast. Flash back to about 3 months ago. I go in because I have these painful knots in my neck. I am given antibiotics for infection. They don't go away but they aren't painful any more. I come back because they said if they don't go away come back. I get more medication and they don't go away and I come back. So here I am. I have several pea size hard nodes and 1 that is larger. They are clustered pretty close. There is one under my right ear (my right check feels swollen and sort of numb)and the node in my rt shoulder has been causing me pain.  I have had blood work several times over the span you read above and it was normal...or that is what the nurse reading it to me said. I am not sure what to think.  I went to my ENT. He seems concerned but if the blood work is normal then it isn't cancer right? Help me out here please.    http://www.cancercompass.com/message-board/message/all,41673,0.htm Motowife Fri, 20 Nov 2009 00:00:00 GMT I would like to know PLEASE what options are around: ABVD - 6 months followed by HIgh dose chemo plus auto transplant and local radiation Disease back again (more accurately, hardly ever left) WHAT NOW????  ALLO transplant??  CHEMO (gemzar)??? CLINICAL TRIAL???? http://www.cancercompass.com/message-board/message/all,41651,0.htm Devor Thu, 19 Nov 2009 00:00:00 GMT I'm only 31, and am in great shape.  I run marathons, eat well, don't drink and don't smoke.  My grandmother died the week she was diagnosed with leukemia, and my mother had bladder cancer three times. About three months ago, I found a lump in my armpit at the base of my breast.  I didn't think much of it, but had my husband double check.  We figured it was an enlarged lymph node, and wrote it off since I'd been up and down with colds and the flu for about a year. Since then, the lump has increased in size.  My arm is going numb and I'm always tired.  (though that didn't seem alarming, since I'm a Marine and am currently in the midst of a really strenuous 6 month training evolution. The area is tender and sore, and I feel as though there's always pressure in that area, since the lump has more than doubled in size. Yesterday I ran a marathon and signed up for the leukemia and lymphoma team in training for future marathons... which was the first I'd heard of lymphoma.  For some reason I felt compelled to learn about the symptoms. I really don't want to worry.  I'm healthy.  I exercise.  I'm a Marine... which often makes me feel invincible.  But I did spend a year working in a building with exposed asbestos at my last duty station... which is when I started catching every cold and flu that came around. I'm asking because what I'm doing right now makes it extremely difficult for me to get an appointment.  I hope I'm being irrational, and that I'm connecting the dots in some sort of "House" and "Grey's Anatomy" fictional fantasy. Thanks for the time. http://www.cancercompass.com/message-board/message/all,41545,0.htm Supertrooper Sun, 15 Nov 2009 00:00:00 GMT I am a Team In Training participant and I will be traveling the country Dec 7th through January 13th. I will be creating a video blog/documentary and am currently in search of survivors doctors researchers and anyone else who would like to be on camera to share their stories and points of view on blood cancers and why it's important to support the battle to find a cure. If interested please email me at sean@trainingacrossamerica.com and we can see if we can work with the route and schedule already planned out. http://www.cancercompass.com/message-board/message/all,41530,0.htm SeanTAA Sat, 14 Nov 2009 00:00:00 GMT Hello my mom was diagnosed with large b-cell lymphoma about 2-3 weeks ago.  She has been in the hospital ever since due to her white count being extremely low ranging from 0.2 - 1.2.  She had her first round of chemo in the hospital.  She has not been eating due to no appetite and now she is having difficulty swallowing even water.  She says it burns in her throat and just can't get it to go down.  The lymphoma is in her spleen and lymph nodes.  Her spleen was 5 times the size of a normal spleen.  The dr has said that the CT scan showed that the spleen is smaller in size.  Her counts have not gone up and stayed up.  I was wondering if anyone has had anything like this or if anyone has any suggestions or advice. http://www.cancercompass.com/message-board/message/all,41458,0.htm amylea98 Wed, 11 Nov 2009 00:00:00 GMT Hello to all! I am the wife of a cancer survivor. My husband was diagnosed with Hodgkins Lymphoma, stage 3B, 10 years ago. He underwent a year of chemo/radiation. Within the 10 years, it has (mildly) come back twice. We caught it in time with surgery. He now has a large mass on his tonsil and swollen lymphnodes. He found the lump almost a year ago but didn't tell me until May. I don't know why he waited. Well, it has been such a trying few months. I made an appt with the doctor that treated him the last time. They said he was too booked to see him. So he had been dealing with the Nurse Practitioner. He has seen the ENT and was told he needed surgery but first, he needed a breathing machine for after. Our insurance approved it in August and their office was supposed to have it sent to our home. After 3 inquiry calls, they still hadn't sent it. Which has now prolonged the surgery another 2 months. So he's had this for 6 months with the ENT's knowledge. He is scheduled for surgery on November 17th. I am so confused as to why they are taking so long to treat my husband. We have 3 children and are in our mid-thirties. This has been taking such a toll and I am on the verge of tears all the time, just now knowing what is going on with my husband. Taking a deep breath.... thanks for reading... I needed to vent. http://www.cancercompass.com/message-board/message/all,41431,0.htm pinsandneedles Tue, 10 Nov 2009 00:00:00 GMT I saw this on another web site where they each person tells there storys to help others learn about lymphoma and what each individual went through. This might be a good release and helpful for others.   Thank you http://www.cancercompass.com/message-board/message/all,41384,0.htm SweetT Mon, 09 Nov 2009 00:00:00 GMT Trying to find treatment and facilities to treat chronic bone pain from rituxan.  My hospital ,Mayo Jax, doesn't acknowlege this side effect.  Anyone with this experience?   Any suggestions? http://www.cancercompass.com/message-board/message/all,41376,0.htm surfsup Mon, 09 Nov 2009 00:00:00 GMT Here is what I do, NOTE: Under active thyroid is implicated in many cancers and heart problems, etc. Iodine, once known as Nature's miracle, is truly fantastic for many cancers. It even gets rid of age or liver spots. Go to www.iodine4health.com As to the reason for my optimism? Here is what I have tried. The oncologist is not commenting. The TCM doctor is very pleased w/ my rapid progress. Here is my profile & info: Diagnosed with fNHL b-cell lymphoma, stage III, indolent, no organ involvement, August 2009. Declined all invasive diagnostic or treatment procedures. Instead, I radically changed diet, added key supplements, began to use Lugol's 5%  iodine. I have had 3 sessions of immune boosting acupuncture. All nine nodes regardless of size have shrunk by 2/3 in less than two months. I also sip a specific detox "anti-cancer" tea morning & nite, plus two mega dose green tea capsules, proven to kill cancer cells, also twice a day, + I eat NO sugar, NO bread, NO dairy. I drink green organic smoothies from a whole food blender. I use a rebounder to assist white cells to get out of the nodes and circulate to kill cancer cells. My complexion is now glowing instead of pale. I feel better than I have in years. I am 65 & have energy to spare. http://www.cancercompass.com/message-board/message/all,41127,0.htm MiaNony Thu, 29 Oct 2009 00:00:00 GMT I have undergone  chemo followed by surgery for lymphoma in 2004. but the lymphoma was back in 2006.   My physical exam was not good, I was getting weaker with time & even the meds given by the doc did no improvement. I thought perhaps there's other ways. That's when I tried alternative meds.     I read about quercetin is good against cancer & started with 1000 grams per day.     The site http://www.annieappleseedproject.org/homeopathy1.html m a homeopathic preparation by Lux Health Resources. I also heard some people took it so I added this  remedy. The homeopathic is available from                  http://www.luxhealthresources.net/ I begun to improve using the homeopathic above.  This remedy is stronger than the quercetin because when I stop taking it, the healing does not go on.   The improvement has gone so far I have my strength back and I can walk & even exercise. I was considered terminal (dying)  by my doctor. He said I have 6 months to a year to live.   But I continue to survive for a year and a 9 months now and I do not have much of the pains and weakness of lymphoma. I still have the cancer, but I am alive and can enjoy my life with family and people I love. My life has been changed and I am a cancer survivor because of alternative medicine. http://www.cancercompass.com/message-board/message/all,41105,0.htm rodney9 Wed, 28 Oct 2009 00:00:00 GMT  If anyone can guide me on this, I have an 80 year old Mother that is dealing with cancer, she is in remission now, but in May had came down with Shingles, she has had two shots in her spine to help with it,She has been prescribed pill's, but she still has no relief from them, what else can she do?I am at a loss, the pain management Dr. was my last idea for her.I have also heard conflicting statements concerning the vaccine for Shingles, since she has it now, it will offer her no protection in the future.Anyone else dealt with this awful stuff? Any ideas I can do for her now?Thank you! http://www.cancercompass.com/message-board/message/all,40847,0.htm Missing_Dad Tue, 20 Oct 2009 00:00:00 GMT Hello all!I have been having this burning sensation in my armpits for like two weeks maybe a little longer. I have these hot flashes sometimes. I have mid back pain on my left side. I have tingling in my right foot as well as my right fingers.I cannot feel any lumps anywhere.Could this be lymphoma?  http://www.cancercompass.com/message-board/message/all,40724,0.htm Orlinda73 Thu, 15 Oct 2009 00:00:00 GMT I have a lump in the back of my neck on left side, not visible but palpable, along with that I have an new onset of wrist joint pain in left hand and joint pain in left ankle. I also have numbness type tingling in left arm that seems to come and go, sometimes it feels like I have a rubber band around it somewhere. I often feel like I have a fever even though I do not, just a general warm feeling in my head and neck. The doctor put me on an antibiotic 5 days ago but it has made no difference and I'm getting very nervous. I have experienced light sweating a night a handful of times but nothing alarming and lately I seem to have heart palpitations more frequently, Please offer me some advice and share any similar stories. http://www.cancercompass.com/message-board/message/all,40596,0.htm momto3boys Mon, 12 Oct 2009 00:00:00 GMT My husband's large cell lymphoma began in his r. humerus and is also in his l. hip and femur and bone marrow.  It is not in the lymph nodes, which is unusual.  Has anyone had a similar situation?  I understand the bones are part of the lymphatic family and only 1-3% of lymphomas begin in the bone.  He has had his first chemo tx and doing well -- no nausea.  But he has pain in his center spine where there was no evidence of lymphoma and it did not begin until after his chemo treatment.  We woud appreciate any information from someone who has had a similar case.  Thanks.  http://www.cancercompass.com/message-board/message/all,40560,0.htm chloejoy Sat, 10 Oct 2009 00:00:00 GMT I received 6 R-CHOP for diffuse large B cell, extranodal lymphoma (not in lymph nodes).  The largest tumors were in my breasts and a small one on my kidney, also had  "slow growing" lymphoma in bone marrow.  PET scan 6 weeks after end of treatment showed breasts were in remission, kidney tumor was smaller, but "hot spot" on my liver.  Now, 3 months after last chemo, my immunoglobulins are low.  My oncologist told me it was permanent damage to my B cells from the lymphoma.  Any one else have lymphoma caused immunoglobulin defeciency?I've also been plagued by the fibrosis that replaced the lymphoma in my breasts, that is also in my axilla, and causes alot of pain when I use my arm.  Its difficult to tell new tumors from the fibrosis, except biopsy.  Any one have this problem?   Thanks.  Lee  http://www.cancercompass.com/message-board/message/all,40338,0.htm rosa6 Fri, 02 Oct 2009 00:00:00 GMT Hi,Recently my husband felt a knot / lump on left side of neck, 2 fingers below jaw line. This knot / lump is not visible, but can be felt when you press with fingers. Normally it is not painful, but pains when pressed hard. We suspected that it might be twisted of muscles due to bad sleeping position / pillow, however its been 3 days and the lump / knot is still there even after applying muscle relaxing ointment and using Heat Pack.This is the first time he is experiencing this, he's almost 30 yrs.I'm very worried... PLEASE HELP!!Thanks. http://www.cancercompass.com/message-board/message/all,40103,0.htm Lakeway_Drive Thu, 24 Sep 2009 00:00:00 GMT Very happy with St. Francis in Peoria, Illinois and my sister's doctor. They will start chemo today. In one week Dr. said my sister would have been in renal failure and dead shortly thereafter. She has stage 4 B-cell.I was pushing for her to go to Univ. of Chicago but I have to say we are all happy with St. Franic from my visist yesterday. They immed. admitted her, completed all important testing with biopsy of abd. tumor and marrow and diagnosed all within 2 days.  Haven't heard anything back on my appt. request online from UofC. I informed them she was in the hospital but was told by the Lymphoma Soceity that UofC could act in a consultant type basis in the form of a chart review until she could be physically evaluated by them. I hope they're not getting back because I didn't mark her insurance type. Yes, she has it and I noted this but I didn't put what type it was and I stated I was her sister. Still awaiting their response. 90% cure rate from what the doctor said for my sister. Chemo will be starting today. I am so happy this is still hope and an excellent chance for her to have this even cured http://www.cancercompass.com/message-board/message/all,40058,0.htm irishkick Wed, 23 Sep 2009 00:00:00 GMT my husband  had his firat biopsy come back as poorly differentiated adenocarcinoma.  the drs were thinking lymphoma based on clinical signs and scans.  but now they want to treat with a mixed chemo.  has anyone ever had a situation like this? http://www.cancercompass.com/message-board/message/all,40071,0.htm scubadiver Wed, 23 Sep 2009 00:00:00 GMT My sister is getting a biopsy today in Peoria, Illinois. I was told last night they think she has Lymphoma from CT scan last night. What is the best hospital to treat this? Any help would be appreciated.  Thanks,  Sheryl http://www.cancercompass.com/message-board/message/all,40010,0.htm irishkick Mon, 21 Sep 2009 00:00:00 GMT Please list the symptoms you had or have with lymphnoma.I have so many symptoms.  I will get my blood work results back thursday. I am just curious if my symptoms are the same as anyone elses. I have many of the symptoms but I don't have the night sweats is this common?  also has anyone had pain in the lymphnodes.  http://www.cancercompass.com/message-board/message/all,39816,0.htm SweetT Sun, 13 Sep 2009 00:00:00 GMT I have been having some stomach issues for about 3 years now. Stomach pain, fullness, constipation. Last year I had to be rushed to the hospital for these symptoms and vomitting. They took my apendix out and I thought that would be the end to all the pain and problems. about 3 months ago the stomach pains, constipation came back,but with many other symptoms. extreme itching on my palms, armpits, neck. swollen lympnodes left side of neck, under jaw and under ear. pain in neck. Headaches, pressure in my left eye having problems seeing, tired all the time. Oh and last but not least numbness in my left arm that come and goeshas anyone had these symptoms and what do I tell the doctor. I have been to the doctor about 10 times. in the past couple months and they don't seem concerned. I have been given cortisone shots now for the itching. which only help stop the itch for about a week. they seem to think that the lymphnodes are swollen due to the rash. but I have so many other symptoms.Please let me know what you think.  http://www.cancercompass.com/message-board/message/all,39641,0.htm SweetT Sun, 06 Sep 2009 00:00:00 GMT  have been having some stomach issues for about 3 years now. Stomach pain, fullness, constipation. Last year I had to be rushed to the hospital for these symptoms and vomitting. They took my apendix out and I thought that would be the end to all the pain and problems. about 3 months ago the stomach pains, constipation came back,but with many other symptoms. extreme itching on my palms, armpits, neck. swollen lympnodes left side of neck, under jaw and under ear. pain in neck. Headaches, pressure in my left eye having problems seeing, tired all the time. Oh and last but not least numbness in my left arm that come and goes has anyone had these symptoms and what do I tell the doctor. I have been to the doctor about 10 times. in the past couple months and they don't seem concerned. I have been given cortisone shots now for the itching. which only help stop the itch for about a week. they seem to think that the lymphnodes are swollen due to the rash. but I have so many other symptoms.Please let me know what you think. http://www.cancercompass.com/message-board/message/all,39642,0.htm SweetT Sun, 06 Sep 2009 00:00:00 GMT I went to the doctor yesterday because I had been in an accident a week before and wanted to make sure my neck and back were okay. I had found a knot on the left side of my neck and I wanted that checked. While feeling my neck, my doctor found a lump I hadn't and said it was a lymph node. She then found the one I had already noticed and said it was a lymph node as well. Having no idea what that meant or could mean, I said nothing. She checked me for infection or signs of virus, but found none. She said she would put me on antibiotics for a week and then reevaluate in 10 days. I began reading on lymph nodes at home and realized that I have some symptoms that make this more worrisome. I have dealt with fatigue for a year now. The type that keeps me in bed for over 12 hours a day. The nodes that are swollen are firm and not tender to touch. One is located just above my clavicle and the other at the base of my neck, both on the left side. Should I push for a test of some sort, or wait to see if the antibiotics work? I am feeling stressed, but trying to keep my paranoia in check. Thanks:) http://www.cancercompass.com/message-board/message/all,39547,0.htm BusyBee Thu, 03 Sep 2009 00:00:00 GMT I have been being looked at for lyphoma. I have lumps all in my neck. The most recent lumps have formed in my armpit. Unlike the ones in my neck these ones are tender to the touch. Has anyone else experienced that?? http://www.cancercompass.com/message-board/message/all,39347,0.htm pezzie1921 Wed, 26 Aug 2009 00:00:00 GMT