Our online cancer forum offers helpful information and support for lymphoma patients and their loved ones. Join CancerCompass.com to compare notes and research treatment methods. http://www.cancercompass.com/message-board/cancers/lymphoma/1,0,119,57.htm Wed, 19 Jun 2013 00:00:00 GMT Wed, 19 Jun 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My father was recently diagnosed with lymphoma. It all started when they did a biopsy on the growth they extracted that was inside the back of his head, outside the skull, and the bloodwork revealed cancer. After a full body exam, mris, pet scans, etc another growth was found this time in his intestine (rectum). This also had turned out to be cancerous. Do you think the lymphoma spread to his intestine? The doctors have told him one of two things, after a lumbar puncture yesterday where fluid from the spine is tapped into, that if the cancer has spread to the brain, he needs chemotherapy for the intestine and methotrxtrate as aggressive cancer treatment to brain, but if it hasn't spread to the brain (lumbar puncture test is negative) just chemo. My dad is 66. He has an aggressive lymphoma. I'm curios to know if anyone here has a family or friend in a similar situation and whether they were treated based on procedure my dad as outlined is being treated by. Thx http://www.cancercompass.com/message-board/message/all,72253,0.htm Jmostdizzle Mon, 17 Jun 2013 00:00:00 GMT ok,I had a Ct done of about middle of lungs down to lower abdomen done this week, a Urologist ordered it, I have the disk and the report, he told me to talk to my regular doctor for a referral, I saw him due to having dark urine and the hospital said I had some blood in my urine, the report said no hemahemorraged, stomach and kidney and liver and gallbladder look normal, but,there are innumerable small moderate and occasional large mesenteric lymph nodes seen throughout the mesentery but more numerous jejunal mesentery, the largest is 8mm long axis and is nearly spherical. There is a vague haziness in the mesentary indicating an associated Mesentaritius. This likely represents some form of subacute to chronic enteropathy which primaarily involves the jejunum, There is moderate inguinal and femroal lymphadenopathy, Several small iliac nodes are seen, Splen is borderline enlargedthe summary is 1.No CT explanation for hematuria2. Mesenteric lymphadenopathy which is associated mesenteritis likely representing enteropathy3. Borerline Splenomegaly could raise the possible of of sestimic lymphatic disorder such as leukemia or lymphomaMy doctor is sending me to a gastroenterologist , is that who I need to see? I am a 38 year old male, I saw an ENT last June for enlardged lymphnodes under the jaw area, I have a total of 10 there and 2 more in the neck area, he told me not to worry about them, one on CT was done there, and I am seeing an Lung doctor cuase they found lung nodules on the lungs as well, I go back in June for final CT on them I guess, i had 2 there, a yead later there are now 6 on one lung and 4 on the other, but they are smaller than 4mm, as for the other lymphnodes under the jaw, there is one that is 1.8cm and another at 1.5 cm, is all of this related, should I be scarred? I dont know why I am having so many pymphnodes issues, when I was well back in January, my lymphocyte count was 13, while I had a stomach bug last month, it was only a 7, than checked agin at the ER 2 days later and it was at 18, it has not been normal either, is all this related? What kind of doctor should I see, and what about the CT of the mesentery http://www.cancercompass.com/message-board/message/all,71332,0.htm dminchey Mon, 15 Apr 2013 00:00:00 GMT need answer http://www.cancercompass.com/message-board/message/all,72174,0.htm q111man Tue, 11 Jun 2013 00:00:00 GMT A routine physical turned into more than i bargained for when my platelet count came in at 110,000. A follow up 2 months later showed the same. Met with a hemotologist 2 weeks later and platelet count was 91,000. He took a bone marrow sample and I am now waiting 7-10 days for the results. Because I have no other symptoms he doubts it is acute leukemia. He says it is problably ITP, but he needs to rule out something more serious. He said that the rest of my blood work was all normal. Knew nothing about Leukemia before this, but having a hard time coming to grips with the idea I could be so sick, while feeling so good. Oddly, he said that the drop to 91K could be a good thing becasue Leukemia usually results in a steady, but gradual drop, while ITP casues platelets to jump all around. I would be grateful if anyone with similar experience could give me some feedback. http://www.cancercompass.com/message-board/message/all,25362,0.htm ambrosemario Tue, 24 Jun 2008 00:00:00 GMT Wow I am so excited to come across this site :)  I am a 48 year old mom of 6 that was diagnosed with Primary CNS Lymphoma in June of 2010.  I was a Correction Officer and was at work when I noticed I couldn't hold a pen and my speech was slurred.  I just thought I was super tired so I went home after my night shift and went to bed. When I woke up I was worse so my husband drove me to the ER.  At first they said it was bells palsey, then they said I had a stroke, and after I kept saying no way they did more tests and found the tumor.  The Dr there was aweful!!!  He came in to my room and said "You have brain cancer come back in 6 weeks and we will see if it grew any"  I couldn't believe it!!! I said "thats it??? There is nothing you can do??? He said "Nope it is wrapped around your brain stem so there is nothing we can do"  I was furious with him!!!  I said "Well you can do something right now...Take your self out of my room!!!!"  I signed myself out of that hospital and within a week was Boston at Dana Farber.  I had the biopsy done at Brigham's and the nuro sergeon said if I would have waited 6 weeks like the first dr told me I would have died.  They could not remove my tumor but we started Methotrexate and it worked.  I had 19 chemo treatments that stopped in July of 2011 and so far I am still in remission.  I still have to go over every other month because these little white spots keep showing up on some of the scans and they have no idea what they are since they come and go.   I try not to think about it coming back but the thought is there no matter what I do.  My husband and kids have been my strength along with my dad who is 83 :)   I still am not back to my normal but I do feel pretty good most days.  I just have less energy, cant seem to lose the weight I gained since taking steroids, my speech is still a little slurred, and I forget easily.  But I am still here to watch my kids grow so I can deal with the little stuff :)   I pray for all of out there who have to deal with cancer or have a love one that has this aweful disease.  But now I don't feel so alone since I found this site :)  Thank you all!!! http://www.cancercompass.com/message-board/message/all,72053,0.htm Bratx6 Mon, 03 Jun 2013 00:00:00 GMT Hi! I am a 50 year old female newly diagnosed with stage IV Mantle Cell Lymphoma. I just had a port put in today and will start the R-CHOP treatment on the 21st of March. If anyone here can share a bit of info with me as to what to expect or really just anything, I would be greatful. Thanks again, God Bless, Kathy :) http://www.cancercompass.com/message-board/message/all,4710,0.htm 55kathy55 Tue, 07 Mar 2006 00:00:00 GMT Hello-I am new here looking for support/advice/anything really. My mom (age 68) has lymphoma of the brain-primary they tell me. A scan showed she only has this in her brain-it is a good sized tumor. She has never been sick a day in her life and only about a month ago started having trouble getting her thoughts out, with words, etc. We originally thought she might have had a stroke-the symptoms came on so fast. She is about to go through her 2nd round of chemo tomorrow in the hospital. She seems to be responding well to the 1st round of treatment but of course to me, she is a shell of her former strong, independent self. I am an only child that (luckily) lives 5 minutes away but have 3 kids of my own so it has been difficult. When this all started I stayed with her until the first treatment and have been able to go over 3 times/day-she is able to walk, shower, etc but can't figure out the microwave, computer or sometimes what year it is. I was just wondering if anyone has had a similar situation and what to expect. I am told that with the aggressive chemo, the tumor may shrink or even disappear for a time. Looking for anything-info, websites, support groups or anything at all in this battle-it has all been so sudden it has been hard to catch a breath but I am learning quickly! Thanks for letting me vent-Amy http://www.cancercompass.com/message-board/message/all,69459,0.htm amyherting Thu, 06 Dec 2012 00:00:00 GMT I am a 72 year old male and was diagnosed with Mantle cell lymphoma 4 years ago. Initially I was given a Splenectomy, but unfortunately this only kept in check for a couple of months before lumps started appearing on my neck, in my arm pits and stomach. A bone marrow biopsyo prroved positive. I was considered to be not suitable for a trans plant but was fortunatebe excepted on a Bendomustine chemo trial which was given in conjunction with the standard R-CHOP chemo. The results were amazzing. Some of the lumps had actually dissappeared after the first treatment and all had gone including from the bone marrow by the last. I have been in full remission now for over three years. resently I have been having trouble with my eyes and it is now susspected that it may be a recurence of the lymphoma and am having an eye scan tomorrow to check this out. Hopefully it is not as blood tests are all fine. http://www.cancercompass.com/message-board/message/all,71947,0.htm DonWalton Mon, 27 May 2013 00:00:00 GMT IS non- hodgkin lymphoma allow or garantee someone to recieve ssi? I am going through the process but it seems to be taking forever. http://www.cancercompass.com/message-board/message/all,71785,0.htm Don-non-hodgkin Fri, 17 May 2013 00:00:00 GMT About 2 days after I got done with antibiotics for middle ear infection. I noticed tender swollen pea size lymph on both sides anterior of pelvis. Because I just got off antibiotics I don't think this is bacteria related. Tenderness noticed 2 days ago. How long should I wait to make an appointment? Should I wait to see if they grown or tenderness goes away? I'm 21 female no significant medical history on nuva ring birth control( i use it in a way to skip periods, every few months I chose to have one, last one ended 4 day ago). family hx of breast cancer and ovarian cancer through my fathers side (mothers unknown). Any input or sharing of similar story appreciated.  http://www.cancercompass.com/message-board/message/all,70242,0.htm clairesghost Wed, 30 Jan 2013 00:00:00 GMT Hi,I found a largish lump on the right side of my neck about a month and a half to 2 months ago. It has not changed in size as of yet.  I googled lump on side of neck and kept comming up with 2 possibilities, an infection or cancer. That scared me terribly, so I decided to wait a while and see what happens with it. Well, I finally went to the Dr. today and mentioned the lump on my neck. He felt it, and said that it "could" be because of an infection but since it has not went away and I have had it for at least six weeks he couldnt be positive. He then mentioned that it could be a cyst or a tumor. Then he mentioned Lymphoma. He said the likelihood of it being cancer was low. He then said I could wait a "while" (whatever that means) to see if it goes away or I could go ahead and schedule a cat scan. I, of course went ahead and scheduled a CAT scan. God knows I dont't want to hear the words cancer once I get the results but I am so worried that it is because the lump does not hurt, and no matter how much I try I can't get it to move.  I'm terrified, I have 3 small children ranging from 5 years to 6 months old, and i'm basically just freaking out on the inside. I have no other symptoms other than this lump on my neck.I don't know what to do or think or what the chance of it being cancer is (even though the doc I saw said it was a low chance). Wouldnt he have given me an antibiotic or something if he thought it was an infection?Has anyone else been through this before?  I'm scared, and would just like to hear others' opinions and experiences.Thanks,Angela ps. I am not sure when the cat scan is yet. They are supposed to call me with the date. http://www.cancercompass.com/message-board/message/all,29619,0.htm AngelaZ Thu, 23 Oct 2008 00:00:00 GMT I'm 49 and recently got the all clear after a nearly three year battle with breast cancer. Since my chemo treatments over two and a half years ago I have had a suppressed immune system, tested positive for mono three times and now have severe chronic hives on my body and my scalp, along with swollen neck lymph nodes that are sometimes very painful. Because I have been quite ill most of these past three years I have seen my GP a lot. Now, even though I am plagued with chronic symptoms she has grown somewhat dismissive during my visits. The chronic hives have been treated with everything under the sun. The only thing that even remotely controls them is high doses of prednisone. As soon as I come off a round of steroids I usually pick up a viral infection, which then triggers another nasty flare up of the hives. It's a vicious, painful and depressing cycle. Anyone have any ideas? http://www.cancercompass.com/message-board/message/all,71405,0.htm Institches Sat, 20 Apr 2013 00:00:00 GMT I am a 53 lady living in the UK and just before Christmas 2012 I was diagnosed with Mantle Cell Lymphoma and was told it is indolent.  It was found after a routine blood test in September 2012 which was followd by a CT scan and bone marrow test.  The lymphoma is in my bone marrow and blood and I have an enlagred spleen At the moment I feel fortunate in that I don’t have any other symptoms but my consultant is talking about possible Chemo because I have a low platelet count.  At my last meeting it was 34 but because my platelets clump they felt there were probably a few more there than they first thought. I am on Watch and Wait and feel fine in myself. The reason I am writing this is because I had a strange rash which lasted for 5 months in 2011. I had a red mark on my eye lid in the April of 2011 and then slowly over the next month red spots appreared on my torso and then spread down my arms and legs, my face and neck remained clear. These spots were about 3mm in diameter flat and bright red, they looked wet but were dry. I had no other symptoms, no raised temperature and no itching. In May a doctor thought it was Psoriasis and presecribed sitting in a bath with a tar treatment. By July there was no improvement and another doctor said it was an allergic reaction but didn’t prescribe anything.  He referred me to a consultant. The spots produced large cells, like large skin cells which then shed (embarrasing!) Come August 2011 I still had these spots which were very angry looking. They finally started to fade by about October 2011, my consultants appointment came through in November by which time the spots had gone.  He therefore could not really help as there was nothing to see. Has anyone else experienced anything like this?  My last normal blood test was 2009 and I wonder if this was some sort of auto-immune problem that could be linked to my current health issue. Any comments would be appreciated. http://www.cancercompass.com/message-board/message/all,71276,0.htm julesplace Wed, 10 Apr 2013 00:00:00 GMT Your input is invaluable. May 2012, CT with prominent cervical lymphadenopathy (2.5, 2.33, 1.9 cm) were the largest measured. Extreme fatigue, itching all over x 1 month worse at night. Low grade fevers nearly daily 99.6 - 100.6, occasional night sweats 1 - 2/ wk avg. Follow up with ENT who said they didn't feel like cancer. Okay. Left decision to biopsy in my hands??? I don't know. Latest CT showed "not significantly enlarged" and less than 10 mm on short axis??? So, I understand that the biopsy is the gold standard to rule out lymphoma - should I insist on one? He said fine needle aspiration??? Heard those aren't as definitive. Has anyone here had a similar situation? Is it common for docs to downplay possibility? I have no idea. Please help, I believe patients who have been through all this before are the experts. What do you think? Am I overreacting? Btw, over 50 & have a history of cancer many moons ago. Thank you from the bottom of my heart! http://www.cancercompass.com/message-board/message/all,67744,0.htm littleshell09 Sat, 18 Aug 2012 00:00:00 GMT My dad, 75 years old, was just diagnosed with mantle cell NHL, and has chosen not to be treated for it.  He is not currently sick, no symptoms, other than what sent him to the doctor in the first place, which was swelling under his arms.  He had 2 nodules removed from under his right arm about 2 weeks ago, which gave us his diagnosis.  He is a very healthy man otherwise, on no medications; had quadruple heart bypass in 1989. He (and his children and grandchildren) have read a lot on line about the recommended chemotherapy, CHOP - R, and the possible side effects, inevitable relapse/recurrence of the cancer after treatment, etc.  They want to give him the chemo every 3 weeks for 6 - 8 treatments.  Based on what he has read, and his age and current health, he has decided not to take any treatment, or even have the bone marrow aspiration to see if the NHL has metastacized to his marrow.  He doesn't want to spend the next 6 months to a year sick, weak, unable to eat, or suffering any of the other side effects of chemo/treatment he has read about, with no probable cure or much extension of a quality life.  I support his decision as I know him well, and he will not tolerate any serious side affects, or even inconveniences with much patience or hope, but don't know how to handle watching him get sick, suffer or die.  His wife is 80, also in good health, and his anger at the disease and side affects of treatment would make life very difficult for her, as well.  She also supports his decision - but was very upfront with him that it was HIS decision, and that she would be there no matter what.  She has had many family members, including her dad, get cancer, take the treatments, and die anyway after suffering through the treatments, so she doesn't have much faith in cancer treatments, either. I guess I'm looking for support on going through this with my dad and stepmom, and maybe some idea of what to expect as far as how the disease will progress (I'm not sure at this point how often he'll follow up with the doctor until after he starts having some major symptoms or pain).  Since I know he's in at least stage 3 (has lymph node involvement above and below the diaphragm), I know it probably won't be a very long time before he gets sick, as what I have read about this disease is that it is very aggressive.  Sorry this was so long, just needed to get some things out.  Would appreciate hearing from anyone who's loved one has made a similar decision, or just anyone who can tell me what to expect and how I can help my dad and stepmom. Thank you ~  CherylJean http://www.cancercompass.com/message-board/message/all,67879,0.htm CherylJean Mon, 27 Aug 2012 00:00:00 GMT Good morning. Does anyone know whether autologous stem cell transplant is very risky and whether NHL can recur after the transplant. http://www.cancercompass.com/message-board/message/all,66306,0.htm dsa64 Mon, 21 May 2012 00:00:00 GMT Hi, i found a lump on my neck just below my left ear, i can feel it when i look to the right. It is not visible and does not hurt unless i put pressure on it. It is quite hard and does not move. i have lost a lot of weight recently, i am always tired and sleepy, i become moody quite easily and have had a loss of appetite, my hair has started to fall out a lot, i get headaches i did go to the doctors about my headaches and hair loss and was given vitamin D tablets. I have cancer in my family my cousin had lymphoma about 4 years ago I was wondering if anyone has had any similar symptoms, everywhere i try to look for information about this it keeps coming up with lymphoma. I hope someone can relate to this or even tell me what they think it could be as i am really worried. Thank You. http://www.cancercompass.com/message-board/message/all,70835,0.htm rabiya Sun, 10 Mar 2013 00:00:00 GMT hello! i hope someone could possibly give me some insight on my situation before i lose my mind. i have had a swollen painless lymph node in the posterior triangle of my neck since august of 2012. i only noticed it after i was sadly giving myself a massage from a long day so how long it's actually been there is unknown. my grandmother had non hodgkins lymphoma & so naturally, i started freaking out. i went & had my blood draw at a free clinic because i had just been laid off so no insurance but they said my lympocytes, CBC, thyroid & white blood counts were all normal. the node hasn't gone away still. everything i read is about how it could be cancer. i don't have all the symptoms like weight loss, in fact i have gained 25 lbs in the last 6 months, i have a stiff neck &  i have had these rashes in isolated spots on my body like my elbows & neck. i went to the ER because i couldn't take the fear anymore. they told me that i had a fungal infection on my head & that it simply drained to the lymph node, which i did infact have. my whole head itched so badly for around 3 months, but now i also feel a small one on the other side, also painless & possibly one in my clavical too. i don't understand this...i keep being told it's nothing. even the ENT's i work for are telling me that i shouldn't worry & it's probably just a scarred lymph node. i have been on antibiotics for almost 10 days now for a sinus infection & i guess deep down i was hoping they would go away but the lymph node hasn't changed in size. my husband feels it on a regular basis & tells me it's not changing & my father has felt it from day one of it's exsistence & he says its actually smaller than it was in august. what is going on! this is literally making me sick with fear & anxiety. i feel like i have many symptoms of fibromyalgia, but im just so unsure. i can't go to a doctor until my new insurance kicks in but that's a few more months away. my anxiety is now through the roof, my daughter passed away a few years ago from SIDS & im absoluetly terrified my fate is creeping up on me & it's only a matter of time before i go. i wake up daily thinking im dying, so much i know am convinced my son also has cancer. please help, im losing control over myself in this situation. is that good the nodes aren't growing?? could they really be scared? insight please! i want my life back & my health! :'( http://www.cancercompass.com/message-board/message/all,71075,0.htm ladylee Tue, 26 Mar 2013 00:00:00 GMT My husband was diagnosed with mycosis fungoides 12 years ago. He's been through many different treatments and chemo therapies, and none have helped. He has tumors and lesions over most of his body. He is very uncomfortable, in pain and cannot sleep. I am wondering if anyone else is at this stage of the disease, and if so, what palliative measures can we take to give him some comfort. http://www.cancercompass.com/message-board/message/all,71004,0.htm Smrmorgan Wed, 20 Mar 2013 00:00:00 GMT I was diagnosed March '97 to have Stage 4 Low grade B cell Non-Hodgkins Lymphoma. They said they called it chronic cancer. The only thing I had to worry about was whether it would mutate into a more aggressive NHL because it was so widespread. I had a bone marrow biopsy and it was in the bone marrow. Dec. '03 I noticed a tiny bump on my jaw behind my ear. My Oncologist didn't feel it but took it seriously. We use Army facilities and they can be very slow. I finally got a CT/scan in January '04. In February (it was bigger) they did a FNA Fine Needle Aspiration. It looked like Lymphoma. I was feeling this was the end. March '04 I had ENT remove the tumor and the salivary gland it was in. It took 6 wks to get the pathology report back. It was so hard waiting. Well, the report said I had Hodgkins Lymphoma, which is treatable with an 85% cure rate. I had a CT/scan before the surgery and a PET scan after the surgery. I lit up like a Christmas tree. There was all the NHL and HL. Then they did another bone marrow biopsy and there was no HL in my bone marrow. I had my first chemo ABVD in May. Before the next treatment, I was neutropenic and had an infection. I was hospitalized until my counts came back up. They realized the NHL was keeping my bone marrow from building new cells. They gave me Nulastin(sp) the day after chemo each time, they sent it home with us and my husband gave me the shot. I felt okay during the first week but second week I had very bad bone pain all over my body. In August I got a staph infection in my port a cath. I was so sick I actually left the earth. I could see it from far away but didn't care about it at all. I told God that if He was ready to take me, I was ready to go, but that deep in my heart I wanted to be with my grandchildren. Zap, I was back in bed and I slept the rest of the night. The next morning I felt better. They did all blood work, etc. Later the Doc came in with a big smile and told me I was going to make it. They took out the port a cath and put in 2 PICC lines in my arm. Then one month later I was so weak that I couldn't go to the Powder Room without coughing violently. I crawled up the steps to go to bed. My Oncologist called me for some reason the next day. I told her how I was feeling and thought it was anemia. She was worried the Adiamycin had damaged my left ventricle (one of the side effects). She said to get a Mugga the next morning at 8 AM. I crawled up the steps that night too. I had the Mugga (Nuclear heart test) and they said my heart was fine. My husband wheeled me to Oncology and when the nurses saw my faced they rushed me into a bed and gave me oxygen. The Doc showed up right away and said I had to have a Pulmonary Function test. Failed it miserably. Doc said if I had stayed home a few more days, I would have died. The Bleomycin had damaged my lungs. I was put on large doses of Prednisone and oxygen and given 2 units of blood. I was finally able to go home. They sent out a machine that makes oxygen and I lived on the sofa for 6 weeks. I had to keep lowering the amount of oxygen because it could cause more damage. It took months to get weaned off of the Prednisone. I was one week shy of 4 months of treatment. I had the last treatment minus the Bleomycin. They wanted to do 6 months, just to make sure. They wouldn't let me, so I had radiation from the tip of my nose to my chest for the whole month of Oct. It was horrible. My mouth was shredded, I couldn't swallow. I never could believe anything could be so horrible and take so long to recover from. I lost 65 lbs. In Dec. '04 I was in the blackest pit I had ever been in. The chemo had really messed up my chemical balance in my brain. It took months and many medicines until I could have any positive thoughts. I had a PET scan in Jan. '05 and both Lymphomas were gone. In June '05 I started Rituxan antibody treatments to keep the NHL away and did so for 3 months. I had a PET scan last month and I lit up like a Christmas tree. I am waiting for surgery to call me as I have to have surgery to get to some of the nodes to make a diagnosis. I didn't even get one year cancer free. It is Feb. '06 and I am still not right yet in my brain. Very frustrating I feel like an idiot. The mouth problems are that I have very little saliva and my lips are dry as the desert. I am always sipping water or tea and keep chapsticks everywhere. I won't heal anymore in that area. The NHL wasn't supposed to be affected by chemo. Well, it was. Now I am wondering if it has mutated into a more aggressive lymphoma, or the HL has come back, or both or just the same low grade B cell NHL is back. It is hell waiting to get the surgery and then wait for the Pathology reports. I can't believe I got two kinds of Lymphoma at the same time. I really thought I would be cured of the HL, but when the NHL was gone, I dared to hope I was cured of it. I feel like I have been living under a black cloud since '97. I am afraid to make any plans for the future, etc. I am just living one day at a time. I turned 56 this month. I have 3 grandchildren that I don't know. They have been in Europe for 6 1/2 yrs. I have 5 grandchildren close by. So sorry this is such a long post but I had just about every side effect you can have with my treatments. Now I don't know what I am facing. Kate http://www.cancercompass.com/message-board/message/all,4459,0.htm Kitty Fri, 10 Feb 2006 00:00:00 GMT I am a 45 year young man! Let me start by saying I had a CT scan done May 2011.The scan showed several enlarged lymphnodes and an enlarged spleen. My family doc sent me to an Oncologist who ordered a lymphnode biopsy from under my left arm pit. Had that done and results were negitive! Wow what a relief..then I went back to family doc in Oct of 2011, who told me he felt larger and more lymphnodes swollen in my neck and under my right arm...back for another CT scan to compare with previous scan. Alot of nodes were considerably larger than on the 1st scan, so doc wanted to get one from my neck because "something is not right" he says. Upon removal of neck nodes in Nov 2011, I was diagnosed with Folicular Lymphoma. I was sent to another Oncologist on my docs recomendation,that I am very pleased with and have had 4 of 6 treaments of Rituxin and Bendamustine. After another scan last week the doc says my Ct scan shows "significant improvment. Looking back, I did have a symptom, night sweats, that I dismissed as too many covers at the time. I have had a bone marrow biopsy and have stage 4 disease. The Oncologist and my family doc both agree that with this treatment I could be in remission for quite awhile! Only time will tell,but have been on the roller coaster of emotions that all here have been on at some time. I am very thankfull for the support of my family and my friends who are here with me on this journey. I have never been sick from the treatments. For a couple days after treatment I feel run down and tired and within a few days almost back to normal. The hardest part for me is the mental stress it has on me. However I am determined to not let it get the best of me and continue on day to day! Good Luck to ALL http://www.cancercompass.com/message-board/message/all,64865,0.htm Virginia123 Mon, 05 Mar 2012 00:00:00 GMT Hi guys first time poster and i am worried as hell!!! first of all symptoms.... - Occasional night sweats - Swollen painless glands in neck and groin ( tiny but all over =/ ) -  feeling of being tired a lot!! - Glands hurt after i had a drink =/ i have been to doctors and hospital and they have done LOADS of blood tests, chest xray, Abdominal xray and ultrasound of kidneys liver spleen e.t.c ALL CAME BACK CLEAR Been to doctors office and he said the nodes are too small to be Lymphoma..... this sounds very odd to me! i am freaking out and if my doctor doesn't think i have it being on the NHS they won't do anymore tests =/ please please please can anyone help me??? =[ http://www.cancercompass.com/message-board/message/all,70752,0.htm Tanker2600 Tue, 05 Mar 2013 00:00:00 GMT So my health has been dealing me a fit for a few years now and I never seem to get answers. I'm 28 years old and am worried, I had a strep infection a little more than a month ago and while feeling how swollen my throat was i felt a small hard lump. I got treated for the strep and a couple days later my th roat started swelling again. just to be on the safe side thinkin it might have been the strep again I took another script of antibiotics I had but to no avail. I still felt the lump, it's small hard and painless, but figured i'd waitto see if it went down over a couple of weeks. My throat slowly continued to swell untill it got to the point I was having a hard time breathing with out holding my chin up, over this time the lump has continued to grow, but my doctor didnt have an availible appointment for a month so I went to the walk in clinic. The np there seemed worried but just prescribed another round of antibiotics and some nsaids and said follow up with my gp. The swelling has only gone down enough for me to breath easier but not more than that. The swollen node is still growing (is about as big around as my finger nail and is a cervical node) and now im finding even more, 4 total now, all on the left side of my neck. I' ve had so many other symptoms over the last few years I have trouble knowing what goes with what so I'm going to list them all please bear with me, I have: nausea, horrible but intermintent belly cramps, weakenss and fatigue, near fainting spells (usually when my irio level drops), hot flashes (way to youn for this), the itchies (i'll spend about 2 hours most nights just chasing them before I can sleep), recently stabbing headaches up to 3 times a day, if I drink the next day everything aches (this has only been the last 2 years and I've never in my life had a hangover), I get "mystery" bruises and bruise easy, I've had a high white count on every cbc in the last couple years, as well as a couple other random things that come and go. Does any of this sound familiar to anyone. I'm so worried I have cancer and my Mind is reeling. I'm never gonna make it to my appointment!! Please someone help! Thanks, Genese http://www.cancercompass.com/message-board/message/all,67165,0.htm genese Mon, 16 Jul 2012 00:00:00 GMT First of all I'd like to say the reason I'm not at the doctor right now is because I'm a poor 21 year old girl with bills to pay and a new job I'd rather not take days off for. Seems like a lack of priorities but I just don't need to waste any time. I'm hoping someone here can tell me whether or not INEEDto go to a doctor. So it started in April (8 months ago). My stomach had distended badly without weight gain. I went to the doctor they didn't seem to worried. She suggested for the recently heavy cycles and bloating that I take Birth control. I didn't take it long. In May, I had start dropping weight. 20 pounds by the end of the month. I started bleeding a little which I assume was hemorrhoids(no pain however). Headaches started in frequently and I had severe back pain. By June,  I started having fevers on a nearly daily basis as well as a pressure on my chest accompanied by shortness of breathe. My lymph nodes were swollen for a few weeks. One of which (right side of neck) is still swollen and prominent. In July the fevers were almost constant and night sweats began. I was beyond exhausted and had frequent panic attacks. The back pain became so bad that I had to quit my job as a waitress for one that allowed me to stay off my feet. By the end of the month I had lost another 10 pounds, regardless of my emotional eating. In August, thanks to my new job, My back pain decreased but still occasionally brought me to tears. My cycle started coming in every 3 weeks, lasting a couple days longer than usual and much heavier and clotting. Between August and September a small cough started. The lymph nodes on my neck were swollen to the point of cutting off air ways if my head moved back to far. I felt breathless and tired. By October, Dizziness started in making it difficult to concentrate and my ears felt full and bruised. My "hemorrhoid" problem got a little heavier and slightly more frequent (5-6 times) In November I succumbed to a SEVERE flu for about 3 weeks. At this time feeling a horrible shooting pain in my ears. As well as bone pain. Not like the arthritis I've had since I was 10 but pain radiating from bones instead of joints all over. In December I dropped another 5 lbs (have been fluctuating since) Leg cramps started and small rashes started up all over my body. They are light blotchy patches on the skin and they itch a little. Often times I feel a crawling sensation, like a bug is on me. My bowel movements turned from constipation(as it always is) to foul smelling diarrhea. And now this week in January the "floaters" people see have started to become bright. And as off today I started what felt like hemorrhaging blood, not in any way like I have before when I thought it was hemorrhoids. It was dark, clotted and there was enough to turn the toilet water orange. It went on for about 2 hours when it finally slowed down. Can anyone give me an idea of what this could be? Should I wait longer or what should I do? Any advice is certainly welcome JC http://www.cancercompass.com/message-board/message/all,69898,0.htm lovedogs23 Thu, 10 Jan 2013 00:00:00 GMT I was dx'd with richter's syndrome last week and have has first R-CHOP tx which went very well. I am quite upbeat and optimistic and view my dx as a challenge to overcome. I am wondering who else has had experiences regrading tx of Richter's and what regimens they were tried on. http://www.cancercompass.com/message-board/message/all,32106,0.htm ultraman51 Tue, 13 Jan 2009 00:00:00 GMT