Our online cancer forum offers helpful information and support for lymphoma patients and their loved ones. Join CancerCompass.com to compare notes and research treatment methods. http://www.cancercompass.com/message-board/cancers/lymphoma/1,0,119,57.htm Mon, 21 May 2012 00:00:00 GMT Mon, 21 May 2012 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ There seems to be very few recent posts regarding Mantle Cell Lymphoma. My husband has recently been diagnosed (Nov 11) with MCL, I really hope no one has this condition but if you do, or you are a carer for someone with MCL i would appreciate a chat.   http://www.cancercompass.com/message-board/message/all,63957,0.htm loujohn Wed, 18 Jan 2012 00:00:00 GMT Hi all, my wife was just diagnosed to have Anaplastic Large Cell Lymphoma (T-cell) in last late April. Her histopathological reports shows that her Anaplastic Lymphoma Kinase (ALK) is positive and the haematological oncologist said this kind of lymphoma is the most curable one among the entire ALCL. She has already been on 1st cycle of Chemotherapy with CHOP. However, i found from web that there were some clinical studies comparing CHOP+E(Etoposide) and CHOP showing that the former one is more effective for younger patient with ALCL than the latter. Actually i did talk about this to her oncologist but he didnt agree with this regimen because the conventional CHOP should be very effective for her case (ALK positive). Also, the potential side effects of Etoposide is high and so it is not worthy of putting this into the regimen. Another concern of my wife is that she just delivered a baby girl on last Oct and so she is quite worried about if our baby girl would be affected by cancer cells during pregnancy.Thank you so much for your comments and sharing. http://www.cancercompass.com/message-board/message/all,66201,0.htm Gilbert249 Tue, 15 May 2012 00:00:00 GMT HAPPY MOTHER'S DAY to all-the-many survivors as "SuperMoms" & to ALL!!!!!!  I'm lucky(billsheely,CTCA patient/Ambassador & originator of "CAMP CaN-DOO!" as a FREE getaway for cancer patients/families/caregivers in the Pocono Mountains);  "3-time survivor", yes, "3"...and, today...of all days I awake to e-mailed "Cancer Research & Info" as usual.  Today's? As relevant to my "B-Cell CD20+ indolent-type non-Hodgkin's lymphoma"...HAPPY BIRTHDAY!!!!!....as the article...?  "Researchers studying molecular signals that drive a specific type of lymphoma (B-cell)...have discovered a biological-pathway leading to this type of cancer.  Scientists may have discovered how "the addiction of cancer cells to certain cancer oncogenes" can be "broken".  I'll take THIS news as "my gift" with a smile on Mother's Day (God bless her), my birthday...May 13, 1954.  First diagnosed;  March 14, 2006.  "3rd-cancer procedure".....?  ~March 14, 2012!  'gonna be down @ "CTCA 'Philly", "CELEBRATION of LIFE"!!!!! (scan & appts).  Lookin' forward to "it", SEE YOU THERE, "CTCA patient as "quite involved(CTCA-issues) in-recovery", "George, aka; "Alan" Rader!!!!!!!!!!    ( :  be well, "all".    billsheely (inviting new "friends here on Compass, always").       b http://www.cancercompass.com/message-board/message/all,66162,0.htm billsheely Sun, 13 May 2012 00:00:00 GMT I was dx'd with richter's syndrome last week and have has first R-CHOP tx which went very well. I am quite upbeat and optimistic and view my dx as a challenge to overcome. I am wondering who else has had experiences regrading tx of Richter's and what regimens they were tried on. http://www.cancercompass.com/message-board/message/all,32106,0.htm ultraman51 Tue, 13 Jan 2009 00:00:00 GMT Billie Best will always be the true story of a 16 year old who became so scared of the treatments, he ran away. He hid out in a warehouse, skateboarded around the neighborhood, befriended many friends interested in skateboarding, and was invited to new friends homes for dinner and supplimented with food that they gave him.  One of his new friends father saw Billies face and parents on t.v. frantically trying to find their son. He got his son to invite Billie to the house for dinner and talked him into calling his parents. Billie had seen what the treatments had done to his beloved Aunt and she died anyway at the same time he was diagnosed with lymphoma.  His parents promised Billie when he came home they would pursue and research alternative and natural treatments. Mr.and Mrs. Best traveled to Canada to speak with a Biologist that created 714X which was/is accepted in Canada but not in the USA.  The Best family agreed and Billie injected the 714X and took Essiac Tea and vitamins, and changedhis diet.  Billie is now 34 years old and has a baby boy of his own after being told he would never be able to have children. He is cured.  He also has been summoned to Harvard University to speak about his survival and has written a book.  It will be on the market this June or July, 2012.  My question this evening is, Has anyone tried and used this 714X and essiac Tea and please tell me your story.  I have a son who has cancer and I would like to hear about this from more people.  Thankyou ahead of time.  J http://www.cancercompass.com/message-board/message/all,65442,0.htm vwxyz Sat, 07 Apr 2012 00:00:00 GMT Evening everyone, My son 20 Years old developed a A large lymph node on kind of the back side of his neck Right side he showed it 2 me in January on his birthday..I knew when I seen it something was up with him..He had showed me A lump on the back of his femur in July I felt it was hard and since his thighs are so firm I really didn't think anything of it..Went to the Drs tried to diff antbiotic and A shot of Antibiotics..About 3 weeks later they did a Ct of his neck which should large nodules on that side of his neck etiology unknow also in the upper part of his left lung calcification and a 13mm plural based nodule diconcerning do to his age location questionalble for Nerve sheath tumor..Had biopsy of lymph node on his neck in march came back reactive of questionabl of toxoplasmosis but serology testing must be done to confirm..Just got serology test and they are negative.TB is negative..any ideas He has night sweats, tiredness, short of breath, constant cough which never gets better...and on and off sore throat smells used to really bother him also...Any advise anyone has i would greatly apprieciate TY http://www.cancercompass.com/message-board/message/all,65925,0.htm LukesMama Tue, 01 May 2012 00:00:00 GMT A month ago I noticed my right occipital node had a hard, painless pea sized lump. Two weeks ago it became more swollen and two more showed up (one tiny & hard behind my left ear and the other halfway down the right side of my neck). Five days ago I showed them to my dr and he said he's not concerned and that my CBC was fine. Five days ago I had three. Today I have ten, all on the back and sides of my neck, above my collarbone. This afternoon the part of my forearm close to my inner elbow felt very bruised, but it's not. It feels like there's a lump down in there. My neck and back are KILLING me. I'm 36 and otherwise very healthy. Should I trust my GP and wait a while or should I do something asap. Having been on google (bad idea), I'm not sure if I'm overreacting and feeling irrational or if it's a legitimate medical concern.... Advice? http://www.cancercompass.com/message-board/message/all,64015,0.htm Knxgrl Sat, 21 Jan 2012 00:00:00 GMT Scared of diagnosis for my 19yr old daughter. Tomorrow we see the oncologist for the first time. She had a swollen nodes on the left side of her neck come up. CT scan found swollen lymph node in neck and lungs. Last Tuesday had surgical biopsy and path results came back positive HL. Today she had a PET scan and tomorrow we find out treatment plan and stage. Scared because I want her well. She is finishing her freshmen year at school and she is so scared that she won't be able to go back in the fall. Is it realistic to think that she can complete treatments and go back to school in August? Also, would you get a second opinion? http://www.cancercompass.com/message-board/message/all,65424,0.htm Razorbackmom Fri, 06 Apr 2012 00:00:00 GMT A routine physical turned into more than i bargained for when my platelet count came in at 110,000. A follow up 2 months later showed the same. Met with a hemotologist 2 weeks later and platelet count was 91,000. He took a bone marrow sample and I am now waiting 7-10 days for the results. Because I have no other symptoms he doubts it is acute leukemia. He says it is problably ITP, but he needs to rule out something more serious. He said that the rest of my blood work was all normal. Knew nothing about Leukemia before this, but having a hard time coming to grips with the idea I could be so sick, while feeling so good. Oddly, he said that the drop to 91K could be a good thing becasue Leukemia usually results in a steady, but gradual drop, while ITP casues platelets to jump all around. I would be grateful if anyone with similar experience could give me some feedback. http://www.cancercompass.com/message-board/message/all,25362,0.htm ambrosemario Tue, 24 Jun 2008 00:00:00 GMT I am a 45 year young man! Let me start by saying I had a CT scan done May 2011.The scan showed several enlarged lymphnodes and an enlarged spleen. My family doc sent me to an Oncologist who ordered a lymphnode biopsy from under my left arm pit. Had that done and results were negitive! Wow what a relief..then I went back to family doc in Oct of 2011, who told me he felt larger and more lymphnodes swollen in my neck and under my right arm...back for another CT scan to compare with previous scan. Alot of nodes were considerably larger than on the 1st scan, so doc wanted to get one from my neck because "something is not right" he says. Upon removal of neck nodes in Nov 2011, I was diagnosed with Folicular Lymphoma. I was sent to another Oncologist on my docs recomendation,that I am very pleased with and have had 4 of 6 treaments of Rituxin and Bendamustine. After another scan last week the doc says my Ct scan shows "significant improvment. Looking back, I did have a symptom, night sweats, that I dismissed as too many covers at the time. I have had a bone marrow biopsy and have stage 4 disease. The Oncologist and my family doc both agree that with this treatment I could be in remission for quite awhile! Only time will tell,but have been on the roller coaster of emotions that all here have been on at some time. I am very thankfull for the support of my family and my friends who are here with me on this journey. I have never been sick from the treatments. For a couple days after treatment I feel run down and tired and within a few days almost back to normal. The hardest part for me is the mental stress it has on me. However I am determined to not let it get the best of me and continue on day to day! Good Luck to ALL http://www.cancercompass.com/message-board/message/all,64865,0.htm Virginia123 Mon, 05 Mar 2012 00:00:00 GMT I was diagnosed as stage 4 in early 1997 at the age of 47.  With indolent small B cell follicular NHL.   We did the watch and wait.  7 yrs. later I developed a fast growing lump in my neck. It was Hodgkins Lymphoma.  I had surgery and treatment.  I almost died 5 times.  I even left this world and returned.  I had a one yr. remission to the follicular.  The Hodgkins Lymphoma has never returned.  When the follicular lymphoma came back it brought a more aggressive form of itself.  We did some watching and waiting.  They tried Rituxan and it didn't have any effect.  Then they tried Cysplastin and it had no effect.  Watch and wait is what we did.  Late summer 2010 I was feeling  some pain under my left arm.  Then my left breast doubled in size in one week.  They did all the diagnostic tests.  The aggressive form of follicular NHL had gotten very aggressive, but just under my arm.  The breast was a 4th cancer, Diffuse Large B cell NHL.  I had both breasts removed and the underarm lymph nodes removed.  I underwent R-CHOP this time.  I almost died twice so we stopped 2 treatments shy of the full treatment.  3 months later the CT/scan showed the return of the indolent follicular NHL (not a worrisome cancer).  March 15, 2012 I had another CT/scan.  I prayed the night before for God to take this cancer from me.  I prayed the same thing during the CT/scan.  The doctor couldn't wait 3 days for my appt.  He called and asked me if I believed in miracles.  I said you know I do.  I have been leaning on the Lord through all  the misery and damage.  Well, my CT/scan showed no signs of cancer and all my organs looked fine.  Treatment, return, no treatment and cancer is gone.  After 15 yrs dealing with 4 kinds of Lymphoma, the Lord took it from me.  Don't be frightened if you have indolent, it can stay that way for 20 or 30 yrs.  My Oncologists do not recommend treating indolent follicular because it might cause a transformation into a more aggressive form.  If I had not had the Hodgkins Lymphoma with treatment.  I could have not gotten the other 3 cancers and no damage to my body and brain.  God is in control of whatever is happening to you.  Don't rely too much on what other people and doctors say.  Give it to the Lord.  He may heal you or choose not to.  I have been a reborn Christian since 1988.  I asked for situations to change but all He did was change me.  I am a much better person because of what I have been through.  I am a mighty witness for those who aren't save.  I have patience and endurance and most of all perserverance.  I know that whether I live or die, it is a win-win situation.  Either I stay here or I go to Paradise and be with Jesus.  I have had a vision.  I was taken from this earth and then returned.  He blew a peace and calm across my soul and I heard," It will be alright".  That was 15 yrs. ago (March 1997)  I got up and went on with my life.  There were terrible times when I could do nothing but it gave me patience and perserverance. God bless you all and heal you, please.  More important God, is that you save their souls so they may know they will live eternity in Paradise with you.  Amen 62 yo mother of 2 and grandmother of 10.  I, also, have 3 cats and 2 dogs.  I made 10 queen sized wedding quilts for the grandchildren in case I am not here when they marry.  The oldest will be 18 June 21 and the youngest will be 3 on June 20.  15 yrs. of grandchildren and 15 yrs. of cancer.  Don't let it own your life.  You own your life through God. http://www.cancercompass.com/message-board/message/all,65853,0.htm GrammaKitty Fri, 27 Apr 2012 00:00:00 GMT last summer I had a lump under my chin.  i had needle biopsy done and finally had to have it removed for diagnosis.  went to the oncologist and had pet scan, blood tests, and bone marrow tests. I do have the disease in my bone marrow.   I have had 8 treatments of Rituxin.  my pet scan in December shows no evidence of disease.  i am scheduled to go back to the dr. in June ---also will have pet scan and blood tests before I go.  Well, I just noticed a hard lump on my collar bone.  I know it was not there before and there is nothing on the other side.  Called my oncologist and the nurse states that there is no need to come in know--just come in for the june appointment.  anyone out there with situation??? http://www.cancercompass.com/message-board/message/all,65675,0.htm crhopewell Wed, 18 Apr 2012 00:00:00 GMT Hi my name is Violet... I live in Miami Florida about 3 months ago I discovered a lump on the left side of my neck... I was so busy with my family, work, and school work that I paid no mind to it. One morning I decided to go to the urgent care center near by. The doctor that examined me told me, that the lump of my neck felt like enlarged lymph nodes. He then said that he did not see any signs of infection as I also told him I have'nt been sick. He told me I should see a specialist urgently, and referred me to an E.N.T. after waiting 2 weeks for my appt date, the day finally came. The ENT examined me then said that he thought it was something muscular, related to my spine....! but since he wasn't 100% sure he ordered two tests, Ultra sound and CT scan. While having the ultra sound the technician called in the Radiology doctor who also came in to perform the exam herself, she told me the doctor was incorrect, and what I ave where abnormal enlarged lymph nodes.. Went for my CT scan and the results read the different sizes of the lymph nodes, and an impression of possible neoplastic lymphadenopathy. Once the ENT received those results, he ordered a biopsy FNA. While in the procedure room I heard the doctor say that there was a suspicious node and he wanted to take samples of it.. that node is located right above my collar bone (left side) I am now awaiting for the biopsy results, and as you may imagine I am terrified. http://www.cancercompass.com/message-board/message/all,65822,0.htm Violet00 Wed, 25 Apr 2012 00:00:00 GMT I just went in for a tonsilectomy on tuesday, they told me they would remove my right tonsil. When i wake up after surgery a nurse tells me they only took half of the tonsil out.  A Dr then tells me that surgery is not the cure for me as they think it is lymphoma. (great) my dad died with lymphoma. The waiting is the worst. i now have to wait two weeks before they will give me my results from the biopsy of the tonsil. How does one cope, I am forever thinking what if it is, what if its not, what am i going to do, how long have i got, I will beat this, will I beat this, I'm sure I will, but am I. I am sending myself crazy. http://www.cancercompass.com/message-board/message/all,65844,0.htm Onebiglump Thu, 26 Apr 2012 00:00:00 GMT Dr now wants excisional biopsy. I don't know if finding atypical cells means I'm more likely to have cancer, but I'm really scared. http://www.cancercompass.com/message-board/message/all,65789,0.htm Ldela Tue, 24 Apr 2012 00:00:00 GMT Has anyone been in remission for around 10 yrs and the lyphoma returned. http://www.cancercompass.com/message-board/message/all,64029,0.htm randyj Sun, 22 Jan 2012 00:00:00 GMT I have seen older postings but would like recent feedback of anyone having problem swallowing and how are you dealing with it. I am getting very frustrated with this problem and the lack of understanding on the medical community. Thank you for your feedback! http://www.cancercompass.com/message-board/message/all,65588,0.htm mspatches Sat, 14 Apr 2012 00:00:00 GMT I have been having terrible night sweats, been extremely nauseous, very week , very tired all the time. sick all the time for two months. I feel so different. waiting to get into my doctor. can anyone help me with knowing if these are lymphoma symptoms? http://www.cancercompass.com/message-board/message/all,65399,0.htm mommy3 Thu, 05 Apr 2012 00:00:00 GMT I'm writing about my 3 year old boy. I've been complaining for the last year and a half about the lumps on both side of his neck. When I first noticed it, it was like the size of pencil top eraser. As the time went by it encreased in size and more popped up. The largest one is about 1 inch in diameter or 2.5 cm and that one is located on the left side of this neck. The others range in size. Some are the size of pea and some are a little bigger than a pea. I kept changing doctors to see if someone would listen to me. THey keep telling me that it's nothing to worry about it just means that he is very healthy and that he will never get sick. I got so many excuses it's not even funny. I laughed and told the doctor  that that was the most funniest excuse I've heard of so far, being that he was always sick since birth. Some of the things I've noticed that there are times out of the blue that he just feels slugish. He just lye in his bed not wanting to move and just sleep all day. Seems like the slugish days are increasing a little. There are times that his skin color would change sometimes he looks very pasty white and there are times that i can swear he had a little bit of yellow hue. ( Just a little)  I don't think the lumps bother him to much. When I touch it I can't tell if he is just irritated by me bothering him or if it hurts him. Is this something I should be concerned about? What could it possibly be? Any help and suggestions would be great..Lost Mother http://www.cancercompass.com/message-board/message/all,11569,0.htm Sadeyesamc Wed, 25 Apr 2007 00:00:00 GMT Hi,i am wondering if anyone can advise whether abnormal leucocytes will be picked up in a urine Cytology test? I am asking this (probably a stupid question) because I am under investigation for a ureteral growth from the uretera into the bladder and I know it is possible to get a lymphoma of the uretera. My consultant has ordered a urine cytology test and I am also waiting on a biopsy next week. a urine test last week picked up high levels of leucoytes in my urine (with no UTI) and I have the standard Lymphoma sweats and fatigue etc. any comments would be appreciatedbest wishesWaylands http://www.cancercompass.com/message-board/message/all,65369,0.htm Waylands Tue, 03 Apr 2012 00:00:00 GMT Hi, my friend has been diagnosed with this extremely rare condition called angiolymphatic carcinoma. I cannot find ANY info online? Must be because it is so rare. Sound to me like it's a cancer. She has had a 3cm tumor on one kidney that has grown to 5cm. And she passes blood. Went in for op last week and then when doctors got the camera in there they decided not to do anything. She was pretty drugged up and doesn't really know why this happened. She goes back to dr on the 30th April. Just wondered if anyone knows much about it. Thanks. http://www.cancercompass.com/message-board/message/all,65332,0.htm AnjaDaz Sun, 01 Apr 2012 00:00:00 GMT My mom just very recently got diagnoses with apparently a very rare cancer. Her oncologist said in his 22 years he has never seen it and that the Cleveland clinic has seen very few.She went into the hospital due to blood in the urine. They found a solid mass in her kidney so they took her kidney out. The tumor was only 3 cm but it was in a regional lymphnode. All the other scans came back clean. The pathology results started coming in and at first they diagnosed her with renal cell cancer. While we were at her appointment the doctor got a call from the Mayo clinic and they said it was Angilymphoma Carcinoma. I can not find any information on the internet so I would appreciate any knowledge or resources. http://www.cancercompass.com/message-board/message/all,50384,0.htm tosubfox Wed, 18 Aug 2010 00:00:00 GMT A good friend of mine was just dx cns lymphoma-brain. She has lesions near her hypothalamus, apparently bilateral. Just biopsied yesterday so I don't know the stage/grade of tumor yet. Hoping to find out how people are being treated and how the treatments are working, side effects, etc. I'm over on the brain cancer board, battling GBM. Imagine. we worked side by side in the same office. We both have a form of brain cancer.Hang in there all. http://www.cancercompass.com/message-board/message/all,29872,0.htm mbg53 Sat, 01 Nov 2008 00:00:00 GMT Since Testicular Lymphoma is a rare cancer, I was wondering if anyone out there has or is going through this.  Please let me know.  http://www.cancercompass.com/message-board/message/all,30854,0.htm onenuttogo Tue, 02 Dec 2008 00:00:00 GMT Hello, my name is Cyndi and I was told in Sept. 1999 that I have Lymphoma. I'm looking for someone who has been thru some of the new treatments they have out. One of the treatments I am interested in is Zevalin. Sometimes I feel like no one is out there. I have follicular small cleaved cell lymphoma, stage four. Just looking for someone to talk to that has the same type of cancer. http://www.cancercompass.com/message-board/message/all,460,0.htm cyndi_k Wed, 24 Jul 2002 00:00:00 GMT