Our online cancer forum offers helpful information and support for lymphoma patients and their loved ones. Join CancerCompass.com to compare notes and research treatment methods. http://www.cancercompass.com/message-board/cancers/lymphoma/1,0,119,57.htm Sat, 07 Nov 2009 00:00:00 GMT Sat, 07 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Here is what I do, NOTE: Under active thyroid is implicated in many cancers and heart problems, etc. Iodine, once known as Nature's miracle, is truly fantastic for many cancers. It even gets rid of age or liver spots. Go to www.iodine4health.com As to the reason for my optimism? Here is what I have tried. The oncologist is not commenting. The TCM doctor is very pleased w/ my rapid progress. Here is my profile & info: Diagnosed with fNHL b-cell lymphoma, stage III, indolent, no organ involvement, August 2009. Declined all invasive diagnostic or treatment procedures. Instead, I radically changed diet, added key supplements, began to use Lugol's 5%  iodine. I have had 3 sessions of immune boosting acupuncture. All nine nodes regardless of size have shrunk by 2/3 in less than two months. I also sip a specific detox "anti-cancer" tea morning & nite, plus two mega dose green tea capsules, proven to kill cancer cells, also twice a day, + I eat NO sugar, NO bread, NO dairy. I drink green organic smoothies from a whole food blender. I use a rebounder to assist white cells to get out of the nodes and circulate to kill cancer cells. My complexion is now glowing instead of pale. I feel better than I have in years. I am 65 & have energy to spare. http://www.cancercompass.com/message-board/message/all,41127,0.htm MiaNony Thu, 29 Oct 2009 00:00:00 GMT I have undergone  chemo followed by surgery for lymphoma in 2004. but the lymphoma was back in 2006.   My physical exam was not good, I was getting weaker with time & even the meds given by the doc did no improvement. I thought perhaps there's other ways. That's when I tried alternative meds.     I read about quercetin is good against cancer & started with 1000 grams per day.     The site http://www.annieappleseedproject.org/homeopathy1.html m a homeopathic preparation by Lux Health Resources. I also heard some people took it so I added this  remedy. The homeopathic is available from                  http://www.luxhealthresources.net/ I begun to improve using the homeopathic above.  This remedy is stronger than the quercetin because when I stop taking it, the healing does not go on.   The improvement has gone so far I have my strength back and I can walk & even exercise. I was considered terminal (dying)  by my doctor. He said I have 6 months to a year to live.   But I continue to survive for a year and a 9 months now and I do not have much of the pains and weakness of lymphoma. I still have the cancer, but I am alive and can enjoy my life with family and people I love. My life has been changed and I am a cancer survivor because of alternative medicine. http://www.cancercompass.com/message-board/message/all,41105,0.htm rodney9 Wed, 28 Oct 2009 00:00:00 GMT  If anyone can guide me on this, I have an 80 year old Mother that is dealing with cancer, she is in remission now, but in May had came down with Shingles, she has had two shots in her spine to help with it,She has been prescribed pill's, but she still has no relief from them, what else can she do?I am at a loss, the pain management Dr. was my last idea for her.I have also heard conflicting statements concerning the vaccine for Shingles, since she has it now, it will offer her no protection in the future.Anyone else dealt with this awful stuff? Any ideas I can do for her now?Thank you! http://www.cancercompass.com/message-board/message/all,40847,0.htm Missing_Dad Tue, 20 Oct 2009 00:00:00 GMT Hello all!I have been having this burning sensation in my armpits for like two weeks maybe a little longer. I have these hot flashes sometimes. I have mid back pain on my left side. I have tingling in my right foot as well as my right fingers.I cannot feel any lumps anywhere.Could this be lymphoma?  http://www.cancercompass.com/message-board/message/all,40724,0.htm Orlinda73 Thu, 15 Oct 2009 00:00:00 GMT I have a lump in the back of my neck on left side, not visible but palpable, along with that I have an new onset of wrist joint pain in left hand and joint pain in left ankle. I also have numbness type tingling in left arm that seems to come and go, sometimes it feels like I have a rubber band around it somewhere. I often feel like I have a fever even though I do not, just a general warm feeling in my head and neck. The doctor put me on an antibiotic 5 days ago but it has made no difference and I'm getting very nervous. I have experienced light sweating a night a handful of times but nothing alarming and lately I seem to have heart palpitations more frequently, Please offer me some advice and share any similar stories. http://www.cancercompass.com/message-board/message/all,40596,0.htm momto3boys Mon, 12 Oct 2009 00:00:00 GMT My husband's large cell lymphoma began in his r. humerus and is also in his l. hip and femur and bone marrow.  It is not in the lymph nodes, which is unusual.  Has anyone had a similar situation?  I understand the bones are part of the lymphatic family and only 1-3% of lymphomas begin in the bone.  He has had his first chemo tx and doing well -- no nausea.  But he has pain in his center spine where there was no evidence of lymphoma and it did not begin until after his chemo treatment.  We woud appreciate any information from someone who has had a similar case.  Thanks.  http://www.cancercompass.com/message-board/message/all,40560,0.htm chloejoy Sat, 10 Oct 2009 00:00:00 GMT I received 6 R-CHOP for diffuse large B cell, extranodal lymphoma (not in lymph nodes).  The largest tumors were in my breasts and a small one on my kidney, also had  "slow growing" lymphoma in bone marrow.  PET scan 6 weeks after end of treatment showed breasts were in remission, kidney tumor was smaller, but "hot spot" on my liver.  Now, 3 months after last chemo, my immunoglobulins are low.  My oncologist told me it was permanent damage to my B cells from the lymphoma.  Any one else have lymphoma caused immunoglobulin defeciency?I've also been plagued by the fibrosis that replaced the lymphoma in my breasts, that is also in my axilla, and causes alot of pain when I use my arm.  Its difficult to tell new tumors from the fibrosis, except biopsy.  Any one have this problem?   Thanks.  Lee  http://www.cancercompass.com/message-board/message/all,40338,0.htm rosa6 Fri, 02 Oct 2009 00:00:00 GMT Hi,Recently my husband felt a knot / lump on left side of neck, 2 fingers below jaw line. This knot / lump is not visible, but can be felt when you press with fingers. Normally it is not painful, but pains when pressed hard. We suspected that it might be twisted of muscles due to bad sleeping position / pillow, however its been 3 days and the lump / knot is still there even after applying muscle relaxing ointment and using Heat Pack.This is the first time he is experiencing this, he's almost 30 yrs.I'm very worried... PLEASE HELP!!Thanks. http://www.cancercompass.com/message-board/message/all,40103,0.htm Lakeway_Drive Thu, 24 Sep 2009 00:00:00 GMT Very happy with St. Francis in Peoria, Illinois and my sister's doctor. They will start chemo today. In one week Dr. said my sister would have been in renal failure and dead shortly thereafter. She has stage 4 B-cell.I was pushing for her to go to Univ. of Chicago but I have to say we are all happy with St. Franic from my visist yesterday. They immed. admitted her, completed all important testing with biopsy of abd. tumor and marrow and diagnosed all within 2 days.  Haven't heard anything back on my appt. request online from UofC. I informed them she was in the hospital but was told by the Lymphoma Soceity that UofC could act in a consultant type basis in the form of a chart review until she could be physically evaluated by them. I hope they're not getting back because I didn't mark her insurance type. Yes, she has it and I noted this but I didn't put what type it was and I stated I was her sister. Still awaiting their response. 90% cure rate from what the doctor said for my sister. Chemo will be starting today. I am so happy this is still hope and an excellent chance for her to have this even cured http://www.cancercompass.com/message-board/message/all,40058,0.htm irishkick Wed, 23 Sep 2009 00:00:00 GMT my husband  had his firat biopsy come back as poorly differentiated adenocarcinoma.  the drs were thinking lymphoma based on clinical signs and scans.  but now they want to treat with a mixed chemo.  has anyone ever had a situation like this? http://www.cancercompass.com/message-board/message/all,40071,0.htm scubadiver Wed, 23 Sep 2009 00:00:00 GMT My sister is getting a biopsy today in Peoria, Illinois. I was told last night they think she has Lymphoma from CT scan last night. What is the best hospital to treat this? Any help would be appreciated.  Thanks,  Sheryl http://www.cancercompass.com/message-board/message/all,40010,0.htm irishkick Mon, 21 Sep 2009 00:00:00 GMT Please list the symptoms you had or have with lymphnoma.I have so many symptoms.  I will get my blood work results back thursday. I am just curious if my symptoms are the same as anyone elses. I have many of the symptoms but I don't have the night sweats is this common?  also has anyone had pain in the lymphnodes.  http://www.cancercompass.com/message-board/message/all,39816,0.htm SweetT Sun, 13 Sep 2009 00:00:00 GMT I have been having some stomach issues for about 3 years now. Stomach pain, fullness, constipation. Last year I had to be rushed to the hospital for these symptoms and vomitting. They took my apendix out and I thought that would be the end to all the pain and problems. about 3 months ago the stomach pains, constipation came back,but with many other symptoms. extreme itching on my palms, armpits, neck. swollen lympnodes left side of neck, under jaw and under ear. pain in neck. Headaches, pressure in my left eye having problems seeing, tired all the time. Oh and last but not least numbness in my left arm that come and goeshas anyone had these symptoms and what do I tell the doctor. I have been to the doctor about 10 times. in the past couple months and they don't seem concerned. I have been given cortisone shots now for the itching. which only help stop the itch for about a week. they seem to think that the lymphnodes are swollen due to the rash. but I have so many other symptoms.Please let me know what you think.  http://www.cancercompass.com/message-board/message/all,39641,0.htm SweetT Sun, 06 Sep 2009 00:00:00 GMT  have been having some stomach issues for about 3 years now. Stomach pain, fullness, constipation. Last year I had to be rushed to the hospital for these symptoms and vomitting. They took my apendix out and I thought that would be the end to all the pain and problems. about 3 months ago the stomach pains, constipation came back,but with many other symptoms. extreme itching on my palms, armpits, neck. swollen lympnodes left side of neck, under jaw and under ear. pain in neck. Headaches, pressure in my left eye having problems seeing, tired all the time. Oh and last but not least numbness in my left arm that come and goes has anyone had these symptoms and what do I tell the doctor. I have been to the doctor about 10 times. in the past couple months and they don't seem concerned. I have been given cortisone shots now for the itching. which only help stop the itch for about a week. they seem to think that the lymphnodes are swollen due to the rash. but I have so many other symptoms.Please let me know what you think. http://www.cancercompass.com/message-board/message/all,39642,0.htm SweetT Sun, 06 Sep 2009 00:00:00 GMT I went to the doctor yesterday because I had been in an accident a week before and wanted to make sure my neck and back were okay. I had found a knot on the left side of my neck and I wanted that checked. While feeling my neck, my doctor found a lump I hadn't and said it was a lymph node. She then found the one I had already noticed and said it was a lymph node as well. Having no idea what that meant or could mean, I said nothing. She checked me for infection or signs of virus, but found none. She said she would put me on antibiotics for a week and then reevaluate in 10 days. I began reading on lymph nodes at home and realized that I have some symptoms that make this more worrisome. I have dealt with fatigue for a year now. The type that keeps me in bed for over 12 hours a day. The nodes that are swollen are firm and not tender to touch. One is located just above my clavicle and the other at the base of my neck, both on the left side. Should I push for a test of some sort, or wait to see if the antibiotics work? I am feeling stressed, but trying to keep my paranoia in check. Thanks:) http://www.cancercompass.com/message-board/message/all,39547,0.htm BusyBee Thu, 03 Sep 2009 00:00:00 GMT I have been being looked at for lyphoma. I have lumps all in my neck. The most recent lumps have formed in my armpit. Unlike the ones in my neck these ones are tender to the touch. Has anyone else experienced that?? http://www.cancercompass.com/message-board/message/all,39347,0.htm pezzie1921 Wed, 26 Aug 2009 00:00:00 GMT For over 6 months I have been in to see my doctor complaining how tired I was all the time and how I just didn't feel like myself. He ran cbc said all came back normal and to come back if things did not improve. Every time I went to see him the same thing. I did have an elevated while blood count on one of my visits but the doc said it was probably just the common cold. Well in the past 2 months things had gotten progressively worse. I went to see him and informed him of extreme weightloss, fatigue, heachaches,  and night sweats, almost like I had the flu or mono (which I had mono when I was in college a few years ago). He ran the same old blood work, but this time he noticed my a lymph node in my neck was larger than it was supposed to be. He ran so many tests the lab technician had to laugh and get out her book of codes and since they were rarely run. The results showed my lymph node count was high. But my TB test was normal, it was not mono, all the random tests he ran even for cat-scratch disease was negative. So the doc referred me to my ENT, hoping for a biopsy concerned it may be lymphoma due to my symptoms and how long I have been sick.My ENT was a complete JERK! He is overloaded with patients and felt I shouldn't be in his office for a swollen lymph node (at this time I had had it for over a month). He ran more blood work testing for lyme disease and did an IGG syrum test to rule out a virus. All looked normal. Not lyme disease no sign of an infection or virus. On my next visit to my physician, I explained how the ENT felt it wasn't his problem and did not even suggest a biopsy and when I mentiond it to him he seemed like I was nuts. The physician told me to keep my next appt and to tell him I was referred to him as the paperwork said for a lymph node biopsy.So at my next visit my ENT completely treated me like I was nothing but trash! He started attacking me on why I was there, that this was not an ENT problem, that I probably just had a common cold. I was frustrated. At 22-years-old, I brought my mother for support, she told the doctor that we were referred to him like the physician had mentioned to him for a reason that her daughter is not healthy, that she sleeps all day can barely function at a normal level of life and is getting worse. The ENT refelt my lymph nodes and said "well yes, the right side here is much larger than it should be." I burst into tears two months since the docs discovered this node and still no answers?! He recommended a biopsy, but since there are only 2 surgery centers in Erie, Pa. he said it could take a month to get into surger, let alone another week to even get the surgery scheduled!If anyone knows how this feels and has any ideas how to speed things up or improve my care please let me know. My physician is almost convinced it is lymphoma, he just needs to biopsy to officially diagnos it. This has been progressing for over 6 months. I don't think I can do another month of waiting let alone another day of feeling as worn out as I do. My body is completely exhausted. I just need to know if this is a normal doctor response to this or if maybe I should think of switching my care? Also any ideas how to get my biopsy sooner? Another month until they can even get in there to look at this node is rediculous after it being swollen for over 2 months!I'm frustrated and losing hope here. My physician keeps telling me to hang in here that he will have answers for me soon enough, but is a month and a half really as soon as I should have them? http://www.cancercompass.com/message-board/message/all,39227,0.htm gby1987 Fri, 21 Aug 2009 00:00:00 GMT Does anyone out there have or heard of Angioimmunoblastic Lymphoma? My husband was diagnosed in June. He has been getting chemo treatments, his last treatment is on Thurs and then he goes for a PET scan to determine if he should have a bone marrow transplant. I am very scared and nervous for him, I hear this is extremely dangerous, however the outcome could put my husband into full remission.  Any info would be greatly appreciated.... http://www.cancercompass.com/message-board/message/all,39157,0.htm Catf717 Wed, 19 Aug 2009 00:00:00 GMT I have had 3 lumps along my neck for about 5 months. 3 more showed up about 2 months ago. The docs did a cbc and said the only cancer they cannot rule out is lymphoma. They did not give me an exact answer and told me to find a primary care giver. Now I have noticed a yellowish clear fluid leaking from an unknown source along my occipital lobe underneath my hair. Has anyone had this happen? I cannot find anything on it on the internet. Please help. Worried in bakersfield http://www.cancercompass.com/message-board/message/all,39098,0.htm pezzie1921 Mon, 17 Aug 2009 00:00:00 GMT I was diagnosed with Follicular Lymphoma Cancer 2006, removal of lympnote in neck and under arm, After receiving chemo treatment 2006 dec. had bone marrow transplant 2008 may, my concern is Ievery time I feel a lump,  I keep thinking is it back, I panicI have Dr appointment now every 6 months for follow up Pet scanany suggestions  http://www.cancercompass.com/message-board/message/all,39003,0.htm nco0502 Thu, 13 Aug 2009 00:00:00 GMT hallo I am from italy my husband aged 37 was diagnosed with subcutaneous panniculitislike t cell lymphoma alfa beta cd8+ last february.He underwent 6 cycles of promace cytabom and ended mid july.The first pet exam (made late may) was ok, it seemed he reacted good to chemio. He will make another one in August to see if he is free from it.Doctors say prognosis is good for this kind of lymphoma, is there anyone who can say something to me? A doctor or someone diagnosed with the same disease?  thank you and pls apologise my Englishpatrizia  http://www.cancercompass.com/message-board/message/all,38563,0.htm boss72 Thu, 30 Jul 2009 00:00:00 GMT I just finished treatment for a recurrence of OvCa.  There is no sign of more OvCa in my pelvis/abdomen and my CA125 is low.  But, during tx, my mediastinal lymph nodes got enlarged (during tx 4-6).  A PET scan indicated "somewhat suspicious" activity.  My gyn onc said it could be the ovca or secondary cancer but for now we will "watch and wait".  Another scan will be repeated in 2 mths.  I am so worried but don't know what worries me most--my OvCa is resistant to my chemo OR it's another type of cancer.  Each search I do about  mediastinal nodes, points in the direction of lymphoma.  I currently don't have any other signs of this, except for night sweating, but my house is warm and I've had it for years.  I have also  had 2 dizzy spells in the past 2 mths, but have also had them prior to my cancer dx, so don't think the node stuff and dizziness are related.   If you had mediastinal  node involvement, how was your cancer found and diagnosed? I am so glad I am going back to work to take my mind off of thinking about this! Cindi http://www.cancercompass.com/message-board/message/all,38506,0.htm cindim Tue, 28 Jul 2009 00:00:00 GMT Is there anyone out there who has had primary CNS non hodgkins lymphoma?  My husband dx 4/2006 in complete remission now.  Am looking for survivors to compare notes about treatments.  Also any survivors of primary CNS who were in Vietnam?Thank you. http://www.cancercompass.com/message-board/message/all,38343,0.htm daybyday Wed, 22 Jul 2009 00:00:00 GMT HelloI had my first treatment of Ritxian today. I'm a little tired but I have not had any side effects as of yet. If anyone has had this treatment can you tell me how you are doing and if you had any side effects from the Ritixan. I was diaignoised last Sept. My blood work os not bad my systoms where getting worse. I had terrible pain in my legs and arms,weakness I could not get out of bed on most days,black and blue marks blurred eye sight and headaches. I had no quality of life at all. I would love to hear from anyone who is going through this. Thank you, Louise C http://www.cancercompass.com/message-board/message/all,38107,0.htm cjameonel Thu, 16 Jul 2009 00:00:00 GMT Hi,My husband had a neuroendocrine carcinoma tumor in the stomach.  The doctors removed 1/3 of his espougas and 2/3 of his stomach.  He was okay after the surgery but the cancer came back.  He now has it in the lymph nodes in his chest. Does anyone know anything about this neuroendocrine carcinoma tumor and its effects.  I can't seem to find much online. http://www.cancercompass.com/message-board/message/all,38058,0.htm kjh414 Tue, 14 Jul 2009 00:00:00 GMT