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Mantle Cell Lymphoma

Being diagnosed with Mantle Cell Lymphoma doesn’t mean you have to be alone in your struggle. Our lymphoma forum lets you connect online with fellow cancer patients and/or their loved ones to discuss treatments, compare stories, and locate additional information and resources.

Mantle Cell Lymphoma Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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About to start stem cell trans...
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Hello everyone My husband (53 years old - diagnosed January this year with MCL stage IV-) has completed 6 rounds of R-CHOP, he has had his cells harvested,...
007/03/08 Message Rating
Discussion started Caregiver
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MD Anderson/Hackensack Clinica...
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My mother was diagnosed with Stage 4 MCL a few months ago, she is 60 and otherwise healthy. She just started treatment in a hyper-CVAD trial at Hackensack UMC -...
007/02/08 Message Rating
Discussion started Caregiver
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Mother diagnosed with MCL
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Hello,My mother was diagnosed with MCL two years ago and her condition has decreased drastically. She is 75 years of age and according to her hematologist in Sw...
006/23/08 Message Rating
Discussion started Caregiver
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Side Effects
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My husband (age 68) is in his 3rd relapse and is trying yet another clinical trial.  This one is Velcade, Bendamustine and Retuxim twice weekly for 2 ...
006/22/08 Message Rating
Discussion started Caregiver
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older age and MCL
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My grandmother was diagnosed today with MCL...I immediately panicked and began searching on Google everything i could and after reading all that i became extrem...
106/10/08 Message Rating
Discussion started Patient
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I was diagnosed with Mantel Ce...
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Hello to all,I was diagnosed with Mantel Cell Lymphoma Stage 3b possibly 4. I am going in next week for my Bone Marrow Biopsy along with the Lumbar Pu...
106/05/08 Message Rating
Discussion started Caregiver
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low platelets
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My dad is has been delayed twice going in for his 3rd RICE treatment. His platelets are too low. He's supposed to have this 3rd RICE treatment before h...
006/04/08 Message Rating
Discussion started Caregiver
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Zevalin
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My family is wondering if anyone has any experience with Zevalin in treating MCL? And/or experience navigating the insurance/Medicare issues involved with Zeva...
006/02/08 Message Rating
Discussion started Caregiver
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what do we change?
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My sister was just diagnosed with mantel cell lymphoma... i was wondering if anyone knows what she should be eating to keep her immune system up so she is able ...
505/23/08 Message Rating
Discussion started Caregiver
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A BAD DAY...
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My sister just got diagnosed with mantel cell lymphoma on Wednesday... All the information that I've found on the internet so far is quiet negative... I just wa...
305/23/08 Message Rating
Discussion started Survivor
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Velcade
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I have had a recurrance after 6 years and took Velcade.  I am in remission after 11 treatments.  I have a lot of side effects such as fatigue, tinnitu...
205/18/08 Message Rating
Discussion started Caregiver
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Terrified!
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HelloMy dad is 53 and found out he has MCL 5 days ago. He developed a grape like lump on his tonsils.  (we all thought it was a cyst, until he got the...
405/06/08 Message Rating
Discussion started Caregiver
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stem cell transplant
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My sister is going in for round 2 of chemo and is scheduled to have a stem cell transplant if the MCL goes into remission.  Does anyone have information ab...
504/17/08 Message Rating
Discussion started Caregiver
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newly diagnosed and very worri...
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My sister was diagnosed with Mantle Cell Lymphoma about a week ago.  She is going through lots of scans now..pet scan, etc. and is supposed to start chemo ...
903/11/08 Message Rating
Discussion started Caregiver
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need more info on Mantle Cell
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My husband was diagnosed in September 2007 through the fact that a scan showed an enlarged spleen.  He was not feeling ill at all and we were enjoying life...
412/21/07 Message Rating
Discussion started Caregiver
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Mantle cell lymphoma- after re...
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My best friend was diagnosed with MCL 3 yrs. ago.  He was diagnosed as a result of a colonoscopy which initially was thought to have indicated polyposis, b...
112/11/07 Message Rating
Discussion started Patient
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German drug for mantle cell
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Hi A friend of mine has mantle cell lymphoma. He has been through many different regimens and nothing seems to be working. he asked me if I knew about a new ger...
111/23/07 Message Rating
Discussion started Caregiver
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MCL stage IV dx
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Hello~My Mother is a 64 y/o woman diagnosed with Mantle Cell Lymphoma. She also tested positive for "5%" in her bone marrow this week a...
611/02/07 Message Rating
Discussion started Caregiver
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REMISSION
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Just want everyone to know that my 78 yo Father is currently in remission after being dxd with mcl in FEB. He underwent 6 rounds of r-chop chemo. Scans have bee...
110/09/07 Message Rating
Discussion started Patient
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brain therapy
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does everyone undergo  brain therapy as a standard treatment of mantle cell???
109/13/07 Message Rating
Discussion started Caregiver
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STEM CELL TRANSPLANT FOR MCL?
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My husband (48) was diagnosed with MCL in January 2007, he went in for a routine physical, Dr found his spleen to be enlarged, ordered blood work and Bone ...
506/18/07 Message Rating
Discussion started Caregiver
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remission
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My wife was diagnosed with MCL in Jan 05 (stage I) was treated with R HyperCVAD for 8 rounds and then radiation.  She has been in remission since September...
104/24/07 Message Rating
Discussion started Caregiver
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MCL concerns
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My husband was diagnosed with MCL in January 2007, following a routine check-up, his Dr felt his spleen was enlarged, ordered blood work to determine the c...
704/17/07 Message Rating
Discussion started Patient
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Just diagnosed
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Hello everyone,I've just been diagnosed as of yesterday with Mantle Cell Lymphoma, blastoid variant.  I've already set up an appt at MD Anderson in...
403/13/07 Message Rating
Discussion started Caregiver
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Information about treating sym...
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 My boyfriend, Allen, a 54 yo, has recently been diagnosed with mantle cell.  This nightmare started in September of last year, when he was hospi...
302/28/07 Message Rating
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Latest Messages Show More
TREATMENTS Posted by dheal70 on 07/04 05:05:18 PM
RE: Great News!!!! Posted by herenow on 07/04 04:53:20 PM
RE: Great News!!!! Posted by Arnold on 07/04 04:41:22 PM
RE: LOW FIBRE LOW RESIDUE Posted by Sharon S. on 07/04 04:35:25 PM
RE: Great News!!!! Posted by herenow on 07/04 04:34:21 PM
RE: who had experience on Posted by wisconsincancerwife on 07/04 04:24:51 PM
RE: no appetite from chem Posted by Sharon S. on 07/04 04:19:25 PM
RE: Brain Stem Glioma Posted by jdievend on 07/04 04:14:48 PM
RE: Great News!!!! Posted by Arnold on 07/04 04:12:44 PM
RE: DIPG Con Job Posted by jdievend on 07/04 04:11:43 PM
Radiation effects Posted by cal1519 on 07/04 04:02:53 PM
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