Our cancer forum at CancerCompass.com offers helpful resources, information, and support. Join now to discuss treatment methods, research and compare stories, and find valuable feedback. http://www.cancercompass.com/message-board/cancers/lymphoma/non-hodgkins/1,0,119,57,58.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi, I'm a 37 yo with stage 3 diffuse b-cell non-hodgkins lymphoma.  I just got the results of my first CT/PET scan since being declared "in remission," 3 months ago and I now have 2 lymph nodes that are 2cm in size.  My oncologist is recommending a bone marrow transplant as the 8 rounds of R-CHOP did not kill everything.  Can someone please tell me what to expect?  I'm one of those type A personalities that doesn't like surprises and would rather know the worst case scenario then not.  I'm also concerned about being in the hospital.  Any tips would be great as my husband and I want to prepare for this as much as we can.   http://www.cancercompass.com/message-board/message/all,41547,0.htm jpeileenjack Mon, 16 Nov 2009 00:00:00 GMT Here is what I do, NOTE: Under active thyroid is implicated in many cancers and heart problems, etc. Iodine, once known as Nature's miracle, is truly fantastic for many cancers. It even gets rid of age or liver spots. Go to www.iodine4health.com As to the reason for my optimism? Here is what I have tried. The oncologist is not commenting. The TCM doctor is very pleased w/ my rapid progress. Here is my profile & info: Diagnosed with fNHL b-cell lymphoma, stage III, indolent, no organ involvement, August 2009. Declined all invasive diagnostic or treatment procedures. Instead, I radically changed diet, added key supplements, began to use Lugol's 5%  iodine. I have had 3 sessions of immune boosting acupuncture. All nine nodes regardless of size have shrunk by 2/3 in less than two months. I also sip a specific detox "anti-cancer" tea morning & nite, plus two mega dose green tea capsules, proven to kill cancer cells, also twice a day, + I eat NO sugar, NO bread, NO dairy. I drink green organic smoothies from a whole food blender. I use a rebounder to assist white cells to get out of the nodes and circulate to kill cancer cells. My complexion is now glowing instead of pale. I feel better than I have in years. I am 65 & have energy to spare. http://www.cancercompass.com/message-board/message/all,41132,0.htm MiaNony Thu, 29 Oct 2009 00:00:00 GMT My husband's large cell lymphomia is in the bone.  When the grade is aggressive,just how aggressive is it -- how rapidly does it spread as a rule of thumb, if there is one.  He is having two new areas of pain not in the areas of where lymphoma was found 6 wks ago.  Could it be moving this fast?  He is to have another MRI this Friday.  something is impinging on nerves in his neck and causing severe pain in his l. shoulder and now down the arm.  http://www.cancercompass.com/message-board/message/all,40877,0.htm chloejoy Tue, 20 Oct 2009 00:00:00 GMT My husband's large cell lymphomia is in the bone.  When the grade is aggressive,just how aggressive is it -- how rapidly does it spread as a rule of thumb, if there is one.  He is having two new areas of pain not in the areas of where lymphoma was found 6 wks ago.  Could it be moving this fast?  He is to have another MRI this Friday.  something is impinging on nerves in his neck and causing severe pain in his l. shoulder and now down the arm.  http://www.cancercompass.com/message-board/message/all,40879,0.htm chloejoy Tue, 20 Oct 2009 00:00:00 GMT My father has diffuse large B cell lymphoma which is located on the left side of the face and according to the doctors on involving the trismus and nodes IB and IIB. After three cycles of chemotherapy with CEOP his disease condition was characterized as a stable disease. Since then the doctor suggested Radiation therapy.We started with IMRT of which 10 sessions are over. During this period he has been feeling very weak and seems to have lost all interests in interacting with family and friends. his tongue is all swollen and so is there heavy inflamation of the interior of the mouth. Due this he says that he is unable to speak properly and interact. His food intake too is reduced and he gets very irritable when ever asked to have food which is mostly semisolid or liquid.As a caregiver i am very worried about his condition and i feel very bad for him. i would like my friends here to let me know how to cope with such a situation.thanks,Regards http://www.cancercompass.com/message-board/message/all,40274,0.htm somak Wed, 30 Sep 2009 00:00:00 GMT I have been having some stomach issues for about 3 years now. Stomach pain, fullness, constipation. Last year I had to be rushed to the hospital for these symptoms and vomitting. They took my apendix out and I thought that would be the end to all the pain and problems. about 3 months ago the stomach pains, constipation came back,but with many other symptoms. extreme itching on my palms, armpits, neck. swollen lympnodes left side of neck, under jaw and under ear. pain in neck. Headaches, pressure in my left eye having problems seeing, tired all the time. Oh and last but not least numbness in my left arm that come and goeshas anyone had these symptoms and what do I tell the doctor. I have been to the doctor about 10 times. in the past couple months and they don't seem concerned. I have been given cortisone shots now for the itching. which only help stop the itch for about a week. they seem to think that the lymphnodes are swollen due to the rash. but I have so many other symptoms.Also blood in stools!Please let me know what you think. http://www.cancercompass.com/message-board/message/all,39665,0.htm SweetT Mon, 07 Sep 2009 00:00:00 GMT My husband has been diagnosed with Large Cell Non-Hodgkin's Lymphoma.  He has a soft tissue mass in his lower spine involving the nerve root and a pathologic fracture in the L5 vertebral body.  He has severe acquired disease throughout the lumbar spine.  His PET scan shows hot spots (small) in his lungs, one on a rib and on the sternum.  We thought at first that he had a ruptured disk, degenerative arthritis, etc.   I will find out more tomorrow about the sub-type NHL that he has and whether or not tumor cells are in the bone marrow.  He has had 5 radiation treatments this week and started chemo today.  His cancer is a Stage IVB.    What the heck is the prognosis for this??   His Dr.'s are amazed at his physical condition for 80 years old, although he does suffer from COPD.  They can't use their #1 chemo drug because they fear it is too risky for his heart (because of his age).  His heart is fine right now.  Our Dr.'s are encouraged though that they can help him.   I'm new at this, although he did survive bladder/prostate cancer in 2000 and the Dr.'s are really happy that this is not a reoccurrance of that cancer but a new one.   Lordy, where does it all end??     http://www.cancercompass.com/message-board/message/all,39005,0.htm MizMaggie Thu, 13 Aug 2009 00:00:00 GMT does any one know of Rituximab, gemcitabine and oxaliplatin being used to treat nhl  and if so what was the outcomethank you http://www.cancercompass.com/message-board/message/all,38690,0.htm tra624 Mon, 03 Aug 2009 00:00:00 GMT I was wondering if there is anyone out there with non-hodgkins b-cell malt lymphoma who originally did not have cancer in bone marrow upon dx but after marrow biopsy had it disseminate there.  Mine did exactly that and my doctors of course do not believe that is possible since it is a systemic disease etc. With malt being so rare I think they may be missing something by lumping it in with all other lymphomas.  I am scheduled for a lung biopsy tomorrow to try and dx a weird pattern in my lungs (not likely cancer) and I am scared to have them poke a hole in my lungs  and have the same situation happen.  Any stories would be so very appreciated.  Good luck to all and fight!Carol http://www.cancercompass.com/message-board/message/all,38660,0.htm standup2cancer Sun, 02 Aug 2009 00:00:00 GMT Hi.  I recently went to my primary care doctor and had him review some masses in my body which I had been previously told her cysts.  What were cysts were not identified as swellings of my lymph nodes  I have noticeable areas behind my ear, below my chin, along my neck, on my collarbone, armpit and stomach.  The doctor ordered bloodwork and said everything looked normal.  I was told by another physician that my WBC would not be high if the cancer did not leave the original site.  My lymphocytes were also normal.  Does anyone know if it's possible or normal to have average bloodwork and still be diagnosed with Cancer.  Lately, the swelling in my arm has been transcending down my chest.  I had a chest x-ray today and am scheduled for a biopsy on Wednesday.  The masses starting forming over 5 years ago.   http://www.cancercompass.com/message-board/message/all,38262,0.htm EyeoftheBeholder Mon, 20 Jul 2009 00:00:00 GMT my husband had a bone marrow transplant last Sept. he has stage 4, large B-cell lymphoma. He had a tumor 8 inches big in his abdomen with 2 smaller ones next to it. His protocol was 8 - Rchop which did not work so he only got 4 and then changed dr. to City of Hope and they gave him 2- Rice treatments and radiation once called zevilin. This shrunk the tumor so they could take his own stem cells for the transplant. He had a pet scan in Dec. and cancer still lite up, but small and is due for another in Aug. We are doing raw food, juicing, etc and supplements to build up his immune system. So far so good. He is running, working out, full time job and traveling and looks great and feels good. We pray God is healing him and giving us wisdom to share with others. Feel free to contact us any time. Get on the internet as there is much info about new protocols and research. http://www.cancercompass.com/message-board/message/all,38079,0.htm donnat Tue, 14 Jul 2009 00:00:00 GMT Hello:I was wondering if anybody else on here has gone through a bone marrow transplant and if so, did they think it was worth it. I have heard and watched so many horror stories about it.I was told since I have relapsed 3 times, this is my only chance at survival.  Thank youPaul http://www.cancercompass.com/message-board/message/all,37729,0.htm retasueus Fri, 03 Jul 2009 00:00:00 GMT Hi out there,I was diagnosed with diffuse large B cell lymphoma of a follicular center cell origin.I am in early remission, but understand that the follicular component, which is slow growing, can not be cured. This in mind, I am looking for info on the long term symptoms/side effects of the disease itself.I have itching that is maddening, especially on the scalp. Small bumps raise on the scalp and then start itching. Nothing seems to help it so far. I saw a Dermatologist who prescribed a non steroidal topical ointment, which did no good. He informed me that this was a symptom of this type of lymphoma and would be a fact of life for me.Anyone have any info on this? Please e mail me at --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--put follicular center cell lymphoma in your message heading space.Thanks Davidgiu http://www.cancercompass.com/message-board/message/all,37206,0.htm Davidgiu Tue, 16 Jun 2009 00:00:00 GMT Strange to have my hair finally dropping out.  First my mustache started to look like Hitler, so I shaved it off, then all day at work yesterday my desk was getting littered with head hair.  Sooooo, gonna get the head shaved today so I won't look so strange with clumpy hairFeel pretty good, though.  Next treatment on the 9th, so will not feel so good next week, and I am moving on the 12th-13th so that should be interesting.But God is great and my life, as it is, could not be better. George http://www.cancercompass.com/message-board/message/all,36867,0.htm PoppaSauk Sat, 06 Jun 2009 00:00:00 GMT I found a golf ball size lump in my groin in early January.  At the time I was symptom free.  My doctor referred me to a surgeon right away, who wasted several months and did the biopsy on May 1st.  After several weeks of waiting for the biopsy results I have finally found out I have follicular lymphoma.  I've been chronically tired the last two months, and I have been waking up sweating.  In the past three weeks a second lymph node has grown even larger than the first.  So I am getting anxious about seeing an oncologist soon.  At this point I still don't have an appointment, and my surgeon indicated I can expect to wait a minimum of six more weeks.  At which point I can expect him/her to order tests to find out if I have cancer anywhere else before deciding on treatments.   Is this reasonable?From what I read about follicular lymphoma if it is localized it is curable, but usually it is not localized.  If it is not localized sometimes they take a wait and see approach, other times treat it aggressively.  So if it is not localized their is really no rush.  However at this point there has not even been any testing to find out if it is localized.  What is a reasonable time frame to wait to meet with an oncologist test what stage I am at?  http://www.cancercompass.com/message-board/message/all,36494,0.htm docbillnet Mon, 25 May 2009 00:00:00 GMT I have a tumor in my stomach that is 17 cm long and 9 cm wide. It encompasses my whole right side of my stomach and is wrapped around my hip. I just went through 22 treatment of radiation. They said I need to wait a month to have a catscan to see if it is gone. Done anyone know if that is true as it seems like a lump is forming on my hipline. My tumor grew this large in a month and a half.Thank youPaul http://www.cancercompass.com/message-board/message/all,36135,0.htm retasueus Thu, 14 May 2009 00:00:00 GMT To All,Cell Therapeutics, Inc. (CTI) (Nasdaq and MTAX: CTIC) announced today it received fast track designation from the U.S. Food and Drug Administration (FDA) for pixantrone, a novel anthracenedione, being investigated for the potential treatment of relapsed or refractory indolent non-Hodgkin's lymphoma (NHL). In granting fast track, the FDA noted that "relapsed or refractory indolent NHL is a serious and life threatening condition and is generally considered incurable. Results from a phase I and phase III study in patients with relapsed and/or refractory indolent non-Hodgkin's lymphoma suggest that pixantrone is active in this disease." The FDA also noted that the proposed phase III trial in combination with fludarabine and rituximab "has the potential to demonstrate an effect on a serious or life threatening aspect of this disease."Damon http://www.cancercompass.com/message-board/message/all,35892,0.htm Heritage_Softail Wed, 06 May 2009 00:00:00 GMT I have read so many stories on this board and have now finally decided to tell our story and see if anyone has any thoughts or knowledge on our fight.  My husband was diagnosed with NHL follicular, indolent in Jun 07.  It was above and below the diaghram and in the spleen.  We were told at the time that he was very sick, that this type of NHL is non-curable but with treatment you can go into remission for many years.  So he had 6 treatments of CVP with rituxan.  His NHL responded very well so the onc put him on a maintainence plan of rituxan every 3 months for 2 years.  He had 2 of these treatments then suffered a seizure in Jun 08.  The onc suspected the cancer had gone to the lining of the brain as there was something showing on the MRI however apparently it is highly unusual for this type of NHL to go to the CNS.  There were no cancer cells showing in the LPs until the 4th one.  The onc did not want to start teatments unless they were sure as the treatments are quite radical.  So, he had 20 rounds of whole brain radiation, then an implant of an omaya reservoir for intrathecal chemo.  He had 8 chemo treatments, alternating mexothrethate and ARA.  The last CT scan showing good response in the brain the the splinal fluid continued to be clear of cells, however the scan also showed lesions now on the liver.After a liver biopsy, we received the word yesterday that the systemic lyphoma is back in the liver.  This is less than 2 years from the initial diagnosis.  We're devestated.  The onc wants to now treat with fludarabine, but only after he gets rid of the shingles that has now popped up.  My poor husband is sick of being sick.  He just wants to get his strength back and enjoy the things we used to enjoy.  It's so hard watching someone who is so young (53) become so frail.We're so afraid that we'll treat this liver problem and then the next thing will pop up before we get to do the things we want to do.  How do you stay positive all the time?  I am generally the glass is half full whereas my husband is the glass is half empty.  But I'm heading to the other side....anyone have any thoughts or comments to help?  Thank you! http://www.cancercompass.com/message-board/message/all,35757,0.htm Hopeful_MEL Fri, 01 May 2009 00:00:00 GMT I was diagnosed with this last week, and I met my oncologist yesterday for the first time. I feel a bit encouraged, because he wants to be aggressive and possibly get me in a clinical trial. I'll start chemo soon (R-CHOP), six treatment. He wants to check into a clinical trial where I'd get chemo, then radio immunotherapy, then a stem cell transplant. He said this treatment is having good results, and he thinks I'd be a good candidate.I'm married and have three young children. I desperately want to exceed the typical ten-year survival for this. That's just not long enough. I'd love to hear feedback on this suggestion. Is anyone here in a similar situation?  Thanks. http://www.cancercompass.com/message-board/message/all,35733,0.htm wiggleson Thu, 30 Apr 2009 00:00:00 GMT I have just found out that I have this type of lymphoma. I was told that it is a rare type. I have so many questions and would like to chat with someone who has the same.Thank You http://www.cancercompass.com/message-board/message/all,35525,0.htm boutis Thu, 23 Apr 2009 00:00:00 GMT I have had a persistent on and off sore throat since end of January.  Its one spot on the back right side of my throat. I went to my Dr complained of that and constant fatigue.  She referred me to an ENT.  ENT checked my throat and said he did not see anything he was overly concerned about however put me on Keflex for 2 weeks, and wants to see me again. He did mention to me that he has had patients presenting same symptoms actually have Lymphoma.  The more I read the more I think it may be that.. Am I imagining?I first got sore throat after getting a cold twice, once in December and once in January.  I have lost about 10 pounds in last 2.5 months and I attributed to eliminating beef from my diet.  Constant fatigue - the way I explained it to both doctors is that I cannot recharge my batteries... No matther how much sleep still tired.  Mentally goggy, since so fatigued.  I do NOT have a fever. Before even reading up on this topic on Sunday night, I actually said to my husband...boy do I itch today, and even took 2 benadryl. Ironically on the labs the PCP ordered, shows vitamin D deficiency. Mine was a 23, with 50 being minimum in healthy range. I also had an elevated RBC. 523.  Are those related?  When PCP did an examination, my stomach was also tender on the top below ribs.  PCP did not seem overly concerned about Vitamin D other then to put me on 1000 x 2 a day of Calcium with a recheck in July....Am I imagining things?  Do you think I have reason to be concerned?  I posted under Non Hodgkins as I read up on Hodgkins... and do not seem to have all those symptoms?Any insight is greatly appreciated.  http://www.cancercompass.com/message-board/message/all,35504,0.htm LeanneM Wed, 22 Apr 2009 00:00:00 GMT My dad was just diagnosed with Waldenstrom's anemia and is about to begin treatment on Friday with Rituxan.  I have done some reading and as the treatment gets closer I am starting to have panic attacks over this treatment.  I have read such great things bout this drug, however, the side effects sound horrible and I fear for my Dad.  http://www.cancercompass.com/message-board/message/all,35517,0.htm lisag426 Wed, 22 Apr 2009 00:00:00 GMT I have extra-nodal marginal zone lymphoma which I do not understand this I found out December 24, 2008 I am stage 4 with no symtoms yet I was wondering can anyone tell me why lymph nodes shrink? I had a few in my upper outside arm alos in my breasts and at the bottom of my rib cage. The ones in my arms and breasts have shrunk and I cannot feel them but I can feel the ones at the bottom of the ribs? http://www.cancercompass.com/message-board/message/all,35207,0.htm boutis Sun, 12 Apr 2009 00:00:00 GMT My husband (72 years old) has been in remission for 4-1/2 years. Initially he had CHOP, then Rituxin every 6 months.  Now the cancer has now returned. Needless to say, we are rather depressed by this news. What I am trying to find out is what treatment works the best in this situation and honestly, what are the odds?  The doctor doesn't think that it has transformed, so we are looking at B-cell, indolent.  Thank you. http://www.cancercompass.com/message-board/message/all,34856,0.htm Janiel Thu, 02 Apr 2009 00:00:00 GMT My daughter has non hodkins lymphoma anaplastic large cell I was told by some G P s and nutritonists, that she should completly avoid dairy and meat products.  I was also told that she should go on a product called 4-life transfer factor which is cows colostrom in capsule form. To help the cancer not spread due to chemo and radio etc...Our oncolgists and some other G P s say no way and ignore all this.But both are so firm that they are correct.Who do I believe, Can someone please helpGina http://www.cancercompass.com/message-board/message/all,34373,0.htm truth1 Thu, 19 Mar 2009 00:00:00 GMT