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myelofibrosis
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I've been diagnozed with myelofibrosis 14 (fourteen) years ago! At the time my life expectancy was 3-5 years, top. Well, it seems I outlived some of my doct...
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| 5 | 05/04/07 |
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Velcade in early stages
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Does any know about using velcade early in treatment? My father-in-law has only know about the multiple myeloma for 6 months and the doctors are switching to ve...
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| 6 | 05/02/07 |
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pain in rib cage area
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My mother was diagnosed with Multiple Myelome in August 2004. She has had chemotherapy treatments and steroid treatments where she was pretty much in "remi...
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| 1 | 05/02/07 |
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Glyconutrient treatment helpin...
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I came across this very informative website when browsing on the internet for more information on Multiple Myeloma and Glyconutrients. My mother, aged 67,...
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| 3 | 05/01/07 |
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Life after Treatment
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I have just recently had a stem cell transplant done at Cedar Sinai Hospital in Beverly Hills, California. It was a very unique experience for my entire family....
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| 1 | 04/30/07 |
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splenectomy
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Did anyone on the list had splenectomy?
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| 0 | 04/28/07 |
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myelofibrosis
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I am trying to reach the myelofibrosis board discussion. Is this the right venue?
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| 1 | 04/28/07 |
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A more gentle approach
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Hi All,
We have now had the same advice from the “Top Man” (he does 70 of BMTs a year), tell us that the best chance for a cure for my partner is a BMT! Howeve...
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| 4 | 04/25/07 |
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mgus
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hi i am 74 yrs old...i have mgus...i go every 6 months for blood work. today my dr. told me my mgus is going up, not to worry. it has a long way to go...but i s...
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| 4 | 04/23/07 |
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confused about mgus
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I was recently diagnosed with mgus following several botts of "Flu's" which seem to last longer each time. the doctor said he was just taking the ...
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| 4 | 04/17/07 |
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Mother, Grandmother have MM an...
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Does anyone have any good sources to find information on the causes that contribute to Multiple Myeloma? My grandmother was recently diagnosed with the di...
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| 2 | 04/15/07 |
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Auto Stem-cell Transplant
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Hi,I haven't written in over a year. My husband, Bob has MM and had a stem-cell transplant the 30th of Aug...was in the hospital for nearly 6 weeks so...
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| 0 | 04/12/07 |
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Remission
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L have mutiple myeloma. They have put me in remission and I am doing great
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| 4 | 04/07/07 |
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JAK2
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Hi All
My Partner went for his JAK2 test yesterday so I have been looking for info on this.
Thankfully we have a few medics in our family; they have been fo...
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| 0 | 04/05/07 |
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What to expect
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My husband was diagnosed with agressive Multiple Myeloma in Feb 06. He was apparently in an advanced state when he was diagnosed. He had the VAD cou...
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| 5 | 04/05/07 |
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How and Where to get Revlimid ...
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Hi, My father has multiple myeloma. The doctors have tried alot of treatments but they have not worked. I have heard alot of good things about ...
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| 3 | 03/31/07 |
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Help: Rev Dexta Side Effects
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I have started Revemide and Dexta treatment after my MM relapsed. I am using few other medicines for maitenance. I am facing some side effects like loss of appe...
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| 0 | 03/31/07 |
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Good news
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I received about the first good news from my dr. Wednesday! He told me I was in partial remission! I was 35% better than when we started treatment 6 months ago....
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| 7 | 03/30/07 |
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MGUS
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Hi, I'm a 49 yr old woman who was just diagnosed with MGUS less than a week ago. I do have other health issues that led to this diagnosis through bone...
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| 1 | 03/27/07 |
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34yr Woman with MGUS
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Hello,I was diagnosed with MGUS in 2000 and at the time wasn't given much information on the condition - so i didn't worry about it too much. I wa...
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| 3 | 03/24/07 |
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What to Expect
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Hello....My dear mother-in-law (age 74) was diagnosed with MM 16 months ago. she has gone through chemo, blood transfusions and Velcade treatment. S...
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| 4 | 03/24/07 |
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Refusal of treatment
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My mother has been diagnosed with multiple myeloma. she is refusing treatment (chemo). Has anyone been in a similar situation? please advise.&...
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| 9 | 03/20/07 |
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Velcade
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Hello everyone, my name is Ana, I am in my mid 50's and a native New Yorker of Cuban descent and I am a college grad.I have had M.M. for about 16/17 ye...
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| 10 | 03/11/07 |
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Broken Bones
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Can anyone point me in the direction to get help and advice about the problems of broken bones. My husband was diagnosed with MM 15 months ago, he has had...
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| 3 | 03/09/07 |
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need advice
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my mum has had mutiple myeloma for 2 years now. She has undergone a stem cell transplant but after 7 months they told her it was not successful. She...
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| 3 | 03/06/07 |
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