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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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my Mother Passed Away
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Multiple Myeloma sucks! Plain and simple. The doctors told my mom that there is no cure for her cancer but that they can treat it... just like diabetes they s...
1304/22/05 Message Rating
Discussion started Caregiver
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Pain With This Disease
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Hi, Can anyone who suffers from this disease tell me what a typical day is like? I have heard that this is the most painful of all cancers to have. Just want...
504/11/05 Message Rating
Discussion started Patient
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Myelofibrosis
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Am looking to speek to anyone who has myelofibrosis. Please contact me?
18904/05/05 Rated by 3 members
Discussion started Patient
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What Are Really The Survivor T...
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My husband was diagnosed with a solitary plasmacytoma in 2003. After undergoing radiation treatment things were going pretty well until January of 2005 when, af...
303/28/05 Message Rating
Discussion started Patient
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Severe Headache and Velcade
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I have just started having Velcade and after the third treatment ended up with a terrible headache which lasted 5 days. I'd appreciate talking to anyone else w...
003/21/05 Message Rating
Discussion started Caregiver
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Scared in Canada
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My mother (59) was an active, energetic, life loving individual and all of a sudden she started having pain in her back. She just got told today that she probab...
602/27/05 Message Rating
Discussion started Patient
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Clinical Trials
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I was wondering if anyone could tell me if there are current clinical trials in Australia using Velcade...
002/25/05 Message Rating
Discussion started Patient
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Don't Know How to Explain
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I am 36 years old. In March of '04 I was diagnosed with multiple melanoma. No stage was given to me at that time but the prognosis was a 0-2% chance of survivin...
102/01/05 Message Rating
Discussion started Patient
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Diagnosis, Prognosis & Treatme...
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I just got diagnosed with monoclonal gammopathy which has probably become multiple myeloma. I have had 5 different cancers so my oncologist is afraid that I ha...
101/21/05 Message Rating
Discussion started Caregiver
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My Mom Recently Diagnosed
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I'm new here. My mom is 78 and was recently diagnosed with Stage 3 multiple myeloma after having an abnormal result from an urinalysis (protein in urine). Last ...
201/17/05 Message Rating
Discussion started Member
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Monoclonal Gammopathy
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Hello I have just found this site and what a relief it is to be able to communicate with others. I was found to have MGUS almost 6 months ago and am coming u...
2001/16/05 Message Rating
Discussion started Patient
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Side Effects of Thalidomide
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I am about to start treatment with Thalidomide, and until I found this site I did not know that it had the potential to cause weight gain. Since being diagnose...
801/09/05 Rated by 1 members
Discussion started Patient
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Newly Diagnosed, Right Clavicl...
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I thought I had a torn rotator cuff on 10/29/04. After xray, bone scan, ct scan of the skull abd. and pelvis and other tests, my doctor diagnosed Multiple Myel...
011/15/04 Message Rating
Discussion started Patient
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Monoclunal Gammopathy
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Almost 3 years ago, my neurologist did blood work and found that I had protein in my blood. My protein is still low enough that they have said I have monoclonal...
1109/06/04 Message Rating
Discussion started Patient
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Multiple Myeloma
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I have been told that multiple myeloma can be put into remission. I have been told that they do now know anymore about this disease today then they did in 1964...
1208/31/04 Message Rating
Discussion started Patient
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Velcade
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I started taking velcade 3 months ago. I only took one treatment and my IGg has gone down to 700 from 1700 over the past 3 months. My doctor stopped my treatmen...
1707/12/04 Message Rating
Discussion started Caregiver
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Need Help Finding Information ...
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We are in need of any information, contacts, resources, services etc. that will be able to assist us. My 46 yr old sister was diagnosed with multiple myeloma i...
106/26/04 Message Rating
Discussion started Caregiver
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Question about protein.
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My husband is morbidly obese and has diabetes for a year. In his blood tests it showed that his protein is low. The case nurse said that sometimes they bring in...
003/06/04 Message Rating
Discussion started Patient
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Celle Forte and Multiple Myelo...
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Has IP6 been effective in fighting Multiple Myeloma?
807/20/03 Message Rating
Discussion started Patient
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Thalidomide (thalomid)
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Hello out there. Is anyone taking Thalomid (thalidomide) for multiple myeloma? I have been on it since Aug 2002. 50 mg qd for 3 months then reduced to 50mg qd a...
206/25/03 Message Rating
Discussion started Patient
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Help! Need to Talk to Someone
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Hello, My name is Mary and my husband was diagnosed with Multiple Myeloma last October. He has been in the hospital for a week now and he had a stem cell trans...
1205/26/03 Message Rating
Discussion started Patient
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Velcade
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Has anyone heard if Velcade has passed the FDA? Anyone been on a trial with it. Also called PS-341 I think.
004/11/03 Message Rating
Discussion started Patient
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Anyone with Myeloma experience...
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Had an autologous transplant in February, 2002. Doing fine. Anyone interested in a dialog regarding their treatment and experiences?
1210/14/02 Message Rating
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