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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Patient
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Multiple Myeloma Guide Book
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When I was visiting the Mayo clinic website I came across this book. For those with Multiple Myeloma you might find this interesting. You can download or purcha...
003/28/08 Message Rating
Discussion started Caregiver
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measles virus vs mm
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this trial:  was scheduled to commence Jan 2007. I cannot find any information about the outcome. Even writing to them didn't help (they didn'...
503/27/08 Message Rating
Discussion started Caregiver
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Revlimid/increase steroids vs....
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Hi,My mom has been on 25mg of revlimid. It did wonders for her condition but the side effects included repressed bone marrow so they lowered it to 15. She's n...
303/27/08 Message Rating
Discussion started Patient
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HEALTH INSURANCE REFORM
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Good Afternoon Everyone;I found this article while reading and wanted to share it with you for some comments. The bold words are mine not the author's. Woul...
103/26/08 Message Rating
Discussion started Member
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Symptoms of MGUS
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Hi all,I think this site might be a bit confusing for new users, at least it was for me.  I noticed this recent post under an older category Celeac, Ibs, M...
603/23/08 Message Rating
Discussion started Caregiver
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Kevin Hope You are doing well ...
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Hello. I can imagine the last thing you want to do is type. but I just wanted you to know I am thinking about you and praying you are doing ok. Best wishes. Ron
1003/23/08 Message Rating
Discussion started Caregiver
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My Multiple Myeloma links
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Hi all, Here some Multiple Myeloma Links I've found over the years my Dad has had it.The International Myeloma Foundation Is Here To… Web siteThe ...
203/22/08 Message Rating
Discussion started Caregiver
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Wondering
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My firend just found out last week that he has MM.  They found bone deterioration already in his arm and it has also spread to his back.  They st...
303/22/08 Message Rating
Discussion started Caregiver
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bone marrow biopsy - how often...
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Mom has had 3 so far - at diagnosys, mid-treatment (first - Thal-Vel-Dex) and 3 months after treatment. Results were 15%, 0, 15%. She is on Rev/dex/dox till May...
503/22/08 Message Rating
Discussion started Caregiver
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Muscle cramps due to Dexametha...
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Hi, My Dad has MM. He's had it for almost 10 years. Lately he's been having bad cramps due to taking Dexamethasone. For any of you that have taken Dexamethaso...
3003/19/08 Rated by 1 members
Discussion started Patient
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EVERYONE'S ASSISTANCE
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Hello Everyone;I am preparing to leave for Philadelphia shortly for my upcoming MELPHALAN infusion, auto stem cell transplant and T-cell re-infusion this coming...
2103/16/08 Rated by 2 members
Discussion started Patient
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mild back pain
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Hi, Has anyone out there with MM suffered back pain while in remission.Just recently I have been experiencing some discomfort in my back. There has been so...
203/15/08 Message Rating
Discussion started Patient
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Revlimid
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HiI was diagnosed with MM in 2002.  Have had tandem stem cell transplants, also treated with Dex.  Am presently taking Revlimid 25mg.  I am havin...
403/15/08 Message Rating
Discussion started Caregiver
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All on rev/dex, we need your i...
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Cancer Compass Friends,We need to know how long you have been on rev/dex treatment and what your docs have told you about the amount of time you can continue th...
2903/14/08 Rated by 1 members
Discussion started Caregiver
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Velcade and Diarreah (multiple...
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Was just wondering if anyone can share their experience. My dad has Multiple Myeloma, IGA - Stage III.  He has severe bone damage/lytic lesions in his pelv...
703/14/08 Rated by 1 members
Discussion started Caregiver
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ADVICE!! Kidney Failure and MM
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Hello everyone,It has been a long time between messages, but we have been waiting on doctors..Our usual story. Mum tried Thalidamide with no success as she suff...
703/14/08 Message Rating
Discussion started Patient
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REV color different?
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i'm taking REV 25mg. i'm on my second Rx of it and the capsule color looks different. can anyone taking REV 25mg describe your capsule color? thanks
903/11/08 Rated by 1 members
Discussion started Patient
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Freelite Chain Assay
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The information in the www.myeloma.org handbook on Freelite Chains states that the freelite test should show Ultra Quant on the lab results.  At the www.am...
003/09/08 Message Rating
Discussion started Member
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New Group on Yahoo Groups
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I have started a new support group on Yahoo Groups. I decided to create this group as a place for people with MGUS, Asymptomatic/Smouldering Myeloma and Multipl...
303/09/08 Message Rating
Discussion started Caregiver
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My mom
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Dear all, My mom passed away on February 27th. I miss her a lot. Some moments are better than others, but I know she had a great life, and I'm trying to con...
103/09/08 Message Rating
Discussion started Patient
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Transplant and Infection
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Has anyone experienced problems with infection during their transplants/treatments?  Thank you47 yrs olddx Nov 07currently in complete remissionbeing treat...
103/07/08 Message Rating
Discussion started Caregiver
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Relapsed Father
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Hi Board,My father was diagnosed with MM in 3/05.  Went into remission in 7/07 and has recently relapsed.  His count is up a bit, but not that much.&n...
003/07/08 Message Rating
Discussion started Member
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Results the good the bad the c...
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Hi everyone,Went for my follow up today after being told by my Haematologist lastweek, that she was 80% sure my MGUS had turned to myeloma and that Imay need to...
703/06/08 Message Rating
Discussion started Patient
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OPTIONS
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Thursday the 6th March, 2008Dear Message Board ReadersIs there any clinic, institute or hospital that feel they could help me?  I am at the end of my tethe...
203/06/08 Message Rating
Discussion started Caregiver
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insurance term
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I recently posted a message about my uncle who has stage 3 MM. He finished his last treatment of Revlimid about 2 weeks ago and has been sick as a dog since. We...
403/06/08 Message Rating
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