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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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mgus
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Hello All,I just discovered this site, though I discovered several years ago that I have a mgus. At that date, there was virtually nothing on the web or in any ...
005/17/07 Message Rating
Discussion started Caregiver
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Apricot kernals
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Hi All Hope you are doing OK, with all you have to deal with! We went to see a Specialist in this field that takes a more holistic approach to treatment, and h...
305/17/07 Message Rating
Discussion started Member
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mgus
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At the age of 40 I was diagnosed with MGUS after experiencing numbness/ pins and needles down the left side of my body. I have look at many websites but have fo...
105/16/07 Message Rating
Discussion started Caregiver
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Experience with compression fr...
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Hi all - My dad has early stage II MM.  He was just diagnosed a couple of months ago.  He has had two transfusions, biophosphonate IV and did two week...
205/14/07 Message Rating
Discussion started Caregiver
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Understanding MM
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My father who just turned 80  has had MM for 11 years and was leading a very active lifestyle until just 6 weeks ago.  The only treatment that he has ...
305/08/07 Message Rating
Discussion started Caregiver
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GOING TO TRY REVLAMID
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 my husband has multiple myeloma along with the softtissue tumors (plasma cytomas).  nothing has worked.not even the stem-cell transplant.  only ...
705/05/07 Message Rating
Discussion started Member
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myelofibrosis
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I've been diagnozed with myelofibrosis 14 (fourteen) years ago! At the time my life expectancy was 3-5 years, top. Well, it seems I outlived some of my doct...
605/04/07 Message Rating
Discussion started Caregiver
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Velcade in early stages
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Does any know about using velcade early in treatment? My father-in-law has only know about the multiple myeloma for 6 months and the doctors are switching to ve...
605/02/07 Message Rating
Discussion started Caregiver
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pain in rib cage area
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My mother was diagnosed with Multiple Myelome in August 2004. She has had chemotherapy treatments and steroid treatments where she was pretty much in "remi...
105/02/07 Message Rating
Discussion started Caregiver
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Glyconutrient treatment helpin...
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I came across this very informative website when browsing on the internet for more information on Multiple Myeloma and Glyconutrients.  My mother, aged 67,...
305/01/07 Rated by 1 members
Discussion started Patient
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Life after Treatment
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I have just recently had a stem cell transplant done at Cedar Sinai Hospital in Beverly Hills, California. It was a very unique experience for my entire family....
104/30/07 Message Rating
Discussion started Member
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splenectomy
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Did anyone on the list had splenectomy?
004/28/07 Message Rating
Discussion started Member
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myelofibrosis
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I am trying to reach the myelofibrosis board discussion. Is this the right venue?
104/28/07 Message Rating
Discussion started Caregiver
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A more gentle approach
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Hi All, We have now had the same advice from the “Top Man” (he does 70 of BMTs a year), tell us that the best chance for a cure for my partner is a BMT! Howeve...
404/25/07 Message Rating
Discussion started Member
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mgus
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hi i am 74 yrs old...i have mgus...i go every 6 months for blood work. today my dr. told me my mgus is going up, not to worry. it has a long way to go...but i s...
404/23/07 Message Rating
Discussion started Member
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confused about mgus
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I was recently diagnosed with mgus following several botts of "Flu's" which seem to last longer each time. the doctor said he was just taking the ...
404/17/07 Message Rating
Discussion started Caregiver
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Mother, Grandmother have MM an...
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Does anyone have any good sources to find information on the causes that contribute to Multiple Myeloma?  My grandmother was recently diagnosed with the di...
204/15/07 Message Rating
Discussion started Caregiver
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Auto Stem-cell Transplant
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Hi,I haven't written in over a year.  My husband, Bob has MM and had a stem-cell transplant the 30th of Aug...was in the hospital for nearly 6 weeks so...
004/12/07 Message Rating
Discussion started Caregiver
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Remission
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L have mutiple myeloma. They have put me in remission and I am doing great
404/07/07 Message Rating
Discussion started Caregiver
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JAK2
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Hi All My Partner went for his JAK2 test yesterday so I have been looking for info on this. Thankfully we have a few medics in our family; they have been fo...
004/05/07 Message Rating
Discussion started Caregiver
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What to expect
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My husband was diagnosed with agressive Multiple Myeloma in Feb 06.  He was apparently in an advanced state when he was diagnosed.  He had the VAD cou...
504/05/07 Message Rating
Discussion started Caregiver
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How and Where to get Revlimid ...
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Hi, My father has multiple myeloma.  The doctors have tried alot of treatments but they have not worked.  I have heard alot of good things about ...
303/31/07 Message Rating
Discussion started Patient
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Help: Rev Dexta Side Effects
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I have started Revemide and Dexta treatment after my MM relapsed. I am using few other medicines for maitenance. I am facing some side effects like loss of appe...
003/31/07 Message Rating
Discussion started Patient
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Good news
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I received about the first good news from my dr. Wednesday! He told me I was in partial remission! I was 35% better than when we started treatment 6 months ago....
703/30/07 Rated by 1 members
Discussion started Member
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MGUS
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Hi, I'm a 49 yr old woman who was just diagnosed with MGUS less than a week ago.  I do have other health issues that led to this diagnosis through bone...
103/27/07 Message Rating
member
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