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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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mouth sores
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Hi all,My mom is now having mouth sores in her tongue, lips and in all of her mouth because of radiation to her head and neck she started 2 weeks ago. One of ...
202/16/08 Message Rating
Discussion started Member
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MGUS
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Hi all,I am Jane from the UK,I was diagnosed with MGUS in July 2002 at the age of 37. At diagnosis my IGg was 16 (UK measurements) and has been steadily rising ...
1002/14/08 Rated by 1 members
Discussion started Patient
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MGUS
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Hi,I was diagnosed with MGUS in April, 2007 after a routine blood test.  I had the 24 hour urine test, the xrays of all my bones, a bone marrow test, an MR...
102/11/08 Message Rating
Discussion started Caregiver
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95% sure
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The Dr. told us that they are 95% sure that my mom has Myeloma.  We go Wednesday to see what the additional blood work and urine analyisis says. I want to ...
402/11/08 Message Rating
Discussion started Caregiver
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Mother starting Velcade
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Hi all....My Mom was dx, 10/06 with stage 4 mm.  Since then, has had 5 rounds of Revlimed putting her into "partial remission".  Now levels ...
702/10/08 Message Rating
Discussion started Caregiver
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To boost the immune system ?
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Please can anyone advise us as to what my partner could take to boost his immune system. He has been diagnosed with smouldering myeloma and i understand he shou...
1502/09/08 Message Rating
Discussion started Patient
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Lyrica for Neuropathy
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I have multiple myeloma and am taking thalidomide to keep my cancer in remission. I've been taking thalidomide for about three years and for the past two ye...
302/08/08 Message Rating
Discussion started Caregiver
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Vomiting/Whistling, hissing so...
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Hi All, I am wondering if there is anyone out there who has had violent vomiting with MM, (excluding side effects from chemo). When my husband was first sick,...
002/08/08 Message Rating
Discussion started Caregiver
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The end is near
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Relatively new to the site (my dad was diagnosed with MM in Oct 2007), I have not posted or responded to many posts.  I have appreciated everyone's can...
402/07/08 Message Rating
Discussion started Patient
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Osteonecrosis of the jaw
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Hi Everyone~~ As many of you may have read on other messages, I have now been diagnosed with osteonecrosis of the jaw and the first recommendation was that I im...
1402/06/08 Rated by 1 members
Discussion started Caregiver
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Very different results at 2 di...
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Hello. My husband, was diagnosed (we not sure the dx is correct until we see a myeloma specialist, but....) with SMM in Nov 2006 was recently hospitalized ...
302/05/08 Message Rating
Discussion started Caregiver
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John Hopkins Cancer Update
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 Very informative,Warm blessings to all,Love,Susan Denys little sister.AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY (TRY THE KEY WORD)...
502/04/08 Message Rating
Discussion started Member
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Cath - Low Dose Naltrexzone - ...
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Hey  Cath!  Had a quiet day today so I was doing some reading.  Found something that might interest you.  LDN - You probably have already ...
202/02/08 Message Rating
Discussion started Caregiver
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My sister Denys has passed awa...
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Denys passed away on Friday, , just about an hour after me along with  my brothers and sisters left for the airport to return to Long Island, NY. ...
302/02/08 Message Rating
Discussion started Caregiver
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STEM CELL TREATMENT NEWS!!!!!!...
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Att: To all myeloma sufferers....Kevin asked for me to post article I read..... We are concerned about this article and I will be certainly asking the doc about...
702/02/08 Message Rating
Discussion started Caregiver
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Stem cell treatment
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Att:Cath/BobHow are you??? I just read about Stem cells making myeloma more resistant to treatment. I am rather shocked as mum may need one in the near future. ...
1902/01/08 Message Rating
Discussion started Member
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CATH - Issels Treatment Center
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Hey Cath!Have you ever heard of Issels Treatment Center.  Wanted to rub this off you.  check it out www.issels.com .  Its natural immunotherapy.&...
1101/31/08 Message Rating
Discussion started Caregiver
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Help, extreme weigh loss
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Hi,I was wondering if anyone can help. My husband had his auto stem cell transplant on 1/10. His hospital course was pretty unremarkable and he came home early,...
1501/30/08 Rated by 1 members
Discussion started Caregiver
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Cancer Drug Induces Bone Forma...
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A recent study has indicated that Velcade may have the added effect of helping to increase bone formation. Sounds like good news. Regards,Craig 
201/29/08 Message Rating
Discussion started Caregiver
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information about Revlimid and...
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Could someone that has taken the drug, Revlimid, tell me more about the cost of it.  My mother is 78 years old and has had MM for 2 years.  She has be...
1701/28/08 Rated by 1 members
Discussion started Patient
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Interesting site for Informati...
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Hi All!! Along with the usual sites like Multiple Myeloma Survivor Stories which you can Google, I found that there is some very interesting information to be f...
101/24/08 Message Rating
Discussion started Patient
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PX-171-004, now named Carfilzo...
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Looking for information or experiences surrounding Carfilzomib, which is in Phase Two trials. As a relapsed (from SCT and Velcade) patient I have been aske...
201/23/08 Message Rating
Discussion started Patient
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please help me in undestanding...
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My mm has started relapsing and at this stage my doc has proposed to me mapatumumab in combination with bortezomib. Could anybody help me asses this drug.Raz
1001/23/08 Message Rating
Discussion started Caregiver
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looking for answers
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Hi, I am new to the post and looking for any answers. My Dad is 66 and was just diagnosed with MM. 3 months ago we were mountain biking, swimming in big waves, ...
1701/22/08 Rated by 1 members
Discussion started Caregiver
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sleeping pill
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what suggestions do you have for taking something to help you sleep on the day you take the dex?my husband takes 40mgs dex every monday(he takes revlimid 25mg ...
401/21/08 Message Rating
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