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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Caregiver
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Velcade and Diarreah (multiple...
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Was just wondering if anyone can share their experience. My dad has Multiple Myeloma, IGA - Stage III.  He has severe bone damage/lytic lesions in his pelv...
703/14/08 Rated by 1 members
Discussion started Caregiver
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ADVICE!! Kidney Failure and MM
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Hello everyone,It has been a long time between messages, but we have been waiting on doctors..Our usual story. Mum tried Thalidamide with no success as she suff...
703/14/08 Message Rating
Discussion started Patient
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REV color different?
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i'm taking REV 25mg. i'm on my second Rx of it and the capsule color looks different. can anyone taking REV 25mg describe your capsule color? thanks
903/11/08 Rated by 1 members
Discussion started Patient
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Freelite Chain Assay
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The information in the www.myeloma.org handbook on Freelite Chains states that the freelite test should show Ultra Quant on the lab results.  At the www.am...
003/09/08 Message Rating
Discussion started Member
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New Group on Yahoo Groups
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I have started a new support group on Yahoo Groups. I decided to create this group as a place for people with MGUS, Asymptomatic/Smouldering Myeloma and Multipl...
303/09/08 Message Rating
Discussion started Caregiver
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My mom
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Dear all, My mom passed away on February 27th. I miss her a lot. Some moments are better than others, but I know she had a great life, and I'm trying to con...
103/09/08 Message Rating
Discussion started Patient
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Transplant and Infection
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Has anyone experienced problems with infection during their transplants/treatments?  Thank you47 yrs olddx Nov 07currently in complete remissionbeing treat...
103/07/08 Message Rating
Discussion started Caregiver
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Relapsed Father
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Hi Board,My father was diagnosed with MM in 3/05.  Went into remission in 7/07 and has recently relapsed.  His count is up a bit, but not that much.&n...
003/07/08 Message Rating
Discussion started Member
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Results the good the bad the c...
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Hi everyone,Went for my follow up today after being told by my Haematologist lastweek, that she was 80% sure my MGUS had turned to myeloma and that Imay need to...
703/06/08 Message Rating
Discussion started Patient
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OPTIONS
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Thursday the 6th March, 2008Dear Message Board ReadersIs there any clinic, institute or hospital that feel they could help me?  I am at the end of my tethe...
203/06/08 Message Rating
Discussion started Caregiver
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insurance term
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I recently posted a message about my uncle who has stage 3 MM. He finished his last treatment of Revlimid about 2 weeks ago and has been sick as a dog since. We...
403/06/08 Message Rating
Discussion started Patient
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blood shot eyes
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I am currently completing phase one of the vel/rev/dex treatment -But my eyes are so blood shot ,,,what can i do to help it , Visine and any thing i have purcha...
203/05/08 Message Rating
Discussion started Caregiver
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A Letter to Cancer (emotional ...
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A Letter to Cancerby Linda EllisI have tried to teach my childrennot to detest, insult, berate,but I cannot follow my own advicewhen I am so filled with hate.Yo...
603/05/08 Message Rating
Discussion started Caregiver
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Dad has passed.......
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I posted a message on Feb 7th entitled "The End is Near"....since then my dear father has passed on Feb 16th.  I just wanted to send a short than...
203/05/08 Message Rating
Discussion started Caregiver
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Doxorubicin
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Hi.... My mother is getting Doxorubicin/Revlimid/Dexamethasone. She already had 3 sessions of 96 hours each and her hair HASN'T fallen out. I have heard tha...
103/03/08 Message Rating
Discussion started Caregiver
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Poppy/Cath
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Hi Cath,Hope you are well, I think of you often.  May God Bless You always,Susan, Denys little sister
203/01/08 Rated by 1 members
Discussion started Caregiver
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wow - what advances
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Mom had MM.  Diagnosed in 1994.  Given 2-4 years.  Died 4/98 (almost 10 years ago.)Reading the info on this site regarding MM actually makes...
202/29/08 Message Rating
Discussion started Caregiver
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Radiation to the Rib
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My husband has decide to radiate to radiate his 6th right rib after seeing the specialist to the tumor does not continue to grow. Has anyone had radiation to t...
202/29/08 Message Rating
Discussion started Caregiver
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Father w/Stage 3MM
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Hi, My father was recently diagnosised with stage 3 MM.  He is very symptomatic, anemic, bone fractures, and poorly functioning kidneys.  He star...
702/28/08 Message Rating
Discussion started Member
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Results Day
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Hi everyone,Today I got the results of my bloods and bone marrow biopsy. Letsjust say the news was not good.My IGG is 4480 (44.8 UK)My bone marrow is 25% plasma...
302/28/08 Message Rating
Discussion started Caregiver
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Mom has Stage 3 MM
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We just got the results back and my mom has stage 3 MM.  I was completely in shock, we knew it was MM but not what stage and when the dr said stage 3 it kn...
902/28/08 Message Rating
Discussion started Caregiver
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Revlimid - low white blood cel...
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Hi,My mom is on revlimid. It has helped her immensely, Her Myeloma cells decreased about eighty percent; however, as a result, she has had extremely low platel...
402/27/08 Rated by 1 members
Discussion started Member
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looking for a cure
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Thanks for all the info on multiple myeloma. The articles have been very interesting and information that I need. I'm new to this. I'm 47 and I have nev...
102/26/08 Message Rating
Discussion started Caregiver
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Multiple Myeloma: Towards A Ch...
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Multiple myeloma may soon be considered a chronic disease with cure on the horizon, thanks to an array of novel therapies which are turning prospects around f...
202/26/08 Message Rating
Discussion started Caregiver
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could we start again please
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When I was very young I would play a song and for some reason good things would happen they just would.So i play it for my brother,He doesn't understand the...
102/26/08 Message Rating
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Latest Messages Show More
RE: Just diagnosed...I'M Posted by elaine7 on 10/11 03:03:56 PM
RE: Update on my dad part Posted by Smilie on 10/11 02:59:27 PM
RE: Stable MRI #8 Posted by Smilie on 10/11 02:56:09 PM
RE: Help with Seizure Con Posted by CSM51 on 10/11 02:52:56 PM
RE: 17 months and now he Posted by Smilie on 10/11 02:52:11 PM
RE: hereditary link found Posted by CSM51 on 10/11 02:43:55 PM
RE: Just diagnosed...I'M Posted by Caseymom55 on 10/11 02:40:16 PM
Abdomen burst Posted by patrice ellen on 10/11 02:28:43 PM
Cancer Center of America Posted by CLADONUK on 10/11 02:21:28 PM
Just diagnosed...I'M SCAR Posted by DaveysGrammy on 10/11 02:16:00 PM
RE: New here with questio Posted by DaveysGrammy on 10/11 02:02:04 PM
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