Connect with other nasal cavity cancer patients at CancerCompass.com to find helpful information and forum resources about cancer treatment, research, and more. http://www.cancercompass.com/message-board/cancers/oral-cancer/nasal-cavity-cancer/1,0,119,25,42.htm Sun, 22 Nov 2009 00:00:00 GMT Sun, 22 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I am so happy to tell this story.  My son whom was 38 when we found his cancer, has gone thru two brain surgeries, 66 radiation treatments, and 25 chemo treatments, has got clear scans.  He lost his right eye, and has been thru so much.  I wanted to post this because I know there are not so many happy stories out there for this type of cancer, and we wanted to give hope to those of you that have this.  We are blessed.  mom of son. http://www.cancercompass.com/message-board/message/all,40790,0.htm mom_of_son Sat, 17 Oct 2009 00:00:00 GMT My dad has nasopharyngeal cancer which has spread to his lymph nodes in his neck. He finished 35 tomo radiation treatments 2 weeks ago. He also has had 3 chemo treatments and needs 3 more over the next 3 months. He went to see the radiation doctor 2 days ago and found out that he will probably need surgery on his lymph nodes in his neck because they didn't shrink as much as the doctor thought they would. I would like to know if anyone has had this type of cancer and surgery after treatments. In the beginning we were told he most likely wouldn't need an operation and now the doctors are saying he does. http://www.cancercompass.com/message-board/message/all,36448,0.htm ktvgem Sat, 23 May 2009 00:00:00 GMT Hi All,I am a survivor 3.5 yrs. and just just received PET scan results with activity showing uptake in the upper nose area. My medical oncologist called with this result and said he has never seen a recurrence in this area. I see my ENT specialist on Mon the 4th but thought I'd ask here if anyone has had a similiar experience. I was doing well and actually back to a realm the normal. I was even let go a year between scans. Any info will be greatly appreciated.Thank You,Mike  http://www.cancercompass.com/message-board/message/all,35697,0.htm mulls427 Wed, 29 Apr 2009 00:00:00 GMT        Hi:     You know sometimes I'm skeptical about the fact that the majority     of thoracic surgeons do push the standard procedures of doing an     IV operation while shying away from the laproscopic method.The    question in my mind is ; are they doing this because they   don't have the proper training & experience in laproscopic or are  the current standard methods truly superior? They claim that they have a better chance of removing all of the cancer with the standard methods than they do through the laproscopic method. What can they see when they open someone up that they can't see through a pet scan? Additionally, if a pet scan can not detecta cancerous spot that is smaller than a dime, what is the surgeonlikely to see with his/her human eyesight? I can see the necessityof the standard procedure if the scans detect a metastic situationto other organs but suppose it's only a one or a few lymph nodes?Why cant this be done on a minimally invasive basis? This whole approach by the medical community in general when it does come down to esophageal surgery does provide a needto have some additional clarification & insight for patients.Are we being denied certain options because of the lack ofskill and training on the part of the doctors? I inquired abouthaving laproscopic surgery done by a certain doctor on a 3cm--1 lymph node situation--his response was----"naahh! I want to get in there and see what's going on".What the hell is that supposed to mean? I'm supposed to accept that? These people aren't gods. They make many errors-particularly when it comes to prognosis. I'm reading more & more about docs who are performing sucessful lapro surgeries for esophageal cancer.Is this all baloney or is it that it's easier for the docs to do the standard operational procedure rather than to go out there and get the additional training?      Any opinions?--------Bob S. http://www.cancercompass.com/message-board/message/all,31742,0.htm Bob_S Fri, 02 Jan 2009 00:00:00 GMT hello everyone,I had wrote in about a week ago about my brother who was diagnosed with snuc.  He has had a major operation (in MN)  on his nasal cavity, partial parts of his brain and lost his right eye.  It has been very rough and he is about to start proton radiation in Florida so not only does he have all of the emotional stress and worry for his life he now is really upset over trying to pay for all of this. We live in Michigan so the expense of staying away from home is not helping either.  We are going to have a fundraiser soon, but I was just wondering if anyone knew if there was help out there thru the cancer society of some where to try to help him and his family out as much as possible.  Thank you so much for any info.Jessica http://www.cancercompass.com/message-board/message/all,30925,0.htm sister_in_MI Thu, 04 Dec 2008 00:00:00 GMT I am currently undergoing chemo and radiation theraphy was diagnosed with a stage twob nasal phyrangeal cancer.  is there anyone there that could relay their experience to me.  What is the rate of survival on this type of cancer and what can i expect after the treatment?so far i lost all my taste for food and i have constant ringing in my ears.   http://www.cancercompass.com/message-board/message/all,30720,0.htm otayranch Thu, 27 Nov 2008 00:00:00 GMT Well i have a couple questions. i have had a blockage in my nose and a swollen lymph node in my throat for a couple yrs and the doctor passed it off as a sinus infection. the lump in my throat has never gotten bigger and i can swollow and talk fine but i have pain and pressure behind my eyes and in my face my upper teeth are painful and sometimes go numb. i have had numbness and tingling in my face but antibiotics seem to help that. i have both sided ear pain jaw pain and i went up to the ER room because i had twitching and burning in my ears and face but they did blood work which came back fine and sent me home. now a couple questions. If i had sinus cancer would something show up in my blood work and do my symptoms sound like cancer. anyone that can help or have a comment would be great thanks http://www.cancercompass.com/message-board/message/all,26696,0.htm ashwee476 Fri, 01 Aug 2008 00:00:00 GMT My husband was dx with SNUC 11/06. Caught it at Stage 2. He's had chemo, radiation, surgery, then more chemo and radiation. Had to eat via G-tube. Now nutrition is delivered intravenously via TPN (bag of liquid nutrition) through veins. Very weak and sick. He is now aged 49.Most doctors have never heard of SNUC. There is no real protocol of treatment. It's all a guessing game.   http://www.cancercompass.com/message-board/message/all,24650,0.htm lovelane Tue, 03 Jun 2008 00:00:00 GMT My husband was diagnosed with SNUC 4 months ago- he has undergone 40 IBRT treatments and 3 rounds of Cisplatin and 5FU.  Yes the Cisplatin is NASTY stuff.  He has had so much trouble with nausea.  They tried everything for nausea the first round and nothing helped.  The second round he had Emend and that helped a lot.  Still trouble with nausea, but not as bad.  He has a feeding tube through his his abdomen into his jejunum-cannot eat- food and liquids-even water doesn't taste good.  He goes in for IV fluids 3 times a week and Zofran IV as well as orally yet.  He also has a lot of trouble with mucus in his mouth and still a lot of sores and blisters in his mouth as well- this is nearly 3 weeks since his treatments have finished.  He also his difficulty with vision in the eye on the side of the tumor since the treatments.  He had a CT scan today and will have PET scan in a few days- we are scared to death about the results.  I don't know how much more he can take.  It scares me when I read about the prognosis of SNUC.  My husband has not gotten on the internet like I have and has not seen all of this-probably a good thing!  Anything positive anyone has read or experianced would be appreciated.  http://www.cancercompass.com/message-board/message/all,24034,0.htm scootie45 Thu, 15 May 2008 00:00:00 GMT All the research I have done since my husband was diagnosed last week with sinonasal undifferentiated carcinoma left me feeling hopeless. After reading some of the posts I am encouraged that maybe we can fight this thing. It has been tough on us. We have only been married for a little over a year, it is a second marriage for us both and we had planned on living a long life with each other. http://www.cancercompass.com/message-board/message/all,23699,0.htm kristinamich Sat, 03 May 2008 00:00:00 GMT  My brother in law who has been fighting nasopharyngeal cancer for 7 years is on his last chance chemo which is called erbitux. Please if anyone has any info and what kind of success rate this has please let me know. I would greatly appreciate it. (Erbitux) I think its new and may still be in the clinical trial phaze. I know they also use it for colorectal cancer. as well as neck and head cancer. He cant take the cisplatin and the carbo platin is not doing the job. Also he can't have anymore radiation. He has had as much as they are ever going to give him. Thanks so much  --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--   http://www.cancercompass.com/message-board/message/all,22415,0.htm Denise1156 Thu, 27 Mar 2008 00:00:00 GMT My husband has recently been diagnosed with stage three NPC.  Johns Hopkins recommend a local group to apply chemoradiotherapy.  We have our pre-treatment consult Dec 18.  I'm reading a lot about needing a feeding tube.  Has anyone has success without one?  He is an extremely willful and determined man when he wants to be.  Can this alone get him thru without the tube?  I've downloaded tons on nutrition shakes and more.  We are seeing a nutritionist hopefully next week as well. Also, did everyone need a pick line?  I can't seem to locate information on that.  Thank you for all your sharing and help. http://www.cancercompass.com/message-board/message/all,18767,0.htm Mediator Mon, 10 Dec 2007 00:00:00 GMT Hey all,  This is my first time seeing this message board.  It is so great to see others going through what I am.  I am a 48 year old male.  I was diagnosed with snuc a little over three years ago.  I have had several surgeries, radiation, chemotherapy, and cyberknife radiation.  The tumors have always been eliminated, but I keep getting new ones.  Yesterday, a tumor was found near my right optic nerve.  It is about as big as the end of my thumb. My doctor was very discouraged, because that area has been treated previously.  He asked me if I wanted to continue trying, or to just let the disease run its course.  Obviously, I want to continue trying!  There is about a 20% chance that more treatment will make me lose the sight in my right eye.  I have already lost my sense of smell, and my right eye will not move properly- due to radiation.  My general health and outlook are great, but this has really discouraged me.  I have always felt like I would make it, now I am not so sure.  Any words of encouragement or help would be greatly appreciated.   http://www.cancercompass.com/message-board/message/all,11393,0.htm Tommyboi Wed, 18 Apr 2007 00:00:00 GMT My sister-in-law has just received the initial diagnosis of SNUC - sinonasal undifferentiated carcinoma.  I understand it is very rare.  Question: Anyone on this board living in the Tampa, Florida area? http://www.cancercompass.com/message-board/message/all,8724,0.htm Marleen Tue, 09 Jan 2007 00:00:00 GMT Hi, After days of trying to find support for myself (with the intention of giving it as well), I was wondering if anyone out there would like to start an informal SNUC support group. We could meet at my house. Granted it is a small NYC studio but I have lots of sitting area and we can come together, encourage each other and strategize ways to take back our life. After sitting in despair for weeks since this diagnosis I am now ready to create for myself what I want. If you are interested in this and even if you are not in NY and want to join via telephone, you can access me through hitting the contact us button at the bottom of the page and telling the webmaster I approve that my personal telephone # be given out. If you get no answer try later because the whole world has been calling me and sometimes my machine is full. Before I became a cancer patient I was involved in some very interesting manifestation work. Unfortunately I miscreated but I believe we can create through our thoughts and reverse what it is we don't want. Nonetheless I am not the leader. It is just one idea. I would just supply the space and we can all contribute. Gail http://www.cancercompass.com/message-board/message/all,4367,0.htm Gail_Miklatek Fri, 03 Feb 2006 00:00:00 GMT I am looking for people who are living with this cancer and have been successfully. I was diagnosed about a week ago and started treatment with chemo. I feel so hopeless because I cannot find long term survivors to talk with me. Gail R. http://www.cancercompass.com/message-board/message/all,4342,0.htm Gail_Miklatek Wed, 01 Feb 2006 00:00:00 GMT my mother has sino nasal undif carcinoma, we are looking for a support group, or others who have successfully been treated, any ideas? http://www.cancercompass.com/message-board/message/all,3138,0.htm Mymother Fri, 07 Oct 2005 00:00:00 GMT My mum diagnosed with nose cancer 3rd stage 11/2 yr ago. She had received a radiotheraphy treatment for 30 sections and seems doing well. Recently she got swelling & a lump on neck (with pain) but doctor said should be ok & no medicine was given (from beginning until now). Last 3 weeks mum done a ct scan & informed by doc thru phone outcome was good. We intend to take back all scanning but refer to another check up. This time he told us that the cancer on neck not completly gone & advise to do 3 treatment of chemo follow by radiation. Alternative 10 section of radiation only. (if u got no money) There was no other onchorlogist in my state & I need yr kindness view. Is chemo really effective?TQ. from Malaysia http://www.cancercompass.com/message-board/message/all,2234,0.htm Seaw11 Fri, 10 Jun 2005 00:00:00 GMT About a week ago my children's father had tests run to detect what the doctors thought might be cancer. One of the tests came back this Easter weekend. It showed cancer in his lung and his back. HE WILL RECEIVE THE REST OF THE TEST RESULTS TODAY. I have been divorced from him for over 15 years. I do have a degree of a relationship to him still because of the children [aged 33,27,18], I also have a good relationship with his wife. If my heart is breaking over this what they must be going thru! WE have all prayed together and I have talked to there dad and let him know how many people were praying for him. My question is how do I help keep faith alive and how do I know the right time to talk and the right time to listen? My ex's wife just lost her mother to lung cancer a month ago and now has to deal with her husband and the same illness. Im really concerned for my children's emotional state. If there is any one out there that can offer any answers for any of us please write. God Bless Each One Of You Linda http://www.cancercompass.com/message-board/message/all,1789,0.htm Linda_Loo Mon, 28 Mar 2005 00:00:00 GMT I am interested in hearing from someone who is or has been treated for this type of cancer. My husband was diagnosed in late March and is currently undergoing radiation and chemo. Thanks. http://www.cancercompass.com/message-board/message/all,882,0.htm Lynn_A_1 Sun, 06 Jul 2003 00:00:00 GMT I have a 20 yr. old daughter, who has had a mesenchymal chondrosarcoma removed from her right sinus cavity. She has tried reconstructive surgery to replace the bone under her right eye and teeth and jawbone on her right side and half of the roof of her mouth. All surgeries have failed except the taking cartilage from both ears to support her eyelid. Has anyone had any success with reconstruction surgery after receiving the maximum amount of radiation allowed? http://www.cancercompass.com/message-board/message/all,652,0.htm Pat_B_3 Tue, 28 Jan 2003 00:00:00 GMT My sister has just been diagnosed with nasal cancer and the doctors say there is not much they can do but operate and take a good portion of her nose and then radiation treatmets. She is only 51 and I don't think she can survive the side effects of radiation. The sores in the mouth and the teeth removed and getting a feeding tube. I need any advice. We are desperate!!!!! I can't lose her. http://www.cancercompass.com/message-board/message/all,313,0.htm Suzanne_D_1 Tue, 01 Oct 2002 00:00:00 GMT