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Urachal Adenocarcinoma
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I am a 66-year-old male, with rare cancer. Part of the umbilicus to the bladder. Nonsymptomatic tumor found during CAT scan for emergency appendectomy. Golf bal...
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| 3 | 02/01/03 |
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Desmoid cancer in neck, shoul...
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I have this tumor that grows legs from it, has been operated on twice and I have had chemotherphy and radiation.
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| 1 | 01/29/03 |
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Low grade LMS/ESS
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I am a longterm survivor of LMS/ESS. Started out in a fibroid 21 years ago. After many surgeries, am now taking Letrozole, it is keeping me stable for almost 2 ...
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| 0 | 01/27/03 |
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Is Chrondosarcoma hereditary?
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I was wondering does anyone have any info on Chronsarcoma? My biological father was dxed with Chrondosarcoma last year, had surgery and now in remission. Haven'...
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| 3 | 01/22/03 |
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Prostatic adenocarcinoma with ...
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I've been informed that this type of cancer is so rare there are no protocols for treatment. Has anyone had any experience with this? Wayne M.
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| 2 | 12/01/02 |
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Rare cancer
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My friend has had a rare cancer in his eyeball, which was blinded since he was three. It was only two years ago that his cancer was identified by his doctor in ...
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| 0 | 11/21/02 |
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Anyone else out there with Cil...
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I am trying to find out if there is anyone else out there who has Cilary Body and or Iris Melanoma. If they have had surgery? If so, did they remove the eye o...
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| 0 | 11/19/02 |
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Update: We have better news on...
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Last time I wrote about this disease none of the words seem to come out right. But now we have good news - my husband's cancer has shrunk by more than 3/4 of it...
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| 10 | 10/25/02 |
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Granulosa cell
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I have been told I have granulosa cell cancer. It was discovered while doing a total hysterectomy due to a large cyst on an ovary. The cells were found in the p...
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| 46 | 10/21/02 |
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Myelofibrosis
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Please if anyone has this blood disorder, Please reply!
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| 1 | 10/19/02 |
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Adrenal cancer
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My husband has metastized cancer of the adrenal glands, does anyone have any information on this topic?? He has been taking Xeloda, and while the cancer has no...
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| 9 | 10/14/02 |
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neuro-endocrine Merkel Cell in...
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CAT, MRI, Octreotide, PET do not show a primary site. Doctors disagree on treatment. One says radical surgery, one says no surgery, no chemo but radiation. Th...
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| 0 | 09/30/02 |
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Malignant Fibrous Histiocytoma
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My father was diagnosed late last year with MFH. He had a huge mass in his upper left thigh that measured over 25 cm. He is 69 years old, amputation was out o...
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| 0 | 09/17/02 |
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Anyone else out there with tra...
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Hello, I am Barbara Waldie and I have adenoid cystic carcinoma of the trachea. I had it 16 years ago, at the age of 22. I had the tumor resected, did radiatio...
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| 1 | 08/27/02 |
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Carcinoid Tumor in the intesti...
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My husband just had a small section of his intestines removed, along with about half of a fist-sized carcinoid tumor. It involved the major blood vessels so i...
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| 2 | 08/20/02 |
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Thymoma cancer?
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I wanted to know what are chances are that my husband (who has thymoma) has cancer of the thymus? we found he had it back in 9/11/01 and tried surgery to remove...
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| 9 | 08/10/02 |
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Parotid Adenocarcinoma
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I've had two recurrences of this ugly critter in two years. Has anyone found anything to stall or slow down this awful beast?
Jim M.
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| 0 | 07/29/02 |
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Cavernous hemangioma of the li...
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Can anyone provide me with information regarding this benign tumor? In particular, nutritional information.
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| 0 | 07/13/02 |
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Duodenal Adenocarcinoma
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My husband is 36 and has adenocarcinoma of the duodenal. Couldn't do surgery and had to have an intestinal bypass. It has been 9 months and he is not doing wel...
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| 1 | 07/09/02 |
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Penile squamous
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I have had penile cell cancer, and I am now looking for reconstruction surgery. Can anyone recommend a top notch surgeon? Please contact me if you have any info...
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| 0 | 05/07/02 |
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Neuroendocrine Cancer
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Looking for specialists in Neuroendocrine Cancer. Unknown Primary. Metastasis to liver and vocal cords.
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| 0 | 02/07/02 |
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Any experiences with adeniod c...
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Hello, I have had ACC since 1990, going thru 2 surgeries, radiation, and chemo. Now this cancer, Adenoid Cystic Carcinoma, is in my lungs and my oncologist has ...
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| 2 | 02/05/02 |
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Treatment for carcinoid syndro...
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I have carcinoid syndrome, the doctors have me taking Sandostatin LAR Depot, but they are not pleased with the results thus far. The doctors say they want to tr...
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| 9 | 12/23/01 |
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Adenoid Cystic Carcinoma in th...
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A surgeon just removed a tumor in my breast that was diagnosed as Adenoid Cystic Carcinoma, which is apparently rare when located in the breast. I am just begin...
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| 7 | 09/08/01 |
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Rare forms of cancer
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When I was a baby, my Dad died of a rare form of cancer, the physicians involved have since died, and medical records have been destroyed. Is there anyone out t...
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| 14 | 09/05/01 |
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