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    <title>Online Pancreatic Cancer Information: Forum Resources &amp; Research</title>
    <description>Our pancreatic cancer forum and online resources at CancerCompass.com provide a supportive environment where you can ask questions, research information and get valuable feedback.</description>
    <link>http://www.cancercompass.com/message-board/cancers/pancreatic-cancer/1,0,119,27.htm</link>
    <pubDate>Fri, 24 May 2013 00:00:00 GMT</pubDate>
    <lastBuildDate>Fri, 24 May 2013 00:00:00 GMT</lastBuildDate>
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      <title>DR. Howard Bruckner, luthern Hospital, Brooklyn, NY?</title>
      <description>I wanted to know if anyone had info on this doctor in refernce to pancreatic cancer.&amp;nbsp;My mom 61, just diagnosed - Mass in the pancreas, and spread to the lymphnodes in the stomach.&amp;nbsp; Surgery not an option at this time. Aggressive chemo reccommened...&amp;nbsp;any info on this doctor?</description>
      <link>http://www.cancercompass.com/message-board/message/all,9969,0.htm</link>
      <author>Mylisslynn</author>
      <pubDate>Wed, 28 Feb 2007 00:00:00 GMT</pubDate>
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      <title>ca19 normal what's next?</title>
      <description>So, my last ca19-9 levels were normal 33.Yay !!! But I still have a 2&amp;times;2.9cm tumor on my pancreas and 2 spots on my liver. I have been on folfirinox for 5 months and folfiri for the last 2 months due to neuopathy. I am getting a Splenic Arterial Embolization done next month for my enlarged spleen and to keep my platelets up during my next months of chemo. Any thoughts on what else I can do to decrease the tumor size and live spots? Love my ca19-9 and feel great but want to see the tumor and spots gone!!!! Any ideas would be appreciated! Thanks.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71352,0.htm</link>
      <author>jdlinder</author>
      <pubDate>Tue, 16 Apr 2013 00:00:00 GMT</pubDate>
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      <title>Pancreatic Cancer - localized inoperable</title>
      <description>My brother in law was operated on by Dr. Watkins this past Tuesday, October 16, 2012. He had a nanoknife procedure. He is in a tremendous amount of pain, but since the whipple was not a possibility because the tumor had extended into the main blood vessels, this was the only option. My sister, who is his wife, and the children are very worried. I just hope all this suffering is worth it, but Dr. Watkins told my sister that in 1/3 of the cases the tumor comes back. He also said that he has&amp;nbsp; only one patient who is still alive after having the nano knife surgery perfomred six years ago, but this is an "enigma." That sounds pretty depressing. I mean calling it an "enigma," basically means that the doctor does not know how he could still be alive; it's a puzzlement to him. Anyway, that's the way I interpret it.&amp;nbsp;
I was rather let down because before my brother in law had the nanoknife surgery, his oncologist said that his cancer markers came down 75%. However, when they did the CT scan, the tumor had not shrunk. It had not grown, but it had not shrunk either.
Does anyone know why the markers would have gone down 75% but the tumor not shrunk?
I am just hoping with all my heart that this nanoknife procedure keeps him alive until they come up with something else. I believe that John Hopkins is having success with a certain vaccine for pancreatic cancer, but I do not know for what stage. Does anyone out there know anything else about it?
Heartfelt regards for everyone who has this terrible cancer, or loves someone who has it!
Lucilliana</description>
      <link>http://www.cancercompass.com/message-board/message/all,68769,0.htm</link>
      <author>Lucillina</author>
      <pubDate>Sat, 20 Oct 2012 00:00:00 GMT</pubDate>
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      <title>Radiation and chemo pancreatic</title>
      <description>My mother has stage iv inoperable pancreatic cancer. She is on gem/abraxane which is keeping her stable other than a lesion in the liver which has grown. Doctors want to treat that part with radiation but we are worried as that means she has to go off chemo for a cpl of months. Which seems suicidal. Anyone else been thru this? Please help guide us! Thank you.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71881,0.htm</link>
      <author>dsaguy</author>
      <pubDate>Thu, 23 May 2013 00:00:00 GMT</pubDate>
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      <title>Views on benefit of radiation therapy</title>
      <description>I can't explain how greatful I am to have found this site and message board.&amp;nbsp;&amp;nbsp; The level of both compasion and knowledge of its members is outstanding.&amp;nbsp;

I am a 57 yo male and was diagnosed April 2013 w/ stage 2 PC and had the Whipple in late April.&amp;nbsp; As many of you know, that was no walk in the park, but after a month of recuperation things are much better.&amp;nbsp; The surgery was deemed effective with positive margins; however,&amp;nbsp; 8 of 25 lymph nodes were cancerous.&amp;nbsp; There is no indication of mets.
My next step is to undergo therapy to "clean up" any microscopic cancer cells that are outside of the pancreas.&amp;nbsp; My oncologist, who is well regarded but not from one of the nationally known cancer centers, recommended that I undergo 6 months of chemo with Gemcitabine.&amp;nbsp; He did not recommend radiation as he felt the benefits were small and the side effects were quite bad.&amp;nbsp; I was surprised to hear this.

I've noticed on this board that there is a lot of chemo discussion, but much less regarding radiation.

I'd would be interested in hearing your thoughts on the advisability including radiation along with chemo, especially from those who have had to make this decision already.
Thanks.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71849,0.htm</link>
      <author>Floyd8749</author>
      <pubDate>Tue, 21 May 2013 00:00:00 GMT</pubDate>
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      <title>Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver</title>
      <description>Post to give those with this particular immediate death sentence prognosis HOPE. 

In less than 2 months, my wife will be 2 years post diagnosis and 12 months post stopping all chemotherapy with no evidence of new or progressive metastatic disease and no tumor recurrence.  Only treatment was Folfirinox from August 2011 to June 2012.  Currently working out at the local fitness center 5 days a week 3 hours per day doing cardiovascular, strength endurance and weight lift training and living life symptom free.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71879,0.htm</link>
      <author>maxxschiken</author>
      <pubDate>Thu, 23 May 2013 00:00:00 GMT</pubDate>
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      <title>Approval process for Gemcitabine/Abraxane</title>
      <description>Is anybody having problems getting this regimen approved here in the US for stage four pancreatic cancer? My dad is having problems! Please let me know how you went about the  approval process. Thank you!</description>
      <link>http://www.cancercompass.com/message-board/message/all,71854,0.htm</link>
      <author>TDegroote</author>
      <pubDate>Tue, 21 May 2013 00:00:00 GMT</pubDate>
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      <title>Pancreatic cancer</title>
      <description>I am 8 weeks post surgery after a Whipple procedure to remove a tumour at the head of the pancreas.  I experience this tight band across my waist which my surgeon says is normal and could take a year to correct itself.  I am more worried about the lower back pain I experience regularly and am not sure what causes it.? 

I am on creon 25000 and take one before a meal and one half way through the meal. I only go to the toilet about once a day but my stools are still floating.  I am not losing weight any more but am not gaining either. 

Would be interested to hear some comments.</description>
      <link>http://www.cancercompass.com/message-board/message/all,69624,0.htm</link>
      <author>jrohald</author>
      <pubDate>Thu, 20 Dec 2012 00:00:00 GMT</pubDate>
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      <title>Depression after being diagnosed with Cancer</title>
      <description>Hi,
For what I see mom is going through depression.&amp;nbsp; She doesn't talk much, and doesn't want to do much. I know going after a majore surgery it takes alot to get back to your normal self. In the beginning that's what I thought,&amp;nbsp;but its been few weeks, nothing has changed even after she heard the good news that her cancer is not spread.&amp;nbsp; She hasn't said anything about how she feels. She just goes with what we tell her without any questions.&amp;nbsp; I'm worried.&amp;nbsp; If she is like this now, god only knows how she will be after chemo.&amp;nbsp; I was thinking to have her start seeing a Psychologist or Social Worker.&amp;nbsp;
Is anyone else facing this issue, and how is it being handled?
Anyone who can give me suggestions would be greatly appreciated.
Thanks/Ammani</description>
      <link>http://www.cancercompass.com/message-board/message/all,71865,0.htm</link>
      <author>Ammani</author>
      <pubDate>Wed, 22 May 2013 00:00:00 GMT</pubDate>
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      <title>STAGE IV W/LIVER METS</title>
      <description>What hospital and doctor do most people recommend for the best treatment and care for stage IV PC with mets to liver?</description>
      <link>http://www.cancercompass.com/message-board/message/all,71843,0.htm</link>
      <author>nlamb11</author>
      <pubDate>Mon, 20 May 2013 00:00:00 GMT</pubDate>
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      <title>Longest surviving pancreatic cancer patient</title>
      <description>How many years have you survived?

Are there any stats on people who have pancreatic cancer and it never came back?</description>
      <link>http://www.cancercompass.com/message-board/message/all,59782,0.htm</link>
      <author>varistas</author>
      <pubDate>Fri, 03 Jun 2011 00:00:00 GMT</pubDate>
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      <title>CT Scan</title>
      <description>Hi,
I was wondering my father had a CT scan done on March 25th. The doctor suggested another 4 treatments and then another CT Scan this Friday is his 8th treatment then he is scheduled to see the doctor June 4th and treatment June 7th with a CT Scan being scheduled after June 7th treatment. I think it may be to long from one CT to another?
Is this right? How often can CT Scans be done? if it is done around June 9th or 10th it will be 10 weeks since the one on March 25th.
Am I over reacting? I am worried.
Thanks </description>
      <link>http://www.cancercompass.com/message-board/message/all,71861,0.htm</link>
      <author>Sunshinevpk</author>
      <pubDate>Wed, 22 May 2013 00:00:00 GMT</pubDate>
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      <title>Folfirinox not working, now Gemcitabine/Abraxane</title>
      <description>Hi all,
Just wondering if anyone on here has seen success with the Gem/Abraxane combo after the Folfirinox is no longer working? Is there anyone who's been on this regimen for some time now and is seeing results. What are the main side effects? Just hoping we can knock the cancer back down. My day's markers are at 217 and they did at one point get knocked down to 59 on Folfirinox but then started to creep up again over the last couple months. After scan the other day, results showed more growth in the liver and the pancreas has remained stable but showing some metabolic activity. I'm just heartbroken but want to remain hopeful that maybe this other regimen will give him more time, maybe even more years. Any experience or thoughts are welcome! Thank you! 

Tara</description>
      <link>http://www.cancercompass.com/message-board/message/all,71752,0.htm</link>
      <author>TDegroote</author>
      <pubDate>Tue, 14 May 2013 00:00:00 GMT</pubDate>
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      <title>22 months since pan can stage 4 with liver mets</title>
      <description>Hi all,
  This is my first post on this forum. This is my story
Dad (age 52) diagnosed with pancreatic cancer in June 2011 after being misdiagnosed for several months.
Nov 2010: complaining about mild pain in the back especially after eating. Consulted a gastroenterologist who prescribed some laxatives and pain killers.(dad had been complaining of constipation).
Ultra sound normal.
Feb 2011: pain increased. Doctor did colonoscopy. Results normal. But pain continued. Doctor said everything is normal and pain is imaginary.
Consulted orthopaedic. MRI revealed nothing. 
Pancreatic cancer is really a silent killer. No wonder its never detected early. 
Never suspected cancer as dad was always in perfect health apart from the pain.
9 June 2011: an off chance visit to an elderly physician for cold and cough. Dad casually told him about pain in the back recurring for 6 months now. Smart physician immediately suspected something wrong and told my dad to get ct of the abdomen. 
( tumour in the tail of the pancreas of size 7 * 5 Cm . Multiple target lesions in the liver largest measuring 3 * 4.5 Cms )
Biopsy confirmed adinocarcinoma. 
The specialists we consulted are some of the best known in my country but still it was a humble physician who read between the lines.
Can't even begin to describe the shock dat followed the prognosis ( standard-3to6-months-left rhetoric repeated by several oncologists.)
Went from distress to denial to depression to final acceptance.
Started chemotherapy asap.
Doctor prescribed 6 cycles of chemotherapy (gemcetabine + cisplatin). Each cycle of 21 days with 2 doses on 1st and 7th day.
Once we had accepted the disease and the prognosis we started the treatment with a lot of hope and positive attitude. I banned my family members from searching anything regarding pan can online. My father to this day does not really kno the prognosis he was given.
Sep 2011: After 3 cycles, ct scan showed pancreatic tumour shrunk to 5 * 2.5 Cms ( from 7*5 Cms initially) and liver lesions decreased to 5 to 15 mm( initial ct showed lesions of 3 to 4 Cms). I still remember the look on the doctors face. He said its one of the very rare cases he has seen.
Nov 2011: completed 6 cycles. Ct showed pan tumour decreased to 4.2 * 2.4 Cms. Liver lesions decreased to 5 to 11 mm.
Started traceva for 3 months daily.
Mar 2012: ct showed further shrinking of pan can tumour to 3 * 2.2 Cms and liver lesions to 5 to 10 mm.
Doctor suggested to continue traceva.
July 2012: pan can tumour 3 * 1 Cms. Few sub centimetre lesions in the liver.
Continued traceva for some more tym. No medications being taken since aug 2012 .
Feb 2013 : pan tumour size 1.5 * 0.8 Cms. No lesions in the left lobe. Few very small lesions in the right lobe.
Doctors still can't believe the reports. They are always surprised. We continue to live life normally. Dad is asymptomatic.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71820,0.htm</link>
      <author>Cancerkin</author>
      <pubDate>Sun, 19 May 2013 00:00:00 GMT</pubDate>
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      <title>help pancreatic cancer spread to lungs</title>
      <description>Hi, &amp;nbsp;My father was diagnoised with ampullary/pancreatic cancer in Nov 07.&amp;nbsp; He was deemed a candidate for the whipple and had it in December 07.&amp;nbsp; He seemed to have recover steadily with intermittent pain.&amp;nbsp; Since then he has tried Chemo, Gemzar for about 4 months he tolerated it well.&amp;nbsp; However when a MRI was done as a check up point, the DR. felt it was not making any significant progress so he switched us to Xeloda the first 2 weeks he tolerated this fairly well.&amp;nbsp; But when he began our second 2 week session he started to have nausea and itching and jaundice began to devlop.&amp;nbsp; The nausea became so intense he started vomiting for days.&amp;nbsp; (After very little guidance in what we could do, the dr. felt these were just side effects of the xeloda and pain killers.)&amp;nbsp; We decided to admit him into our local ER.&amp;nbsp; From there they found obstruction in his billary tree and inserted only an external sent to relieve the bile.&amp;nbsp; The procedure was not complete (they did not insert the itnernal sent because there was another blockage).&amp;nbsp; This made him comfortable for a few days but one night the pain became so intense, he was able to make it through the night but the next day be became extremly weak.&amp;nbsp; This lasted a few days and we went to our dr. (oncology) again to seek answers.&amp;nbsp; They recomended we seek hospice for there was nothing they could do.&amp;nbsp; The next day, not satisfied with the answers, we sought another opinion for a GI doctor.&amp;nbsp; It just so happened that day that the external stent began to leak large quantities of bile.&amp;nbsp; The GI dr.&amp;nbsp;recomended us to the ER.&amp;nbsp; He has been in there now for about a week.&amp;nbsp; And just today they did a CT scan and found that the cancer has spread to the lungs, as evidenced by a mass found and blood clotts.&amp;nbsp; The doctors at the hospital state it may be possible to start localized radation but they are not completely sure now being that it has definately spread to the lungs.&amp;nbsp; They are in the process of reconsidering things.I was wondering, with this being spread to the lungs does anyone know how much time he may have?&amp;nbsp; Are there other forms&amp;nbsp;of treatment possible for him at this stage?&amp;nbsp; Should we try the radiation?&amp;nbsp; He hardly has an appetite and has lost lots of weight.&amp;nbsp; He is now about 100 pounds.&amp;nbsp; He also has severe constipation, he hardly has bowel movements without enema&amp;#39;s done.&amp;nbsp; Our family is completely overwhelmed and we do not feel answers are really being given to us until today when they announced his cancer spread to this lungs.&amp;nbsp; They did not even give us an answer on why his external stent had so much leakage (he was at the point where he was dripping bile and laying in it).&amp;nbsp; Alll they did was change the format of bandage to catch the bile better.&amp;nbsp; Any advice or feedback and familiar stories will much be appreciated.&amp;nbsp; Thank you for any feedback/posts.&amp;nbsp; My condolences to anyone who may be suffering as well.&amp;nbsp; </description>
      <link>http://www.cancercompass.com/message-board/message/all,27371,0.htm</link>
      <author>concern_daughter</author>
      <pubDate>Wed, 20 Aug 2008 00:00:00 GMT</pubDate>
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      <title>After Whipple Surgery Problems</title>
      <description>My sister age 63 had the Whipple procedure on Apr 24, spent 10 days in the hospital and has been home 2 weeks.&amp;nbsp; She is a type 1 diabetic and lactose intolerant.&amp;nbsp; Her cancer is Stage 2A0.&amp;nbsp; Needless to say, finding a diet that works for her has been challenging and none of the dieticians she spoke to have been able to agree.&amp;nbsp; She is in constant pain from the procedure and from gas.&amp;nbsp; She cannot find anything to eat that she wants to eat and is down to 82 lbs.&amp;nbsp; She is up and mobile and walks in her garden and the neighborhood everyday, but is just not recovering or gaining weight.&amp;nbsp; Before surgery she was very active and social. &amp;nbsp; Her MD told her to eat whatever she feels like eating and to monitor her blood sugar.&amp;nbsp; Nothing appeals to her.&amp;nbsp; She cries everyday and is so upset and confused.&amp;nbsp; When she talked to her oncologist the MD would only present therapy choices, but not recommend anything and this is even more upsetting for her to think about right now.&amp;nbsp; She is taking enzymes, pain meds, prilosec otc and also Imodium or laxatives when needed.&amp;nbsp; Is anyone else having this much difficulty?&amp;nbsp; Any suggestions?&amp;nbsp; She needs help and it is killing me to see her suffer like this.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71808,0.htm</link>
      <author>boots95843</author>
      <pubDate>Sat, 18 May 2013 00:00:00 GMT</pubDate>
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      <title>knowledge please- pancreatic/liver and now lung!</title>
      <description>Hi everyone
Would appreciate anyones knowledge of their own/loved ones journey with pancreatic/liver/lung cancer. Partner diagnosised age 42 last june (minimum 3mth given) still living and loving life for self and family despite the hurdles of chemo/infections ins and outs of hospital compilcations- when well seriously well and no one would ever know he was poorly but then a light switch moment happens and is seriously poorly. In hospital again- secondary liver has now progressed and now lungs affected... I am now seriously worried about his prognosis and treatment/effects and how to help him get what he needs that may potentially be best for him- its not about the pro longing of life ....its about the management of his self/options with what lies ahead and still for him getting something out of everyday for self despite what he is going through physically and mentally- anything in regards to the above seriously appreicated food for thought- thanks x</description>
      <link>http://www.cancercompass.com/message-board/message/all,71744,0.htm</link>
      <author>meggiemay</author>
      <pubDate>Mon, 13 May 2013 00:00:00 GMT</pubDate>
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      <title>Who is the country's best surgeon for doing a whipple?</title>
      <description>I live in&amp;nbsp;Portland, Or&amp;nbsp;in the United States and am willing to travel. I have been told that I need a whipple for a nueroendocrine tumor and I would like to go with someone who has a lot of experience. I would prefer to go to California but I am willing to go anywhere in the United States for someone who is very experienced.&amp;nbsp;Thanks</description>
      <link>http://www.cancercompass.com/message-board/message/all,50706,0.htm</link>
      <author>livewiremom</author>
      <pubDate>Tue, 31 Aug 2010 00:00:00 GMT</pubDate>
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      <title>Nausea with chemo</title>
      <description>I just had my first chemo treatment on Wed, got nausea with the last bag they hung, and then I wear a fanny pack home and get disconnected from it 2 days later, they gave me Zofran for nausea but it's not working that well for me. &amp;nbsp;Was wondering if there was anything that I should be eating or drinking to help with this. &amp;nbsp;My infusion nurse says to eat thru the nausea but it's really hard for me and to top it off now have diarrhea from the chemo. &amp;nbsp;I am trying to keep myself hydrated. &amp;nbsp;If anyone has any suggestions I would greatly appreciate it. &amp;nbsp;Thanks Patti</description>
      <link>http://www.cancercompass.com/message-board/message/all,71834,0.htm</link>
      <author>pbhatescancer</author>
      <pubDate>Mon, 20 May 2013 00:00:00 GMT</pubDate>
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      <title>Lying about cancer??</title>
      <description>My ex boyfriend said he was diagnosed with Pancreatic Cancer in March 2012 which at the time he said the doctors had told him he had already had for a 2 years. He said he was receiving treatment such as Chemotherapy and Radiotherapy, he used to attend every saturday and sunday mornings. He also said he was receiving injections monthly which were helping him to stay alive. Around October 2012 he claimed he also now has a brain tumour. But when I questioned him further about what type and more information he was never able to answer, always saying 'I don't listen to the doctor anymore.' He said that the doctors had given him till around January 2013 to live unless he went to America to receive treatment. So we booked him a ticket to go to America in December 2012 for a month. Where he attended Memorial Sloan Kettering Cancer Centre (rated the 3rd best hospital for cancer treatment). He mentioned that there was a long waiting list and therefore might not be seen, however was actually seen when he went America. (I don't understand that if there is a long waiting list why would he be given priority and seen, when there had been people on the waiting list for longer than him?). He said he was receiving extreme chemo and another treatment whereby they placed a camera in him through his mouth and vacuumed the cancer out. Despite receiving extreme treatment he was still able to go out with the family he was staying with for instance to a shooting range and New Years Party. Upon returning from America he said that they got rid of the cancer 100% however there was a high chance of it returning. Very quickly after he said how the cancer had returned and was growing rapidly.  We split in March 2013 for reasons not related. After our split he said the doctors had given him his death date as 14th November, however after he was questioned further as a doctor cannot give an exact date he replied the doctor said around November and to that he responded  'around the 14th then' and the doctor replied yes. He also said the doctors now wanted to send him to China to receive treatment however he refused to go. I would like to point out that he is 18 years old and from research I have done I found that Pancreatic Cancer is very uncommon in people under 40. Throughout the whole time he has showed no symptoms, such as weight loss, hair loss, jaundice ect.  Instead he looks perfectly healthy and is able to attend work, college, go out with his friends as normal. The only person in his family who 'apparently' knows is his mum whom I have no contact with. He refused to tell the rest of his family and only after pressure from me did he tell his best friend. He never let me go to his appointments with him, he always made an excuse such as his mum was going with him, I wasn't allowed in the room or he didn't want me too see him in that way. Once when he told me he was going hospital I actually found out he was with his mates. Furthermore, on 2 occasions he said how he overdosed on around 16 paracetamols. What I find hard to believe is if you have cancer at a later stage and a brain tumour, how can you survive an overdose twice? 
The reason I am now determined to find out if he is telling the truth or not is because I paid for half of the treatment cost and the ticket to go to America, which at the time he said he would pay me back for it all. Now that we have split, I have asked him to return the money however he says all his money is going on the treatment and therefore he cannot pay me back. However I am concerned that he doesn't even have cancer in the 1st place. 
I don't want to confront him yet, as if he does have cancer I would never be able to forgive myself. Im not sure how to approach this situation, any advice on how to go about it.</description>
      <link>http://www.cancercompass.com/message-board/message/all,71828,0.htm</link>
      <author>Sandra_1</author>
      <pubDate>Sun, 19 May 2013 00:00:00 GMT</pubDate>
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      <title>Risks of stent in the bile duct</title>
      <description>I know it's been awhile since I've posted a new thread but it's sort of that time again. I've noticed many more newbies on this forum so for those of you who don't know me, I'm Jeff and here is a brief update on my wife Annie. She was diagnosed in July 2011 with inoperable stage 4 pc with mets to her liver, went through 10 months of folfirinox and became NED in June 2012 with no treatment since then. Monthly blood work and quarterly CT scans in September and December 2012 plus the most recent CT scan last week continue to be stable with no evidence of new or progressive metastatic disease and no tumor recurrence. Her liver is healthy and functions normally. Everything is basically the way it was prior to her initial diagnosis. Eats well, digests food well, gained a respectable amount of weight back and working out 2-3 hour a day at the gym since last December. On her most recent CTscan and CBC's though, her oncologist did notice what might indicate slight inflammation around the bile duct which may also be the reason her CA19-9's were a few points up to 45 from 38 where they have been for the last 10 months. The inflammation was confirmed just yesterday through endoscopic ultrasound. The GI specialist who performed the procedure wanted to be pro-active and make sure nothing else was goin on in there. He indicated everything in the surrounding area was fine as indicated by the last scan and recommended we monitor the blood work with a full liver panel every 2-3 weeks to make certain these numbers are stable. He does not see the immediate need for a stent but wants us to think about it in the effort to remain pro-active. Annie and I will be discussing this more indepth with our family physician, oncologist and consulting GI specialist at UCSF about the risks of this type of procedure VS the benefits of having a stent in place while it can still be done.We are just at a point in this journey where we are afraid of disturbing the situation with anything invasive. Even with this last procedure, at the onset the GI was talking about ERCP's and FNA's and I was like what is the least invasive thing we can do which has little to no risks to better understand the situation with regard to this inflammation. He understood my concern and suggested the endoscopic ultrasound. Honestly for me, even the prep for this was invasive in that they required Annie to be off her diabetes meds for 3 days prior to procedure, her blood sugar spiked to 438, NPO for almost 17 hours and the procedure had to be delayed until they stabilized it to under 300. I just contemplate on the fact it's been almost 2 years since diagnosis and for the most part, life is pretty normal with the exception of those bits and pieces of anxiety we get before each scan. But at the same time, what we don't want to happen is to find Annie in a situation where the inflammation becomes worse causing blockage in the bile duct, thus affecting the liver which may even get to the point where inserting a stent becomes more difficult or impossible. More tough decisions but this is where we are currently in her journey. Any thoughts about the risks of moving forward with a profilactic stent vs it's benefits? My thoughts are we monitor the situation closely with blood work that includes full liver panels every couple weeks to make sure the numbers are normal, keep an eye on any physical changes such as jaundice, light stools and dark urine until her next CT scan in June when at that time we can make another comparrison with regard to the inflammation. While I am aware of the 5% chances of comlications such as bleeding and infection, I am just wondering if any of you out there have been in this predicament and could share your&amp;nbsp;thoughts and experiences?&amp;nbsp; Thanks you in advance.&amp;nbsp; ~jeff</description>
      <link>http://www.cancercompass.com/message-board/message/all,71211,0.htm</link>
      <author>maxxschiken</author>
      <pubDate>Fri, 05 Apr 2013 00:00:00 GMT</pubDate>
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      <title>How to get the patient strong and motivated after Whipple surgery</title>
      <description>Hi,
I would like to know if anyone is been in this situation and what they have done to help their loved one get motivated, and strong to fight this deadly disease.
After the whipple surgery mom is been staying with me and I've taken care of her which I've been happy to do. It's been a month since her surgery she still doesn't want to do much. If it was up to her she will just lay down don't do anything all day. I keep encourging her to get up and walk around get active so she can get stronger and get prepared for chemo. She will do it for few minuts then again back in bed. She doesn't even want to get up to get her water, pills or anything. My cancern is if she keep going in this rate it will take forever for her to recover and how is she going to handle chemo what will happen then.&amp;nbsp;
Sometimes I think I should take her to her own house there she has no choice but to move around, but then I feel guilty because I don't want her to think I don't want to take care of her.&amp;nbsp;She doesn't have a strong well.&amp;nbsp; I tell her after getting the biopsy results that the cancer hasn't spread you should be happy and can't wait to get started
&amp;nbsp;</description>
      <link>http://www.cancercompass.com/message-board/message/all,71821,0.htm</link>
      <author>Ammani</author>
      <pubDate>Sun, 19 May 2013 00:00:00 GMT</pubDate>
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      <title>How to get the patient strong and motivated after Whipple surgery</title>
      <description>Hi,
I would like to know if anyone&amp;nbsp;has&amp;nbsp;been in this situation and what they have done to help their loved ones get motivated, and strong to fight this deadly disease.
After the Whipple Surgery mom is been staying with me and I've taken care of her which I've been very&amp;nbsp;happy to do. I'm&amp;nbsp;worried about her state of mind. I know she's been through alot, and I&amp;nbsp;can't imagine what she is thinking.&amp;nbsp;My cancern is that it's been a month since her surgery, and&amp;nbsp;she's still in bed and doesn't want to do much. If it was up to her she will just&amp;nbsp;stay in bed don't do anything all day. I keep encourging her to get up, and walk around get active so she can get stronger and go back to doing what she was doing before all this happened.&amp;nbsp; She will do it for few minuts then again back in bed. She doesn't even want to get up to get her water, pills or anything. My cancern is if she keeps doing&amp;nbsp;this,&amp;nbsp;it will take forever for her to get&amp;nbsp;back on her feet or she might even get worse.&amp;nbsp; I don't know how she will handle chemo.&amp;nbsp;
Sometimes I think I should take her to her own house. May be being there she has no choice, but to move around and get a bit active.&amp;nbsp;I&amp;nbsp;also&amp;nbsp;feel &amp;nbsp;guilty because&amp;nbsp;I don't want her to think that I can't&amp;nbsp;take care of her.&amp;nbsp;She doesn't have a strong well.&amp;nbsp; I tell her after getting the biopsy results it shows that the cancer hasn't spread she should be happy and try to recover as soon as possible, but it's like there is no well.
Anyone &amp;nbsp;has any suggetions in how to handle this situation?&amp;nbsp; I've tried my best to motivate and encourge her to stay strong.
Thanks/Ammani
&amp;nbsp;</description>
      <link>http://www.cancercompass.com/message-board/message/all,71822,0.htm</link>
      <author>Ammani</author>
      <pubDate>Sun, 19 May 2013 00:00:00 GMT</pubDate>
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      <title>My mom has stopped eating</title>
      <description>On New Years the results came back that my mom had pancreatic cancer and at stage 4. &amp;nbsp;I have cried almost every day for the past 5 months. &amp;nbsp;I never knew I could hurt this bad. &amp;nbsp;My mom turned 68 January this year. &amp;nbsp;I am 48 and I just feel so sad, hurt, and lost. &amp;nbsp;To be honest, I am scared. I love her so much. She stayed strong and refused to let this disease get the best of her. &amp;nbsp;We have done so much over the past few months. Every day she would get up, get dressed, made sure she went out for a bit, cooked, etc. &amp;nbsp;But now the pain is worse. She use to eat every day, even a little bit cause she knew she needed to eat to keep going but that has now stopped. She isn't eating, not &amp;nbsp;because she doesn't want to but because she can't. &amp;nbsp;It has been a week. &amp;nbsp;She said she can feel herself losing the battle. Every day is noticeably worse. &amp;nbsp;What should I expect now that she has stopped eating. Am I going to lose her soon?</description>
      <link>http://www.cancercompass.com/message-board/message/all,71806,0.htm</link>
      <author>mscaroline</author>
      <pubDate>Sat, 18 May 2013 00:00:00 GMT</pubDate>
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      <title>Whipple Surgery recover and after math.</title>
      <description>Hi,
My mom is 72yrs old. She&amp;nbsp;was diagnosed with Pancreatic cancer on March 2013. She went through Whipple surgery on the 18th of April. We just got the biopsy results telling us that her cancer is not spread and it's stage 2A. We were happy to hear that. Now she has to go through Chemo. I would like to know how bad the Chemo will be for this type of cancer?</description>
      <link>http://www.cancercompass.com/message-board/message/all,71773,0.htm</link>
      <author>Ammani</author>
      <pubDate>Thu, 16 May 2013 00:00:00 GMT</pubDate>
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