Our online forum resources can help current prostate cancer patients research their disease and treatment options. For more information, post a question online today at CancerCompass.com. http://www.cancercompass.com/message-board/cancers/prostate-cancer/1,0,119,2.htm Mon, 21 May 2012 00:00:00 GMT Mon, 21 May 2012 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Today is my 7th anniversary of being diagnosed with Advanced prostate cancer. I thank God I found a holistic approach that has put my cancer in 100% remission and for those that I helped lived longer or survive this dreaded disease. With supplements, diet and life style chganges you can beat this disease or at least add years. Too bad most doctors don't embrace this knowledge and share this vital information. Heck just adding pomegranate extract it slows down the cancer four fold, based on the UCLA study. If you would like to know more info please visit my web site at www.alternativeprostatecancer.com Dan http://www.cancercompass.com/message-board/message/all,66067,0.htm skidan Mon, 07 May 2012 00:00:00 GMT Professor Garry Potter: I have prostate cancer for 6 years and this has become hormone refractory in 2011. Last December began with diethylstilbestrol (DES was the fourth drug in 2011) and the psa down from 11.4 to 6.5 in 3 months. In March 2012, started with 4,000 points of SP and a multivitamin, but in last April the PSA rose to 7.12, for this reason the SP went up to 6,000 points.I would appreciate your valuable feedback on my question:¿can I leave the DES, because I think it stopped working and has many side effects ..? and only takes SP to 6000 points .. or up to 12000..? I need to know from other experiences of partners along the route.  (I use the translator and sorry for my english, but cancer has no boundaries of language). http://www.cancercompass.com/message-board/message/all,66118,0.htm Chasqui Wed, 09 May 2012 00:00:00 GMT My dad has Advance Prostate, listed below is his journey. I know there is no cure but maybe few solid suggestion I can pass on to him during these tuff times. Maybe his journey will help someone in earlier stage of this disease. Thanks in-advance (See Timeline below)   October 2008:  Darrell, 57 was diagnosed with Stage II - Gleason 8 Prostate Cancer  (First one in his family line)                          CT and Bone Scans indicated the cancer was encapsulated in the prostate (no mets)                          His PSA at this time was only 7 - we caught it early, but unfortunately aggressive.   October - December 2008:  We consulted with a Urologist, a Medical Oncologist, a Radiation                          Oncologist, GeorgetownUniversity (Wash,DC), and attended an US TOO Information/Support Group.   December 2008:  Robotic Prostatectomy - All margins were clear and the Urologist felt that they "got it all".   February 2009:  We bought our retirement home in Winter Park (outskirts of Orlando) planning for 2012   March 2009:  First Post-Op PSA =  6.2                        We consulted with a 2nd Medical Oncologist                        CT and Bone Scan showed 3 hot spots (tailbone, shoulder and ribcage)    April 2009:  We returned to the first Medical Oncologist (didn't care for the 2nd one)                       Began Casodex (once per day), Trelstar (every 3 months), and Zometa (once per month)                       PSA = 8   June 2009:   Consulted with Johns Hopkins University  (Baltimore, MD)                      PSA = 11   July 2009:  Quarterly Bone Scan showed spots had increased in size and there were about 15 new spots (spine, eye socket, nasal passage,                    other ribcage, and pelvic bone)                     PSA = 16  (This is as high as it has ever been)   Aug 2009:  Began taxotere (every 3 weeks)   September 2009:  2nd taxotere, PSA = 9.4   October 2009:  3rd & 4th taxotere, PSA = 4                          CT and Bone Scan showed all spots were stable and no new ones                          Became neutropenic and spent 4 days in the hospital with infection which resulted in having to receive a Neulasta shot                          (the shot from hell) after every chemo treatment to keep counts in order.   November 2009:  5th taxotere, Neulasta, PSA = 2.1                           Consulted with MD Anderson Orlando - We met with the Prostate Specialist and he wanted to stop all treatment                           and re-evaluate in 6 months.  We didn't like the plan since taxotere was working so we did not go back.   December 2009:  6th taxotere, Neulasta, PSA = 0.1                             Bone Scan showed stability and 1 new spot in his forehead   January 2010:  7th and 8th taxotere, Neulasta, PSA = 0.1   February 2010:  9th taxotere, Neulasta, PSA = 0.1   March 2010:  10th and 11th (final) taxotere, Neulasta, PSA = 0.1   April 2010:  PSA = 0.1                      Consulted with NIH (National Institute of Health) Bethesda, MD   May 2010:  PSA = 0.1   June 2010:  PSA = 0.2                    Consulted with Hematology and Oncology of Orlando   July 2010:  PSA = 0.4                   Bone Scan indicated increase in existing spots and new spots (ribs, hips, shoulder and spine)                   Had a conversation about QOL and decided that early retirement and our move to Orlando was our                   best option at this point so we could have time together instead of maintaining our current lifestyle of                   being apart more than we were together.   August 2010:  PSA = 0.9   September 2010:  PSA = 1.4 <p class="MsoNor http://www.cancercompass.com/message-board/message/all,66065,0.htm Bigb28 Mon, 07 May 2012 00:00:00 GMT I am not a herbalist or medical doctor but I am writting here to introduce the work of a group of African herbalist living in rural Africa.These are a group of rural herbalist who have no formal or western education, but they have been successfully using their deep knowledge in African traditional medicine to cure deseases that medical science have failed to cure.These local herbalists have been curing many local people in their commuinities diagnosed with prostate cancer for over 25 years now.Becaus e these rural herbalist are illiterate makes them unable to reach out to patients is distant places beyound their rural communities ,moreso impossible for them to reach patients in other countries because they have no knowledge of the internet.Over these past 25 years, these rural herbalists were able to use local herbs used by their their ancestors who according to them where great medicine men during their life time.They garther these herbs around their environment to formulate herbal medicine which they have been succefully offering to their local patients.Many local patients taken herbal medicine prepared by these herbalist experience healing after few days of oral taken of herbal medicine prepared by the herbalists.Many healed with these herbs are survivors of cancer to this day.Many have lived without reccurence for close to 20 years since treated with the herbs. Apart from the good result experienced by local patients after using the herbs,many relatives and family members of local people diagnosed with cancer who took the medicine to prevent the having cancer as adviced by these herbalists, have not been reporting cancer occurence. I am confident in telling the story of these ruralAfrican herbalists to people and patients living in other countries because I am confident that apart from their healing of local people in their localities from cancer,other patients living outsite their locality such as in foreign countries could receive their healing by receiving their herbs and following the instruction on how the herbs is taken. Considering their successes in curing many local people diagnosed with cancer,I have  no single doubt in my mind that their herbal medicine would help many cancer patients in other countries in their struggle to defeat cancer and live normal life again.If you have cancer or knows someone sick with cancer or you have a family history of cancer,I advice you to try the medicine offered by these herbalist I will assist anyone  interested in their medicine in contacting them and receiving their medicine.I believe those trusting to try their medicine will experience good result,and when they experience good result, they won't hesitate to tell other patients about it and in so doing many more lives will be  saved. meagenenwa@yahoo.com http://www.cancercompass.com/message-board/message/all,66061,0.htm meaige Mon, 07 May 2012 00:00:00 GMT    My husband and I are having issues with erectile dysfunction after his prostectomy.  Injections don't work, cialis doesn't work, viagra doesn't work.  We need something to work.  He's frustrated and worried.  I love him unconditionally.  Is there someone we can go and talk to!!!  Anyone else having this problem>  The docor says there is no nerve damage from the surgery. http://www.cancercompass.com/message-board/message/all,66052,0.htm moorep63 Sun, 06 May 2012 00:00:00 GMT Has  any one  with stage III Prostate  cancer  tried  baking  soda  treatment?  And  if  so  how was the  results?  What  tests  to  confirm  it  worked or  not?  How long did you take baking soda  and  water.  Also,  has  any  one taken  50 Grams  of  Vit C  IV  and  did  it help?   BigAl123  http://www.cancercompass.com/message-board/message/all,65982,0.htm bigal123 Thu, 03 May 2012 00:00:00 GMT Sadly my husband was just diagonsed with prostate cancer, he has a psa of 13.2 whth a gleason score of 3/4 =7. he is scheduled for bone scans etc, next week. The doctor as indicated to him it is the agressive fast growing type of cancer. they also intend to do a total removal of the prostate, His psa's have been elivated for the past three years with three prior biopsys all negative. It is needless to say we are just devistated he is 66 years old, with urine flow difficulties (they say from the prostate problem) and has been experiencing low back pain for several months. I have read that it spreads to the bones and he has never had prior back pain before about three months ago. I quess my question is where do we start to stop the disease. Diana http://www.cancercompass.com/message-board/message/all,64844,0.htm DianaEichhorn Sun, 04 Mar 2012 00:00:00 GMT My husband has hormone refractory prostate cancer that has spread to his bones. He has had surgery and radiation and he has been on hormone injections over a year and then they added Casodex last July. His PSA has been rising since Feb. In Oct. it was 2.25 and Feb. it had gone to 111.52.  They took him off Casodex at that time but he is still on the injections and is scheduled for another one next week.  From there it has continued to climb.  The test today came back with a score of 2177.38.  His blood counts are low also.  He had two units of blood two weeks ago and will have to have two more tomorrow.  Can someone tell me how high the PSA can really go?  He had decided not to have chemo as long as he was feeling good.  He has been doing ok until he started having problems with his blood count and now he does not feel good and is nauseated a lot.  That makes him afraid to start chemo too because he hates fighting the nausea and thinks it will make that worse.  Of course his bones are beginning to ache and hurt too.  We have been told the chemo may help the aching in the bones but will not do much for the cancer itself. ThanksLanell http://www.cancercompass.com/message-board/message/all,12553,0.htm Lanell Wed, 30 May 2007 00:00:00 GMT This is very interesting and validates my opinion, whether you have surgery or do nothing they have similar results because they treat the sympton not the cause. http://www.independent.co.uk/life-style/health-and-families/ http://www.cancercompass.com/message-board/message/all,65932,0.htm skidan Tue, 01 May 2012 00:00:00 GMT My Dads Gleason score is 5+4 (9) (stage 4).  The cancer has spread to; bones, colon, kidneys & bladder. Diagnosed with his cancer in May 2010.He had a few Turp surgeries to get him to pee on his own again but was unsuccessful.  He has had many problems with his kidneys failing causing his creatinine & potassium levels go up to a lethal level a few times.    When he becomes ill from the Creatinine and Potassium levels they medivac him to Winnipeg.Urinary cathetar was installed January 11 2010. May 2010, Dad was hospitalized for extreme levels of Potassium, water retension (he almost died that night).  He went for emergency surgery to put in stints in each kidney and Percutaneous Nephrostomy tubes.   They put in a swan neck presternal peritoneal dialysis catheter.  They tested him for Prostate Cancer, PSA levels were over 40! They did a bone scan, test came back positive for metastasis bone cancer.  Other tests , lymph nodes infected with the cancer; bladder, kidney ureters, colon,.  The first doctor he had, was not very optimistic.  He said, "there is nothing we can do!, its to late". Another Doctor took over the case, and he is very optimisitc for interventions. After a few weeks of being in the hospital, they removed his nephrostomy tubes , left the stints in his kidneys and sent him home with his cathetar for the bladder (cant pee on his own). On his next visit to the hospital, they administered hormone therapy injection in his chest (every 3 months) plus Casodex (pill ever day). Since June his first hormone shot his PSA level is down to 4.2! He is now off Casodex but still having Hormone Therapy shots since June 2010. He went for a TURP surgery in August, but was unseccessful....they couldnt get him to be able to pee on his own.  It was more trouble than it was worth.  In September he went for a Cystoscopy, also called a cystourethroscopy or, more simply, a bladder scope, is a test to measure the health of the urethra and bladder. They found the lymph nodes are blocking this pathway. "You would think the lymph nodes would shrink, cause the huge decrease in the PSA".  Its the end of October and I would say, the biggest issue my Dad has had other than the cancer, is (sepsis) since he got his stints in his kidneys and cathetar in the bladder.  This interduces what ever virus into his body. The systemic infections seems to have gotten worse!!!!.  He was brought in by the ambulance from (sepsis) October 2010. Fever of 104,  disorientation, chills and fast heartbeat. He just finished IV meds for another infection two days prior.  He was off antibiotics for only 2 days and he got sepsis.  Now his Doctor wants him to take antibiotics everyday for good.  "I hope he doesnt become immune to this antibiotic!".  He had another TURP surgery,  November 4th.  "Like I said, his Doctor is optimistic!".December 2010, he was in the hospital for 2 weeks. He got special titanium stints put in.  His levels for creatinin & potasium seem to be good.  He is going in next week to get his nephrostomy tube taken out. His Urinary Cathetar has been taken out.  He can now urinate on his own.     40 to 4.2. October 2010> January 2011 PSA jump from 4.2-7.5February 14th 2011 he got his PSA test back it was 9.They are now setting him up with Oncology to arrange for Chemotherapy.Dad seen his Oncologist in March.  PSA in March came back 16.5  They put him back on Casodex.  His PSA test came back April 18 and its 17.5At the moment dad is on Eligard injection and Casodex.June 7 2011My Dad had a teleconfrence at our local hospital on May 31st. His last PSA reading 4 weeks prior was 17.5, 4 weeks later it jumped to 30.  I am wondering what caused this huge jump in PSA. At the appointment the oncologist said they will take him off of Casodex (b/c its not working). The Doctor will keep him on ELIGARD is a prescription drug, given by injection.The cancer has spread to bones and kideneys and lymph nodes. They want to do a bone scan and CAT scan to see where else it spread.  They want to do the scans first to see if he is eligible for clinical trials.  If the cancer has spread further, he is only eligible for certain ones.  If it has spread further they will start him on Prednisone.  At the next teleconfrence will get more information.June 19, 2011  My Dad has been on ELIGARD for over a year now.  He will be scheduled for CAT scan and bone scan on the 28 of June.  He found out his kidneys are to weak for the clinical trials.  If the cancer has spread further, not sure yet what treatment they will be starting him on.  He was on hormone therapy from June 2010-October 2010 his PSA started to rise again.  They took him of the therapy.  His PSA has risen 4.2-7.5-9.5-16-17.5-30.5.  Before, when he found he had cancer, last spring, his PSA was 40.  It went down to 4.2 from the hormone therapy, stayed low until October 2010 and has been rising since.  Its weird how it jump from 17-30 in only 4 weeksDad had his teleconference on July 5. He got his bone scan and CAT scan test results back.  The prostate cancer originaly was already in the bones and kidneys with bone and CAT scan from last year June 2010.We found out on  July 5th, 2011 that the cancer has gone to his stomach and bladder as well in other places in his bones.  He was told that there is not much they can do now for the cancer.  All hormone treatment has been exhausted.  They are starting him on chemotherapy (Docetaxol).  The Oncologist was very blunt on the reality.  He says the cancer is progressing very quickly and there is nothing else we can do other than start the chemotherapy.  He was previously on Tylenol 3s but they started him on morphine to help with the pain in his bones.September 11, 2011 He is on 9 mg of Hydromorphone.  His stomach seems to give him a lot of greif, nausea, vomiting and pain.  He will be seeing Dr. Azar this week to get some answers about his stomach. His Paliative nurse noticed his stomach protruding.  He will be having a Teleconference soon.  The only other treatments he is on, calcium injection and Elgard injection (hormone).  He takes a antianxiety medication when needed.  There maybe other medications, unknown at this time.January 16, 2012Dad has been set up with paliative care/cancer care. November 2011 his kidneys were starting to become acute again. He was unable to control his urine, levels of creatinine and K+ were going up to dangerous levels. His doctor was wanting him to have treatment in the health science centre Winnipeg for his kidenys.  He has refused treatment and is wanting to live his last days at his home at Clear Water Lake. He has homecare in his home Monday-Friday 8 hrs/day.  Weekends Linda is having to care for him.  He is now not to mobile, for an example, he does not drive or go outside anymore.  He has family and friends to tend to his outside work if need be like, snow removal.  His health has been deteriating fast in the last weeks.  He is now in depends (diapers) for uncontrolled urine and bowel movements.  He has edema, swelling of his legs from his feet to his hips.  He had an x-ray of his spine b/c he was complaining of lots of pain.  They found one of his vertibrae to be fractured.  Doctor increased his Hydromorphone break-through to help with back pain.  He had an x-ray done on his bowel to see why he has continued diarrhea.  They found him to very impacted and have him o http://www.cancercompass.com/message-board/message/all,65899,0.htm peace_love Sun, 29 Apr 2012 00:00:00 GMT My Dad was ambulanced to the hospital yesterday for possible pneumonia.  He was admitted to hospital.  It turned out it wasnt pneumonia it was fluid that has over come his body.  It was in his legs, then to his arm then his lungs.  Its like he is drowning in his own fluid.  He now has a ''death rattle'' and doctor said he has maybe a few days to live.  I just came home from the hospital and he mumbles to himself and doesnt know that we are there.  His eyes are open and is staring into space.  I really hope he sees beauty now and not the horrible suffering.  I will be going back in the morning to see Dad.  He is never alone as we all come together to make shifts to stay with him. I will keep you updated.  :) http://www.cancercompass.com/message-board/message/all,65548,0.htm peace_love Thu, 12 Apr 2012 00:00:00 GMT My Dads Gleason score is 5+4 (9) (stage 4).  The cancer has spread to; bones, colon, kidneys & bladder. Diagnosed with his cancer in May 2010.He had a few Turp surgeries to get him to pee on his own again but was unsuccessful.  He has had many problems with his kidneys failing causing his creatinine & potassium levels go up to a lethal level a few times.    When he becomes ill from the Creatinine and Potassium levels they medivac him to Winnipeg. Urinary cathetar was installed January 11 2010. May 2010, Dad was hospitalized for extreme levels of Potassium, water retension (he almost died that night).  He went for emergency surgery to put in stints in each kidney and Percutaneous Nephrostomy tubes.   They put in a swan neck presternal peritoneal dialysis catheter.  They tested him for Prostate Cancer, PSA levels were over 40! They did a bone scan, test came back positive for metastasis bone cancer.  Other tests , lymph nodes infected with the cancer; bladder, kidney ureters, colon,.  The first doctor he had, was not very optimistic.  He said, "there is nothing we can do!, its to late". Another Doctor took over the case, and he is very optimisitc for interventions. After a few weeks of being in the hospital, they removed his nephrostomy tubes , left the stints in his kidneys and sent him home with his cathetar for the bladder (cant pee on his own). On his next visit to the hospital, they administered hormone therapy injection in his chest (every 3 months) plus Casodex (pill ever day). Since June his first hormone shot his PSA level is down to 4.2! He is now off Casodex but still having Hormone Therapy shots since June 2010. He went for a TURP surgery in August, but was unseccessful....they couldnt get him to be able to pee on his own.  It was more trouble than it was worth.  In September he went for a Cystoscopy, also called a cystourethroscopy or, more simply, a bladder scope, is a test to measure the health of the urethra and bladder. They found the lymph nodes are blocking this pathway. "You would think the lymph nodes would shrink, cause the huge decrease in the PSA".  Its the end of October and I would say, the biggest issue my Dad has had other than the cancer, is (sepsis) since he got his stints in his kidneys and cathetar in the bladder.  This interduces what ever virus into his body. The systemic infections seems to have gotten worse!!!!.  He was brought in by the ambulance from (sepsis) October 2010. Fever of 104,  disorientation, chills and fast heartbeat. He just finished IV meds for another infection two days prior.  He was off antibiotics for only 2 days and he got sepsis.  Now his Doctor wants him to take antibiotics everyday for good.  "I hope he doesnt become immune to this antibiotic!".  He had another TURP surgery,  November 4th.  "Like I said, his Doctor is optimistic!".December 2010, he was in the hospital for 2 weeks. He got special titanium stints put in.  His levels for creatinin & potasium seem to be good.  He is going in next week to get his nephrostomy tube taken out. His Urinary Cathetar has been taken out.  He can now urinate on his own.     40 to 4.2. October 2010> January 2011 PSA jump from 4.2-7.5February 14th 2011 he got his PSA test back it was 9.They are now setting him up with Oncology to arrange for Chemotherapy.Dad seen his Oncologist in March.  PSA in March came back 16.5  They put him back on Casodex.  His PSA test came back April 18 and its 17.5At the moment dad is on Eligard injection and Casodex.June 7 2011My Dad had a teleconfrence at our local hospital on May 31st. His last PSA reading 4 weeks prior was 17.5, 4 weeks later it jumped to 30.  I am wondering what caused this huge jump in PSA. At the appointment the oncologist said they will take him off of Casodex (b/c its not working). The Doctor will keep him on ELIGARD is a prescription drug, given by injection.The cancer has spread to bones and kideneys and lymph nodes. They want to do a bone scan and CAT scan to see where else it spread.  They want to do the scans first to see if he is eligible for clinical trials.  If the cancer has spread further, he is only eligible for certain ones.  If it has spread further they will start him on Prednisone.  At the next teleconfrence will get more information.June 19, 2011  My Dad has been on ELIGARD for over a year now.  He will be scheduled for CAT scan and bone scan on the 28 of June.  He found out his kidneys are to weak for the clinical trials.  If the cancer has spread further, not sure yet what treatment they will be starting him on.  He was on hormone therapy from June 2010-October 2010 his PSA started to rise again.  They took him of the therapy.  His PSA has risen 4.2-7.5-9.5-16-17.5-30.5.  Before, when he found he had cancer, last spring, his PSA was 40.  It went down to 4.2 from the hormone therapy, stayed low until October 2010 and has been rising since.  Its weird how it jump from 17-30 in only 4 weeksDad had his teleconference on July 5. He got his bone scan and CAT scan test results back.  The prostate cancer originaly was already in the bones and kidneys with bone and CAT scan from last year June 2010.We found out on  July 5th, 2011 that the cancer has gone to his stomach and bladder as well in other places in his bones.  He was told that there is not much they can do now for the cancer.  All hormone treatment has been exhausted.  They are starting him on chemotherapy (Docetaxol).  The Oncologist was very blunt on the reality.  He says the cancer is progressing very quickly and there is nothing else we can do other than start the chemotherapy.  He was previously on Tylenol 3s but they started him on morphine to help with the pain in his bones.September 11, 2011 He is on 9 mg of Hydromorphone.  His stomach seems to give him a lot of greif, nausea, vomiting and pain.  He will be seeing Dr. Azar this week to get some answers about his stomach. His Paliative nurse noticed his stomach protruding.  He will be having a Teleconference soon.  The only other treatments he is on, calcium injection and Elgard injection (hormone).  He takes a antianxiety medication when needed.  There maybe other medications, unknown at this time. January 16, 2012Dad has been set up with paliative care/cancer care. November 2011 his kidneys were starting to become acute again. He was unable to control his urine, levels of creatinine and K+ were going up to dangerous levels. His doctor was wanting him to have treatment in the health science centre Winnipeg for his kidenys.  He has refused treatment and is wanting to live his last days at his home at Clear Water Lake. He has homecare in his home Monday-Friday 8 hrs/day.  Weekends Linda (wife) is having to care for him.  He is now not to mobile, for an example, he does not drive or go outside anymore.  He has family and friends to tend to his outside work if need be like, snow removal.  His health has been deteriating fast in the last weeks.  He is now in depends (diapers) for uncontrolled urine and bowel movements.  He has edema, swelling of his legs from his feet to his hips.  He had an x-ray of his spine b/c he was complaining of lots of pain.  They found one of his vert http://www.cancercompass.com/message-board/message/all,65894,0.htm peace_love Sun, 29 Apr 2012 00:00:00 GMT My Dads Gleason score is 5+4 (9) (stage 4).  The cancer has spread to; bones, colon, kidneys & bladder. Diagnosed with his cancer in May 2010.He had a few Turp surgeries to get him to pee on his own again but was unsuccessful.  He has had many problems with his kidneys failing causing his creatinine & potassium levels go up to a lethal level a few times.    When he becomes ill from the Creatinine and Potassium levels they medivac him to Winnipeg. Urinary cathetar was installed January 11 2010. May 2010, Dad was hospitalized for extreme levels of Potassium, water retension (he almost died that night).  He went for emergency surgery to put in stints in each kidney and Percutaneous Nephrostomy tubes.   They put in a swan neck presternal peritoneal dialysis catheter.  They tested him for Prostate Cancer, PSA levels were over 40! They did a bone scan, test came back positive for metastasis bone cancer.  Other tests , lymph nodes infected with the cancer; bladder, kidney ureters, colon,.  The first doctor he had, was not very optimistic.  He said, "there is nothing we can do!, its to late". Another Doctor took over the case, and he is very optimisitc for interventions. After a few weeks of being in the hospital, they removed his nephrostomy tubes , left the stints in his kidneys and sent him home with his cathetar for the bladder (cant pee on his own). On his next visit to the hospital, they administered hormone therapy injection in his chest (every 3 months) plus Casodex (pill ever day). Since June his first hormone shot his PSA level is down to 4.2! He is now off Casodex but still having Hormone Therapy shots since June 2010. He went for a TURP surgery in August, but was unseccessful....they couldnt get him to be able to pee on his own.  It was more trouble than it was worth.  In September he went for a Cystoscopy, also called a cystourethroscopy or, more simply, a bladder scope, is a test to measure the health of the urethra and bladder. They found the lymph nodes are blocking this pathway. "You would think the lymph nodes would shrink, cause the huge decrease in the PSA".  Its the end of October and I would say, the biggest issue my Dad has had other than the cancer, is (sepsis) since he got his stints in his kidneys and cathetar in the bladder.  This interduces what ever virus into his body. The systemic infections seems to have gotten worse!!!!.  He was brought in by the ambulance from (sepsis) October 2010. Fever of 104,  disorientation, chills and fast heartbeat. He just finished IV meds for another infection two days prior.  He was off antibiotics for only 2 days and he got sepsis.  Now his Doctor wants him to take antibiotics everyday for good.  "I hope he doesnt become immune to this antibiotic!".  He had another TURP surgery,  November 4th.  "Like I said, his Doctor is optimistic!".December 2010, he was in the hospital for 2 weeks. He got special titanium stints put in.  His levels for creatinin & potasium seem to be good.  He is going in next week to get his nephrostomy tube taken out. His Urinary Cathetar has been taken out.  He can now urinate on his own.     40 to 4.2. October 2010> January 2011 PSA jump from 4.2-7.5February 14th 2011 he got his PSA test back it was 9.They are now setting him up with Oncology to arrange for Chemotherapy.Dad seen his Oncologist in March.  PSA in March came back 16.5  They put him back on Casodex.  His PSA test came back April 18 and its 17.5At the moment dad is on Eligard injection and Casodex.June 7 2011My Dad had a teleconfrence at our local hospital on May 31st. His last PSA reading 4 weeks prior was 17.5, 4 weeks later it jumped to 30.  I am wondering what caused this huge jump in PSA. At the appointment the oncologist said they will take him off of Casodex (b/c its not working). The Doctor will keep him on ELIGARD is a prescription drug, given by injection.The cancer has spread to bones and kideneys and lymph nodes. They want to do a bone scan and CAT scan to see where else it spread.  They want to do the scans first to see if he is eligible for clinical trials.  If the cancer has spread further, he is only eligible for certain ones.  If it has spread further they will start him on Prednisone.  At the next teleconfrence will get more information.June 19, 2011  My Dad has been on ELIGARD for over a year now.  He will be scheduled for CAT scan and bone scan on the 28 of June.  He found out his kidneys are to weak for the clinical trials.  If the cancer has spread further, not sure yet what treatment they will be starting him on.  He was on hormone therapy from June 2010-October 2010 his PSA started to rise again.  They took him of the therapy.  His PSA has risen 4.2-7.5-9.5-16-17.5-30.5.  Before, when he found he had cancer, last spring, his PSA was 40.  It went down to 4.2 from the hormone therapy, stayed low until October 2010 and has been rising since.  Its weird how it jump from 17-30 in only 4 weeksDad had his teleconference on July 5. He got his bone scan and CAT scan test results back.  The prostate cancer originaly was already in the bones and kidneys with bone and CAT scan from last year June 2010.We found out on  July 5th, 2011 that the cancer has gone to his stomach and bladder as well in other places in his bones.  He was told that there is not much they can do now for the cancer.  All hormone treatment has been exhausted.  They are starting him on chemotherapy (Docetaxol).  The Oncologist was very blunt on the reality.  He says the cancer is progressing very quickly and there is nothing else we can do other than start the chemotherapy.  He was previously on Tylenol 3s but they started him on morphine to help with the pain in his bones.September 11, 2011 He is on 9 mg of Hydromorphone.  His stomach seems to give him a lot of greif, nausea, vomiting and pain.  He will be seeing Dr. Azar this week to get some answers about his stomach. His Paliative nurse noticed his stomach protruding.  He will be having a Teleconference soon.  The only other treatments he is on, calcium injection and Elgard injection (hormone).  He takes a antianxiety medication when needed.  There maybe other medications, unknown at this time. January 16, 2012Dad has been set up with paliative care/cancer care. November 2011 his kidneys were starting to become acute again. He was unable to control his urine, levels of creatinine and K+ were going up to dangerous levels. His doctor was wanting him to have treatment in the health science centre Winnipeg for his kidenys.  He has refused treatment and is wanting to live his last days at his home at Clear Water Lake. He has homecare in his home Monday-Friday 8 hrs/day.  Weekends Linda (wife) is having to care for him.  He is now not to mobile, for an example, he does not drive or go outside anymore.  He has family and friends to tend to his outside work if need be like, snow removal.  His health has been deteriating fast in the last weeks.  He is now in depends (diapers) for uncontrolled urine and bowel movements.  He has edema, swelling of his legs from his feet to his hips.  He had an x-ray of his spine b/c he was complaining of lots of pain.  They found one of his vert http://www.cancercompass.com/message-board/message/all,65893,0.htm peace_love Sun, 29 Apr 2012 00:00:00 GMT My Dads passing was on April 12th at 8:30 pm from respiratory failure.  He fought a long battle with prostate cancer of 3 years. He is now resting and at peace.  I wanted to thank everyone on this wonderful site for being there for my support. http://www.cancercompass.com/message-board/message/all,65891,0.htm peace_love Sun, 29 Apr 2012 00:00:00 GMT My Dad, 58 now, was diagnosed in late 2010 with Prostate Cancer- stage 3. We knew it spread out of the prostate, so they said he had to have surgery. When they did the surgery, they found it spread MUCH out of the prostate and tested 2 lymph nodes and found cancer in one of them. His PSA went from 3.88 to 1.88 and his gleason went from 9 to 7. The dr. said if he did nothing, he'd have a year left. He did 33 treatments of radiation (finished in July) and 3 hormone treatments (one every 4 months) and after his first hormone shot, 8 months ago, his PSA was 0.35, then 4 months ago it was -.33.  Yesterday he went and it's now 0.99. The doctor seemed very pessimistic.  They are rushing a bone and CT scan and a new PSA test and we'll find all the results in exactly one month. I'm wondering a few things here: 1) Are there other things that can cause a 3X PSA rise, like stress? 2) The doctor talked about chemo, does that mean that he's very concerned?  I know it's best to look into alternative treatments, etc etc, but how concerned should we be? 3) Any other comments?  Is it not normal for PSA to go up and fluctuate or because it's stage 4 at such a high gleason, that it's very serious? Thanks. http://www.cancercompass.com/message-board/message/all,65857,0.htm tzippy01 Fri, 27 Apr 2012 00:00:00 GMT Has anyone been treated with Sonophoto Dynamic Therapy?  If so has it worked well?  My husband has prostate cancer Stage 4 and we are thinking of going to hope4cancer to do this therapy. http://www.cancercompass.com/message-board/message/all,32799,0.htm Shushi Tue, 03 Feb 2009 00:00:00 GMT We are looking to collect information pertaining to medical second opinions. How they can advocate for the patient. There is thousands of us on this board and your opinions would mean a lot. We are trying to advocate for the patient so please take 1 min and help us out! http://www.surveymonkey.com/s/8NBLZ6V http://www.cancercompass.com/message-board/message/all,65828,0.htm jcs52368 Thu, 26 Apr 2012 00:00:00 GMT Dear Dr. Garry: Excited and hopeful to have found this site. Only a brilliant mind could find the natural mechanism of action of anticancer salvestroles. In a globalized world, both horizontally and vertically, is valid for systemic macro and micro, and you found him in the micro. I have read all their comments and I have some highlights of what I can apply in my case, however I have some questions and need guidance. In summary: * 6 years ago received dx: prostate cancer (G7 = 4+3) and PSA=68. No metastasis. Today I'm nearly 75 years and physically well, I can  still jog 10 km / day in Lima, Perú. * Initial treatment: radiation therapy and hormone therapy. * Evolution: for about 5 years I was OK, my PSA framework between 0.02 and 0.04. * In early 2011 my PSA was 0.7 and began to climb more and thus receive hormone therapy. Each drug (Casodex, Androcur and Andglutamide) worked well only for 2 or 3 months. In December my psa went up to 11.4 and prostate cancer and classified as hormone refractory. * January 2012 I started with the fourth drug (diethylstilbestrol) and my psa dropped from 11.4 to 7.1 in one month and then stopped in February and March around 6.5. * In mid-March 2012, I started taking 4000 points/day of  SP/2000, plus a multivitamin that has all three enhancers SP. At a month old SP, my psa went up to 7.12 (0.6 more). Now, since April, I am taking 6000 points of SP. My comments and questions: I read that my psa up in the first month of taking SP because there is apoptosis of cancer cells and poured it in my blood. Then..¿ Should I stop taking the Diethylstilbestrol, because before starting with SP, my psa had already been stationed in 6.5 with this drug ..? I have read that this drug has significant side effects in the liver and stroke; so I like to go it alone with SP ¿ I can do that with a hormone refractory cancer ..? http://www.cancercompass.com/message-board/message/all,65768,0.htm Chasqui Sun, 22 Apr 2012 00:00:00 GMT I am posting this message as a testimony that Hyperbaric Oxygen Therapy is helping my husband overcome severe radiation burns of the anal canal and rectum.    He started treatment on May 17, 2010 and is about 2/3 of the way through 40 treatments and he is showing much improvement.   None of the creams, suppositories, ointments, etc. given by his radiation oncologist were helping at all.   Thank God we were led to a colorectal doctor in our area who told us he was having good results treating this condition with Hyperbaric Oxygen Therapy. http://www.cancercompass.com/message-board/message/all,49051,0.htm littlemom Tue, 29 Jun 2010 00:00:00 GMT Mr. Buffet has been diagnosed with stage one prostate cancer. I suppose he will outlive the disease. http://www.cancercompass.com/message-board/message/all,65654,0.htm POOKIETRAIN Tue, 17 Apr 2012 00:00:00 GMT A wile a go I got a bad case of the flu I just could not stomach have this and the flu as well, so for five weeks I went off it. But one day I notice I felt pain in one of my testicles , it was getting worse as it was starting to really ache when I felt, the tactical I found there was a small lump. so I went back to having 15 ground up apricot pits a day but after reading about vitamin C I all so also added LIPOSOMAL ENCAPSULATED VITAMIN C as well I have read reports that say LIPOSOMAL ENCAPSULATED VITAMIN C is As Effective As IV and you can do DIY for Pennies, But in reality I bought a sonic jewelry cleaner for $28.00. Now I make this once a week but every two weeks it cost me about $10.00 for a 125g pack ascorbic acid, and 10.00 for 400g soya lecithin Granules with the LIPOSOMAL ENCAPSULATED VITAMIN C and the 15 aprecot pits .the pain and the lump are now gone let just hope it stays that way  All the best Ray http://www.youtube.com/watch?v=SeU--wadrMY http://www.cancercompass.com/message-board/message/all,65570,0.htm rjcrossley Fri, 13 Apr 2012 00:00:00 GMT One of the earliest and most bothersome side effects of androgen deprivation therapy for prostate cancer is the hot flash. Very similar to those experienced by women during menopause, hot flashes can be debilitating for men receiving medications such as Lupron. Many are too embarrassed by hot flashes to even mention them to their physician. Others don’t discuss them because they feel that these hot flashes cannot be treated or prevented. In reality, this could not be further from the truth. In this post, I will describe hot flashes and discuss what causes them. In addition, I will review the most common medications employed to prevent and treat hot flashes experienced by men undergoing androgen deprivation therapy for prostate cancer.   Hope you find it useful!   Prostate Doc   myprostatedoc.blogspot.com   http://www.cancercompass.com/message-board/message/all,65486,0.htm prostatemd Mon, 09 Apr 2012 00:00:00 GMT I am looking into the HIFU offered in Toronto, Canada. Has anyone been involved with the Don Mills Surgical Center or Maple Leaf HIFU? We want to go there for our treatment, but want to make sure it's truly in existance before we send money. Nalamar, Maine, USA http://www.cancercompass.com/message-board/message/all,3457,0.htm Nalamar Fri, 11 Nov 2005 00:00:00 GMT Is there an affect from drinking alcohol if given Lupron injections every 4 months?  http://www.cancercompass.com/message-board/message/all,65504,0.htm manhattan7 Tue, 10 Apr 2012 00:00:00 GMT According to an article published in the Times Picayune, dietician Molly Kimball finds that lifestyle changes and nutritional supplements can go a long way in treating high blood pressure. Along with diet and exercise, Kimball says nutrients like potassium can help lower blood pressure. Foods high in potassium include red beans, mushrooms, bananas, and milk. Calcium can also slightly lower blood pressure levels, when taken at doses between 1000 and 1500 mg a day. Foods rich in calcium include yogurt, milk, cheese, and leafy greens. Benefits of calcium are also found in dietary supplements. 40 grams of soy protein a day shows a significant decrease in blood pressure, and can be taken through protein powders, tofu, and soy milk. Co-Q10 also has significant benefits on blood pressure, and when up to 200 mg a day are taken, some patients have achieved reductions in prescription blood pressure medicines. Probably one of the most enjoyable nutrient that has shown to be significantly beneficial to people with high blood pressure is chocolate. The problem with using chocolate to lower BP levels is the fact that you would have to consume 3.5 ounces of chocolate every day, which contains a large amount of calories. Your best bet would be to combine nutrient intake, focusing on the foods or supplements that are the most heart healthy. Women's Health News Brought To You Byhttp://NaturesBalance.com http://www.cancercompass.com/message-board/message/all,65362,0.htm amethyst_1717 Tue, 03 Apr 2012 00:00:00 GMT