Sutent

Scheduled to begin Sutent on April 15.  I am interested in finding information on quality of life while on the treatment.  On the two weeks off the medication do the side effects diminish?  After reading the string of comments I feel that the drug will be much better than the Interferon alfa I was on last year. 

Thanks in advance.  God Bless you all.

Neil

 Neil here is a link you may find interesting..I know nothing of this drug or what type of cancer you have.  (I am a multiple myeloma survivor -bone cancer) I also would look up alternative therapies  that can also assist in getting you well.  I took alternative 95% and regular therapy 5%.  Mine was an unusual case but it is the reason I am alive.  All the best.  Here is the link:

www.chemocare.com/bio/sutent.asp

Here is another site for alternative supplement that really helps with the side effects of chemo and cuts them way down.

www.polymva.com  www.facr.org

All the best..Elaine  

On 3/5/2007 Neilh wrote:

Scheduled to begin Sutent on April 15.  I am interested in finding information on quality of life while on the treatment.  On the two weeks off the medication do the side effects diminish?  After reading the string of comments I feel that the drug will be much better than the Interferon alfa I was on last year. 

Thanks in advance.  God Bless you all.

Neil

Hi Neil,

As you will see from other posts everyone taking sutent is different.  My husband started his first cycle on Dec 1st. and really the side effects for him have been very manageable. 

Cycle 1 nothing much until day 11 when fatigue set in, our youngest daughter picked up a bug at school and this knocked him for six, he ended up in hopsital for 5 days.  They just monitored him in the hospital and he carried on the sutent. Tiredness was his main complaint.

Cycle 2 nothing much at all. Tiredness some days but not too bad, slight yellowness of the skin, odd rash on body, blotchiness, he uses baby oil on his skin every day and finds vaseline intensive care with aloe vera takes care of any slight itchiness.

Cycle 3 ok until yesterday day 10 when the tiredness set in.  He is finding it hard to stay warm the last few days but nothing major.

Since December 1st he has been able to do jobs around the house, collect our daughter from school, normal things.  He takes it easy and just does what he can.  At the end of this cycle he will be scanned to see what is happening we are very hopeful and a positive attitude goes a long way as you will see from other peoples postings.

Good luck when you start Sutent and stay in touch.

Siobhan