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Need Advice

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Caregiver
Caregiver
Billymilly
Recommend this Message
Subject: need advice
Date: 03/06/2007
my mum has had mutiple myeloma for 2 years now.  She has undergone a stem cell transplant but after 7 months they told her it was not successful.  She went on Velcade and had only one round of treatment (4 days) before becomming really ill.  She has been in and out of hospital so many times now I have lost count in the last 6 months.  She currently has been in hospital for over 2 weeks now due to severe dizziness, we were told today by the consultant there was nothing more they can do as the Velcade has made her so ill and weak.  They have arranged McMillian Nurses to come to my mums home when she is discharged.  I would like to know how long my mum has left and my mum has told me she would too.  Is there anyone out there that has gone through a similar thing and can tell me what to expect in the end.  My mum is 66.  Thanks Mandy
Survivor
Survivor
Commonsense2265
Recommend this Message
Subject: RE: need advice/Multiple Myeloma
Date: 03/06/2007

 Dear Mandy: how terrible for you and your mother..check my post of 3/1/07 under Multiple Myeloma on the message board.  At this stage your mother probably does not have much time left.  I was in her exact same spot except I did NOT take the chemo but only the Poly MVA  www.poymva.com so I did not suffer the terrible side effects of the chemo but I was at end stage 3 (some say 4 but my oncologist said that is death) There was no hope for m, told to go home and die and this stuff, natural supplement worked for me but it does not work for everyone.

It is also expensive as insurance does not cover it..I took it as I had no hope..I was 60 at the time. in 15 months I was MM free..still am..I was the exception and your mother being so weak.  Anyway if you want to find more about it I am at 

--- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

 .  Otherwise take you mother home, give her liquids, hospice care, lots of pain meds and ease her time in this world. MM is a fierce disease and believe me I was at the gates of Hell!!  Feel free to email as I know what you are both going thru..Elaine 

On 3/6/2007 Billymilly wrote:

my mum has had mutiple myeloma for 2 years now.  She has undergone a stem cell transplant but after 7 months they told her it was not successful.  She went on Velcade and had only one round of treatment (4 days) before becomming really ill.  She has been in and out of hospital so many times now I have lost count in the last 6 months.  She currently has been in hospital for over 2 weeks now due to severe dizziness, we were told today by the consultant there was nothing more they can do as the Velcade has made her so ill and weak.  They have arranged McMillian Nurses to come to my mums home when she is discharged.  I would like to know how long my mum has left and my mum has told me she would too.  Is there anyone out there that has gone through a similar thing and can tell me what to expect in the end.  My mum is 66.  Thanks Mandy

 

Caregiver
Caregiver
Billymilly
Recommend this Message
Subject: RE: need advice/Multiple Myeloma
Date: 03/08/2007
Dear Elaine, thanks for replying to my post.  I am pleased you are doing well and hope you continue to do so.  My mum is still going dizzy but other than that she is doing ok (not in any pain etc).  We hope she can come home next week.  I will keep you posted on here as to how she is.  Thanks Mandy
Survivor
Survivor
Commonsense2265
Recommend this Message
Subject: RE: need advice/Multiple Myeloma
Date: 03/08/2007

 Mandy: Here is to a good home coming for mother, and may she not suffer. You and all the people on thissite are in my prayers...Elaine

On 3/8/2007 Billymilly wrote:

Dear Elaine, thanks for replying to my post.  I am pleased you are doing well and hope you continue to do so.  My mum is still going dizzy but other than that she is doing ok (not in any pain etc).  We hope she can come home next week.  I will keep you posted on here as to how she is.  Thanks Mandy

 

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