Concerned Bigsis/Primary Peritoneal Cancer

Hi...my mom was recently diagnoised with PPC and I have a message dated 5/8/07. I would like to hear from anyone who is struggling with a loved one over this, or anyone who has been diagnoised with it.

 

Barb 

Hi, My mom was diagnosed just over a month ago . I have tried chatting with others diagnosed with this horrible disease but know one has replied to my messages. My mother has really gone down hill since her debulking surgery. I'm the only one in my family that has gone online and tried researching this rare form of cancer. My mom has no idea how fatal this type is and I don't want her too. However, I want her to try alternative treatments such as the Avastin clinical trial but she is not up to getting a second opinion. I'm so frustrated!

Definitely tell your mom to keep the faith and keep fighting!  I've read of others on these boards that are long time survivors of this terrible disease.  I know how you must be feeling as I've been through this with my mom. She was diagnosed in March 2007 and fought it all the way until the end, when she passed away last month.  She had about 5 months remission where she felt great and was able to travel and do all the things she loved.  You're smart to get information and search for treatment options.  Keep doing that, keep praying and enjoy every moment you have with her.  Do fun stuff that gives you great memories and hopefully she'll be with you for years to come.  I lived far away from my mom but made several trips to see her during the 18 months she was sick.  I am so happy that i took the time to do that now. Send me emails if you want to talk or vent.  I know it's hard to go through this.

Definitely tell your mom to keep the faith and keep fighting!  I've read of others on these boards that are long time survivors of this terrible disease.  I know how you must be feeling as I've been through this with my mom. She was diagnosed in March 2007 and fought it all the way until the end, when she passed away last month.  She had about 5 months remission where she felt great and was able to travel and do all the things she loved.  You're smart to get information and search for treatment options.  Keep doing that, keep praying and enjoy every moment you have with her.  Do fun stuff that gives you great memories and hopefully she'll be with you for years to come.  I lived far away from my mom but made several trips to see her during the 18 months she was sick.  I am so happy that i took the time to do that now. Send me emails if you want to talk or vent.  I know it's hard to go through this.

 

On 9/25/2008 Maxalliemom wrote:

Definitely tell your mom to keep the faith and keep fighting!  I've read of others on these boards that are long time survivors of this terrible disease.  I know how you must be feeling as I've been through this with my mom. She was diagnosed in March 2007 and fought it all the way until the end, when she passed away last month.  She had about 5 months remission where she felt great and was able to travel and do all the things she loved.  You're smart to get information and search for treatment options.  Keep doing that, keep praying and enjoy every moment you have with her.  Do fun stuff that gives you great memories and hopefully she'll be with you for years to come.  I lived far away from my mom but made several trips to see her during the 18 months she was sick.  I am so happy that i took the time to do that now. Send me emails if you want to talk or vent.  I know it's hard to go through this.

 

Thanks for your message . I posted that in Sept. '07. My Mom passed away June 15th '08. She never had any remission and all chemo tx made her extremely weak. She was bedridden from Dec.- Feb. The oncologist said he had never seen anyone respond that way to chemo. She finally started walking again only for the dreaded disease to spread to her lungs. She had an operation to drain the pleural fluid. The tubes the doctor placed had to be drained daily. She was in excruciating pain at the end.I spent alot of time with her, unfortunately, much of it was in the hospital. I prayed she would have some "good" days, but never got the chance. I miss her terribly. She didn't deserve this - no one should have to endure ten months of suffering. As others have said on this message board before, much more research and awareness must be given to PPC! 

I'm so sorry for your loss!  I hadn't notice the older posting date and thought it was posted more recently.  Yes, this is just a terrible disease and i agree that we need more research to figure out how to combat it better.  I will keep you in my prayers and hope you find peace in the happy memories you have of your mom.