I have recently been diagnosed with Precursor B-Cell Acute Lymphoblastic Non-Hodgkins Lymphoma/Leukemia. I was wondering if anyone else has had a similar experience and would like to share some info. I am a 31 year old male. Started my first treatment a couple weeks ago at Duke. I am on an alternating Hyper-CVAD w/intrathecal and CHOP regimen for 8 months then another 1 ½ years of maintance chemo. Even though they say it's a lymphoma it is acting like a leukemia and is only present in my bone marrow and nowhere else in my body. Which I'm thinking is a good thing. Up until a week after chemo all my blood work including my LDH has been normal. The reason I went to the doctor was I had some leg pains at night for a few months and my fiance thought it might be a sciatica. But then I started have night chills followed by sweats so she told me to get a second opinion. The next doctor did the blood work which was normal and then a couple weeks later I had the MRI which found the tumors, lesions, or whatever they are in my bone marrow. Besides that I feel fine and don't feel sick at all. Even after the first round of chemo it hasn't been too bad. Besides a little nausea and tired spells. Any input on my scenario would be greatly appreciated.
Thanks
Chris