Advice For Wife Of Husband With With Stage Iv Glioblastoma

My husband has been diagnosed wtih Stage IV glioblastoma, very aggressive.  He will be leaving for Sloane Kettering in NYC for treatment.  It has been one month now since paralysis started in the left side of his body, biopsy, rehab and now facing treatments to start.  I am holding up, but being a chronic pain patient myself, I am so tired I could drop most of the time, and beginning to feel right on the edge with my nerves and what this has done to me emotionally.  He is my very best friend, love of my life, my rock and father of my children.  I am a believer, and would loose my mind if not for that faith, but need support and to hear from others, how you cope, anything to help the pain inside.  To all those suffering as myself, my prayers are with you, I am so sorry.  It is hard for me to get him to talk about his feelings, perhaps he is not ready yet.  We were able to cry last night, really cry, for the first time since this all started, as he came home yesterday for a couple of days before leaving for treatment.  Help. 

Hi, I know this is tough for you and your family.  My mother died of this tumor.  She had it in her brain and when diagnosed was given 9 months.  They tried surgery and chemo but it didn't help.  She was a psychologist and that's what hurt the most.  She worked so hard to get her PhD and then to lose it.  Mom's tumor effected her speach but we were able to manage to communicate.

We were able to sit down and talk alot before she wasn't able to.  We made her funeral arrangements, went to the store and shopped for her outfit.  Catherine's really loved her especially when she would come out in her outfit and come out and cross her arms and close her eyes and say how does this look.  They weren't sure what she was doing until I explained, but they still kinda of looked at us funny.

I can't really give you any advice except appreciate each moment which I'm sure that your doing now and talk alot, if he can write memories or letters to his family members.  But I'm sure that you've already done these things. 

 The only thing that made me sad was that my Mother didn't have a husband to comfort her in her last days, and we had to put her in a nursing home because it was impossible to take care of her at home.  But I was with her every night and all day on weekends.

I know that the good Lord will keep you in his comforting arms, that he loves you both and you just have to have faith and get lots of support from all of those who are around you.

If I can be of any help or support by email I'll be here.  God Bless.