Just Got The News

Well, the doctor missed it 6 months ago, lots of blood and clots in my urin, Was told it was a swollen prostate, 3months later staretd again. went threw 2 cat scans and the cystcopicy, 3 times, it was fanaily found, Dr said it was flat thats why he missed it 6 mths ago, Now after the pathologiy was done, i was told it was invasive, how invasive, ??? just invasive. 2 more cat scans and a bone scan to go, then a meeting with the doctor. any body have any thoughts and maybe a good doc in western mass

Joeburg55

You should also probably get a PET scan since it is more sensitive to ruleout lymphnodes and distant disease.

If Localized then you have two choices;

Radical Cystectomy

Chemo Radiation to try to spare the bladder

If in the lymphnodes then I would still do the Chemo Rads and you can still be cured.

Chemo Radiation is done in this way;

You get 5.5 weeks of irradiation concurrently with two cycles of Cis plat and 5FU.  Wait one to two weeks and recystoscope.  If tumor is gone or nearly so, then continue with one more cycle of Chemo Rads.  If no response or little then you go to cystectomy.

If you go the bladder sparing route, then you have be committed to close followup.  If the tumor recurs and is superficial (some are) then you can treat it with intra bladder chemo (BCG) and still keep your bladder.  If invasive then you need surgery.

thanks for the info, just to let you know i have spoken to the doctor,  i had a bone scan done, and another ct of my upper area, doctors says no sign anywhere else. felt chemo and rad was next course, turmor has been removed, so it looks like were going in that direction, also read up on pet scan, hopefully it will be donethanks for your reply

 

 

On 3/13/2007 Joeburg55 wrote:

Well, the doctor missed it 6 months ago, lots of blood and clots in my urin, Was told it was a swollen prostate, 3months later staretd again. went threw 2 cat scans and the cystcopicy, 3 times, it was fanaily found, Dr said it was flat thats why he missed it 6 mths ago, Now after the pathologiy was done, i was told it was invasive, how invasive, ??? just invasive. 2 more cat scans and a bone scan to go, then a meeting with the doctor. any body have any thoughts and maybe a good doc in western mass

Joeburg55

i also had alittle hematura and a couple of small cots. went for physical and nothing further was checked. 1and 1 half years later with a little more of the same symptoms i went to a different dr for another physical. he sent urine to lab and it came back suspicious in the simple spin test. turns out i have t1 grade 3 tis and tcc with papillary tumors. what type and grade is yourcancer? invasive should mean only one thing. that it is through the lamina propria and into the muscle layer. otherwise it shouldn't be labeled invasive. if it is a flat field of cancer cells on the inner lining it would be carcinoma in situ. eithe way there was absolutely no excuse for missing this for you or for me upon your 1st visit. it most certainly would of shown up on the spin test or if not that a fish[urovision ] test. you will have to be proactive to help yourself. read everything you can on only the exact symptoms,grade, stage, and type of your cancer. if it turns out it has not invaded the muscle, start 6 instillations of bcg[ immunotheropy, this is not chemo] immediately. if this is not completelyeffective after 3 mnths start 6 instillations of bcg/interfuron for 6 wks. go to bladder cancer website cafe'. find dr lambs site. or dr odonnell.both are world renowned in this field. do not delay. and do not take what one dr alone says.  by the way, although my cancer was not invasive, [it had not gotten to the mucsle layer] it was still grade 3 highly aggressive. 3 turb's, 6 wks bcg,6 wks bcg/intron, mitomycin after each turb, and i am now clear. however i will start on dr lambs protocal theropy soon and try and keep it at bay. take oncovite, amust during this time period. good luck and let me know how you make out. ernie

 

Hello
I am going for a cystocopy tommorow, and I am very nervous, I was curious to know if you had any Symptons ,,, what I have been having is alot of Urinary tract infections and alot od pain , there are times when I cannot urinate!! In 2005 I went to se an urilogist who at that time told me my Bladder was functioning at 50% of it capacity!! He did nothing but precribe me antibotics,, to take after sex,,,??? this kept on and infection after infection,, Now I found another Doctor who seems to be more intersted in my case,, I also hgave devloped a lump under my left arm,, ( Lymp Node Perhaps)????? Any information you can tell me would be apprecaited

God Bless

Please e-mail; me at

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Not the e-mail you will recive this from,,

God Bless |

Susan

On 3/13/2007 Joeburg55 wrote:

Well, the doctor missed it 6 months ago, lots of blood and clots in my urin, Was told it was a swollen prostate, 3months later staretd again. went threw 2 cat scans and the cystcopicy, 3 times, it was fanaily found, Dr said it was flat thats why he missed it 6 mths ago, Now after the pathologiy was done, i was told it was invasive, how invasive, ??? just invasive. 2 more cat scans and a bone scan to go, then a meeting with the doctor. any body have any thoughts and maybe a good doc in western mass

Joeburg55