Stage 4 is curable??

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Stage 4 is curable??

by Bekasmom on Tue Mar 13, 2007 12:00 AM

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I am soooo confused!  I found out 2 weeks ago that my mother has NSCLC.  I wasn't getting much information from my step-father, so I contacted the Dr.'s office directly.  The nurse I spoke with told me that they mentioned in her chart about palliative radiation and chemo.  We are still awaiting the results of the CT, but I was told that it appears to have spread to her adrenal glands. 

My step dad is telling me that this is curable...but from everything I have been reading, the prognosis for people with stage 4 is less than a year.   I realize that this is an average, and that everybodies cancer is different...but I am almost positive that there is not a cure...

This is so difficult for me since my mom is in Georgia and I am here in Florida...

 Any advice would be appreciated!!

 Dawn

 

RE: Stage 4 is curable??

by Cptmac on Tue Mar 13, 2007 12:00 AM

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Although I don't have NSCLC, I was diagnosed with Stage IV colon cancer with mets to the liver in '04.  The initial Dr.'s I saw said I could die at any moment, but that I had could live up to 18 months tops with surgery.  As you can tell, I came through with flying colors. 

You need to go see a top Dr. at a top hopital.  That's what I did, and I truly believe that's what made all the difference. 

 

 

RE: Stage 4 is curable??

by Dothedewmom on Tue Mar 13, 2007 12:00 AM

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I am very sorry to hear about your mothers DX. My mother was told in Jan07 that she is in stage 4 nsclc. She has a tangerine size tumor in her right lung as well as three others (one is also on her adrenal gland, so now she is having problems with her sugars). Anyway everything that my doctor has told my mother concurrs with what I have researched on the internet. The reality is that the doctors don't know. These numbers they give you are based on numbers. My mother is taking Alimta so her treatment is for quality not quantity. Her doctor told her that he has had patients who also took this medicine that didn't live as long as she has after being DX and then he has a patient that is on the same set up same cancer senario and is in his third year on treatment. The problem is everyone's cancer is different and not everyone reacts the same way to the same treatments. See for my mother radiation and surgery are not an option. Miracles happen everyday. The important thing to do is to make sure you ask your doctor questions. Question every decision he/she makes. Ask about alternative options. One thing I thought was VERY funny at this last visit was I asked my mom's doc if he would take chemo and he couldn't give me a straight answer. So I think that also leaves something to think about. You are in my prayers. Just don't give up hope for that is the worst thing for your mother.

RE: Stage 4 is curable??

by Patty59 on Tue Mar 13, 2007 12:00 AM

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On 3/13/2007 Cptmac wrote:

Although I don't have NSCLC, I was diagnosed with Stage IV colon cancer with mets to the liver in '04.  The initial Dr.'s I saw said I could die at any moment, but that I had could live up to 18 months tops with surgery.  As you can tell, I came through with flying colors. 

You need to go see a top Dr. at a top hopital.  That's what I did, and I truly believe that's what made all the difference. 

 

 


 

Your message of hope is just what people need to hear.  Unfortunately the doctors are quoting statistics when people need to know about the people that do survive Stage 4.

My husband has recently been dxd stage 4 colon cancer with 1 met to the liver.  The CT scan didn't see the met, the colon surgeon saw when she operated.  

As we live  in Canada, we have to push to get the newest treatments such as Avistan, so now we need to decide what drug protocol to go for.

What chemo treatments and/or surgeries did you have?

I'd appreciate any info you could give us.

Pat 

 

 

 

 

 

 

 

 

RE: Stage 4 is curable??

by Cptmac on Tue Mar 13, 2007 12:00 AM

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What chemo treatments and/or surgeries did you have?

They found my liver mets when I had a CT.  When I went to the University of MN I had many options.  I chose to have my colon surgery on August 13, 2004.  I then had my liver surgery and had a HAI pump inserted to pump chemo directly to my liver on September 13, 2004.  Once I recovered from that I used Irinotecan as systemic therapy and I had FUDR inserted into my pump directly into my liver. 

I went back to work during the chemo.  I went off chemo in mid June of '05.  So far, so good.  I certainly have not had to struggle or battle cancer.  I feel that all I've done is show up for my appointments and get over my fear of needles. 

Let me know if you have any other questions. 

 

 

RE: Stage 4 is curable??

by Kenny_From_Kansas on Wed Mar 14, 2007 12:00 AM

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On 3/13/2007 Bekasmom wrote:

I am soooo confused!  I found out 2 weeks ago that my mother has NSCLC.  I wasn't getting much information from my step-father, so I contacted the Dr.'s office directly.  The nurse I spoke with told me that they mentioned in her chart about palliative radiation and chemo.  We are still awaiting the results of the CT, but I was told that it appears to have spread to her adrenal glands. 

My step dad is telling me that this is curable...but from everything I have been reading, the prognosis for people with stage 4 is less than a year.   I realize that this is an average, and that everybodies cancer is different...but I am almost positive that there is not a cure...

This is so difficult for me since my mom is in Georgia and I am here in Florida...

 Any advice would be appreciated!!

 Dawn

 


hello dawn my name is kenneth guye and i have stage 4 lung cancer and i had chemo, radiation and they cut out part of my brain. this happened 29 months ago . and since then all CT scans and MRI.  have come back great. i now take a targeted chemo drug called TARCEVA .it is not cheap  but you can't put i price on your life.I hope this insite will help.it is possible to live if you think you CAN. i live in atlanta, ga.  if you need help feel free to contact me --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

  i will give you ALL of my contacts that helped me and still do to this day.

RE: Stage 4 is curable??

by Densdaughter on Wed Mar 14, 2007 12:00 AM

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On October 11, 2001, my father was diagnosed with stage IV small cell lung cancer; I know you are dealing with non-small cell cancer, but I thought you might get some comfort from my story, none-the-less.

Dad was told he had between two weeks and two months to live, and that he shouldn't bother having treatment -- that pallative care was all there was for him, given his condition.  At diagnosis, one lung was so full of cancer that it didn't even show up on an x-ray; it had metastasized, and a tumor had wrapped itself around his heart, squeezing his heart and causing heart attacks.  The diaphragm had completely separated from one of his lungs.  He had lost so much weight and looked so sick -- because he was, of course.

Anyway, my father decided to fight, after all.  He recieved chemo and radiation, and his body responded very well to the treatment.  To prevent the cancer's spread to his brain, he had prophylactic cranial irradiation (which is what brought me to this site -- I'm hoping to find some info on the long-term effects of PCI, as he seems to have some neuro side effects that one might attribute to the PCI).

Anyway, my father is still alive and cancer free.  He now has four grandchildren (well, three -- I'm due in a few weeks and that'll make four) who adore him -- and vice-versa.  He's doing very, very well.

So my point is this.  Everyone is different.  Everyone's cancer is different.  And -- and I think this is important -- statistics, by definition, do not include you!  Statistics are the result of other people's unique experiences and disease.  So take heart, because while there are no guarantees, there *could* be a cure for your family member -- or at minimum, long-term survival.

Going on six years after being "given" two weeks to two months to live, being told to get his affairs in order, etc., my father is still alive and cancer free.

So try to stay hopeful, because that seems to matter to the patient's mindset, which just make make a difference, as well.

I wish you all the best.
Den'sDaughter

RE: Stage 4 is curable??

by Hubbie on Wed Mar 14, 2007 12:00 AM

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My wife was dx with stage4 nonsmall cell lung cancer in 12/05. She had chemotherapy and then chem with radiation. Right now she has no measurable disease and has just started Tarceva. It is worth fighting as there is hope. Some are cured though doctors don't like to mention it as most aren't. Live is too precious to give up fighting and hoping.

RE: Stage 4 is curable??

by Bekasmom on Wed Mar 14, 2007 12:00 AM

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Thanks everyone for your advice and support.  I guess it all boils down to this..if she does nothing...she will certainly die...if she fights it, its time we will have.  I live in Florida so I won't get to see her as much as I would like....so fighting is good :)

 I am really concerned about the chemo.  My step dad told me that they are doing an aggressive protocol....I am worried that she will not be strong enough to handle the chemo and/or its side effects.  She weighs less than 100 pounds at present.  They have been trying to get her to eat more. 

I guess I really need to stop worrying and trust that the Dr's know what to do..and that the Lord will watch over her.

 

 

RE: Stage 4 is curable??

by Motherhen on Wed Mar 14, 2007 12:00 AM

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How can we not worry?  They're our parents.  My mom was dx feb. 06 with nsclc with met to brain and bone.  wanna know the kicker?  She had ZERO symptoms except for a little shoulder pain.  She did radiation(Brain and shoulder) and chemo.  she went from lively, funny and 194 pounds to confused, forgetful and 135 pounds.  It was a horrible transformation.  June 06 was her last chemo.  All appointments went good.  We were going for quality of life, not quantity.  Jan 07 check-up showed tumors growing again.  She started Tarceva (Fe. 07) and her tumor marker in her bloodwork went from 40 to 12.  So, she has survived over 1 year after diagnose.  Oh by the way, the pain in the shoulder was cancer, however, for a year(2005) she was told it was a muscle strain, soft tissue injury, etc.. then in 2006, she changed health care, they did a x-ray of the shoulder and BAM!  There was the tumor, in her lung.  Cancer sucks, no matter waht kind or who has it.  It just plain sucks.  This website has taught me a lot and I hope my sharing my experiences helps others or renews their drive to fight that monster!  Good luck.

Gretchen

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