Dear Eva
I am SO Sorry for all that you and your husband are enduring.. it pained me so to read your story. I can only begin to imagine your pain and frustration.
You are right that they will treat you as naive for your age. Do not let anybody do that to you. That is what caused your husbands misdiagnosis. Because you were so young and didn't fit the norm. They were all extremely neglegent in there treatment of you.
I am 41 and currently undergoing tests. It has taken me 5 children and this many years to realize that my health is in MY hands. I do still take more than I should probably. But the end result I will not TRUST if I am not comfortable with it.
I pray for the strnegth for you and your husband to get through this and to be able to stand up to anyone who tries to lesson your suffering or make it something other than what it was.. THEY are responsible not you. You did everything right.. Even being so young.. you took his symptoms seriously and responded to them and persued it! They were extremely neglengent!
Hang in there and be strong.. I will remember you and your husband in my prayers.
May God Bless you both
Carol