Treatments? Advanced Liver Cancer.

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RE: Treatments? Advanced Liver Cancer.

by Teachme on Fri Apr 06, 2007 12:00 AM

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My 37-year-old husband was also diagnosed with HCC (due to Hep B), a very aggressive form, with a 15-cm tumor on his liver.  He recently underwent a liver resection and is slowly recovering.  He's been taking chinese herbs and going through acupuncture, which has helped with his extreme fatigue and pain.  Now.. we are looking at something that is called, Glyconutrients.  Please visit www.glycoscience.org and www.mannatech.com for more information on how it could be beneficial to you.  We've talked with our oncologist and he's heard of it from a fellow surgeon/colleague who recommends it to his own patients (some with cancer).  From what I've learned, it cannot hurt, but only help.  Try it.  We are.  Tonight is the first night we're taking the supplements.  Hopefully, somewhere down the road, we'll see positive results. 

RE: Treatments? Advanced Liver Cancer.

by Teachme on Fri Apr 06, 2007 12:00 AM

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Please try looking at www.glycoscience.org and www.mannatech.com for more information on these nutritional supplements.  I've heard it's helped people with heart conditions, diabetes, to cancer patients, and many more!

 

 

RE: Treatments? Advanced Liver Cancer.

by Kathyhillego on Sun Apr 08, 2007 12:00 AM

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On 3/21/2007 al al wrote:

Hi,

My father-in-law was diagnosed this pass friday with primary liver cancer (HCC), due to hept.B.  The cancer is in its advanced stage and is 9mm.  the Dr. in Uath have pretty much told him that there is nothing they can do for him.  Our family (wife) is taking this very hard...as you migh imagin. Along with getting a 2nd opinion they are looking into alternative medicine, which I think is a waste of time, but at a time like this I guess people turn to what ever may work?  What treatments are out there?  He has no pain and doesn't look sick as of yet.  Any info is good info.

 Thank you


I wish you and your family the best in coping with a primary liver cancer diagnosis.  My brother was diagnosed with primary liver cancer in September 2006 due to Hepatitis C which he contracted via blood transfusions back in the early 1980's.  He was on kidney dialysis at the time which led to me donating a kindey to him.  He enjoyed good health for 24 years with my kidney.  He passed away a few weeks ago due to primary liver cancer.  He went through three rounds of treatment, radioactive glass beads.  After the first treatment we were extremely optimistic.  Eventually, the damn tumors continued to grow and the treatments could not do enough.  After his third treatment we were told that's it, nothing more they can do.  When you have Hep C a liver transplant is not possible.  We took the journey of hope and yet...., I lost my brother due to primary liver cancer.  He struggled to survive, he only wanted to get better and go back to work.  One his biggest challenges was fluid retention which led to all sorts of misery.  From the time of diagnosis, he lasted six months.  The pain and suffering my wonderful brother went through was horrible.  The elevated amonia levels eventually led to coma, the fluid build up created terrible breathing problems and we lost him.  A cure for hepatitis C must be found along with a cure for primary liver cancer.  A small percentage of those diagnosed with hepatitis C develop primary liver cancer which is fatal.  We knew all along the outcome, however, it is still so hard to believe I lost my brother.   

RE: Treatments? Advanced Liver Cancer.

by Lennie on Sat Apr 14, 2007 12:00 AM

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Hi Kathy - I am so sorry for your loss..your brother is now in a better place and is pain free..My 42 yr old husband is fighting for his life. He

was dx with HCC due to Hep B and non alcoholic cirrhosis..he is now

undergoing chemo treatments plus chemo pills..but 2 wks ago I found

him early morning in a state of semi-comatosed and was told that his

ammonia level went thru the roof overnight ..we had dinner the night before

and he was lucid , normal and very alert and in those few hours after he

went to bed..it was a drastic turn of events..thankfully he is doing better

and is now taking lactulose to control the ammonia level in his blood..

I am so sad reading your blog about your beloved brother..am I seeing

the future for my dear husband? Lord,,I pray for a miracle everyday!

Thanks for listening.. Lennie

RE: Treatments? Advanced Liver Cancer.

by Kathyhillego on Wed Apr 18, 2007 12:00 AM

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My brother was diagnosed with primary liver cancer due to Hepatitis C in September 2006.  His symptoms, feeling full no matter how little or how much he ate and consistent belching/burping. 

He contracted Hep C from blood transfusions in the early '80's while on kidney dialysis.  Back then, blood was not screened for disease.  I donated kidney to him in 1983. 

My brother was treated at Northwestern Memorial in Chicago via three rounds of radioactive glass beads to shrink the tumors.  And so began the journey of hope.  In the beginning we were optimistic...., the tumors were stubborn and could not be controlled. 

After much suffering, my brother passed away March 2007.  Fluid retention was a huge problem that casued a great deal of discomfort and immobility.  Eating was a challenge for months due to the fullness feeling.  Elevated liver amonia levels and pain medication created a coma like state toward the end.  I wish all of you the best.  Stay strong.

RE: Treatments? Advanced Liver Cancer.

by Kathyhillego on Sat Apr 28, 2007 12:00 AM

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Hi!  My brother was diagnosed with primary liver cancer in September 2006 due to hepatitis C.  He contracted hep C back in the early '80's while he was on kidney dialysis.  I donated a kidney to him in 1983. 

Hepatitis C is strange, it lays dormant for decades and by the time symptoms appear it's likely too late.  Prior to my brother's diagnosis he complained about feeling full all the time regardless of how much he ate.  A biopsy confirmed primary liver cancer. 

He went through three treatments of radioactive glass beads.  Initially, we were hopeful, the tumors shrank somewhat.  After his third treatment, the doctors said there was nothing more they could do.  A liver transplant was ruled out because of the hepatitis C. 

His appetitie continued to be problematic because he was always feeling full.  Fluid retention in his abdomen was in issue four months after diagnosis.  The fluid retention continued to be probelmatic.  Fluid build up made him extremely uncomfortable and eventually was pressing on his diaphram and leading to shortness of breath.  The amonia levels in his liver continued to escalate making him somewhat incoherent at times along with the pain medication.

My brother, my friend, passed away in March 2007.  Not many survive liver cancer.  My thoughts are with you.  It is truly horrible to watch someone you love die.  You are so helpless.  Just make sure you are there for that person.  Hold their hand, talk with them.  It hurts so much.  Obtain hospice care, you cannot do everything.  It's okay to let go and say so long, see you later.  We are all here for a certain amount of time, some of us longer than others.  Suffering is no life.  You will always have this person alive in your heart.  Take care and stay strong. 

RE: Treatments? Advanced Liver Cancer.

by Cyndiandjack on Mon May 07, 2007 12:00 AM

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On 3/23/2007 al al wrote:

Thank you, he hasn't started treament as of yet.  Thanks for the info I'm this will get the ball rolling.

 Has anyone heard of a herbal med. called Tian Xian from china??


 

with any diagnoise of final stage liver cancer please go to massachusetts general boston,mass a dr.suddiqui does the therasphere my brother just had it done very easy to take and it offers lots of hope and extended life he was only given months to live and those months have passed and hes still here feeling great ct scan tomorrow will let you know that outcome its another chance at least for some more time please don't give up there is some hope with this cyndi

RE: Treatments? Advanced Liver Cancer.

by Suzannecca on Tue May 08, 2007 12:00 AM

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Hi...I have stage IV colon cancer with liver mets.  I also had a very dire prognosis in the beginning but am living well with cancer.  Don't take only one opinion without looking for options.  Chemo is always a possibility.  I had innumerable tumors throughout both lobes of my liver and just over two years ago had a procedure called SIR-spheres.  It is an outpatient procedure that is performed under conscious sedation used for both primary liver cancer and liver metastases.  Within months I had 30% reduction and over a six month period 65% reduction in tumors with complete stability since.  I would not be here had it not been for this procedure.  You can find out more at www.y90support.org and read other survivor stories.  There are also links to treatment centers and support.

Good luck!  And don't give up, Suzanne

RE: Treatments? Advanced Liver Cancer.

by hibabydoll9 on Sun Jul 29, 2007 12:00 AM

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Hi Suzanne - my mom (55 yrs old) was diagnosed with stage 4 colon cancer mets to the liver (may 2006).  She had the tumor from her colon tumor removed and was doing well for almost a year with various chemo meds.  But just recently was found out that her tumor mets to her ovary (size of a cantaloupe).  She had a hysterectomy done on wednesday (7/25).  Unfortunately the doctors could not remove any tumors from her liver (too many and a hight risk to her life) so they left them alone.  They said she is at an advanced stage of cancer now.  You mentioned SIR-spheres procedure.  What exactly is it?  We are hoping tho find other treatment options.  My mom is very strong and has a great support system going but I am afraid that the pain she is feeling from the liver will depress her and the fact that the doctors could not debulk anything will not be god for her outlook on life.  

If anyone has any advice please share!

Thanks and God bless

Irene 

RE: Treatments? Advanced Liver Cancer.

by LookGlobal on Wed Jan 16, 2008 12:00 AM

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You state that the cancer is 9 mm . Dop you mean 9 mm or 9 cm?

9 mm would be very small and easily removable.

Please clarify.

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